Ausgabe 1/2018
Inhalt (131 Artikel)
Health care use and costs at the end of life: a comparison of elderly Australian decedents with and without a cancer history
Rebecca Reeve, Preeyaporn Srasuebkul, Julia M. Langton, Marion Haas, Rosalie Viney, Sallie-Anne Pearson
Volunteer navigation partnerships: Piloting a compassionate community approach to early palliative care
Barbara Pesut, Wendy Duggleby, Grace Warner, Konrad Fassbender, Elisabeth Antifeau, Brenda Hooper, Madeleine Greig, Kelli Sullivan
Mindfulness and compassion-oriented practices at work reduce distress and enhance self-care of palliative care teams: a mixed-method evaluation of an “on the job“ program
Claudia L. Orellana-Rios, Lukas Radbruch, Martina Kern, Yesche U. Regel, Andreas Anton, Shane Sinclair, Stefan Schmidt
Strengthening primary health care teams with palliative care leaders: protocol for a cluster randomized clinical trial
Joan Llobera, Noemí Sansó, Amador Ruiz, Merce Llagostera, Estefania Serratusell, Carlos Serrano, María Luisa Martín Roselló, Enric Benito, Eusebio J. Castaño, Alfonso Leiva
Social workers’ involvement in advance care planning: a systematic narrative review
Chong-Wen Wang, Cecilia L. W. Chan, Amy Y. M. Chow
The provision of generalist and specialist palliative care for patients with non-malignant respiratory disease in the North and Republic of Ireland: a qualitative study
Clare Mc Veigh, Joanne Reid, Philip Larkin, Sam Porter, Peter Hudson
Ward social workers’ views of what facilitates or hinders collaboration with specialist palliative care team social workers: A grounded theory
Janice Firn, Nancy Preston, Catherine Walshe
The impact of antiretroviral therapy on symptom burden among HIV outpatients with low CD4 count in rural Uganda: nested longitudinal cohort study
Katie Wakeham, Richard Harding, Jonathan Levin, Rosalind Parkes-Ratanshi, Anatoli Kamali, David G Lalloo
Better palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research
Siobhán Fox, Carol FitzGerald, Karen Harrison Dening, Kate Irving, W. George Kernohan, Adrian Treloar, David Oliver, Suzanne Guerin, Suzanne Timmons
Advance directives from haematology departments: the patient’s freedom of choice and communication with families. A qualitative analysis of 35 written documents
S. Trarieux-Signol, D. Bordessoule, J. Ceccaldi, S. Malak, A. Polomeni, J. B. Fargeas, N. Signol, H. Pauliat, S. Moreau
Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program
P. H. Chong, J. A. De Castro Molina, K. Teo, W. S. Tan
What does ‘complex’ mean in palliative care? Triangulating qualitative findings from 3 settings
Emma Carduff, Sarah Johnston, Catherine Winstanley, Jamie Morrish, Scott A. Murray, Juliet Spiller, Anne Finucane
Continuous palliative sedation for patients with advanced cancer at a tertiary care cancer center
Bernard Lobato Prado, Diogo Bugano Diniz Gomes, Pedro Luiz Serrano Usón Júnior, Patricia Taranto, Monique Sedlmaier França, Daniel Eiger, Rodrigo Coutinho Mariano, David Hui, Auro Del Giglio
Study protocol: evaluation of specialized outpatient palliative care (SOPC) in the German state of Hesse (ELSAH study) – work package II: palliative care for pediatric patients
Lisa-R. Ulrich, Dania Gruber, Michaela Hach, Stefan Boesner, Joerg Haasenritter, Katrin Kuss, Hannah Seipp, Ferdinand M. Gerlach, Antje Erler
Fractionated palliative thoracic radiotherapy in non-small cell lung cancer – futile or worth-while?
