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Erschienen in: Pediatric Nephrology 5/2020

20.03.2019 | Educational Review

Psychosocial considerations and recommendations for care of pediatric patients on dialysis

verfasst von: Michelle A. Clementi, Cortney Taylor Zimmerman

Erschienen in: Pediatric Nephrology | Ausgabe 5/2020

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Abstract

Dialysis treatment has evolved to enable children to live longer and transition to adulthood. Thus, the focus of care shifts to a consideration of pediatric patients’ quality of life and psychosocial functioning across childhood, adolescence, and young adulthood. Despite well-documented concerns in various domains (including depression/anxiety, self-esteem and social functioning, behavior problems, and academic and cognitive functioning), limited literature exists regarding psychosocial guidelines for children and adolescents undergoing dialysis. This article aims to address this gap by providing a review of the pediatric literature examining psychosocial functioning in patients treated with dialysis, as well as recommendations for specific psychosocial concerns. Overall recommendations for care include screening for anxiety and depression, referral to pediatric psychologists for evidence-based intervention, utilization of child life specialists, opportunities to promote social functioning, neuropsychological evaluation and school programming, ongoing support in preparing for transition to adult care, and periodic measure of quality of life. Together, these suggestions promote a holistic approach to patient-centered care by supporting both physical and psychosocial well-being.
Literatur
1.
Zurück zum Zitat Splinter A, Tjaden LA, Hayerman L, Adams B, Collard L, Cransberg K, van Dyck M, Van Hoeck KJ, Hoppe B, Koster-Kamphuis L, Lilien MR, Raes A, Taylan C, Grootenhuis MA, Groothoff JW (2018) Children on dialysis as well as renal transplanted children report severly impaired health-related quality of life. Qual Life Res 27:1445–1454CrossRefPubMedPubMedCentral Splinter A, Tjaden LA, Hayerman L, Adams B, Collard L, Cransberg K, van Dyck M, Van Hoeck KJ, Hoppe B, Koster-Kamphuis L, Lilien MR, Raes A, Taylan C, Grootenhuis MA, Groothoff JW (2018) Children on dialysis as well as renal transplanted children report severly impaired health-related quality of life. Qual Life Res 27:1445–1454CrossRefPubMedPubMedCentral
2.
Zurück zum Zitat Wiedebusch S, Konrad M, Foppe H, Reichwald-Klugger E, Schaefer F, Schreiber V, Muthny F (2010) Health-related quality of life, psychosocial strains, and coping in parents of children with chronic renal failure. Pediatr Nephrol 25:1477–1485CrossRefPubMed Wiedebusch S, Konrad M, Foppe H, Reichwald-Klugger E, Schaefer F, Schreiber V, Muthny F (2010) Health-related quality of life, psychosocial strains, and coping in parents of children with chronic renal failure. Pediatr Nephrol 25:1477–1485CrossRefPubMed
3.
Zurück zum Zitat Fischbach M, Edefonti A, Schröder C, Watson A, European Pediatric Dialysis Working Group (2005) Hemodialysis in children: general practical guidelines. Pediatr Nephrol 20:1054–1066CrossRefPubMedPubMedCentral Fischbach M, Edefonti A, Schröder C, Watson A, European Pediatric Dialysis Working Group (2005) Hemodialysis in children: general practical guidelines. Pediatr Nephrol 20:1054–1066CrossRefPubMedPubMedCentral
4.
Zurück zum Zitat Tjaden L, Tong A, Henning P, Groothoff J, Craig JC (2012) Children's experiences of dialysis: a systematic review of qualitative studies. Arch Dis Child 97:395–402CrossRefPubMed Tjaden L, Tong A, Henning P, Groothoff J, Craig JC (2012) Children's experiences of dialysis: a systematic review of qualitative studies. Arch Dis Child 97:395–402CrossRefPubMed
5.
Zurück zum Zitat Neul SK, Minard CG, Currier H, Goldstein SL (2013) Health-related quality of life functioning over a 2-year period in children with end-stage renal disease. Pediatr Nephrol 28:285–293CrossRefPubMed Neul SK, Minard CG, Currier H, Goldstein SL (2013) Health-related quality of life functioning over a 2-year period in children with end-stage renal disease. Pediatr Nephrol 28:285–293CrossRefPubMed
6.
