Ausgabe 1/2019
Inhalt (115 Artikel)
Are care staff equipped for end-of-life communication? A cross-sectional study in long-term care facilities to identify determinants of self-efficacy
Kirsten Evenblij, Maud ten Koppel, Tinne Smets, Guy A. M. Widdershoven, Bregje D. Onwuteaka-Philipsen, H. Roeline W. Pasman
Medical staff opposition to a deep and continuous palliative sedation request under Claeys-Leonetti law
Claire Vitale, Alexandre de Nonneville, Marie Fichaux, Sebastien Salas
Potential quality indicators for seriously ill home care clients: a cross-sectional analysis using Resident Assessment Instrument for Home Care (RAI-HC) data for Ontario
Lisa E. Harman, Dawn M. Guthrie, Joachim Cohen, Anja Declercq, Kathryn Fisher, Donna Goodridge, John P. Hirdes, Hsien Seow
Assessing the exertion required to induce breathlessness in a population with advanced cancer: matching measures to the level of physical function
Kahren M. White, Meera R. Agar, David C. Currow
Trends in descriptions of palliative care in the cancer clinical practice guidelines before and after enactment of the Cancer Control Act (2007): content analysis
Miwa Hinata, Kikuko Miyazaki, Natsuko Kanazawa, Kumiko Kito, Sachiko Kiyoto, Manako Konda, Akira Kuriyama, Hiroko Mori, Sachiko Nakaoka, Akiko Okumura, Hironobu Tokumasu, Takeo Nakayama
Caregivers’ perspectives and experiences of withdrawing acetylcholinesterase inhibitors and memantine in advanced dementia: a qualitative analysis of an online discussion forum
Carole Parsons, Sarah Gamble
Integrated respiratory and palliative care leads to high levels of satisfaction: a survey of patients and carers
Natasha Smallwood, Thomas Moran, Michelle Thompson, Peter Eastman, Brian Le, Jennifer Philip
“An odyssey without receiving proper care” – experts’ views on palliative care provision for patients with migration background in Germany
Maximiliane Jansky, Sonja Owusu-Boakye, Friedemann Nauck
Caregiver exposure to critical events and distress in home-based palliative care in Germany a cross-sectional study using the Stressful Caregiving Adult Reactions to Experiences of Dying (SCARED) scale
Michael Galatsch, Holly G. Prigerson, Wilfried Schnepp, Friederike zu Sayn-Wittgenstein, Jian Li
How to conserve dignity in palliative care: suggestions from older patients, significant others, and healthcare professionals in Swedish municipal care
Ulrika Östlund, Karin Blomberg, Annika Söderman, Carina Werkander Harstäde
“Just too busy living in the moment and surviving”: barriers to accessing health care for structurally vulnerable populations at end-of-life
K. I. Stajduhar, A. Mollison, M. Giesbrecht, R. McNeil, B. Pauly, S. Reimer-Kirkham, N. Dosani, B. Wallace, G. Showler, C. Meagher, K. Kvakic, D. Gleave, T. Teal, C. Rose, C. Showler, K. Rounds
Study protocol for a multi-methods study: SAVOIR - evaluation of specialized outpatient palliative care (SAPV) in Germany: outcomes, interactions, regional differences