Malene Støchkel Frank, Dorte Schou Nørøxe, Lotte Nygård, Gitte Fredberg Persson
Increasing Trend in Hospital Deaths Consistent among Older Decedents in Korea: A Population-based Study Using Death Registration Database, 2001–2014
Tran Thi Xuan Mai, Eunsook Lee, Hyunsoon Cho, Yoon Jung Chang
#Deathbedlive: the end-of-life trajectory, reflected in a cancer patient’s tweets
Joanna Taylor, Claudia Pagliari
Differences in do-not-resuscitate orders, hospice care utilization, and late referral to hospice care between cancer and non-cancer decedents in a tertiary Hospital in Taiwan between 2010 and 2015: a hospital-based observational study
Tzu-Chien Shih, Hsiao-Ting Chang, Ming-Hwai Lin, Chun-Ku Chen, Tzeng-Ji Chen, Shinn-Jang Hwang
Palliative and end-of-life care research in Scotland 2006–2015: a systematic scoping review
Anne M. Finucane, Emma Carduff, Jean Lugton, Stephen Fenning, Bridget Johnston, Marie Fallon, David Clark, Juliet A. Spiller, Scott A. Murray
Bridging gaps in everyday life – a free-listing approach to explore the variety of activities performed by physiotherapists in specialized palliative care
U. Olsson Möller, K. Stigmar, I. Beck, M. Malmström, B. H. Rasmussen
Primary palliative Care in General Practice – study protocol of a three-stage mixed-methods organizational health services research study
Helen Ewertowski, Fabian Tetzlaff, Stephanie Stiel, Nils Schneider, Saskia Jünger
Transitions as experienced by persons in palliative care circumstances and their families – a qualitative meta-synthesis
André Fringer, Mareike Hechinger, Wilfried Schnepp
Barriers and facilitators to the implementation of a paediatric palliative care team
Lisa M. Verberne, Marijke C. Kars, Sasja A. Schepers, Antoinette Y. N. Schouten-van Meeteren, Martha A. Grootenhuis, Johannes J. M. van Delden
“I always tried to forget about the condition and pretend I was healed”: coping with cervical cancer in rural Ghana
Charity Binka, Samuel Harrenson Nyarko, Kofi Awusabo-Asare, David Teye Doku
A painful experience of limited understanding: healthcare professionals’ experiences with palliative care of people with severe dementia in Norwegian nursing homes
May Helen Midtbust, Rigmor Einang Alnes, Eva Gjengedal, Else Lykkeslet
Twenty years of home-based palliative care in Malappuram, Kerala, India: a descriptive study of patients and their care-givers
Rekha Rachel Philip, Sairu Philip, Jaya Prasad Tripathy, Abdulla Manima, Emilie Venables
Systematic development and adjustment of the German version of the Supportive and Palliative Care Indicators Tool (SPICT-DE)
Kambiz Afshar, Angelika Feichtner, Kirsty Boyd, Scott Murray, Saskia Jünger, Birgitt Wiese, Nils Schneider, Gabriele Müller-Mundt
Multidimensional needs of patients living and dying with heart failure in Kenya: a serial interview study
Kellen N. Kimani, Scott A. Murray, Liz Grant
The second patient? Family members of cancer patients and their role in end-of-life decision making
Katsiaryna Laryionava, Timo A. Pfeil, Mareike Dietrich, Stella Reiter-Theil, Wolfgang Hiddemann, Eva C. Winkler
The DEsire to DIe in Palliative care: Optimization of Management (DEDIPOM) – a study protocol
Kerstin Kremeike, Maren Galushko, Gerrit Frerich, Vanessa Romotzky, Stefanie Hamacher, Gary Rodin, Holger Pfaff, Raymond Voltz
The contribution of a MOOC to community discussions around death and dying
Jennifer Tieman, Lauren Miller-Lewis, Deb Rawlings, Deborah Parker, Christine Sanderson
Patient’s and health care provider’s perspectives on music therapy in palliative care – an integrative review
