Acknowledgements
We thank the immunology treatment centers who contributed to the development of the ESID registry: Uwe Wintergerst, Markus Seidel, D. Haninger, Agnes Gamper, Wolfgang Schwinger, Andreas Klein-Franke, Regina Jones, Kambis Sadeghi, Gabriele Kropshofer, Christian Huemer, Michael Sohm, Andreas Heitger, Elisabeth Förster-Waldl, Rosmarie Dengg, Christiane Höllinger, Georg Ebetsberger-Dachs, Barbara Jauk, Martina Winkler, Daniela Ambrosch-Barsoumian, Vienna, Austrian PID Network (AGPI), Austria; Olga Aleinikova, Svetlana Aleshkevich, Svetlana Sharapova, Minsk, Belarusian Research Center for Pediatric Oncology and Hematology, Belarus; Claire-Michele Farber, Bruxelles, National Registry, Unite de Traitment des Immunodeficiences; Filomeen Haerynck, Frans de Baets, Victoria Bordon, Maite Dewerchin, Gent, Centre for Primary Immune Deficiencies, University Hospital Gent; Isabelle Meyts, Christiane De Boeck, Marijke Proesmans, François Vermeulen, Refiloe Masekela, Jacqui van Rens, Diane Delaplace, Leuven, UZ; Pierre Philippet, Subcenter Clinique de l’Espérance Montegnée; Alice Ferster, Subcenter HUDERF Bruxelles; Claire Hoyoux, Subcenter La Citadelle Université de Liège; Christophe Chantrain, Christiane Vermylen, Subcenter UCL St Luc; Wim Stevens, Subcenter UZA Antwerp; Iris de Schutter, Sophie Bravo, Anne Malfroot, Subcenter VUB Brussels, Belgium; Alessandro Plebani, Annarosa Soresina, Concetta Forino, Vassilios Lougaris, Fulvio Porta, Brescia, Dept. Pediatrics Italy, Jiri Litzman, Jindrich Lokaj, Vojtech Thon, Eva Hlaváčková Brno, Masaryk University, St.Anne Univ. Hosp. (National Centre); Aleksandra Uszynska, Subcenter Wroclaw; Edyta Jargulinska, Subcenter Wroclaw; Anna Sediva, Subcentre Prague, University Hospital Motol; Olga Krystufkova, Subcentre Prague, Rheumatology, Czech Republic; Shereen Reda, Cairo, Ain Shams University; Aisha Marsafy, Nermeen Mouftah, Galal Jeannet Botros, Cairo University, Dept. of Pediatrics, Primary Immunodeficiency Clinic, Centre for social and preventive medicine (CSPM), Egypt; Sirje Velbri, Tallinn, Children’s Hospital, Estonia; Anne Durandy, Alain Fischer, Paul Landais, Romain Micol, Yasmine Dudoit, Lilia Ben Slama, Capucine Picard, Marianne Debré, Eric Oksenhendler, Olivier Lortholary, Olivier Hermine, Dominique Stoppa-Lyonnet, Thamila Berdous-Samed, Loic Le Mignot, Agathe Roubertie, Francois Rivier, Julien Beauté, Yasmina Messaoud, Abla Akl, Noemie Guibert, Sophie Hilpert, Nathalie De Vergnes, Gaelle Obenga, Pauline Brosselin, Chantal Andriamanga, Laurence Costes, Cécile Lafoix-Mignot, Virginie Courteille, Amélie Bigorgne, Carolina Brito de Azevedo Amaral, Paris, CEREDIH, Hopital Necker Enfants Malades, France; Moritz Muschaweck, Aachen, Klinik für Kinder- und Jugendmedizin; Ulf Müller-Ladner, Walter Hermann, Bad Nauheim, Kerckhoff-Klinik: Rheumatologie und Klinische Immunologie; Volker Wahn, Dietke Buck, Horst von Bernuth, Barbara Wolf, Herbert Steffin, Renate Krüger, Cornelia Feiterna-Sperling, Berlin, Charité - Ambulanz Infektionsimmunologie; Leif G. Hanitsch, Carmen Scheibenbogen, Yüksel Vural, Carolin Giannini, Uwe Kölsch, Berlin, Charité - Institut für Med. Immunologie, Immundefekt