Antje Freytag, Markus Krause, Anna Bauer, Bianka Ditscheid, Maximiliane Jansky, Sabine Krauss, Thomas Lehmann, Ursula Marschall, Friedemann Nauck, Werner Schneider, Kathleen Stichling, Horst Christian Vollmar, Ulrich Wedding, Winfried Meißner, Anna Bauer, Lia Bergmann, Bianka Ditscheid, Cornelia Eichhorn, Antje Freytag, Elke Gaser, Michaela Hach, Ulrike Hammer, Aicko Helbig, Beata Hennig, Maximiliane Jansky, Michelle Kaufmann, Markus Krause, Sabine Krauss, Thomas Lehmann, Helmut L’hoest, Srikanth Maddela, Ursula Marschall, Martial Mboulla, Winfried Meißner, Heiner Melching, Cornelia Nageler, Friedemann Nauck, Sara Parhizkari, Judith Rothaug, Joachim Saam, Werner Schneider, Sven Schulz, Kathleen Stichling, Horst C. Vollmar, Julia von Hayek, Ulrich Wedding
Timing of palliative care referral and aggressive cancer care toward the end-of-life in pancreatic cancer: a retrospective, single-center observational study
Natasha Michael, Greta Beale, Clare O’Callaghan, Adelaide Melia, William DeSilva, Daniel Costa, David Kissane, Jeremy Shapiro, Richard Hiscock
“Song of Life (SOL)” study protocol: a multicenter, randomized trial on the emotional, spiritual, and psychobiological effects of music therapy in palliative care
Marco Warth, Friederike Koehler, Martin Weber, Hubert J. Bardenheuer, Beate Ditzen, Jens Kessler
A pattern language of compassion in intensive care and palliative care contexts
A. L. Roze des Ordons, L. MacIsaac, J. Everson, J. Hui, R. H. Ellaway
“Small small interventions, big big roles”- a qualitative study of patient, care-giver and health-care worker experiences of a palliative care programme in Kerala, India
Rekha Rachel Philip, Emilie Venables, Abdulla Manima, Jaya Prasad Tripathy, Sairu Philip
Enabling activity in palliative care: focus groups among occupational therapists
Sofia Tavemark, Liselotte N. Hermansson, Karin Blomberg
What do patients and family-caregivers value from hospice care? A systematic mixed studies review
Nicole Marie Hughes, Jane Noyes, Lindsay Eckley, Trystan Pritchard
Development and validation of a French questionnaire concerning patients’ perspectives of the quality of palliative care: the QUALI-PALLI-Patient
Frédéric Guirimand, Patricia Martel-Samb, Christian Guy-Coichard, Stéphane Picard, Bernard Devalois, Laure Copel, Anne Abel, Véronique Ghadi
Hospice care education needs of nursing home staff in South Korea: a cross-sectional study
Mihyun Park, Hye-Ah Yeom, Sr Jinsun Yong
Cultural safety strategies for rural Indigenous palliative care: a scoping review
Kaela Schill, Susana Caxaj
Healthcare professionals’ views of palliative care for American war veterans with non-malignant respiratory disease living in a rural area: a qualitative study
Clare Mc Veigh, Joanne Reid, Paula Carvalho
Factor structure of the Quality of Children’s Palliative Care Instrument (QCPCI) when completed by parents of children with cancer
Kimberley Widger, Sarah Brennenstuhl, Jacqueline Duc, Ann Tourangeau, Adam Rapoport
Assigned nurses and a professional relationship: a qualitative study of COPD patients’ perspective on a new palliative outpatient structure named CAPTAIN
D. G. Bove, M. O. Jellington, M. Lavesen, K. Marså, S. F. Herling
Patient experiences of nurse-facilitated advance care planning in a general practice setting: a qualitative study
Hilary Miller, Janice Tan, Josephine M. Clayton, Anne Meller, Oshana Hermiz, Nicholas Zwar, Joel Rhee
Discussing end of life wishes – the impact of community interventions?