W. Schmid, J. H. Rosland, S. von Hofacker, I. Hunskår, F. Bruvik
Palliative care specialists’ perceptions concerning referral of haematology patients to their services: findings from a qualitative study
Dorothy McCaughan, Eve Roman, Alexandra G. Smith, Anne C. Garry, Miriam J. Johnson, Russell D. Patmore, Martin R. Howard, Debra A. Howell
The Rotterdam Elderly Pain Observation Scale (REPOS) is reliable and valid for non-communicative end-of-life patients
Anniek D. Masman, Monique van Dijk, Joost van Rosmalen, Frans P. M. Baar, Dick Tibboel, Anneke A. Boerlage
The family talk intervention in palliative care: a study protocol
Rakel Eklund, Ulrika Kreicbergs, Anette Alvariza, Malin Lövgren
Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites
Bridget Johnston, Anne Patterson, Lydia Bird, Eleanor Wilson, Kathryn Almack, Gillian Mathews, Jane Seymour
Indicators for early assessment of palliative care in lung cancer patients: a population study using linked health data
Maria Kelly, Katie M. O’Brien, Michael Lucey, Kerri Clough-Gorr, Ailish Hannigan
Development of the Japanese version of an information aid to provide accurate information on prognosis to patients with advanced non–small-cell lung cancer receiving chemotherapy: a pilot study
Kikuo Nakano, Yoshihiro Kitahara, Mineyo Mito, Misato Seno, Shoji Sunada
“Never at ease” – family carers within integrated palliative care: a multinational, mixed method study
Gülay Ateş, Anne Frederieke Ebenau, Csilla Busa, Ágnes Csikos, Jeroen Hasselaar, Birgit Jaspers, Johan Menten, Sheila Payne, Karen Van Beek, Sandra Varey, Marieke Groot, Lukas Radbruch
Development and validation of the quality care questionnaire –palliative care (QCQ-PC): patient-reported assessment of quality of palliative care
Young Ho Yun, Eun Kyo Kang, Jihye Lee, Jiyeon Choo, Hyewon Ryu, Hye-min Yun, Jung Hun Kang, Tae You Kim, Jin-Ah Sim, Yaeji Kim
Palliative care in the home: a scoping review of study quality, primary outcomes, and thematic component analysis
Mark Hofmeister, Ally Memedovich, Laura E. Dowsett, Laura Sevick, Tamara McCarron, Eldon Spackman, Tania Stafinski, Devidas Menon, Tom Noseworthy, Fiona Clement
Palliative care in the emergency department: an educational investigation and intervention
Jessica M. Goldonowicz, Michael S. Runyon, Mark J. Bullard
Analysis of factors delaying the surgical treatment of patients with neurological deficits in the course of spinal metastatic disease
Grzegorz Guzik
Effects of a new medical insurance payment system for hospice patients in palliative care programs in Korea
Youngin Lee, Seung Hun Lee, Yun Jin Kim, Sang Yeoup Lee, Jeong Gyu Lee, Dong Wook Jeong, Yu Hyeon Yi, Young Jin Tak, Hye Rim Hwang, Mieun Gwon
Factors associated with emergency services use in Taiwanese advanced cancer patients receiving palliative home care services during out-of-hours periods: a retrospective medical record study
Yee-Hsin Kao, Yao-Ting Liu, Malcolm Koo, Jui-Kun Chiang
Integrating palliative care in long-term care facilities across Europe (PACE): protocol of a cluster randomized controlled trial of the ‘PACE Steps to Success’ intervention in seven countries