Zurück zum Zitat Grootenhuis MA, Stam H, Last BF, Groothoff JW (2006) The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood. Pediatr Nephrol 21:538–544CrossRefPubMed Grootenhuis MA, Stam H, Last BF, Groothoff JW (2006) The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood. Pediatr Nephrol 21:538–544CrossRefPubMed
7.
Zurück zum Zitat Watson AR (2014) Psychosocial support for children and families requiring renal replacement therapy. Pediatr Nephrol 29:1169–1174CrossRefPubMed Watson AR (2014) Psychosocial support for children and families requiring renal replacement therapy. Pediatr Nephrol 29:1169–1174CrossRefPubMed
8.
Zurück zum Zitat Goldstein SL, Graham N, Burwinkle T, Warady B, Farrah R, Varni JW (2006) Health-related quality of life in pediatric patients with ESRD. Pediatr Nephrol 21:846–850CrossRefPubMed Goldstein SL, Graham N, Burwinkle T, Warady B, Farrah R, Varni JW (2006) Health-related quality of life in pediatric patients with ESRD. Pediatr Nephrol 21:846–850CrossRefPubMed
9.
Zurück zum Zitat Goldstein SL, Rosburg NM, Warady BA, Seikaly M, McDonald R, Limbers C, Varni JW (2009) Pediatric end stage renal disease health-related quality of life differs by modality: a PedsQL ESRD analysis. Pediatr Nephrol 24:1553–1560CrossRefPubMed Goldstein SL, Rosburg NM, Warady BA, Seikaly M, McDonald R, Limbers C, Varni JW (2009) Pediatric end stage renal disease health-related quality of life differs by modality: a PedsQL ESRD analysis. Pediatr Nephrol 24:1553–1560CrossRefPubMed
10.
Zurück zum Zitat McKenna AM, Keating LE, Vigneux A, Stevens S, Williams A, Geary DF (2006) Quality of life in children with chronic kidney disease—patient and caregiver assessments. Nephrol Dial Transplant 21:1899–1905CrossRefPubMed McKenna AM, Keating LE, Vigneux A, Stevens S, Williams A, Geary DF (2006) Quality of life in children with chronic kidney disease—patient and caregiver assessments. Nephrol Dial Transplant 21:1899–1905CrossRefPubMed
11.
Zurück zum Zitat Indian Journal of Nephrology (2005) Guidelines for the psychological management of chronic kidney disease patients (for the psychologist). Indian J Nephrol 15:S103–S108 Indian Journal of Nephrology (2005) Guidelines for the psychological management of chronic kidney disease patients (for the psychologist). Indian J Nephrol 15:S103–S108
12.
Zurück zum Zitat Hernandez EG, Loza R, Vargas H, Jara MF (2011) Depressive symptomatology in children and adolescents with chronic renal insufficiency undergoing chronic dialysis. Int J Nephrol 2011:1–7CrossRef Hernandez EG, Loza R, Vargas H, Jara MF (2011) Depressive symptomatology in children and adolescents with chronic renal insufficiency undergoing chronic dialysis. Int J Nephrol 2011:1–7CrossRef
13.
Zurück zum Zitat Bakr A, Amr M, Sarhan A, Hammad A, Ragab M, El-Refaey A, El-Mougy A (2007) Psychiatric disorders in children with chronic renal failure. Pediatr Nephrol 22:128–131CrossRefPubMed Bakr A, Amr M, Sarhan A, Hammad A, Ragab M, El-Refaey A, El-Mougy A (2007) Psychiatric disorders in children with chronic renal failure. Pediatr Nephrol 22:128–131CrossRefPubMed
14.
Zurück zum Zitat Simoni JM, Asarnow JR, Munford PR, Koprowski CM, Belin TR, Salusky IB (1997) Psychological distress and treatment adherence among children on dialysis. Pediatr Nephrol 11:604–606CrossRefPubMed Simoni JM, Asarnow JR, Munford PR, Koprowski CM, Belin TR, Salusky IB (1997) Psychological distress and treatment adherence among children on dialysis. Pediatr Nephrol 11:604–606CrossRefPubMed
15.