Katharine Abba, Mari Lloyd-Williams, Siobhan Horton
Psychometric properties of the Chinese mainland version of the Palliative Care Spiritual Care Competency Scale (PCSCCS-M) in nursing: a cross-sectional study
Yanli Hu, Fan Li, Jeng-Fong Chiou
The significance of gratitude for palliative care professionals: a mixed method protocol
Maria Aparicio, Carlos Centeno, María Arantzamendi
Palliative radiotherapy near the end of life
Susan Y. Wu, Lisa Singer, Lauren Boreta, Michael A. Garcia, Shannon E. Fogh, Steve E. Braunstein
Multiple and multidimensional life transitions in the context of life-limiting health conditions: longitudinal study focussing on perspectives of young adults, families and professionals
Divya Jindal-Snape, Bridget Johnston, Jan Pringle, Timothy B. Kelly, Rosalind Scott, Libby Gold, Raymond Dempsey
Optimal treatment of opioid induced constipation in daily clinical practice – an observational study
Elisabeth C. W. Neefjes, Hanneke van der Wijngaart, Maurice J. D. L. van der Vorst, Diederik ten Oever, Hans J. van der Vliet, Aart Beeker, Christiaan A. Rhodius, Hendrik P. van den Berg, Johannes Berkhof, Henk M. W. Verheul
Recommendations on priorities for integrated palliative care: transparent expert consultation with international leaders for the InSuP-C project
Sheila Payne, Sean Hughes, Joann Wilkinson, Jeroen Hasselaar, Nancy Preston
How to come to terms with facing death: a qualitative study examining the experiences of patients with terminal Cancer
Ayumi Kyota, Kiyoko Kanda
Self-efficacy for coping: utility of the Cancer behavior inventory (Italian) for use in palliative care
Samantha Serpentini, Paola Del Bianco, Andrea Chirico, Thomas V. Merluzzi, Rosalba Martino, Fabio Lucidi, Gian Luca De Salvo, Leonardo Trentin, Eleonora Capovilla
Multicentre analysis of intensity of care at the end-of-life in patients with advanced cancer, combining health administrative data with hospital records: variations in practice call for routine quality evaluation
Isabelle Colombet, Carole Bouleuc, Alain Piolot, Aurélie Vilfaillot, Hélène Jaulmes, Sabine Voisin-Saltiel, François Goldwasser, Pascale Vinant, Jérôme Alexandre, Muriel Mons, François Hemery, Samir Bouam, Ilhem Cherrak, Gilles Chatellier
An online international comparison of thresholds for triggering a negative response to the “Surprise Question”: a study protocol
Nicola White, Linda Oostendorp, Victoria Vickerstaff, Christina Gerlach, Yvonne Engels, Maud Maessen, Christopher Tomlinson, Johan Wens, Bert Leysen, Guido Biasco, Sofia Zambrano, Steffen Eychmüller, Christina Avgerinou, Rabih Chattat, Giovanni Ottoboni, Carel Veldhoven, Patrick Stone
Towards appropriate information provision for and decision-making with patients with limited health literacy in hospital-based palliative care in Western countries: a scoping review into available communication strategies and tools for healthcare providers
Janneke Noordman, Liesbeth van Vliet, Menno Kaunang, Maria van den Muijsenbergh, Gudule Boland, Sandra van Dulmen
Challenges in a six-phase process of questionnaire adaptation: findings from the French translation of the Integrated Palliative care Outcome Scale
Anca-Cristina Sterie, Mathieu Bernard
Palliative care for patients with motor neurone disease and their bereaved carers: a qualitative study
Clare Mc Veigh, Colette Donaghy, Briege Mc Laughlin, Alison Dick, Kiran Kaur, John Mc Conville, Max Watson
Living at the end-of-life: experience of time of patients with cancer
Jordy Johannes Eduardus Rovers, Elze Jantien Knol, Jelte Pieksma, Wytse Nienhuis, Anne Barbara Wichmann, Yvonne Engels
Who provides care in the last year of life? A description of care networks of community-dwelling older adults in the Netherlands
