Background
Method
Recruitment of participants
Interviews
Consent procedure
Measure
Camberwell Assessment of Need for the Elderly (CANE)
Data analysis
Results
Participants
Demographic | Characteristic | % |
---|---|---|
Age (years) | 60-64 | 2.6 |
65–79 | 42.8 | |
80-94 | 54.6 | |
Gender | Male | 48.7 |
Female | 51.3 | |
Ethnicity | White | 98.7 |
Black | 0.7 | |
Asian | 0.7 | |
First Language | English | 97.3 |
Other | 2.7 | |
Level of Education | Higher Education | 20.3 |
Secondary | 75.6 | |
Below Secondary | 4.1 | |
Marital Status | Single | 2.0 |
Married/Living with a partner | 55.3 | |
Separated/Divorced | 4.6 | |
Widowed | 38.2 | |
Living Situation | Lives Alone | 32.9 |
Lives with Others | 67.1 | |
Has a Caregiver | Yes | 90.1 |
No | 9.9 |
Demographic | Characteristic | % |
---|---|---|
Age (years) | 40-64 | 46.3 |
65–89 | 52.8 | |
90-100 | 0.8 | |
Gender | Male | 28.9 |
Female | 71.1 | |
Marital Status | Single | 4.7 |
Married/Living with a partner | 89.8 | |
Separated/Divorced | 3.9 | |
Widowed | 1.6 | |
Caregiver Relationship | Spouse | 64.1 |
Children | 30.5 | |
Other relative | 3.9 | |
Friend | 0.7 | |
Co-resident Caregiver | Yes | 74.0 |
No | 26.0 |
Needs rated by professionals
Needs rated by caregivers
Needs rated by people with dementia (users)
Comparison of total number of needs by different informants
Comparing professional and user ratings of individual areas of needs
Professional (rater) vs user (n = 125) | Rater met need (%) | User met need (%) | Rater unmet need (%) | User unmet need (%) | K | K/ Km
|
---|---|---|---|---|---|---|
Accommodation | 8 (6.4) | 6 (4.8) | 11 (8.8) | 6 (4.8) | 0.65** | 0.87 |
Looking after home | 96 (76.8) | 79 (63.2) | 10 (8.0) | 3 (2.4) | 0.53** | 0.91 |
Food | 102 (81.6) | 93 (75.0) | 7 (5.6) | 0 (0.0) | # | # |
Self-Care | 68 (54.4) | 42 (33.6) | 11 (8.8) | 0 (0.0) | # | # |
Caring for another another | 0 (0.0) | 0 (0.0) | 0 (0.0) | 0 (0.0) | # | # |
Daytime Activities Activities | 36 (28.8) | 22 (17.6) | 68 (54.4) | 18 (14.5) | 0.21** | 0.66 |
Memory | 117(93.6) | 90 (72.0) | 7 (5.6) | 3 (2.4) | # | # |
Eyesight/Hearing Hearing | 36 (28.8) | 35 (28.0) | 29 (23.2) | 15 (12.0) | 0.68** | 0.85 |
Mobility | 41 (32.8) | 32 (25.6) | 14 (11.2) | 4 (3.2) | 0.64** | 0.91 |
Continence | 23 (18.4) | 15 (12.0) | 8 (6.4) | 3 (2.4) | 0.66** | 0.96 |
Physical Health Health | 86 (68.8) | 61 (48.8) | 6 (4.8) | 6 (4.8) | 0.61** | 0.97 |
Drugs | 84 (67.2) | 58 (46.8) | 9 (7.2) | 2 (1.6) | 0.51** | 0.98 |