Zurück zum Zitat Fielding D, Brownbridge G (1999) Factors related to psychosocial adjustment in children with end-stage renal failure. Pediatr Nephrol 13:766–770CrossRefPubMed Fielding D, Brownbridge G (1999) Factors related to psychosocial adjustment in children with end-stage renal failure. Pediatr Nephrol 13:766–770CrossRefPubMed
16.
Zurück zum Zitat Buyan N, Türkmen MA, Bilge I, Baskin E, Haberal M, Bilginer Y, Mir S, Emre S, Akman S, Ozkaya O (2010) Quality of life in children with chronic kidney disease (with child and parent assessments). Pediatr Nephrol 25:1487–1496CrossRefPubMed Buyan N, Türkmen MA, Bilge I, Baskin E, Haberal M, Bilginer Y, Mir S, Emre S, Akman S, Ozkaya O (2010) Quality of life in children with chronic kidney disease (with child and parent assessments). Pediatr Nephrol 25:1487–1496CrossRefPubMed
17.
Zurück zum Zitat Salam MMA, Abdo MA, Yousef UM, Mohamed SA (2014) Assessment of depression and anxiety in children on regular hemodialysis. Egypt J Psychiatry 35:100–104CrossRef Salam MMA, Abdo MA, Yousef UM, Mohamed SA (2014) Assessment of depression and anxiety in children on regular hemodialysis. Egypt J Psychiatry 35:100–104CrossRef
18.
Zurück zum Zitat Fukunishi I, Honda M, Kamiyama Y, Ito H (1993) Anxiety disorders and pediatric continuous ambulatory peritoneal dialysis. Child Psychiatry Hum Dev 24:59–64CrossRefPubMed Fukunishi I, Honda M, Kamiyama Y, Ito H (1993) Anxiety disorders and pediatric continuous ambulatory peritoneal dialysis. Child Psychiatry Hum Dev 24:59–64CrossRefPubMed
19.
Zurück zum Zitat Amr M, Bakr A, El Gilany AH, Hammad A, El-Refaey A, El-Mougy A (2009) Multi-method assessment of behavior adjustment in children with chronic kidney disease. Pediatr Nephrol 24:341–347CrossRefPubMed Amr M, Bakr A, El Gilany AH, Hammad A, El-Refaey A, El-Mougy A (2009) Multi-method assessment of behavior adjustment in children with chronic kidney disease. Pediatr Nephrol 24:341–347CrossRefPubMed
20.
Zurück zum Zitat Garralda M, Jameson R, Reynolds J, Postlethwaite R (1988) Psychiatric adjustment in children with chronic renal failure. J Child Psychol Psychiatry 29:79–90CrossRefPubMed Garralda M, Jameson R, Reynolds J, Postlethwaite R (1988) Psychiatric adjustment in children with chronic renal failure. J Child Psychol Psychiatry 29:79–90CrossRefPubMed
21.
Zurück zum Zitat Kogon AJ, Vander Stoep A, Weiss NS, Smith J, Flynn JT, McCauley E (2013) Depression and its associated factors in pediatric chronic kidney disease. Pediatr Nephrol 28:1855–1861CrossRefPubMedPubMedCentral Kogon AJ, Vander Stoep A, Weiss NS, Smith J, Flynn JT, McCauley E (2013) Depression and its associated factors in pediatric chronic kidney disease. Pediatr Nephrol 28:1855–1861CrossRefPubMedPubMedCentral
22.
Zurück zum Zitat Centers for Medicare & Medicaid Services (CMS), HHS (2015) Medicare program; end-stage renal disease prospective payment system, and quality incentive program. final rule. Fed Regist 80:68967–69077 Centers for Medicare & Medicaid Services (CMS), HHS (2015) Medicare program; end-stage renal disease prospective payment system, and quality incentive program. final rule. Fed Regist 80:68967–69077
23.
Zurück zum Zitat Park K-S, Hwang YJ, Cho MH, Ko CW, Ha IS, Kang HG, Cheong HI, Park YS, Lee YJ, Lee JH (2012) Quality of life in children with end-stage renal disease based on a PedsQL ESRD module. Pediatr Nephrol 27:2293–2300CrossRefPubMed Park K-S, Hwang YJ, Cho MH, Ko CW, Ha IS, Kang HG, Cheong HI, Park YS, Lee YJ, Lee JH (2012) Quality of life in children with end-stage renal disease based on a PedsQL ESRD module. Pediatr Nephrol 27:2293–2300CrossRefPubMed
24.