Femmy M. Bijnsdorp, H. Roeline W. Pasman, Anneke L. Francke, Natalie Evans, Carel F. W. Peeters, Marjolein I. Broese van Groenou
Inpatient palliative chemotherapy is associated with high mortality and aggressive end-of-life care in patients with advanced solid tumors and poor performance status
Vitor Fiorin de Vasconcellos, Renata RCC Bonadio, Guilherme Avanço, Marcelo Vailati Negrão, Rachel Pimenta Riechelmann
Catastrophic health expenditure of cancer patients at the end-of-life: a retrospective observational study in China
Anli Leng, Jun Jing, Stephen Nicholas, Jian Wang
Evaluation of person-centeredness in nursing homes after a palliative care intervention: pre- and post-test experimental design
Christina Bökberg, Lina Behm, Birgitta Wallerstedt, Gerd Ahlström
Impact of palliative chemotherapy and best supportive care on overall survival and length of hospitalization in patients with incurable Cancer: a 4-year single institution experience in Japan
Yasuko Murakawa, Masato Sakayori, Kazunori Otsuka
A prospective study examining cachexia predictors in patients with incurable cancer
Ola Magne Vagnildhaug, Cinzia Brunelli, Marianne J. Hjermstad, Florian Strasser, Vickie Baracos, Andrew Wilcock, Maria Nabal, Stein Kaasa, Barry Laird, Tora S. Solheim
Nomogram-based parameters to predict overall survival in a real-world advanced cancer population undergoing palliative care
Weiwei Zhao, Zhiyong He, Yintao Li, Huixun Jia, Menglei Chen, Xiaoli Gu, Minghui Liu, Zhe Zhang, Zhenyu Wu, Wenwu Cheng
The financing of stand-alone palliative Care Services in Uganda: analysis of the implications for sustainability
Jacinto Amandua, Melkizedeki Stephen Kimaro, Eddie Mwebesa, Ivan Mugisha Taremwa, Christine Atuhairwe
Development of palliative care attitude and knowledge (PCAK) questionnaire for physicians in Kuwait
Ameena Mohammed Al-Ansari, Saleem Nawaf Suroor, Sobhi Mostafa AboSerea, Wafaa Mostafa Abd-El-Gawad
Advance care planning in progressive neurological diseases: lessons from ALS
Antje A. Seeber, A. Jeannette Pols, Albert Hijdra, Hepke F. Grupstra, Dick L. Willems, Marianne de Visser
End-of-life care in rural general practice: how best to support commitment and meet challenges?
Jinfeng Ding, Christobel Saunders, Angus Cook, Claire E. Johnson
Unregulated care providers’ engagement in palliative care to older clients and their families in the home setting: a mixed methods study
Christine J. McPherson, Judy Etele, Viviane Chou-Yin Ta, Angelina Raghubir
Palliative care for persons with Parkinson’s disease: a qualitative study on the experiences of health care professionals
Herma Lennaerts, Maxime Steppe, Marten Munneke, Marjan J. Meinders, Jenny T. van der Steen, Marieke Van den Brand, Dorian van Amelsvoort, Kris Vissers, Bastiaan R. Bloem, Marieke Groot
How do hospital-based nurses and physicians identify the palliative phase in their patients and what difficulties exist? A qualitative interview study
Isabelle Flierman, Ineke C. Nugteren, Rosanne van Seben, Bianca M. Buurman, Dick L. Willems
The conceptual understanding of pediatric palliative care: a Swiss healthcare perspective
Eva De Clercq, Michael Rost, Milenko Rakic, Marc Ansari, Pierluigi Brazzola, Tenzin Wangmo, Bernice S. Elger
Palliative care for people with substance use disorder and multiple problems: a qualitative study on experiences of patients and proxies
Anne Ebenau, Boukje Dijkstra, Chantal ter Huurne, Jeroen Hasselaar, Kris Vissers, Marieke Groot
Examining constipation assessment and management of patients with advanced cancer receiving specialist palliative care: a multi-site retrospective case note review of clinical practice