Psychotic Symptoms | 10 (8.0) | 6 (4.8) | 10 (8.0) | 5 (4.0) | 0.68** | 1.00 |
Psychological Distress | 23 (18.4) | 20 (16.0) | 44 (35.2) | 27 (21.6) | 0.61** | 0.85 |
Information | 27 (21.6) | 11 (8.8) | 12 (9.6) | 16 (12.8) | 0.50** | 0.71 |
Deliberate Self-Harm Self-Harm | 3 (2.4) | 1 (0.8) | 8 (6.4) | 7 (5.6) | 0.83** | 1.00 |
Accidental Self-Harm Self-Harm | 28 (22.4) | 12 (9.6) | 19 (15.2) | 7 (5.6) | 0.42** | 0.86 |
Abuse/Neglect | 11 (8.8) | 3 (2.4) | 4 (3.2) | 1 (0.8) | 0.40** | 1.00 |
Behaviour | 7 (5.6) | 3 (2.4) | 5 (4.0) | 0 (0.0) | # | # |
Alcohol | 3 (2.4) | 2 (1.6) | 3 (2.4) | 0 (0.0) | # | # |
Company | 15 (12.0) | 10 (8.0) | 52 (41.6) | 16 (12.8) | 0.37** | 0.84 |
Intimate Relationships | 4 (3.2) | 3 (2.4) | 11 (8.8) | 6 (4.8) | 0.77** | 1.00 |
Money | 96 (76.8) | 67 (53.6) | 2 (1.6) | 1 (0.8) | 0.51** | 1.00 |
Benefits | 11 (8.8) | 5 (4.0) | 1 (0.8) | 0 (0.0) | # | # |
Comparing professional and caregiver ratings of individual areas of needs
Professional (rater) vs caregiver (n = 125) | Rater met need (%) | Caregiver met need (%) | Rater unmet need (%) | Caregiver unmet need (%) | K | K/ Km
|
---|---|---|---|---|---|---|
Accommodation | 8 (6.5) | 9 (7.3) | 11 (8.9) | 10 (8.1) | 0.97** | 1.00 |
Looking after home | 104 (83.9) | 108 (87.1) | 7 (5.6) | 2 (1.6) | 0.84** | 1.00 |
Food | 108 (87.1) | 106 (86.2) | 4 (3.2) | 4 (3.2) | 0.97** | 1.00 |
Self-Care | 70 (56.5) | 72 (58.1) | 12 (9.7) | 9 (7.3) | 0.96** | 1.00 |
Caring for another another | 0 (0.0) | 0 (0.0) | 0 (0.0) | 0 (0.0) | # | # |
Daytime Activities Activities | 40 (32.3) | 42 (33.9) | 64 (51.6) | 51 (41.1) | 0.76** | 0.89 |
Memory | 116 (93.5) | 117 (94.4) | 7 (5.6) | 7 (5.6) | 0.85** | 0.85 |
Eyesight/Hearing Hearing | 34 (27.4) | 37 (29.8) | 27 (21.8) | 25 (20.2) | 0.93** | 0.97 |
Mobility | 43 (34.7) | 47 (37.9) | 10 (8.1) | 6 (4.8) | 0.94** | 1.00 |
Continence | 29 (23.4) | 29 (23.4) | 6 (4.8) | 6 (4.8) | 1.00** | 1.00 |
Physical Health Health | 81 (65.3) | 80 (64.5) | 7 (5.6) | 6 (4.8) | 0.95** | 0.98 |
Drugs | 84 (67.7) | 86 (69.4) | 9 (7.3) | 6 (4.8) | 0.95** | 1.00 |
Psychotic Symptoms | 12 (9.7) | 13 (10.5) | 11 (8.9) | 9 (7.3) | 0.95** | 1.00 |
Psychological Distress | 23 (18.5) | 26 (21.0) | 36 (29.0) | 33 (26.6) | 0.93** | 0.97 |
Information | 28 (22.6) | 25 (20.2) | 10 (8.1) | 13 (10.5) | 0.95** | 1.00 |
Deliberate Self-Harm Self-Harm | 3 (2.4) | 3 (2.4) | 6 (4.8) | 6 (4.8) | 1.00** | 1.00 |
Accidental Self-Harm Self-Harm | 30 (24.2) | 30 (24.2) | 15 (12.1) | 13 (10.5) | 0.94** | 0.97 |