Tinne Smets, Bregje B. D. Onwuteaka-Philipsen, Rose Miranda, Lara Pivodic, Marc Tanghe, Hein van Hout, Roeline H. R. W. Pasman, Mariska Oosterveld-Vlug, Ruth Piers, Nele Van Den Noortgate, Anne B. Wichmann, Yvonne Engels, Myrra Vernooij-Dassen, Jo Hockley, Katherine Froggatt, Sheila Payne, Katarzyna Szczerbińska, Marika Kylänen, Suvi Leppäaho, Ilona Barańska, Giovanni Gambassi, Sophie Pautex, Catherine Bassal, Luc Deliens, Lieve Van den Block, Federica Mammarella, Martina Mercuri, Paola Rossi, Ivan Segat, Agata Stodolska, Eddy Adang, Paula Andreasen, Outi Kuitunen-Kaija, Danni Collingridge Moore, Agnieszka Pac, Violetta Kijowska, Maud ten Koppel, Jenny T. van der Steen, Emilie Morgan de Paula
Palliative sedation in Germany: factors and treatment practices associated with different sedation rate estimates in palliative and hospice care services
Stephanie Stiel, Mareike Nurnus, Christoph Ostgathe, Carsten Klein
Developing and testing a nursing home end -of -life care chart audit tool
Genevieve N. Thompson, Susan E. McClement, Nina Labun, Kathleen Klaasen
Partnering with families to promote nutrition in cancer care: feasibility and acceptability of the PIcNIC intervention
Alex Molassiotis, Shelley Roberts, Hui Lin Cheng, Henry K. F. To, Po Shan Ko, Wang Lam, Yuk Fong Lam, Jessica Abbott, Deborah Kiefer, Jasotha Sanmugarajah, Andrea P. Marshall
Using motivational interviewing to facilitate death talk in end-of-life care: an ethical analysis
Isra Black, Ásgeir Rúnar Helgason
Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol
Gerd Ahlström, Per Nilsen, Eva Benzein, Lina Behm, Birgitta Wallerstedt, Magnus Persson, Anna Sandgren
Palliative care for people with schizophrenia: a qualitative study of an under-serviced group in need
Beverley McNamara, Anne Same, Lorna Rosenwax, Brian Kelly
A review of paper-based advance care planning aids
John F. P. Bridges, Thomas Lynch, Anne L. R. Schuster, Norah L. Crossnohere, Katherine Clegg Smith, Rebecca A. Aslakson
Striving for a balance between leading and following the patient and family – nurses’ strategies to facilitate the transition from life-prolonging care to palliative care: an interview study
Ulrika Hilding, Renée Allvin, Karin Blomberg
Exploring attitudes toward physician-assisted death in patients with life-limiting illnesses with varying experiences of palliative care: a pilot study
Patricia Hizo-Abes, Lauren Siegel, Gil Schreier
Health service utilisation during the last year of life: a prospective, longitudinal study of the pathways of patients with chronic kidney disease stages 3-5
Shirley Chambers, Helen Healy, Wendy E. Hoy, Adrian Kark, Sharad Ratanjee, Geoffrey Mitchell, Carol Douglas, Patsy Yates, Ann Bonner
Redefining diagnosis-related groups (DRGs) for palliative care – a cross-sectional study in two German centres
Matthias Vogl, Eva Schildmann, Reiner Leidl, Farina Hodiamont, Helen Kalies, Bernd Oliver Maier, Marcus Schlemmer, Susanne Roller, Claudia Bausewein
Community readiness and momentum: identifying and including community-driven variables in a mixed-method rural palliative care service siting model
V. A. Crooks, M. Giesbrecht, H. Castleden, N. Schuurman, M. Skinner, A. Williams
Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients’, carers’ and health professionals’ experiences and further research questions
Jessica Baillie, Despina Anagnostou, Stephanie Sivell, Jordan Van Godwin, Anthony Byrne, Annmarie Nelson
Palliative care for patients with cancer: do patients receive the care they consider important? A survey study
Marianne Heins, Jolien Hofstede, Mieke Rijken, Joke Korevaar, Gé Donker, Anneke Francke
Comfort in palliative sedation (Compas): a transdisciplinary mixed method study protocol for linking objective assessments to subjective experiences
Stefaan Six, Steven Laureys, Jan Poelaert, Johan Bilsen, Peter Theuns, Reginald Deschepper