Zurück zum Zitat Fukunishi I, Kudo H (1995) Psychiatric problems of pediatric end-stage renal failure. Gen Hosp Psychiatry 17:32–36CrossRefPubMed Fukunishi I, Kudo H (1995) Psychiatric problems of pediatric end-stage renal failure. Gen Hosp Psychiatry 17:32–36CrossRefPubMed
25.
Zurück zum Zitat Brownbridge G, Fielding DM (1991) Psychosocial adjustment to end-stage renal failure: comparing haemodialysis, continuous ambulatory peritoneal dialysis and transplantation. Pediatr Nephrol 5:612–616CrossRefPubMed Brownbridge G, Fielding DM (1991) Psychosocial adjustment to end-stage renal failure: comparing haemodialysis, continuous ambulatory peritoneal dialysis and transplantation. Pediatr Nephrol 5:612–616CrossRefPubMed
26.
Zurück zum Zitat Brownbridge G, Fielding DM (1994) Psychosocial adjustment and adherence to dialysis treatment regimes. Pediatr Nephrol 8:744–749CrossRefPubMed Brownbridge G, Fielding DM (1994) Psychosocial adjustment and adherence to dialysis treatment regimes. Pediatr Nephrol 8:744–749CrossRefPubMed
27.
Zurück zum Zitat Clark S, Farrington K, Chilcot J (2014) Nonadherence in dialysis patients: prevalence, measurement, outcome, and psychological determinants. Semin Dial 27:42–49CrossRefPubMed Clark S, Farrington K, Chilcot J (2014) Nonadherence in dialysis patients: prevalence, measurement, outcome, and psychological determinants. Semin Dial 27:42–49CrossRefPubMed
28.
Zurück zum Zitat Kroenke K, Spitzer RL, Williams JB (2001) The PHQ-9: validity of a brief depression severity measure. Gen Intern Med 16:606–613CrossRef Kroenke K, Spitzer RL, Williams JB (2001) The PHQ-9: validity of a brief depression severity measure. Gen Intern Med 16:606–613CrossRef
29.
Zurück zum Zitat Richardson LP, McCauley E, Grossman DC, McCarty CA, Richards J, Russo JE, Rockhill C, Katon W (2010) Evaluation of the patient health Questionnaire-9 item for detecting major depression among adolescents. Pediatrics 126:1117–1123CrossRefPubMed Richardson LP, McCauley E, Grossman DC, McCarty CA, Richards J, Russo JE, Rockhill C, Katon W (2010) Evaluation of the patient health Questionnaire-9 item for detecting major depression among adolescents. Pediatrics 126:1117–1123CrossRefPubMed
30.
Zurück zum Zitat Kovacs M (2010) Children’s depression inventory, 2nd edn. Multi-Health Systems, Inc., Toronto Kovacs M (2010) Children’s depression inventory, 2nd edn. Multi-Health Systems, Inc., Toronto
31.
Zurück zum Zitat Birmaher B, Brent DA, Chiappetta L, Bridge J, Monga S, Baugher M (1999) Psychometric properties of the screen for child anxiety related emotional disorders (SCARED): a replication study. J Am Acad Child Adolesc Psychiatry 38:1230–1236CrossRefPubMed Birmaher B, Brent DA, Chiappetta L, Bridge J, Monga S, Baugher M (1999) Psychometric properties of the screen for child anxiety related emotional disorders (SCARED): a replication study. J Am Acad Child Adolesc Psychiatry 38:1230–1236CrossRefPubMed
32.
Zurück zum Zitat Kendall PC (2012) Child and adolescent therapy: cognitive-behavioral procedures, 4th edn. Guilford Press, New York Kendall PC (2012) Child and adolescent therapy: cognitive-behavioral procedures, 4th edn. Guilford Press, New York
33.
Zurück zum Zitat Greco LA, Hayes SC (eds) (2008) Acceptance and mindfulness treatments for children and adolescents: A practitioner’s guide. New Harbinger Publications, Oakland Greco LA, Hayes SC (eds) (2008) Acceptance and mindfulness treatments for children and adolescents: A practitioner’s guide. New Harbinger Publications, Oakland
34.
