Background
Status and transitional PROMs
Methods
Participant recruitment
Data collection
Data analysis
Results
PCOQ-status
Summary of results
Cognitive Process
|
Patient Characteristics
| ||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|
Participant
|
Comprehension
1
|
Temporal Comprehension
2
|
Decision
3
|
Response
4
|
Total Problems
|
Gender
|
Age
|
Ethnic Group
|
Highest Education Level
|
Recruitment Method
|
Long-Term Conditions
|
1
|
4
|
1
|
–
|
4
|
9
|
Female
|
75+
|
White British
|
O level
|
PPG
a
|
None
|
2
|
1
|
–
|
–
|
–
|
1
|
Female
|
55–64
|
White British
|
Other
b
|
PPG
|
> one
|
3
|
4
|
–
|
–
|
3
|
7
|
Female
|
75+
|
White British
|
None
|
PPG
|
None
|
4
|
4
|
–
|
1
|
–
|
5
|
Male
|
35–54
|
White British
|
A level
|
GP
|
> one
|
5
|
2
|
–
|
–
|
1
|
3
|
Female
|
75+
|
White British
|
Other
|
PPG
|
One
|
6
|
6
|
–
|
–
|
–
|
6
|
Male
|
75+
|
Other
|
Other
|
GP
|
> one
|
7
|
1
|
1
|
2
|
6
|
10
|
Male
|
18–34
|
Other
|
NVQ
|
GP
|
One
|
Round 1 Total
|
22
|
2
|
3
|
14
|
41
| ||||||
8
|
2
|
–
|
1
|
4
|
7
|
Female
|
35–54
|
White British
|
None
|
GP
|
one
|
9
|
2
|
2
|
–
|
–
|
4
|
Female
|
18–34
|
White British
|
NVQ
|
GP
|
> one
|
10
|
2
|
3
|
–
|
–
|
5
|
Male
|
35–54
|
Other
|
Degree
|
GP
|
none
|
11
|
–
|
–
|
–
|
1
|
1
|
Male
|
55–64
|
White British
|
Not given
|
GP
|
one
|
12
|
–
|
–
|
–
|
3
|
3
|
Male
|
55–64
|
White British
|
A level
|
PPG
|
one
|
13
|
3
|
–
|
–
|
–
|
3
|
Female
|
35–54
|
White British
|
None
|
GP
|
one
|
14
|
0
|
–
|
–
|
–
|
–
|
Female
|
65–74
|
White British
|
O level
|
GP
|
> one
|
Round 2 Total
|
9
|
5
|
1
|
8
|
23
| ||||||
15
|
–
|
–
|
–
|
1
|
1
|
Female
|
35–54
|
White British
|
NVQ
|
GP
|
> one
|
16
|
2
|
–
|
–
|
–
|
2
|
Male
|
65–74
|
White British
|
Other
|
GP
|
> one
|
17
|
–
|
–
|
–
|
–
|
–
|
Female
|
35–54
|
White British
|
O Level
|
GP
|
one
|
18
|
1
|
–
|
–
|
1
|
2
|
Male
|
65–74
|
White British
|
Not given
|
PPG
|
none
|
19
|
2
|
–
|
–
|
–
|
2
|
Female
|
55–64
|
White British
|
Other
|
PPG
|
> one
|
20
|
–
|
–
|
–
|
–
|
–
|
Male
|
18–34
|
White British
|
NVQ
|
PPG
|
none
|
Round 3 Total
|
5
|
–
|
–
|
2
|
7
|
Comprehension
Temporal comprehension
Decision process
Response process
Face validity
Other findings
Independent coding comparison
PCOQ change
Cognitive interview results
# | Item | C1 | S2 |
---|---|---|---|
1 | Pain or discomfort | 1 | 0 |
2 | Other physical symptoms | 1 | 1 |
3 | Feeling low in mood or depressed | 2 | 0 |
4 | Feeling anxious or stressed | 1 | 0 |
5 | Enjoying life | 2 | 0 |
6 | Doing your normal activities | 2 | 0 |
7 | Worries about health generally | 0 | 0 |
8 | Worries about serious illness | 1 | 1 |
9 | Worries about missed health issues | 1 | 0 |
10 | Worries about damage to health | 1 | 0 |
11 | Clinicians will listen | 2 | 1 |
12 | Clinicians will do their best to help you | 2 | 1 |
13 | Clinicians have good medical knowledge | 1 | 1 |
14 | Clinicians would spot it if you were seriously ill | 2 | 1 |
15 | You can trust clinicians | 2 | 1 |
16 | Can get good healthcare when you need it | 2 | 1 |
17 | Know to expect with your health in future | 2 | 2 |
18 | Know how to look after yourself and stay healthy | 2 | 2 |
18a | Understand your health generally | 1 | 3 |
19 | Understand current illness | 1 | 0 |
20 | Understand how to manage symptoms of illness | 2 | 1 |
21 | Support to manage in daily life | 2 | 0 |
22 | Support to deal with anxiety or worries | 2 | 0 |
23 | Dealing with the cause of health problems | 1 | 0 |
24 | On the right path to dealing with health problems | 1 | 1 |
25 | Side-effects | 3 | 0 |
26 | Follow clinician advice on medication | 2 | 0 |
27 | Follow clinician advice on lifestyle | 2 | 0 |
Total | 44 | 17 | |
Participant | C1 | S2 | |
P1 | 16 | ||
P2 | – | 11 | |
P4 | – | 4 | |
P5 | – | – | |
P6 | 25 | ||
P7 | 3 | 2 | |
Total | 44 | 17 |