Exploring the meaning and practice of self-care among palliative care nurses and doctors: a qualitative study
Jason Mills, Timothy Wand, Jennifer A. Fraser
Adding a second surprise question triggers general practitioners to increase the thoroughness of palliative care planning: results of a pilot RCT with case vignettes
F. Weijers, C. Veldhoven, C. Verhagen, K. Vissers, Y. Engels
Self-competence in death work among health and social care workers: a region-wide survey in Hong Kong
Johnny T. K. Cheung, Doreen W. H. Au, Wallace C. H. Chan, Jenny H. Y. Chan, Kenway Ng, Jean Woo
The Japan hospice and palliative evaluation study 4: a cross-sectional questionnaire survey
Kento Masukawa, Maho Aoyama, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita
Palliative care for homeless people: a systematic review of the concerns, care needs and preferences, and the barriers and facilitators for providing palliative care
Hanna T. Klop, Anke J.E. de Veer, Sophie I. van Dongen, Anneke L. Francke, Judith A.C. Rietjens, Bregje D. Onwuteaka-Philipsen
Exploring end-of-life interaction in dyads of parents and adult children: a protocol for a mixed-methods study
Stephanie Stiel, Eva-Maria Stelzer, Nils Schneider, Franziska A. Herbst
Comparing unplanned and potentially planned home deaths: a population-based cross-sectional study
Camilla Kjellstadli, Bettina Sandgathe Husebø, Hogne Sandvik, Elisabeth Flo, Steinar Hunskaar
Benchmarking time to initiation of end-of-life homecare nursing: a population-based cancer cohort study in regions across Canada
Hsien Seow, Danial Qureshi, Lisa Barbera, Kim McGrail, Beverley Lawson, Fred Burge, Rinku Sutradhar
How do professionals assess the quality of life of children with advanced cancer receiving palliative care, and what are their recommendations for improvement?
Josianne Avoine-Blondin, Véronique Parent, Léonor Fasse, Clémentine Lopez, Nago Humbert, Michel Duval, Serge Sultan
Key features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review
Shaouli Shahid, Emma V. Taylor, Shelley Cheetham, John A. Woods, Samar M. Aoun, Sandra C. Thompson
Feasibility, acceptability and adaption of dignity therapy: a mixed methods study achieving 360° feedback
Sandra Stephanie Mai, Swantje Goebel, Elisabeth Jentschke, Birgitt van Oorschot, Karl-Heinz Renner, Martin Weber
The availability and effectiveness of tools supporting shared decision making in metastatic breast cancer care: a review
Inge Spronk, Jako S. Burgers, François G. Schellevis, Liesbeth M. van Vliet, Joke C. Korevaar
Use of hospital palliative care according to the place of death and disease one year before death in 2013: a French national observational study
Claire Poulalhon, Laureen Rotelli-Bihet, Sébastien Moine, Anne Fagot-Campagna, Régis Aubry, Philippe Tuppin
Formal procedure to facilitate the decision to withhold or withdraw life-sustaining interventions in a neonatal intensive care unit: a seven-year retrospective study
G. Sorin, R. Vialet, B. Tosello
Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014
Marie Friedel, Bénédicte Brichard, Christine Fonteyne, Marleen Renard, Jean-Paul Misson, Els Vandecruys, Corinne Tonon, Françoise Verfaillie, Georgette Hendrijckx, Nathalie Andersson, Ilse Ruysseveldt, Katrien Moens, Jean-Marie Degryse, Isabelle Aujoulat
Whose job? The staffing of advance care planning support in twelve international healthcare organizations: a qualitative interview study
Josie Dixon, Martin Knapp
