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13.10.2022 | Educational Review

Post-transplant education for kidney recipients and their caregivers

verfasst von: Pamela Singer

Erschienen in: Pediatric Nephrology | Ausgabe 7/2023

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Abstract

Successful outcomes in pediatric kidney transplantation require the involvement of the transplant team as well as recipients and their caregivers. Enhancing patient and family understanding of the disease and of post-transplant care can result in improved adherence and outcomes. Educational strategies should aim to be broad, understandable, innovative, and inclusive while maintaining a tailored approach to individualized care. Teaching should not be viewed as a one-time event but rather as an ongoing conversation throughout the duration of care, emphasizing different aspects throughout the patient’s various developmental stages. The following review article discusses the content and methods of post-transplant education.
Literatur
10.
16.
Zurück zum Zitat Pruette CS, Amaral S (2021) Empowering patients to adhere to their treatment regimens: a multifaceted approach. Pediatr Transplant 25:e13849. 0.1111/petr.13849 Pruette CS, Amaral S (2021) Empowering patients to adhere to their treatment regimens: a multifaceted approach. Pediatr Transplant 25:e13849. 0.1111/petr.13849
19.
Zurück zum Zitat Russell CL, Hathaway D, Remy LM, Aholt D, Clark D, Miller C, Ashbaugh C, Wakefield M, Ye S, Staggs VS, Ellis RJ, Goggin K (2019) Improving medication adherence and outcomes in adult kidney transplant patients using a personal systems approach: SystemCHANGE™ results of the MAGIC randomized clinical trial. Am J Transplant 20:125–136. https://doi.org/10.1111/ajt.15528CrossRefPubMedPubMedCentral Russell CL, Hathaway D, Remy LM, Aholt D, Clark D, Miller C, Ashbaugh C, Wakefield M, Ye S, Staggs VS, Ellis RJ, Goggin K (2019) Improving medication adherence and outcomes in adult kidney transplant patients using a personal systems approach: SystemCHANGE™ results of the MAGIC randomized clinical trial. Am J Transplant 20:125–136. https://​doi.​org/​10.​1111/​ajt.​15528CrossRefPubMedPubMedCentral
21.
Zurück zum Zitat Chandar JJ, Ludwig DA, Aguirre J, Mattiazzi A, Bielecka M, Defreitas M, Delamater AM (2019) Assessing the link between modified “teach back” method and improvement in knowledge of the medical regimen among youth with kidney transplants: the application of digital media. Patient Educ Couns 102:1035–1039. https://doi.org/10.1016/j.pec.2018.12.007CrossRefPubMed Chandar JJ, Ludwig DA, Aguirre J, Mattiazzi A, Bielecka M, Defreitas M, Delamater AM (2019) Assessing the link between modified “teach back” method and improvement in knowledge of the medical regimen among youth with kidney transplants: the application of digital media. Patient Educ Couns 102:1035–1039. https://​doi.​org/​10.​1016/​j.​pec.​2018.​12.​007CrossRefPubMed
22.
24.
Zurück zum Zitat Hooper DK, Misurac J, Blydt-Hansen T, Chua AN (2021) Multicenter data to improve health for pediatric renal transplant recipients in North America: complementary approaches of NAPRTCS and IROC. Pediatr Transplant 25:e13891. 0.1111/petr.13891 Hooper DK, Misurac J, Blydt-Hansen T, Chua AN (2021) Multicenter data to improve health for pediatric renal transplant recipients in North America: complementary approaches of NAPRTCS and IROC. Pediatr Transplant 25:e13891. 0.1111/petr.13891
37.