Ambulanz für EW; Barbara Selle, Nadja Rieckehr, Claudia Schulz, Henriette Haenicke, Lutz Wickmann, Lothar Schweigerer, Berlin-Buch, Helios: nkologie/Hämatologie; Uwe Schauer, Tobias Rothoeft, Veronika Baumeister, Bochum, Universitäts Kinderklinik; Jürgen K. Rockstroh, Brigitta Becker, Karina Mohrmann, Angelika Engelhardt, Carolynne Schwarze-Zander, Jan-Christian Wasmuth, Evrim Anadol, Christoph Boesecke, Bonn, Immunologische Ambulanz (auf dem Berg); Dagmar Dilloo, Martina Zimmermann, Brigitte Hülsmann, Olga Moser, Stefan Schönberger, Roswitha Blume, Petra Prämassing-Scherzer, Bonn, Universitätsklinikum, Pädiatrische Hämatologie und Onkologie (K); Petra Kaiser-Labusch, Hans-Iko Huppertz, Martina Bührlen, Wolfgang Marg, Bremen, Prof.-Hess-Kinderklinik; Bernhard Schaaf, Dominik T. Schneider, Michael Heike, Karin Henrichs, Marion Riedel Dortmund, Klinikum Dortmund gGmbH; Joachim Roesler; Angela Rösen-Wolff, Manfred Gahr, Jana Möller, Ramona Girrbach, Andrea Näke, Anne-Rose, Klaus-Zetzsche, Christiane Müller, Dresden, Universitätsklinikum Carl Gustav Carus, Klinik und Poliklinik für Kinder- und Jugendmedizin Pädiatrie; Andrea Kündgen; Anna Papatriantafillou-Schmieder, Tobias Strapatsas, Düsseldorf, Innere Medizin; Oliver Feyen, Sven Bellert, Arndt Borkhardt, Kirsten Bienemann, Monika Schmitz, Petra Lankisch, Andrea Hönscheid, Petra Lesch, Düsseldorf, Uni-Kinderklinik; Klaus-Daniel Stachel, Thorsten Langer, Bettina Sobik, Erlangen, Kinder- und Jugendklinik (Uniklinik); Thomas Harrer, Erlangen, Medizinische Klinik 3 - Immunologie, Rheumatologie (Uniklinik); Christof Specker, Martina Linßner, Miriam Mutert, Lisa Laubenthal, Monika Warneke, Essen, Klinik für Rheumatologie und Klinische Immunologie, Zentrum für Innere Medizin der Kliniken Essen Süd; Hans-Joachim, Büttner Flonheim: Kinder- und Jugendarztpraxis Dr. med. Büttner; Harald Burkhardt, Matthias Wahle, Frankfurt, Rheumatologische Ambulanz, Med. Klinik II; Christoph Königs, Stefan Zielen, Ralf Schubert, Hermann Stimm, Richard Linde, Sandra Voß, Martin Christmann, Katerina Barfusz, Bianca Reimers, Kai Beuckmann, Inmaculada Martinez-Saguer, Emel Aygören-Pürsün, Wolfhart Kreuz, Maiken Skarke, Peter Bader, Birgit Gülnur, Ari-Arslan, Christina Schäfe, Christina Hoffmann, Aileen Bücker, Helena Pommerening, Chantal Hintze, Frankfurt, University Hospital; Klaus Warnatz, Judith Deimel, Barbara Frisch, Sigune Goldacker, Julia Horn, Manuella Gomes, Marion Klima, Sabine M. El-Helou, Simone Schruhl, Philipp Henneke, Beate Roller, Freiburg, Immunology; Ilka Schulze, Carsten Speckmann, Henrike Ritterbusch, Doris Löw, Roland Elling, Freiburg, Children’s hospital; Christof Kramm, Silke Kullmann, Anja Hernández, Angela Hübner, Mandy Dähling, Cornelia Reinhardt, Göttingen, Unimedizin: Zentrum Kinderheilkunde und Jugendmedizin; Roswitha Bruns Greifswald, Klinik und Poliklinik für Kinder und Jugendmedizin; Dieter Körholz, Thomas Müller, Tamara Reiß, Matthias Girndt, Alexander Kühn, Melanie Winkler, Stefanie Faustmann, Halle, Poliklinik für Kinder- und Jugendmedizin (Uniklinik); Allan Brolund, Kurt Ullrich, Sarah Müller-Stöver, Marijke Sornsakrin, Robin Kobbe, Hamburg, Uniklinik