Feasibility of hospital-initiated non-facilitator assisted advance care planning documentation for patients with palliative care needs
Maaike Kok, Gertruud F. M. van der Werff, Jenske I. Geerling, Jaap Ruivenkamp, Wies Groothoff, Annette W. G. van der Velden, Monique Thoma, Jaap Talsma, Louk G. P. Costongs, Reinold O. B. Gans, Pauline de Graeff, Anna K. L. Reyners
Place of death in patients with dementia and the association with comorbidities: a retrospective population-based observational study in Germany
Burkhard Dasch, Claudia Bausewein, Berend Feddersen
Prevalence and characteristics of breakthrough cancer pain in an outpatient clinic in a Catalan teaching hospital: incorporation of the Edmonton Classification System for Cancer pain into the diagnostic algorithm
Jaume Canal-Sotelo, Javier Trujillano-Cabello, Philip Larkin, Núria Arraràs-Torrelles, Ramona González-Rubió, Mariona Rocaspana-Garcia, Eva Barallat-Gimeno
Introducing PALETTE: an iterative method for conducting a literature search for a review in palliative care
Marieke Zwakman, Lisa M. Verberne, Marijke C. Kars, Lotty Hooft, Johannes J. M. van Delden, René Spijker
The degree of social difficulties experienced by cancer patients and their spouses
Takashi Takeuchi, Kanako Ichikura, Kanako Amano, Wakana Takeshita, Kazuho Hisamura
Residential aged care residents and components of end of life care in an Australian hospital
Laurence Jee Peng Leong, Gregory Brian Crawford
Using co-design to develop an intervention to improve communication about the heart failure trajectory and end-of-life care
Lisa Hjelmfors, Anna Strömberg, Maria Friedrichsen, Anna Sandgren, Jan Mårtensson, Tiny Jaarsma
Chemotherapy and palliative care near end-of life: examining the appropriateness at a cancer institute for colorectal cancer patients
Ilaria Massa, Oriana Nanni, Flavia Foca, Marco Maltoni, Stefania Derni, Nicola Gentili, Giovanni Luca Frassineti, Andrea Casadei Gardini, Martina Valgiusti, Dino Amadori, Elena Prati, Mattia Altini, Davide Gallegati, Elisabetta Sansoni
The interaction of socioeconomic status with place of death: a qualitative analysis of physician experiences
Joshua Wales, Allison M. Kurahashi, Amna Husain
Advance care planning in dementia: recommendations for healthcare professionals
Ruth Piers, Gwenda Albers, Joni Gilissen, Jan De Lepeleire, Jan Steyaert, Wouter Van Mechelen, Els Steeman, Let Dillen, Paul Vanden Berghe, Lieve Van den Block
Towards a public health approach for palliative care: an action-research study focused on engaging a local community and educating teenagers
Sandra Martins Pereira, Joana Araújo, Pablo Hernández-Marrero
“It doesn’t exist…”: negotiating palliative care from a culturally and linguistically diverse patient and caregiver perspective
Emma Kirby, Zarnie Lwin, Katherine Kenny, Alex Broom, Holi Birman, Phillip Good
The ‘lived experience’ of palliative care patients in one acute hospital setting – a qualitative study
Anne Black, Tamsin McGlinchey, Maureen Gambles, John Ellershaw, Catriona Rachel Mayland
Evaluation of the palliative symptom burden score (PSBS) in a specialised palliative care unit of a university medical centre - a longitudinal study
Katharina Fetz, Hendrik Vogt, Thomas Ostermann, Andrea Schmitz, Christian Schulz-Quach
A qualitative study of health care professionals’ views and experiences of paediatric advance care planning
Barbara A. Jack, Tracy K. Mitchell, Mary R. O’Brien, Sergio A. Silverio, Katherine Knighting
Does special education in palliative medicine make a difference in end-of-life decision-making?
