Background
Methods
Design
Ethical considerations
Data collection
- What does the use of video mean to you in your daily life, what is its use? | |
- What would be its contributions to hospital services, particularly in neonatology? | |
- What are the obstacles to its use for you? | |
- Does the use of video seem acceptable to you and your personal conviction? | |
- Would you like to have access to this video? In what condition, for what purpose? | |
- Would there be an impact on your behaviour? |
Data analysis
Results
Participants’ characteristics
Parents
Parental Role | Mothers | 15 |
Fathers | 4 | |
Age (years) | 20–30 | 7 |
30–40 | 12 | |
Educational background | Primary education | 1 |
Secondary education | 6 | |
Higher education | 12 | |
Marital status | Married / living with partner | 19 |
Single | 0 | |
Use social networks | Yes | 17 |
No | 2 | |
Experience of video at work | Yes | 6 |
No | 12 | |
Not specified | 1 | |
Use of personal video | Yes | 19 |
No | 0 | |
Experience of hospitalisation with another child | Yes | 0 |
No | 19 | |
Diagnosis of newborn hospitalised | Prematurity | 14 |
Malformative pathology | 5 | |
Use of video in research project | Yes | 7 |
No | 12 |
Healthcare professionals
Gender (F/M) | Average (years) | Average work experience (years) | Video experience in hospital | Private use of social networks | Private use of the video | |
---|---|---|---|---|---|---|
Staff (n = 20) | 17/3 | 42 (20;56) | 16 (1;31) | 13 | 10 | 18 |
Nurses (n = 11) | 11/0 | 42 (20;56) | 18 (1;31) | 7 | 6 | 9 |
Doctors (n = 8) | 5/3 | 41 (27;52) | 11 (2;25) | 6 | 4 | 8 |
Psychologist (n = 1) | 1/0 | 39 | 14 | 0 | 0 | 0 |
Thematic analysis
Parents | Healthcare professionals |
---|---|
1.Best interests of the child and improved care | 1.Concern for the possible impact on caregivers |
2.Impact of images on parents | 2.Impact of images on parents |
3.Informed consent and guarantee of use | 3.Forensic dimension |
4.Concern for the possible impact on caregivers | 4.Inform consent and guarantee of use |
5.Data protection and privacy | 5.Best interest of the child and improved care |
6.Ways of use: practice improvement, teaching, research | |
7.Technical aspect and feasibility |
Themes | Focus group |
---|---|
Best interests of the child and improved care | |
“It should really always be used in an effort to improve care [...]”, “It should always be in the patient’s interest, I think.” | Parent, Nantes |
“We have children who leave quickly [...] if we have the means to spot this upstream, yes, clearly there is a real benefit, it’s worth it...” | Professional, Rennes |
Impact of images on parents | |
“I see with my wife; I took several video clips [...] she watched them a lot of times so it’s true that it can create a bond.” | Parent, Rennes |
“It also seems a little anxious to me, actually, we’re not professionals [...] we can see things that worry us when in fact it’s not worrying.” | Parent, Rennes |
“There could be a drift [...], to be watching all the time and then when you’re at home, you should also cut, recharge...”. | Parent, Rennes |
Concern for the possible impact on healthcare professionals | |
“I put myself in their shoes, maybe I’d feel a little pressure, a little eye above my head to see if I’m doing my job well.” | Parent, Angers |
“If baby is sleeping, we don’t go there... but this can be an opportunity to have a discussion with the mother.” | Professional, Rennes |
“Then we finally forget that the video is there”. | Professional, Galway |
Informed consent and guarantee of use | |
“In fact, it is rather up to them (the professional) to give their agreement or not” | Parent, Angers |
“there is a need to know where the limits are” | Professional, Rennes |
Data protection and privacy | |
“You shouldn’t be able to access it anywhere, anyhow either.” | Parent, Rennes |
Forensic dimension | |
“[...] during a trial for a death, can there not at some point be a lifting of secrecy? A lawyer may be able to negotiate successfully to access the images” | Professional, Galway |
“That’s what scares (me) about video recording, its possible (erroneous) interpretation.” | Professional, Angers |
Potentials use: practice improvement, teaching, research | |
“For oral problems the video would be useful for filming the feeding, see the breathing-deflutition synchronization” | Professional, Angers |
Technical aspect and feasibility | |
“if you just had to turn it on, like attaching a sensor. I think it would work.” | Professional, Rennes |
Four themes common to both groups
-
Best interest of the child and improved care
- Impact of images on parents
- Concern for the possible impact on healthcare professionals
- Informed consent and guarantee of use
One theme exclusively mentioned by parents
-
Data protection and privacy
Three themes only mentioned by healthcare professionals
-
Forensic dimension
- Potential use: practice improvement, teaching, research
- Technical aspect and feasibility
Discussion
Negative outcomes of video
Positive outcomes of video
Strengths and limitations
Conclusion
▪ Specific training of staff with video equipment, their maintenance and functionality | |
▪ Focus the camera’s frame on new-born, | |
▪ Allow parents to interrupt recording for privacy purpose | |
▪ Stop recording during new-born care or technical procedures, but inform parents with an automatic display on the screen | |
▪ Optimal data protection via a secure portal, login and password | |
▪ Depersonalize recordings to the extent possible | |
▪ Establish a specific legislative framework for these recording | |
▪ Define in advance the duration for data storage. |