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  • Review Article
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End-of-life care—what do cancer patients want?

Key Points

  • Patients diagnosed with cancer frequently experience multiple burdensome physical symptoms and psychological distress, particularly at the end of their lives

  • Provision of palliative care for patients with advanced-stage cancer is crucial, and needs to be delivered early and in an integrated manner alongside oncological treatments

  • Most patients with cancer want to be cared for at home and, if possible, want to die at home

  • Community palliative care teams improve symptoms and enable patients to be cared for at home

  • Advance care planning is a cornerstone of effective end-of-life care, and falls within the remit of oncologists, community services and specialist palliative care teams

Abstract

Patients with cancer frequently suffer from debilitating physical symptoms and psychological distress, particularly at the end of life. Interventions to help alleviate these problems are often complex and multifactorial. Palliative care services and therapeutic interventions have developed in a variable manner, often with limited evaluation of clinical effectiveness and affordability, resulting in a relatively weak evidence base. The health care provided to patients with advanced-stage cancer does not always correlate with what is known about their preferences for care. In this Review, we discuss the preferences of patients with cancer regarding their end of life care, including the importance of early provision of palliative care, and the central role of advance care planning in meeting patients' preferences. It has been shown that many patients with cancer wish to die at home. We discuss the factors that contribute to the place of death, including environmental factors, disease-specific issues, and the availability of resources. There has been a recent upward trend in the number of patients with cancer who die in their preferred place of care, and important contributors—such as community palliative care, advance care planning, and improvements in palliative care services as a result of robust research studies—are considered.

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S. A. Khan researched the data for the article and wrote the manuscript. All authors made a substantial contribution to discussion of content, and reviewed and edited the manuscript before submission.

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Khan, S., Gomes, B. & Higginson, I. End-of-life care—what do cancer patients want?. Nat Rev Clin Oncol 11, 100–108 (2014). https://doi.org/10.1038/nrclinonc.2013.217

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