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31.08.2017 | Original Article - Brain Tumors

Multistep translation and cultural adaptation of the Penn acoustic neuroma quality-of-life scale for German-speaking patients

verfasst von: Julia Kristin, Marcel Fabian Glaas, Igor Stenin, Angelika Albrecht, Thomas Klenzner, Jörg Schipper, Katrin Eysel-Gosepath

Erschienen in: Acta Neurochirurgica | Ausgabe 11/2017

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Abstract

Background

Monitoring the health-related quality of life (HRQOL) for patients with vestibular schwannoma (VS) has garnered increasing interest. In German-speaking countries, there is no disease-specific questionnaire available similar to the “Penn Acoustic Neuroma Quality-of-life Scale” (PANQOL).

Method

We translated the PANQOL for German-speaking patients based on a multistep protocol that included not only a forward-backward translation but also linguistic and sociocultural adaptations. The process consists of translation, synthesis, back translation, review by an expert committee, administration of the prefinal version to our patients, submission and appraisal of all written documents by our research team. The required multidisciplinary team for translation comprised head and neck surgeons, language professionals (German and English), a professional translator, and bilingual participants. A total of 123 patients with VS underwent microsurgical procedures via different approaches at our clinic between January 2007 and January 2017. Among these, 72 patients who underwent the translabyrinthine approach participated in the testing of the German-translated PANQOL.

Result

The first German version of the PANQOL questionnaire was created by a multistep translation process. The responses indicate that the questionnaire is simple to administer and applicable to our patients.

Conclusion

The use of a multistep process to translate quality-of-life questionnaires is complex and time-consuming. However, this process was performed properly and resulted in a version of the PANQOL for assessing the quality of life of German-speaking patients with VS.
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Metadaten
Titel
Multistep translation and cultural adaptation of the Penn acoustic neuroma quality-of-life scale for German-speaking patients
verfasst von
Julia Kristin
Marcel Fabian Glaas
Igor Stenin
Angelika Albrecht
Thomas Klenzner
Jörg Schipper
Katrin Eysel-Gosepath
Publikationsdatum
31.08.2017
Verlag
Springer Vienna
Erschienen in
Acta Neurochirurgica / Ausgabe 11/2017
Print ISSN: 0001-6268
Elektronische ISSN: 0942-0940
DOI
https://doi.org/10.1007/s00701-017-3304-z

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