Zurück zum Zitat Mufson L, Dorta KP, Moreau D, Weissman MM (2004) Interpersonal psychotherapy for depressed adolescents, 2nd edn. Guilford Press, New York Mufson L, Dorta KP, Moreau D, Weissman MM (2004) Interpersonal psychotherapy for depressed adolescents, 2nd edn. Guilford Press, New York
35.
Zurück zum Zitat Kiliś-Pstrusińska K, Medyńska A, Chmielewska IB, Grenda R, Kluska-Jóźwiak A, Leszczyńska B, Niedomagała J, Olszak-Szot I, Miklaszewska M, Szczepańska M (2013) Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: multicentre national study results. Qual Life Res 22:2889–2897CrossRefPubMedPubMedCentral Kiliś-Pstrusińska K, Medyńska A, Chmielewska IB, Grenda R, Kluska-Jóźwiak A, Leszczyńska B, Niedomagała J, Olszak-Szot I, Miklaszewska M, Szczepańska M (2013) Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: multicentre national study results. Qual Life Res 22:2889–2897CrossRefPubMedPubMedCentral
36.
Zurück zum Zitat Fukunishi I, Honda M, Kamiyama Y, Ito H (1993) Influence of mothers on school adjustment of continuous ambulatory peritoneal dialysis children. Perit Dial Int 13:232–235CrossRefPubMed Fukunishi I, Honda M, Kamiyama Y, Ito H (1993) Influence of mothers on school adjustment of continuous ambulatory peritoneal dialysis children. Perit Dial Int 13:232–235CrossRefPubMed
37.
Zurück zum Zitat Sattoe JN, Jedeloo S, van Staa A (2013) Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of camp COOL. BMC Nephrol 14:1–14CrossRef Sattoe JN, Jedeloo S, van Staa A (2013) Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of camp COOL. BMC Nephrol 14:1–14CrossRef
38.
Zurück zum Zitat Maslow GR, Chung RJ (2013) Systematic review of positive youth development programs for adolescents with chronic illness. Pediatrics 131:1605–1618CrossRef Maslow GR, Chung RJ (2013) Systematic review of positive youth development programs for adolescents with chronic illness. Pediatrics 131:1605–1618CrossRef
39.
Zurück zum Zitat Kazdin AE (2005) Parent management training: treatment for oppositional, aggressive, and antisocial behavior in children and adolescents. Oxford University Press, New York Kazdin AE (2005) Parent management training: treatment for oppositional, aggressive, and antisocial behavior in children and adolescents. Oxford University Press, New York
40.
Zurück zum Zitat Erickson SJ, Gerstle M, Feldstein SW (2005) Brief interventions and motivational interviewing with children, adolescents, and their parents in pediatric health care settings: a review. Arch Pediatr Adolesc Med 159:1173–1180CrossRefPubMed Erickson SJ, Gerstle M, Feldstein SW (2005) Brief interventions and motivational interviewing with children, adolescents, and their parents in pediatric health care settings: a review. Arch Pediatr Adolesc Med 159:1173–1180CrossRefPubMed
41.
Zurück zum Zitat Duquette PJ, Hooper SR, Wetherington CE, Icard PF, Gipson DS (2007) Brief report: intellectual and academic functioning in pediatric chronic kidney disease. J Pediatr Psychol 32:1011–1017CrossRefPubMed Duquette PJ, Hooper SR, Wetherington CE, Icard PF, Gipson DS (2007) Brief report: intellectual and academic functioning in pediatric chronic kidney disease. J Pediatr Psychol 32:1011–1017CrossRefPubMed
42.
Zurück zum Zitat Lawry KW, Brouhard BH, Cunningham RJ (1994) Cognitive functioning and school performance in children with renal failure. Pediatr Nephrol 8:326–329CrossRefPubMed Lawry KW, Brouhard BH, Cunningham RJ (1994) Cognitive functioning and school performance in children with renal failure. Pediatr Nephrol 8:326–329CrossRefPubMed
43.
Zurück zum Zitat Neu AM, Sander A, Borzych-Dużałka D, Watson AR, Vallés PG, Ha IS, Patel H, Askenazi D, Balasz-Chmielewska I, Lauronen J (2012) Comorbidities in chronic pediatric peritoneal dialysis patients: a report of the International Pediatric Peritoneal Dialysis Network. Perit Dial Int 32:410–418CrossRefPubMedPubMedCentral Neu AM, Sander A, Borzych-Dużałka D, Watson AR, Vallés PG, Ha IS, Patel H, Askenazi D, Balasz-Chmielewska I, Lauronen J (2012) Comorbidities in chronic pediatric peritoneal dialysis patients: a report of the International Pediatric Peritoneal Dialysis Network. Perit Dial Int 32:410–418CrossRefPubMedPubMedCentral
44.
Zurück zum Zitat Bawden H, Acott P, Carter J, Lirenman D, MacDonald G, McAllister M, McDonnell M, Shea S, Crocker J (2004) Neuropsychological functioning in end-stage renal disease. Arch Dis Child 89:644–647CrossRefPubMedPubMedCentral Bawden H, Acott P, Carter J, Lirenman D, MacDonald G, McAllister M, McDonnell M, Shea S, Crocker J (2004) Neuropsychological functioning in end-stage renal disease. Arch Dis Child 89:644–647CrossRefPubMedPubMedCentral
45.
Zurück zum Zitat Brouhard BH, Donaldson LA, Lawry KW, McGowan KR, Drotar D, Davis I, Rose S, Tejani A (2000) Cognitive functioning in children on dialysis and post-transplantation. Pediatr Transplant 4:261–267CrossRefPubMed Brouhard BH, Donaldson LA, Lawry KW, McGowan KR, Drotar D, Davis I, Rose S, Tejani A (2000) Cognitive functioning in children on dialysis and post-transplantation. Pediatr Transplant 4:261–267CrossRefPubMed
46.
Zurück zum Zitat Gipson DS, Hooper SR, Duquette PJ, Wetherington CE, Stellwagen KK, Jenkins TL, Ferris ME (2006) Memory and executive functions in pediatric chronic kidney disease. Child Neuropsychol 12:391–405CrossRefPubMed Gipson DS, Hooper SR, Duquette PJ, Wetherington CE, Stellwagen KK, Jenkins TL, Ferris ME (2006) Memory and executive functions in pediatric chronic kidney disease. Child Neuropsychol 12:391–405CrossRefPubMed
47.
Zurück zum Zitat Fennell RS, Fennell EB, Carter RL, Mings EL, Klausner AB, Hurst JR (1990) A longitudinal study of the cognitive function of children with renal failure. Pediatr Nephrol 4:11–15CrossRefPubMed Fennell RS, Fennell EB, Carter RL, Mings EL, Klausner AB, Hurst JR (1990) A longitudinal study of the cognitive function of children with renal failure. Pediatr Nephrol 4:11–15CrossRefPubMed
48.
Zurück zum Zitat Crocker JF, Acott PD, Carter JE, Lirenman DS, MacDonald WG, McAllister M, McDonnell M, Shea S, Bawden HN (2002) Neuropsychological outcome in children with acquired or congenital renal disease. Pediatr Nephrol 17:908–912CrossRefPubMed Crocker JF, Acott PD, Carter JE, Lirenman DS, MacDonald WG, McAllister M, McDonnell M, Shea S, Bawden HN (2002) Neuropsychological outcome in children with acquired or congenital renal disease. Pediatr Nephrol 17:908–912CrossRefPubMed
49.
Zurück zum Zitat Fennell RS, Fennell EB, Carter RL, Mings EL, Klausner AB, Hurst JR (1990) Association between renal function and cognition in childhood chronic renal failure. Pediatr Nephrol 4:16–20CrossRefPubMed Fennell RS, Fennell EB, Carter RL, Mings EL, Klausner AB, Hurst JR (1990) Association between renal function and cognition in childhood chronic renal failure. Pediatr Nephrol 4:16–20CrossRefPubMed
50.
Zurück zum Zitat Geary DF, Haka-Ikse K (1989) Neurodevelopmental progress of young children with chronic renal disease. Pediatrics 84:68–72PubMed Geary DF, Haka-Ikse K (1989) Neurodevelopmental progress of young children with chronic renal disease. Pediatrics 84:68–72PubMed
51.
Zurück zum Zitat Groothoff J, Grootenhuis M, Dommerholt A, Gruppen M, Offringa M, Heymans H (2002) Impaired cognition and schooling in adults with end stage renal disease since childhood. Arch Dis Child 87:380–385CrossRefPubMedPubMedCentral Groothoff J, Grootenhuis M, Dommerholt A, Gruppen M, Offringa M, Heymans H (2002) Impaired cognition and schooling in adults with end stage renal disease since childhood. Arch Dis Child 87:380–385CrossRefPubMedPubMedCentral
52.
Zurück zum Zitat Hartung EA, Kim JY, Laney N, Hooper SR, Radcliffe J, Port AM, Gur RC, Furth SL (2016) Evaluation of neurocognition in youth with CKD using a novel computerized neurocognitive battery. Clin J Am Soc Nephrol 11:39–46CrossRefPubMed Hartung EA, Kim JY, Laney N, Hooper SR, Radcliffe J, Port AM, Gur RC, Furth SL (2016) Evaluation of neurocognition in youth with CKD using a novel computerized neurocognitive battery. Clin J Am Soc Nephrol 11:39–46CrossRefPubMed
53.
Zurück zum Zitat Slickers J, Duquette P, Hooper S, Gipson D (2007) Clinical predictors of neurocognitive deficits in children with chronic kidney disease. Pediatr Nephrol 22:565–572CrossRefPubMedPubMedCentral Slickers J, Duquette P, Hooper S, Gipson D (2007) Clinical predictors of neurocognitive deficits in children with chronic kidney disease. Pediatr Nephrol 22:565–572CrossRefPubMedPubMedCentral
54.
Zurück zum Zitat Amr M, El-Gilany AH, Bakr A, El Sheshtawy E (2013) Assessing the intelligence of children with chronic kidney diseases. Saudi J Kidney Dis Transpl 24:67–71CrossRefPubMed Amr M, El-Gilany AH, Bakr A, El Sheshtawy E (2013) Assessing the intelligence of children with chronic kidney diseases. Saudi J Kidney Dis Transpl 24:67–71CrossRefPubMed
55.
Zurück zum Zitat Yousefichaijan P, Sharafkhah M, Vazirian S, Seyedzadeh A, Rafeie M, Salehi B, Amiri M, Ebrahimimonfared M (2015) Attention-deficit/hyperactivity disorder in children undergoing peritoneal dialysis. Nephrourol Mon 7:e24427PubMedPubMedCentral Yousefichaijan P, Sharafkhah M, Vazirian S, Seyedzadeh A, Rafeie M, Salehi B, Amiri M, Ebrahimimonfared M (2015) Attention-deficit/hyperactivity disorder in children undergoing peritoneal dialysis. Nephrourol Mon 7:e24427PubMedPubMedCentral
57.
Zurück zum Zitat Pai AL, Ostendorf HM (2011) Treatment adherence in adolescents and young adults affected by chronic illness during the health care transition from pediatric to adult health care: a literature review. J Child Health Care 40:16–33CrossRef Pai AL, Ostendorf HM (2011) Treatment adherence in adolescents and young adults affected by chronic illness during the health care transition from pediatric to adult health care: a literature review. J Child Health Care 40:16–33CrossRef
58.
Zurück zum Zitat Atkinson MA, Lestz RM, Fivush BA, Silverstein DM (2011) Comparative clinical outcomes between pediatric and young adult dialysis patients. Pediatr Nephrol 26:2219–2226CrossRefPubMed Atkinson MA, Lestz RM, Fivush BA, Silverstein DM (2011) Comparative clinical outcomes between pediatric and young adult dialysis patients. Pediatr Nephrol 26:2219–2226CrossRefPubMed
59.
Zurück zum Zitat Stam H, Hartman EE, Deurloo JA, Groothoff J, Grootenhuis MA (2006) Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health 39:4–13CrossRefPubMed Stam H, Hartman EE, Deurloo JA, Groothoff J, Grootenhuis MA (2006) Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health 39:4–13CrossRefPubMed
60.
Zurück zum Zitat Lewis H, Marks SD (2014) Differences between paediatric and adult presentation of ESKD in attainment of adult social goals. Pediatr Nephrol 29:2379–2385CrossRefPubMed Lewis H, Marks SD (2014) Differences between paediatric and adult presentation of ESKD in attainment of adult social goals. Pediatr Nephrol 29:2379–2385CrossRefPubMed
61.
Zurück zum Zitat Francis A, Johnson DW, Craig JC, Wong G (2018) Moving on: transitioning young people with chronic kidney disease to adult care. Pediatr Nephrol 33:973–983CrossRefPubMed Francis A, Johnson DW, Craig JC, Wong G (2018) Moving on: transitioning young people with chronic kidney disease to adult care. Pediatr Nephrol 33:973–983CrossRefPubMed
62.
Zurück zum Zitat Bell L (2007) Adolescent dialysis patient transition to adult care: a cross-sectional survey. Pediatr Nephrol 22:720–726CrossRefPubMed Bell L (2007) Adolescent dialysis patient transition to adult care: a cross-sectional survey. Pediatr Nephrol 22:720–726CrossRefPubMed
63.
Zurück zum Zitat Watson AR, Harden P, Ferris M, Kerr PG, Mahan J, Ramzy MF (2011) Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatr Neph Association (IPNA). Pediatr Nephrol 26:1753–1757CrossRefPubMed Watson AR, Harden P, Ferris M, Kerr PG, Mahan J, Ramzy MF (2011) Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatr Neph Association (IPNA). Pediatr Nephrol 26:1753–1757CrossRefPubMed
64.
Zurück zum Zitat Zhang LF, Ho JS, Kennedy SE (2014) A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease. BMC Pediatr 14:4–14CrossRefPubMedPubMedCentral Zhang LF, Ho JS, Kennedy SE (2014) A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease. BMC Pediatr 14:4–14CrossRefPubMedPubMedCentral
65.
Zurück zum Zitat Ferris ME, Harward DH, Bickford K, Layton JB, Ferris MT, Hogan SL, Gipson DS, McCoy LP, Hooper SR (2012) A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TRxANSITION scale. Ren Fail 34:744–753CrossRefPubMed Ferris ME, Harward DH, Bickford K, Layton JB, Ferris MT, Hogan SL, Gipson DS, McCoy LP, Hooper SR (2012) A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TRxANSITION scale. Ren Fail 34:744–753CrossRefPubMed
66.
Zurück zum Zitat Sawicki GS, Lukens-Bull K, Yin X, Demars N, Huang I-C, Livingood W, Reiss J, Wood D (2009) Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ—Transition Readiness Assessment Questionnaire. J Pedatr Psychol 36:160–171CrossRef Sawicki GS, Lukens-Bull K, Yin X, Demars N, Huang I-C, Livingood W, Reiss J, Wood D (2009) Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ—Transition Readiness Assessment Questionnaire. J Pedatr Psychol 36:160–171CrossRef
67.
Zurück zum Zitat Herzer M, Goebel J, Cortina S (2010) Transitioning cognitively impaired young patients with special health needs to adult-oriented care: collaboration between medical providers and pediatric psychologists. Curr Opin Pediatr 22:668–672PubMed Herzer M, Goebel J, Cortina S (2010) Transitioning cognitively impaired young patients with special health needs to adult-oriented care: collaboration between medical providers and pediatric psychologists. Curr Opin Pediatr 22:668–672PubMed
68.
Zurück zum Zitat Varni JW, Seid M, Kurtin PS (2001) PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39:800–812CrossRefPubMed Varni JW, Seid M, Kurtin PS (2001) PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39:800–812CrossRefPubMed
69.
Zurück zum Zitat Goldstein SL, Graham N, Warady BA, Seikaly M, McDonald R, Burwinkle TM, Limbers CA, Varni JW (2008) Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL). Am J Kidney Dis 51:285–297CrossRefPubMed Goldstein SL, Graham N, Warady BA, Seikaly M, McDonald R, Burwinkle TM, Limbers CA, Varni JW (2008) Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL). Am J Kidney Dis 51:285–297CrossRefPubMed
Metadaten
Titel
Psychosocial considerations and recommendations for care of pediatric patients on dialysis
verfasst von
Michelle A. Clementi
Cortney Taylor Zimmerman
Publikationsdatum
20.03.2019
Verlag
Springer Berlin Heidelberg
Erschienen in
Pediatric Nephrology / Ausgabe 5/2020
Print ISSN: 0931-041X
Elektronische ISSN: 1432-198X
DOI
https://doi.org/10.1007/s00467-019-04227-5

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