Reetta P. Piili, Juho T. Lehto, Tiina Luukkaala, Heikki Hinkka, Pirkko-Liisa I. Kellokumpu-Lehtinen
Experiences and challenges of home care nurses and general practitioners in home-based palliative care – a qualitative study
Britt Viola Danielsen, Anne Marit Sand, Jan Henrik Rosland, Oddvar Førland
Unmet care needs of advanced cancer patients and their informal caregivers: a systematic review
Tao Wang, Alex Molassiotis, Betty Pui Man Chung, Jing-Yu Tan
Palliative care for patients with a substance use disorder and multiple problems: a study protocol
Anne Ebenau, Boukje Dijkstra, Marianne Stal-Klapwijk, Chantal ter Huurne, Ans Blom, Kris Vissers, Marieke Groot
Perceptions of trained laypersons in end-of-life or advance care planning conversations: a qualitative meta-synthesis
Elizabeth Somes, Joanna Dukes, Adreanne Brungardt, Sarah Jordan, Kristen DeSanto, Christine D. Jones, Urvi Jhaveri Sanghvi, Khadijah Breathett, Jacqueline Jones, Hillary D. Lum
Trends in treatment during the last stages of life in end-stage gynecologic cancer patients who received active palliative chemotherapy: a comparative analysis of 10-year data in a single institution
Tae-Kyu Jang, Dae-Yeon Kim, Shin-Wha Lee, Jeong-Yeol Park, Dae-Shik Suh, Jong-Hyeok Kim, Yong-Man Kim, Young-Tak Kim, Joo-Hyun Nam
How can end of life care excellence be normalized in hospitals? Lessons from a qualitative framework study
Christy Noble, Laurie Grealish, Andrew Teodorczuk, Brenton Shanahan, Balaji Hiremagular, Jodie Morris, Sarah Yardley
The Prognosis in Palliative care Study II (PiPS2): study protocol for a multi-centre, prospective, observational, cohort study
Anastasia K. Kalpakidou, Chris Todd, Vaughan Keeley, Jane Griffiths, Karen Spencer, Victoria Vickerstaff, Rumana Z. Omar, Patrick Stone
Negative pain management index scores do not necessarily indicate inadequate pain management: a cross-sectional study
Naoki Sakakibara, Takahiro Higashi, Itsuku Yamashita, Tetsusuke Yoshimoto, Motohiro Matoba
Professionals’ perceptions and current practices of integrated palliative care in chronic heart failure and chronic obstructive pulmonary disease: a qualitative study in Belgium
N. Siouta, P. Clement, B. Aertgeerts, K. Van Beek, J. Menten
Determinants of favorable or unfavorable opinion about euthanasia in a sample of French cancer patients receiving palliative care
Alexandre de Nonneville, Théo Chabal, Anthony Marin, Jean Marc La Piana, Marie Fichaux, Véronique Tuzzolino, Florence Duffaud, Pascal Auquier, Augustin Boulanger, Karine Baumstark, Sébastien Salas
Scopolaminebutyl given prophylactically for death rattle: study protocol of a randomized double-blind placebo-controlled trial in a frail patient population (the SILENCE study)
Harriëtte J. van Esch, Lia van Zuylen, Esther Oomen–de Hoop, Agnes van der Heide, Carin C. D. van der Rijt
Intranasal fentanyl for respiratory distress in children and adolescents with life-limiting conditions
Lucas Pieper, Julia Wager, Boris Zernikow
Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study
Alexandra K. Superdock, Raymond C. Barfield, Debra H. Brandon, Sharron L. Docherty
Assessing the credibility and transferability of the patient compassion model in non-cancer palliative populations
Shane Sinclair, Priya Jaggi, Thomas F. Hack, Susan E. McClement, Shelley Raffin-Bouchal, Pavneet Singh
Examining palliative and end of life care research in Ireland within a global context: a systematic mapping review of the evidence
Sonja McIlfatrick, Deborah H. L. Muldrew, Felicity Hasson, Sheila Payne
The Palliative Radiotherapy and Inflammation Study (PRAIS) - protocol for a longitudinal observational multicenter study on patients with cancer induced bone pain
