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Orphanet Journal of Rare Diseases

Ausgabe Sonderheft 1/2018

PHARE-M: Quality Improvement Program for Cystic Fibrosis Care in France

Inhalt (9 Artikel)

Open Access Introduction

Strategies for care quality improvement in Cystic Fibrosis

Gilles Rault, Pierre Lombrail

Open Access Research

Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative

Kathryn A. Sabadosa, Marjorie M. Godfrey, Bruce C. Marshall

Open Access Research

Introduction of a collaborative quality improvement program in the French cystic fibrosis network: the PHARE-M initiative

Dominique Pougheon Bertrand, Guy Minguet, Pierre Lombrail, Gilles Rault

Open Access Research

A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany

Krista Revert, Laurence Audran, Jocelyne Pengam, Pascal Lesne, Dominique Pougheon Bertrand

Open Access Research

A quality improvement program for adolescents with cystic fibrosis: focus on psychosocial skills

Michele Gérardin, Anne Pesle, Dominique Pougheon-Bertrand, Pilar Léger, Céline Vallet, Tiphaine Bihouee, Valérie David

Open Access Research

A quality improvement program to reduce the time on the lung transplant waiting list at the Nantes University Hospital

Isabelle Danner-Boucher, Véronique Loppinet, Aurore Boxus, Claire Dary, Anne Brigitte Lambert, Marine Prieur, Céline Vallet, Adrien Tissot

Open Access Research

Quality of care in cystic fibrosis: assessment protocol of the French QIP PHARE-M

Dominique Pougheon Bertrand, Emmanuel Nowak, Clémence Dehillotte, Lydie Lemmonier, Gilles Rault

Open Access Research

Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry

Nadine Pellen, Laëtitia Guéganton, Dominique Pougheon Bertrand, Gilles Rault

Open Access Research

Lessons from patient and parent involvement (P&PI) in a quality improvement program in cystic fibrosis care in France

Dominique Pougheon Bertrand, Guy Minguet, Rémi Gagnayre, Pierre Lombrail