Hamburg-Eppendorf: Immundefekt-Ambulanz; Ingo Müller, Birgit Garwer, Johanna Schrum, Reinhard Schneppenheim, Kai Lehmberg, Elisabeth Weißbarth-Riedel, Daniela Nolkemper, Hamburg-Eppendorf, Uniklinik: Pädiatrische Hämatologie und Onkologie, Hamburger Arbeitsgemeinschaft Angeborene Immundefekte, Torsten Witte, Hannover, Immunology; Reinhold Ernst Schmidt, Matthias Stoll, Gesine Schürmann, Björn Meyer, Dirk Meyer-Olson, Diana Ernst, Daniel Vagedes, Gudrun Mielke, Sabine Maaß, Faranaz Atschekzei, Elvira Schürmann, Hannover, Immunology; Ulrich Baumann, Anna-Maria Dittrich, Dorothee Viemann, Marzena Schaefer, Christian Hennig, Hannover, Pneumology; Johann Greil, Andreas Kulozik, Donate Jakoby, Claudia Blattmann, Jutta Mattern, Mutlu Kartal-Kaess, Heidelberg, Kinderklinik III, Immunologie, Uniklinik; Michael Pfreundschuh, Homburg, Innere Medizin; Arne Simon, Norbert Graf, Sabine Heine, Elisabeth Friedel, Homburg: Uniklinik für Pädiatrische Onkologie und Hämatologie; Tobias Ankermann, Philipp von Bismarck, Angelika Dombrowski, Kiel, UKSH Campus Kiel, Allgemeine Pädiatrie; Rainald Zeuner, Stefan Schreiber, Kiel, UKSH: Innere Medizin I; Stephan Weidinger, Kiel, UKSH: Hautklinik; Michael Weiß, Monika Streiter, Beate Tönnes, Sonja Higgins, Dagmar Freitag, Sebastian Poulheim, Köln, Kinderkrankenhaus Amsterdamer Straße (Riehl); Michael Hallek, Kai Hübel, Gerd Fätkenheuer, Köln, Klinik I für Innere Medizin; Manfred Weber, Köln Krankenhaus Merheim, Med. Klinik 1; Tim Niehues, Kathrin Siepermann, Gregor Dückers, Christian Heinrich, Monika Wicher, Heike Wachuga, Lalash Abrahim, Christian Becker, Verena Nemitz, Stefanie Esper, Tariq Lodin, Ruy Perez-Becker Krefeld ID Cente; Michael Borte, Maria Faßhauer, Grit Brodt, Antje Werner, Daniela Goebel, Stephan Borte, Anett Uelzen, Elisabeth Gnodtke, Volker Schuster, Corinna Gebauer, Arndt Bigl, Leipzig, University Children’s hospital; Dagmar Graf, Leipzig, MVZ Dr. Reising-Ackermann und Kollegen; Volker Aumann, Norbert Beck, Magdeburg, Unikinderklinik; Wilma Mannhardt-Laakmann, Martina Kirchner, Fred Zepp, Sabine Wiegert, Anja Sonnenschein, Mainz, Klinikum der Johannes-Gutenberg-Universität Mainz, Univ.-Kinderklinik; Andreas Neubauer, Marburg Uniklinik, Klinik für Innere Medizin, Schwerpunkt Hämatologie, Onkologie und Immunologie; Carla Neumann, München, LMU, Med. Poliklinik: AIDA - Adulte ImmunDefekt Ambulanz; Uta Behrends, Stefan Burdach, Alexandra Desta, Angela Wawer, München TU Kinderklinik; Bernd H. Belohradsky, Engelhorn Gundula Notheis, Kristina Huß, Eleonore Renner, Christoph Klein, Franz Sollinger, Gaby Strotmann, Simon Leutner, Klein Michael Albert, Annette Jansson, Silvia Stojanov, Eva Eisl, Simon Urschel, Anita Rack, Valerie Heinz, Christina Wolschner, Renate Bancé, Steffi Schlieben, Regina Steck, Petra Manzey, Naschla Kohistani, Najla Assam, Fabian Hauck, Lydia Wiesböck, Sebastian Hesse, München, Children’s Hospital Dr. von Hauner, LMU; Johannes Bogner, München, LMU, Infektionsabteilung; Johannes Roth, Dirk Föll, Martina Ahlmann, Katja Masjosthusmann, Helmut Wittkowski, Heymut Omran, Elisabeth Rolfes, Antje Hellige, Münster, University Children’s hospital; Michael Kabesch, Regensburg - Uniklinik oder Krankenhaus Barmherzige Brüder; Marcus Jakob, Selim Corbacioglu, Regensburg, Uniklinik, Klinik und Poliklinik für Kinder- und Jugendmedizin; Carl Friedrich Classen, Jessica Klasen, Rostock, University Childrens Hospital; Gerd Horneff, Friedrich Herrmann, Daniela Popihn, Thilo Schmalbach, Tilman Geikowski, Sigrid Fitter, Monika Szemkus, Monique Wiehe, Ria Kümmler, Ariane Klein, Simone Kiwit, Sankt Augustin, Asklepios Klinik Sankt Augustin; Stefan Bielack, Katrin Apel, Ute Groß-Wieltsch, Katja Simon-Klingenstein, Stuttgart, Klinikum Stuttgart – Olgahospital, Pädiatrie, Onkologie, Hämatologie und Immunologie; Nikolaus Peter Rieber, Rupert Handgretinger, Michaela Döring, Christel Winkler, Tobias Feuchtinger, Tübingen, Universitätsklinikum für Kinder- und Jugendmedizin; Lothar Kanz, Jörg Henes, Nicole Ristl, Heidi Riescher, Martin Faber, Ina Kötter, Christina Buchta, Tanja Hüttner-Foehlisch, Hans Leibfrit, Tübingen, Med. Uniklinik (Rheuma); Wilhelm Friedrich, Ansgar Schulz, Klaus Schwarz, Sandra Steinmann, Manfred Hönig, Annelie Lubatschofski, Karin Andritschke, Ulm, University Children’s Hospital; Henner Morbach, Johannes G. Liese, Hans-Peter Tony, Carmen Müglich, Stefan Kleinert, Tanja Ritz, Yvonne Kochler, Florian Segerer, Martina Prelog, Tobias Schwarz, Gabriele Haase, Sebastian Schuh, Dagmar Blank, Helga Taschner, Marina Popp, Beate Winkler, Antari Vasiliki, Martin Herbst, Denise Yilmaz, Eva Scharbatke, Würzburg, Universitätsklinikum, Zentrum für Innere Medizin (ZIM), Pädiatrische Infektiologie und Immunologie, Germany; Maria Kanariou, Manolis Liatsis, Maria Ktistaki, Sofia Tantou, Athens, Aghia Sophia Children’s Hospital; Maria Hatzistilianou, Thessaloniki Immunology Laboratory, Aristotle University, Efimia Papadopoulou-Alataki Thessaloniki, General Regional Hospital Papageorgiou, Aristotle Univ.; Maria Trachana, Evangelia Farmaki, Thessaloniki, Ippokration General Hospital, Greece; Conleth Feighery, Dublin, St. James’s Hospital, Ireland; Roberto Rondelli, AIEOP (Associazione Italiana Ematologia Oncologia Pediatrica); Eleonora Gambineri, Clementina Canessa, Florence, University of F, Dep. Pediatrics; Anna Villa, Maria Cristina, Pietrogrande, Milano, ITB, Segrate; Claudio Pignata, Naples, Pediatrics, Italy; Audra Blaziene, Vilnius Santariskiu Klinikos University Hospital, Center of Pulmonology and Allergology; Rasa Duobiene, Vilnius University Children’s Hospital, Lithuania; Corrie MR Weemaes, Taco W. Kuijpers, Jaap-Jan Boelens, Merlijn van den Berg, Chris Nieuwhof, J.M. van Montfrans, Adilia Warris, Marc Bijl, G.J.A. Driessen, P.M. Ellerbroek, Sadia Hussain, Ilona Kleine, Budde Adya Noorlander, E.H. Schölvinck, RJM ten Berge, Rachel T van Beem, J.T. van Dissel, P.M. van Hagen, Geoffrey van Ogtrop, G.Th.J. van Well, Anna Simon, Josine de Witte, M.M. den Os, H.Anne Grashoff, Margje H. Haverkamp, Maartje Eekman, Ellen Schatorje, Ruben Meijer, Pearl Mau-Asam, Birgit Jonkman-Berk, Michiel van der Flier, Riet Strik-Albers, Hanna Ijspeert, Amsterdam, National Dutch Registry Emma Children’s Hospital, Academic Medical Center (AMC), Division of Pediatric Hematology, Immunology and Infectious diseases; Annet