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04.07.2019

Preferences for cancer survivorship care among adolescents and young adults who experienced healthcare transitions and their parents

verfasst von: Alexandra M. Psihogios, Lisa A. Schwartz, Janet A. Deatrick, Elizabeth S. Ver Hoeve, Lindsay M. Anderson, Elicia C. Wartman, Dava Szalda

Erschienen in: Journal of Cancer Survivorship | Ausgabe 4/2019

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Abstract

Purpose

This study aimed to elucidate experiences and preferences for survivorship care delivery among adolescent and young adult (AYA) childhood cancer survivors who experienced healthcare transitions.

Methods

Eight focus groups were conducted with two groups of AYA survivors and their parents: (1) those who recently completed cancer treatment and are beginning follow-up care and (2) those who disengaged in follow-up care after the transition from pediatric to adult survivorship clinics. Interviewers used a structured interview guide that contained questions about perceptions and preferences for survivorship care models, resources, and tools (e.g., a survivorship care plan). We employed directed content analysis techniques to identify and organize relevant themes.

Results

Results of this study support six primary themes for optimizing survivorship care models for AYA: (1) improve knowledge of late effects and need for LTFU; (2) provide supportive services that help to address fear and uncertainty about health; (3) adapt survivorship care to be consistent with AYA developmental factors; (4) increase support surrounding healthcare transitions; (5) improve survivorship care communication and coordination between patients and families, and between providers; and (6) incorporate digital health tools.

Conclusions

These groups represent vulnerable patient populations in AYA survivorship care and their perspectives highlight potential clinical and research priorities for enhancing long-term care models.

Implications for Cancer Survivors

Elucidating AYA and parent recommendations for survivorship care delivery can help to promote continuous engagement in care, target unmet needs, and promote health through survivorship models that are deemed acceptable to both patients and families.

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Titel: Preferences for cancer survivorship care among adolescents and young adults who experienced healthcare transitions and their parents
verfasst von: Alexandra M. Psihogios
Lisa A. Schwartz
Janet A. Deatrick
Elizabeth S. Ver Hoeve
Lindsay M. Anderson
Elicia C. Wartman
Dava Szalda
Publikationsdatum: 04.07.2019
Verlag: Springer US
Erschienen in: Journal of Cancer Survivorship / Ausgabe 4/2019
Print ISSN: 1932-2259
Elektronische ISSN: 1932-2267
DOI: https://doi.org/10.1007/s11764-019-00781-x

Neu im Fachgebiet Onkologie

18.04.2024 | Wirbelsäulenmetastase | Nachrichten

Live-Webinar: Aktuelle Leitlinien bei Herz-Kreislauf-Erkrankungen

Springer Medizin

Preferences for cancer survivorship care among adolescents and young adults who experienced healthcare transitions and their parents

Abstract

Purpose

Methods

Results

Conclusions

Implications for Cancer Survivors

Neu im Fachgebiet Onkologie

Stereotaktische Radiatio schlägt konventionelle Bestrahlung

Adjuvante Brustkrebstherapie: Doppelt hält besser

Manche Gestagene können das Risiko für Meningeome erhöhen

Einladung zum PSA-Screening senkt die Krebssterblichkeit

Update Onkologie

Live-Webinar: Aktuelle Leitlinien bei Herz-Kreislauf-Erkrankungen

Springer Medizin

Abstract

Purpose

Methods

Results

Conclusions

Implications for Cancer Survivors

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