Abuse/Neglect | 10 (8.1) | 10 (8.1) | 2 (1.6) | 2 (1.6) | 1.00** | 1.00 |
Behaviour | 9 (7.3) | 9 (7.3) | 5 (4.0) | 5 (4.0) | 1.00** | 1.00 |
Alcohol | 3 (2.4) | 3 (2.4) | 3 (2.4) | 3 (2.4) | 1.00** | 1.00 |
Company | 14 (11.3) | 17 (13.7) | 44 (35.5) | 37 (29.8) | 0.87** | 0.97 |
Intimate Relationships | 4 (3.2) | 4 (3.2) | 9 (7.3) | 8 (6.5) | 0.96** | 1.00 |
Money | 101 (81.5) | 101 (81.5) | 3 (2.4) | 3 (2.4) | 1.00** | 1.00 |
Benefits | 12 (9.7) | 11 (8.9) | 1 (0.8) | 1 (0.8) | 1.00** | 1.00 |
Comparing user and caregiver ratings of individual areas of needs
User vs caregiver (n = 108) | User met need (%) | Caregiver met need (%) | User unmet need (%) | Caregiver unmet need (%) | K | K/ Km
|
---|---|---|---|---|---|---|
Accommodation | 6 (5.6) | 9 (8.3) | 5 (4.6) | 9 (8.3) | 0.58** | 0.79 |
Looking after home | 73 (67.6) | 93 (86.1) | 1 (0.9) | 1 (0.9) | 0.51** | 1.00 |
Food | 81 (75.7) | 91 (85.0) | 0 (0.0) | 3 (2.8) | # | # |
Self-Care | 36 (33.3) | 62 (57.4) | 0 (0.0) | 6 (5.6) | # | # |
Caring for another another | 0 (0.0) | 0 (0.0) | 0 (0.0) | 0 (0.0) | # | # |
Daytime Activities Activities | 20 (18.5) | 35 (32.4) | 14 (13.1) | 46 (42.6) | 0.24** | 0.61 |
Memory | 77 (71.3) | 102 (94.4) | 3 (2.8) | 6 (5.6) | # | # |
Eyesight/Hearing Hearing | 31 (28.7) | 35 (32.4) | 11 (10.2) | 22 (20.4) | 0.66** | 0.86 |
Mobility | 28 (25.9) | 41 (38.0) | 2 (1.9) | 6 (5.6) | 0.64** | 0.94 |
Continence | 15 (13.9) | 23 (21.3) | 1 (0.9) | 6 (5.6) | 0.63** | 0.97 |
Physical Health Health | 51 (47.2) | 72 (66.7) | 5 (4.6) | 5 (4.6) | 0.59** | 0.92 |
Drugs | 51 (47.7) | 79 (73.1) | 2 (1.9) | 5 (4.6) | 0.44** | 0.94 |
Psychotic Symptoms | 6 (5.6) | 10 (9.3) | 3 (2.8) | 6 (5.6) | 0.61** | 0.88 |
Psychological Distress | 17 (15.7) | 24 (22.2) | 20 (18.5) | 32 (29.6) | 0.59** | 0.84 |
Information | 10 (9.3) | 24 (22.2) | 13 (12.0) | 12 (11.1) | 0.48** | 0.67 |
Deliberate Self-harm Self-Harm | 1 (0.9) | 3 (2.8) | 5 (4.6) | 6 (5.6) | 0.79** | 1.00 |
Accidental Self-Harm Self-Harm | 8 (7.4) | 25 (23.1) | 3 (2.8) | 11 (10.2) | 0.34** | 0.87 |
Abuse/Neglect | 2 (1.9) | 10 (9.3) | 2 (1.9) | 2 (1.9) | # | # |
Behaviour | 3 (2.8) | 7 (6.5) | 0 (0.0) | 5 (4.6) | # | # |
Alcohol | 2 (1.9) | 3 (2.8) | 0 (0.0) | 3 (2.8) | # | # |
Company | 8 (7.4) | 16 (14.8) | 11 (10.2) | 34 (31.5) | 0.42** | 0.91 |
Intimate Relationships | 3 (2.8) | 4 (3.7) | 3 (2.8) | 7 (6.5) | 0.74** | 1.00 |
Money | 59 (54.6) | 87 (80.6) | 0 (0.0) | 1 (0.9) | # | # |
Benefits | 10 (9.3) | 5 (4.6) | 0 (0.0) | 1 (0.9) | # | # |