van Royen-Kerkhof, Wietse Kuis, NM Wulffraat; Kim Albers, Utrecht, University Medic Center, Netherlands; Anna Macura-Biegun, Anna Szaflarska, Krakow, Jagiellonian University Medical Collage, Bozena Micoloc, Radoslaw Motkowski, Subcenter Bialystok; Sylvia Koltan, Subcenter Bydgoszcz; Ninela Irga, Subcenter, Gdansk; Jarek Pasnik, Subcenter Lodz; Aleksandra Poplonek, Subcenter Poznan; Ewa Bernatowska, Barbara Pietrucha, Beata Wolska-Kusnierz, Malgorzata Pac, Maja Klaudel-Dreszler, Magdalena Kurenko – Deptuch, Edyta Heropolitanska, Krystyna Chrzanowska, Warsaw, Children’s Memorial Health Institute, Poland; Julia Konoplyannikova, Anna Shcherbina, Moscow, Federal Research and Clinical Center for Pediatric Hematology, Oncology, Immunology; Irina Kondratenko, Olga Paschenko, N.N. Vaganov, Moscow, Russian State Children’s Hospital; Marina Guseva, Saint Petersburg, Pasteur Institute, Russia; Srdjan Pasic, Belgrade, Mother and Child Health Institute, Serbia; Peter Ciznar, Hana Kayserova, Linda Libai Véghová, Bratislawa, Children’s University Hospital; Milos Jesenak Martin, Centre for Immunopathological Conditions, Slovakia; Laia Alsina, Manrique de Lara, Barcelona, Hospital Sant Joan de Deu; Javier De Gracia Roldan, Barcelona, Pediatric Pneumology; Manuel Hernandez, Pere Soler-Palacin, Andrea Martin Nalda, Isabel Caragol, Drahomira Detkova, Fabiola Caracseghi, Núria Murtra Garrell, Barcelona, Vall d’Hebron, Paediatric Infectious Diseases and Immunodeficiencies; Juan Luis, Santos Granada, Hospital Virgen de las Nieves; Rafael Martinez de la Ossa Saenz-Lopez, Granada, Hospital Virgen de las Nieves, Pilar Llobet, Granollers, Hospital General; Luis Ignacio Gonzalez Granado, Madrid, Hospital 12 de octubre; Silvia Sanchez-Ramon, Jose Luis Subiza, Madrid, Hospital Clinico San Carlos; Juana Gil Herrera, Javier Carbone, Eduardo Fernandez-Cruz Perez, Meda Diana Alecsandru, Madrid, Hospital General Universitario Gregorio Maranon; Nuria Matamoros, Natalia Martínez, Mallorca, Hospital Son Dureta (National Centre); Lourdes Tricas, Héctor Suárez Casado, Luis Caminal, Luis Molinos, Eduardo Ramos Oviedo, Hospital Universitario Central de Asturias, Spain; Anders Fasth, Solveig Oskarsdottir, Göteborg University; Janne Björkander, Per Wagström, Helene Jardefors, Jönköping, Ryhov County Hospital; Lennart Hammarström, C.I. Edvard Smith, Ann Gardulf, Anna Berglöf, Peter Bergman, Susanne Hansen, Karolinska, Dept. Laboratory Medicine (Immunbristenheten); Magnus Aurivillius, Lennart Truedsson, Peter Lanbeck, Markus Perlhagen, Göran Jönsson, Ulf Tedgard, Jan Bergils, Nicholas Brodszki, Lund University Hospital; Mikael Sundin, Stockholm, Karolinska University Hospital / Astrid Lindgren Children’s Hospital, Sweden; Christoph Hess, Andreas Holbro, Nathan Cantoni, Mary Louise Daly, Basel University Hospital and Kantonsspital Aarau; Ulrich Heininger, Daniela Finke, Urs P. Frey, Basel, Universitäts-Kinderspital beider Basel (UKBB); Arthur Helbling, Urs Steiner, Michaela Bitzenhofer-Grüber, Hatidje Shabanaj, Bern, Inselspital (Erwachsene); Andrea Duppenthaler, Philipp Agyeman, Bern, Inselspital (Kinder); Peter Jandus, Jörg Seebach, Elliot Grange, Geneva, HUG - