Skip to main content
Erschienen in: Clinical Rheumatology 6/2019

08.01.2019 | Original Article

Perspectives of patients and health professionals on the experience of living with psoriatic arthritis-related foot problems: a qualitative investigation

verfasst von: Kate Carter, Steven Walmsley, Diana Chessman, Keith Rome, Deborah E. Turner

Erschienen in: Clinical Rheumatology | Ausgabe 6/2019

Einloggen, um Zugang zu erhalten

Abstract

Objective

The aim of the study was to explore how foot problems impact on the lives of people with psoriatic arthritis by interviewing patients and health professionals.

Method

Participants were recruited from outpatient rheumatology clinics in Sydney, Australia, and in Auckland, New Zealand, using a convenience sampling strategy. People with psoriatic arthritis were asked questions in semi-structured interviews about their foot problems and the impact they have on daily living until qualitative data saturation. Focus groups were undertaken with health professionals to explore their understanding of the patient experience of psoriatic arthritis-related foot problems. All interviews were audio-recorded and transcribed verbatim. Constant comparative analysis was used to identify emerging themes from the data.

Results

Twenty-one people with psoriatic arthritis-related foot problems and 17 health professionals participated. Three overarching key themes were derived from patients and health professionals: (1) structural and functional foot manifestations, (2) impact on daily life leading to social withdrawal and reduced work productivity and (3) mediating factors influencing the severity of impact from foot problems on their lives such as social support, self-management strategies and experiences of health care.