Sonja McIlfatrick, Deborah H. L. Muldrew, Esther Beck, Emma Carduff, Mike Clarke, Anne Finucane, Lisa Graham-Wisener, Phil Larkin, Noleen K. McCorry, Paul Slater, Felicity Hasson
Supporting carers: health care professionals in need of system improvements and education - a qualitative study
Ingebrigt Røen, Hans Stifoss-Hanssen, Gunn Grande, Stein Kaasa, Kari Sand, Anne Kari Knudsen
Exploring the gender dimension of problems and needs of patients receiving specialist palliative care in a German palliative care unit - the perspectives of patients and healthcare professionals
Anneke Ullrich, Kristina Grube, Cornelia Hlawatsch, Carsten Bokemeyer, Karin Oechsle
Table in the corner: a qualitative study of life situation and perspectives of the everyday lives of oesophageal cancer patients in palliative care
Louise Laursen, Mai Nanna Schønau, Heidi Maria Bergenholtz, Mette Siemsen, Merete Christensen, Malene Missel
An instrument to assess the education needs of nursing assistants within a palliative approach in residential aged care facilities
Sara Karacsony, Anthony Good, Esther Chang, Amanda Johnson, Michel Edenborough
Talking about end of life in general palliative care – what’s going on? A qualitative study on end-of-life conversations in an acute care hospital in Denmark
Heidi Bergenholtz, Helle Ussing Timm, Malene Missel
Can a single question about family members’ sense of security during palliative care predict their well-being during bereavement? A longitudinal study during ongoing care and one year after the patient’s death
Anna Milberg, Maria Liljeroos, Barbro Krevers
Advance care planning with patients on hemodialysis: an implementation study
Sarah L. Goff, Mark L. Unruh, Jamie Klingensmith, Nwamaka D. Eneanya, Casey Garvey, Michael J. Germain, Lewis M. Cohen
Expressive writing as a therapeutic intervention for people with advanced disease: a systematic review
N. Kupeli, G. Chatzitheodorou, N. A. Troop, D. McInnerney, P. Stone, B. Candy
Exploring health care providers’ perceptions about home-based palliative care in terminally ill cancer patients
Heshmatolah Heydari, Suzanne Hojjat-Assari, Mohammad Almasian, Pooneh Pirjani
Does packed red cell transfusion provide symptomatic benefits to cancer palliative patients?: a longitudinal study from a single private oncology center in Nepal
Sameer Timilsina, Sirisa Karki, Santosh Timalsina, Aajeevan Gautam, Sabitri Sharma
Psychometric assessment of the Chinese version of the Problems and Needs in Palliative Care questionnaire-short version in advanced cancer patients
Tao Wang, Alex Molassiotis, Betty Pui Man Chung, Jing-Yu Tan
A systematic review and meta-analysis of randomized controlled trials of palliative care for pain among Chinese adults with cancer
Xin-Xin Zhao, Meng Cui, Yi-Hang Geng, Yi-Long Yang
“I go into crisis when …”: ethics of care and moral dilemmas in palliative care
Ludovica De Panfilis, Silvia Di Leo, Carlo Peruselli, Luca Ghirotto, Silvia Tanzi
Designing and developing a co-produced theoretical and evidence-based online support for family caregivers of people with dementia at the end of life
Nathan Davies, Jenny Hopwood, Nina Walker, Jamie Ross, Steve Iliffe, Kate Walters, Greta Rait
Palliative care education in the undergraduate medical curricula: students’ views on the importance of, their confidence in, and knowledge of palliative care
Jolien Pieters, Diana H. J. M. Dolmans, Daniëlle M. L. Verstegen, Franca C. Warmenhoven, Annemie M. Courtens, Marieke H. J. van den Beuken-van Everdingen
Consensus on treatment for residents in long-term care facilities: perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries
M. ten Koppel, H. R. W. Pasman, J. T. van der Steen, H. P. J. van Hout, M. Kylänen, L. Van den Block, T. Smets, L. Deliens, G. Gambassi, K. Froggatt, K. Szczerbińska, B. D. Onwuteaka-Philipsen, Zeger De Groote, Lara Pivodic, Federica Mammarella, Martina Mercuri, Mariska Oosterveld-Vlug, Agnieszka Pac, Paola Rossi, Ivan Segat, Eleanor Sowerby, Agata Stodolska, Anne Wichmann, Eddy Adang, Paula Andreasen, Harriet Finne-Soveri, Sheila Payne, Danni Collingridge Moore, Violetta Kijowska, Nele Van Den Noortgate, Myrra Vernooij-Dassen
Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland
David Scott, Peter Hudson, Karen Charnley, Cathy Payne, Gareth Westcott
When is hastened death considered suicide? A systematically conducted literature review about palliative care professionals’ experiences where assisted dying is legal
Sheri Mila Gerson, Amanda Bingley, Nancy Preston, Anne Grinyer
The developing and evaluation of an electronic tool to assess the effect of undergraduate training in palliative care: the electronic international medical education in palliative care (IMEP-e) assessment tool
Amrita Rai, Stephen Mason
Hospitalization at the end of life among nursing home residents with dementia: a systematic review
Falk Hoffmann, Anke Strautmann, Katharina Allers
Music in palliative care: a qualitative study with patients suffering from cancer
Sandrine Pommeret, Jan Chrusciel, Catherine Verlaine, Marilene Filbet, Colombe Tricou, Stephane Sanchez, Louise Hannetel
Volunteers in a biography project with palliative care patients – a feasibility study
Michaela Hesse, Simon Forstmeier, Henning Cuhls, Lukas Radbruch
A comparative study on decision and documentation of refraining from resuscitation in two medical home care units in Sweden
Bogdan Sterpu, Pia Lindman, Linda Björkhem-Bergman
Assessing the validity of the clinician-rated distress thermometer in palliative care
A. Van Lander, A. Tarot, C. Savanovitch, B. Pereira, B. Vennat, V. Guastella
An exploration of the prevalence and experience of cardiac cachexia: protocol for a mixed methods cross-sectional study
Matthew A. Carson, Joanne Reid, Loreena Hill, Lana Dixon, Patrick Donnelly, Paul Slater, Alyson Hill, Donna Fitzsimons
How to help researchers in palliative care improve responsiveness to migrants and other underrepresented populations: developing and testing a self-assessment instrument
M. Torensma, B. D. Onwuteaka-Philipsen, K. L. Strackee, M. G. Oosterveld-Vlug, X. de Voogd, D. L. Willems, J. L. Suurmond
Completion rate of physician orders for life-sustaining treatment for patients with metastatic or recurrent cancer: a preliminary, cross-sectional study
Ju Won Kim, Jung Yoon Choi, Won Jin Jang, Yoon Ji Choi, Youn Seon Choi, Sang Won Shin, Yeul Hong Kim, Kyong Hwa Park
Efficacy and cost-utility of the eHealth application ‘Oncokompas’, supporting patients with incurable cancer in finding optimal palliative care, tailored to their quality of life and personal preferences: a study protocol of a randomized controlled trial
Anouk S. Schuit, Karen Holtmaat, Nienke Hooghiemstra, Femke Jansen, Birgit I. Lissenberg-Witte, Veerle M. H. Coupé, Myra E. van Linde, Annemarie Becker-Commissaris, Jaap C. Reijneveld, Josée M. Zijlstra, Dirkje W. Sommeijer, Simone E. J. Eerenstein, Irma M. Verdonck-de Leeuw
A screen-based simulation training program to improve palliative care of people with advanced dementia living in residential aged care facilities and reduce hospital transfers: study protocol for the IMproving Palliative care Education and Training Using Simulation in Dementia (IMPETUS-D) cluster randomised controlled trial
Joanne Tropea, Christina E. Johnson, Debra Nestel, Sanjoy K. Paul, Caroline A. Brand, Anastasia F. Hutchinson, Ross Bicknell, Wen Kwang Lim