Zurück zum Zitat Suresh S, Upton J, Green M, Pham-Huy A, Posfay-Barbe KM, Michaels MG, Top KA, Avitzur Y, Burton C, Chong PP, Danziger-Isakov L, Dipchand AI, Hébert D, Kumar D, Morris SK, Nalli N, Ng VL, Nicholas SK, Robinson JL, Solomon M, Tapiero B, Verma A, Walter JE, Allen UD (2019) Live vaccines after pediatric solid organ transplant: proceedings of a consensus meeting, 2018. Pediatr Transplant 23:e13571. https://doi.org/10.1111/petr.13571CrossRefPubMed Suresh S, Upton J, Green M, Pham-Huy A, Posfay-Barbe KM, Michaels MG, Top KA, Avitzur Y, Burton C, Chong PP, Danziger-Isakov L, Dipchand AI, Hébert D, Kumar D, Morris SK, Nalli N, Ng VL, Nicholas SK, Robinson JL, Solomon M, Tapiero B, Verma A, Walter JE, Allen UD (2019) Live vaccines after pediatric solid organ transplant: proceedings of a consensus meeting, 2018. Pediatr Transplant 23:e13571. https://​doi.​org/​10.​1111/​petr.​13571CrossRefPubMed
41.
Zurück zum Zitat Danziger-Isakov L, Kumar D; AST ID Community of Practice (2019) Vaccination of solid organ transplant candidates and recipients: guidelines from the American Society of Transplantation Infectious Diseases Community of Practice. Clin Transplant 33:e13563. https://doi.org/10.1111/ctr.13563. Erratum in (2020) Clin Transplant 34:e13806 Danziger-Isakov L, Kumar D; AST ID Community of Practice (2019) Vaccination of solid organ transplant candidates and recipients: guidelines from the American Society of Transplantation Infectious Diseases Community of Practice. Clin Transplant 33:e13563. https://​doi.​org/​10.​1111/​ctr.​13563. Erratum in (2020) Clin Transplant 34:e13806
51.
Zurück zum Zitat Lee KC, Ngo-Metzger Q, Wolff T, Chowdhury J, LeFevre ML, Meyers DS (2016) Sexually transmitted infections: recommendations from the U.S. Preventive Services Task Force. Am Fam Physician 94:907–915PubMed Lee KC, Ngo-Metzger Q, Wolff T, Chowdhury J, LeFevre ML, Meyers DS (2016) Sexually transmitted infections: recommendations from the U.S. Preventive Services Task Force. Am Fam Physician 94:907–915PubMed
61.
Zurück zum Zitat Warady BA, Carr B, Hellerstein S, Alon U (1992) Residential summer camp for children with end-stage renal disease. Child Nephrol Urol 12:212–215PubMed Warady BA, Carr B, Hellerstein S, Alon U (1992) Residential summer camp for children with end-stage renal disease. Child Nephrol Urol 12:212–215PubMed
72.
Zurück zum Zitat Stabouli S, Polderman N, Nelms CL, Paglialonga F, Oosterveld MJS, Greenbaum LA, Warady BA, Anderson C, Haffner D, Desloovere A, Qizalbash L, Renken-Terhaerdt J, Tuokkola J, Walle JV, Shaw V, Mitsnefes M, Shroff R (2022) Assessment and management of obesity and metabolic syndrome in children with CKD stages 2–5 on dialysis and after kidney transplantation-clinical practice recommendations from the Pediatric Renal Nutrition Taskforce. Pediatr Nephrol 37:1–20. https://doi.org/10.1007/s00467-021-05148-yCrossRefPubMed Stabouli S, Polderman N, Nelms CL, Paglialonga F, Oosterveld MJS, Greenbaum LA, Warady BA, Anderson C, Haffner D, Desloovere A, Qizalbash L, Renken-Terhaerdt J, Tuokkola J, Walle JV, Shaw V, Mitsnefes M, Shroff R (2022) Assessment and management of obesity and metabolic syndrome in children with CKD stages 2–5 on dialysis and after kidney transplantation-clinical practice recommendations from the Pediatric Renal Nutrition Taskforce. Pediatr Nephrol 37:1–20. https://​doi.​org/​10.​1007/​s00467-021-05148-yCrossRefPubMed
Metadaten
Titel
Post-transplant education for kidney recipients and their caregivers
verfasst von
Pamela Singer
Publikationsdatum
13.10.2022
Verlag
Springer Berlin Heidelberg
Erschienen in
Pediatric Nephrology / Ausgabe 7/2023
Print ISSN: 0931-041X
Elektronische ISSN: 1432-198X
DOI
https://doi.org/10.1007/s00467-022-05744-6

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