Conclusion

Foot problems caused functional disability and altered self-concept, which lead to a cascade of social, economic and psychological consequences. People with foot problems contend with profound disruption to their functioning and life roles. Whilst health professionals recognised the functional and visual impact that foot problems have on daily life, the emotional burden may be under-appreciated. Future work to determine the scale and types of foot problems in psoriatic arthritis is required.
Anhänge
Nur mit Berechtigung zugänglich
Literatur
5.
Zurück zum Zitat Delle Sedie A, Riente L, Filippucci E, Scire CA, Iagnocco A, Meenagh G, Gutierrez M, Valesini G, Montecucco C, Grassi W, Bombardieri S (2011) Ultrasound imaging for the rheumatologist. XXXII. Sonographic assessment of the foot in patients with psoriatic arthritis. Clin Exp Rheumatol 29:217–222PubMed Delle Sedie A, Riente L, Filippucci E, Scire CA, Iagnocco A, Meenagh G, Gutierrez M, Valesini G, Montecucco C, Grassi W, Bombardieri S (2011) Ultrasound imaging for the rheumatologist. XXXII. Sonographic assessment of the foot in patients with psoriatic arthritis. Clin Exp Rheumatol 29:217–222PubMed
11.
Zurück zum Zitat Gossec L, de Wit M, Kiltz U, Braun J, Kalyoncu U, Scrivo R, Maccarone M, Carton L, Otsa K, Sooäär I (2014) A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative. Ann Rheum Dis 73:1012–1019. https://doi.org/10.1136/annrheumdis-2014-205207 CrossRefPubMed Gossec L, de Wit M, Kiltz U, Braun J, Kalyoncu U, Scrivo R, Maccarone M, Carton L, Otsa K, Sooäär I (2014) A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative. Ann Rheum Dis 73:1012–1019. https://​doi.​org/​10.​1136/​annrheumdis-2014-205207 CrossRefPubMed
16.
17.
Zurück zum Zitat Lebwohl MG, Kavanaugh A, Armstrong AW, Van Voorhees AS (2016) US perspectives in the management of psoriasis and psoriatic arthritis: patient and physician results from the population-based multinational assessment of psoriasis and psoriatic arthritis (MAPP) survey. Am J Clin Dermatol 17:87–97. https://doi.org/10.1007/s40257-015-0169-x CrossRefPubMed Lebwohl MG, Kavanaugh A, Armstrong AW, Van Voorhees AS (2016) US perspectives in the management of psoriasis and psoriatic arthritis: patient and physician results from the population-based multinational assessment of psoriasis and psoriatic arthritis (MAPP) survey. Am J Clin Dermatol 17:87–97. https://​doi.​org/​10.​1007/​s40257-015-0169-x CrossRefPubMed
18.
Zurück zum Zitat Legard R, Keegan J, Ward K (2003) In-depth interviews. In: Ritchie J, Lewis J (eds) Qualitative research practice: a guide for social science students and researchers. Sage Publications, London, pp 138–169 Legard R, Keegan J, Ward K (2003) In-depth interviews. In: Ritchie J, Lewis J (eds) Qualitative research practice: a guide for social science students and researchers. Sage Publications, London, pp 138–169
19.
Zurück zum Zitat Thomas L, MacMillan J, McColl E, Hale C, Bond S (1995) Comparison of focus group and individual interview methodology in examining patient satisfaction with nursing care. Soc Sci Health 1:206–220 Thomas L, MacMillan J, McColl E, Hale C, Bond S (1995) Comparison of focus group and individual interview methodology in examining patient satisfaction with nursing care. Soc Sci Health 1:206–220
28.
Zurück zum Zitat Hooper L, Bowen CJ, Gates L, Culliford DJ, Ball C, Edwards CJ, Arden NK (2012) Prognostic indicators of foot-related disability in patients with rheumatoid arthritis: results of a prospective three-year study. Arthritis Care Res 64:1116–1124. https://doi.org/10.1002/acr.21672 CrossRef Hooper L, Bowen CJ, Gates L, Culliford DJ, Ball C, Edwards CJ, Arden NK (2012) Prognostic indicators of foot-related disability in patients with rheumatoid arthritis: results of a prospective three-year study. Arthritis Care Res 64:1116–1124. https://​doi.​org/​10.​1002/​acr.​21672 CrossRef
30.
Zurück zum Zitat Morehouse RE, Maykut P (1994) Beginning qualitative research: a philosophical and practical guide, 1st edn. Routledge Morehouse RE, Maykut P (1994) Beginning qualitative research: a philosophical and practical guide, 1st edn. Routledge
33.
Zurück zum Zitat Husted JA, Gladman DD, Farewell V, Long J, Cook R (1997) Validating the SF-36 health survey questionnaire in patients with psoriatic arthritis. J Rheumatol 24:511–517PubMed Husted JA, Gladman DD, Farewell V, Long J, Cook R (1997) Validating the SF-36 health survey questionnaire in patients with psoriatic arthritis. J Rheumatol 24:511–517PubMed
34.
Zurück zum Zitat Tillett W, Shaddick G, Askari A, Cooper A, Creamer P, Clunie G, Helliwell PS, Kay L, Korendowych E, Lane S, Packham J, Shaban R, Williamson L, McHugh NJ (2015) Factors influencing work disability in psoriatic arthritis: first results from a large UK multicentre study. Rheumatology (Oxford) 54:157–162. https://doi.org/10.1093/rheumatology/keu264 CrossRef Tillett W, Shaddick G, Askari A, Cooper A, Creamer P, Clunie G, Helliwell PS, Kay L, Korendowych E, Lane S, Packham J, Shaban R, Williamson L, McHugh NJ (2015) Factors influencing work disability in psoriatic arthritis: first results from a large UK multicentre study. Rheumatology (Oxford) 54:157–162. https://​doi.​org/​10.​1093/​rheumatology/​keu264 CrossRef
Metadaten
Titel
Perspectives of patients and health professionals on the experience of living with psoriatic arthritis-related foot problems: a qualitative investigation
verfasst von
Kate Carter
Steven Walmsley
Diana Chessman
Keith Rome
Deborah E. Turner
Publikationsdatum
08.01.2019
Verlag
Springer London
Erschienen in
Clinical Rheumatology / Ausgabe 6/2019
Print ISSN: 0770-3198
Elektronische ISSN: 1434-9949
DOI
https://doi.org/10.1007/s10067-018-04411-2

Weitere Artikel der Ausgabe 6/2019

Clinical Rheumatology 6/2019 Zur Ausgabe

Leitlinien kompakt für die Innere Medizin

Mit medbee Pocketcards sicher entscheiden.

Seit 2022 gehört die medbee GmbH zum Springer Medizin Verlag

Update Innere Medizin

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.