Context, mechanisms and outcomes in end-of-life care for people with advanced dementia: family carers perspective
Nuriye Kupeli, Elizabeth L. Sampson, Gerard Leavey, Jane Harrington, Sarah Davis, Bridget Candy, Michael King, Irwin Nazareth, Louise Jones, Kirsten Moore
Palliative care training addressed to hospital healthcare professionals by palliative care specialists: a mixed-method evaluation
Giovanna Artioli, Gabriele Bedini, Elisabetta Bertocchi, Luca Ghirotto, Silvio Cavuto, Massimo Costantini, Silvia Tanzi
End-of-life and palliative care of patients on maintenance hemodialysis treatment: a focus group study
Lena Axelsson, Eva Benzein, Jenny Lindberg, Carina Persson
Australian GPs’ perceptions of barriers and enablers to best practice palliative care: a qualitative study
Anne Herrmann, Mariko L. Carey, Alison C. Zucca, Lucy A. P. Boyd, Bernadette J. Roberts
Dying in acute hospitals: voices of bereaved relatives
Diarmuid Ó Coimín, Geraldine Prizeman, Bettina Korn, Sarah Donnelly, Geralyn Hynes
More comprehensively measuring quality of life in life-threatening illness: the McGill Quality of Life Questionnaire – Expanded
S. Robin Cohen, Lara B. Russell, Anne Leis, Javad Shahidi, Pat Porterfield, David R. Kuhl, Anne M. Gadermann, Richard Sawatzky
Identification of a potentially avoidable cardiopulmonary resuscitation in hematology and oncology wards
Yeonjoo Choi, Jin Won Kim, Koung Jin Suh, Yoo-Joo Lim, Ji Yun Lee, Beo-Deul Kang, Ji-Won Kim, Se-Hyun Kim, Jeong-Ok Lee, Yu Jung Kim, Keun-Wook Lee, Jee Hyun Kim, Soo-Mee Bang, Jong Seok Lee
Health-related quality of life and its socio-economic and cultural predictors among advanced cancer patients: evidence from the APPROACH cross-sectional survey in Hyderabad-India
Jean Jacob, Gayatri Palat, Naina Verghese, Priya Chandran, Vineela Rapelli, Sanjeeva Kumari, Chetna Malhotra, Irene Teo, Eric Finkelstein, Semra Ozdemir
Action research study on advance care planning for residents and their families in the long-term care facility
Hsin-Tzu Sophie Lee, Ting-Ru Chen, Chia-Ling Yang, Tai-Yuan Chiu, Wen-Yu Hu
What are essential elements of high-quality palliative care at home? An interview study among patients and relatives faced with advanced cancer
M. G. Oosterveld-Vlug, B. Custers, J. Hofstede, G. A. Donker, P. M. Rijken, J. C. Korevaar, A. L. Francke
Views of professionals and volunteers in palliative care on patient-centred care: a Q-methodology study in the Netherlands
Milanne M. J. Galekop, Hanna M. van Dijk, Job van Exel, Jane M. Cramm
Spiritual care at the end of life in the primary care setting: experiences from spiritual caregivers - a mixed methods study
Ian Koper, H. Roeline W. Pasman, Bart P. M. Schweitzer, Annemieke Kuin, Bregje D. Onwuteaka-Philipsen
The exploration of the knowledge, attitudes and practice behaviors of advanced care planning and its related predictors among Taiwanese nurses
Chiu-Chu Hsieh, Hsiang-Ping Huang, Tao-Hsin Tung, I-Chien Chen, Randal D. Beaton, Sui-Whi Jane
Hospice use and one-year survivorship of residents in long-term care facilities in Canada: a cohort study
Beibei Xiong, Shannon Freeman, Davina Banner, Lina Spirgiene
The utility of a shortened palliative care screening tool to predict death within 12 months – a prospective observational study in two south African hospitals with a high HIV burden
Peter J. Raubenheimer, Cascia Day, Faried Abdullah, Katherine Manning, Clint Cupido, Jonny Peter
Psychological burden in family caregivers of patients with advanced cancer at initiation of specialist inpatient palliative care
Karin Oechsle, Anneke Ullrich, Gabriella Marx, Gesine Benze, Julia Heine, Lisa-Marie Dickel, Youyou Zhang, Feline Wowretzko, Kim Nikola Wendt, Friedemann Nauck, Carsten Bokemeyer, Corinna Bergelt