Ragnhild Habberstad, Trude Camilla Salvesen Frøseth, Nina Aass, Tatiana Abramova, Theo Baas, Siri Tessem Mørkeset, Augusto Caraceni, Barry Laird, Jason W Boland, Romina Rossi, Elena Garcia-Alonso, Hanne Stensheim, Jon Håvard Loge, Marianne Jensen Hjermstad, Ellen Bjerkeset, Asta Bye, Jo-Åsmund Lund, Tora Skeidsvoll Solheim, Ola Magne Vagnildhaug, Cinzia Brunelli, Jan Kristian Damås, Tom Eirik Mollnes, Stein Kaasa, Pål Klepstad
Study protocol: evaluation of specialized outpatient palliative care in the German state of Hesse (ELSAH study) – work package I: assessing the quality of care
Katrin Kuss, Hannah Seipp, Dorothée Becker, Stefan Bösner, Antje Erler, Dania Gruber, Michaela Hach, Lisa R Ulrich, Jörg Haasenritter
End-of-life situations in cardiology: a qualitative study of physicians' and nurses’ experience in a large university hospital
Fiona Ecarnot, Nicolas Meunier-Beillard, Marie-France Seronde, Romain Chopard, François Schiele, Jean-Pierre Quenot, Nicolas Meneveau
First year experiences with a palliative out-patients structure for patients with COPD: a qualitative study of health professionals’ expectations and experiences
Dorthe Gaby Bove, Marie Lavesen, Maria Omel Jellington, Kristoffer Bastrup-Madsen Marsaa, Suzanne Forsyth Herling
Allow natural death versus do-not-resuscitate: titles, information contents, outcomes, and the considerations related to do-not-resuscitate decision
Sheng-Yu Fan, Ying-Wei Wang, I-Mei Lin
Attitudes to specialist palliative care and advance care planning in people with COPD: a multi-national survey of palliative and respiratory medicine specialists
Natasha Smallwood, David Currow, Sara Booth, Anna Spathis, Louis Irving, Jennifer Philip
The experience of caring for patients at the end-of-life stage in non-palliative care settings: a qualitative study
Xiao Bin Lai, Frances Kam Yuet Wong, Shirley Siu Yin Ching
Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives
Sarah Donnelly, Geraldine Prizeman, Diarmuid Ó Coimín, Bettina Korn, Geralyn Hynes
Talk CPR - a technology project to improve communication in do not attempt cardiopulmonary resuscitation decisions in palliative illness
Mark Taubert, James Norris, Sioned Edwards, Veronica Snow, Ilora Gillian Finlay
Access to palliative care for homeless people: complex lives, complex care
Anke J E de Veer, Barbara Stringer, Berno van Meijel, Renate Verkaik, Anneke L Francke
A public health approach to palliative care in the response to drug resistant TB: an ethnographic study in Bengaluru, India
Joseph M. Sawyer, Rahul Asgr, Florence N. Todd Fordham, John D.H. Porter
Correction to: The prognosis in palliative care study II (PiPS2): study protocol for a multi-centre, prospective, observational, cohort study
Anastasia K. Kalpakidou, Chris Todd, Vaughan Keeley, Jane Griffiths, Karen Spencer, Victoria Vickerstaff, Rumana Z. Omar, Patrick Stone
Bereaved parents’ experiences of research participation
Ashleigh E. Butler, Helen Hall, Beverley Copnell
Addressing the needs of terminally-ill patients in Bosnia-Herzegovina: patients’ perceptions and expectations
S. Aebischer Perone, R. Nikolic, R. Lazic, E. Dropic, T. Vogel, B. Lab, S. Lachat, P. Hudelson, C. Matis, S. Pautex, F. Chappuis
Anticipatory grief of spousal and adult children caregivers of people with dementia
Daphne Sze Ki Cheung, Ken Hok Man Ho, Tsz Fung Cheung, Simon Ching Lam, Mimi Mun Yee Tse
A randomised controlled pilot and feasibility study of music therapy for improving the quality of life of hospice inpatients
Sam Porter, Tracey McConnell, Lisa Graham-Wisener, Joan Regan, Miriam McKeown, Jenny Kirkwood, Mike Clarke, Evie Gardner, Saskie Dorman, Kerry McGrillen, Joanne Reid
Quality of life in men with metastatic prostate cancer in their final years before death – a retrospective analysis of prospective data
Maja Holm, Sandra Doveson, Olav Lindqvist, Agneta Wennman-Larsen, Per Fransson
Advance care planning after hospital discharge: qualitative analysis of facilitators and barriers from patient interviews
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