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01.12.2012 | Study protocol | Ausgabe 1/2012 Open Access

BMC Medical Informatics and Decision Making 1/2012

Survey of patient and public perceptions of electronic health records for healthcare, policy and research: Study protocol

Zeitschrift:
BMC Medical Informatics and Decision Making > Ausgabe 1/2012
Autoren:
Serena Luchenski, Anjali Balasanthiran, Cicely Marston, Kaori Sasaki, Azeem Majeed, Derek Bell, Julie E Reed
Wichtige Hinweise

Electronic supplementary material

The online version of this article (doi:10.​1186/​1472-6947-12-40) contains supplementary material, which is available to authorized users.

Competing interests

The authors declare that they have no competing interests.

Authors’ contributions

SL designed the questionnaire, sampling method and analysis plan and drafted the manuscript. AB coordinated the data collection and helped to draft the manuscript. CM contributed to the design of the study and data collection tools and reviewed the manuscript. AM contributed to the design and coordination of the study and reviewed the manuscript. KS contributed to the design and coordination of the study and reviewed the manuscript. DB conceived of the study and contributed to its design and coordination and reviewed the manuscript. JR conceived of the study and provided oversight to its design and coordination and contributed to the manuscript. All authors read and approved the final manuscript.

Abstract

Background

Immediate access to patients’ complete health records via electronic databases could improve healthcare and facilitate health research. However, the possible benefits of a national electronic health records (EHR) system must be balanced against public concerns about data security and personal privacy. Successful development of EHR requires better understanding of the views of the public and those most affected by EHR: users of the National Health Service. This study aims to explore the correlation between personal healthcare experience (including number of healthcare contacts and number and type of longer term conditions) and views relating to development of EHR for healthcare, health services planning and policy and health research.

Methods/design

A multi-site cross-sectional self-complete questionnaire designed and piloted for use in waiting rooms was administered to patients from randomly selected outpatients’ clinics at a university teaching hospital (431 beds) and general practice surgeries from the four primary care trusts within the catchment area of the hospital. All patients entering the selected outpatients clinics and general practice surgeries were invited to take part in the survey during August-September 2011. Statistical analyses will be conducted using descriptive techniques to present respondents’ overall views about electronic health records and logistic regression to explore associations between these views and participants’ personal circumstances, experiences, sociodemographics and more specific views about electronic health records.

Discussion

The study design and implementation were successful, resulting in unusually high response rates and overall recruitment (85.5%, 5336 responses). Rates for face-to-face recruitment in previous work are variable, but typically lower (mean 76.7%, SD 20). We discuss details of how we collected the data to provide insight into how we obtained this unusually high response rate.
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