Palliative care nurse specialists’ reflections on a palliative care educational intervention in long-term care: an inductive content analysis
Rosemary Frey, Deborah Balmer, Michal Boyd, Jackie Robinson, Merryn Gott
Effectiveness of spiritual care training to enhance spiritual health and spiritual care competency among oncology nurses
Yanli Hu, Miaorui Jiao, Fan Li
What motivates informal caregivers of people with dementia (PWD): a qualitative study
Shakiba Zahed, Maryam Emami, Shahrzad Bazargan-Hejazi, Ahmad Ali Eslami, Majid Barekatain, Fereshteh Zamani-Alavijeh
Realizing better doctor-patient dialogue about choices in palliative care and early phase clinical trial participation: towards an online value clarification tool (OnVaCT)
Liza G. G. van Lent, Nicole K. Stoel, Julia C. M. van Weert, Jelle van Gurp, Maja J. A. de Jonge, Martijn P. Lolkema, Eelke H. Gort, Saskia M. Pulleman, Esther Oomen-de Hoop, Jeroen Hasselaar, Carin C. D. van der Rijt
Pharmacists’ knowledge, attitude and involvement in palliative care in selected tertiary hospitals in southwestern Nigeria
Rasaq ADISA, Aderonke Tolulope ANIFOWOSE
Paramedic information needs in end-of-life care: a qualitative interview study exploring access to a shared electronic record as a potential solution
Rebecca Patterson, Holly Standing, Mark Lee, Sonia Dalkin, Monique Lhussier, Catherine Exley, Katie Brittain
Continuous low flow ascites drainage through the urinary bladder via the Alfapump system in palliative patients with malignant ascites
Christina Fotopoulou, Thomas Berg, Annekristin Hausen, René Hennig, Rajiv Jalan, Massimo Malagó, Jeroen Capel, Andrea De Gottardi, Guido Stirnimann
Oral medicinal cannabinoids to relieve symptom burden in the palliative care of patients with advanced cancer: a double-blind, placebo controlled, randomised clinical trial of efficacy and safety of cannabidiol (CBD)
Phillip Good, Alison Haywood, Gauri Gogna, Jennifer Martin, Patsy Yates, Ristan Greer, Janet Hardy
The Fami-life study: protocol of a prospective observational multicenter mixed study of psychological consequences of grieving relatives in French palliative care units on behalf of the family research in palliative care (F.R.I.P.C research network)
Maité Garrouste-Orgeas, Cécile Flahault, Edith Poulain, Adrien Evin, Frédéric Guirimand, Virginie Fossez-Diaz, Ségolène Perruchio, Catherine Verlaine, Anne Vanbésien, Willeme Kaczmarek, Laurence Birkui de Francqueville, Emmanuel De Larivière, Guillaume Bouquet, Laure Copel, Virginie Verliac, Véronique Marché, Carmen Mathias, Dominique Gracia, Alaa Mhalla, Véronique Michonneau-Gandon, Cécile Poupardin, Licia Touzet, Gaelle Ranchou, Virginie Guastella, Bruno Richard, Florent Bienfait, Marie Sonrier, Dominique Michel, Stéphane Ruckly, Sébastien Bailly, Jean-François Timsit
“Whatever happens, happens” challenges of end-of-life communication from the perspective of older adults and family caregivers: a Qualitative study
Jennifer Im, Susanna Mak, Ross Upshur, Leah Steinberg, Kerry Kuluski
Telehealth in palliative care is being described but not evaluated: a systematic review
Sophie Hancock, Nancy Preston, Helen Jones, Amy Gadoud
An examination of home-based end-of-life care for cancer patients: a qualitative study
Xiao Bin Lai, Li Qun Chen, Shu Hui Chen, Hai Ou Xia
The last week of life of nursing home residents with advanced dementia: a retrospective study
Franco Toscani, Silvia Finetti, Fabrizio Giunco, Ines Basso, Debora Rosa, Francesca Pettenati, Alessandro Bussotti, Daniele Villani, Simona Gentile, Lorenzo Boncinelli, Massimo Monti, Sandro Spinsanti, Massimo Piazza, Lorena Charrier, Paola Di Giulio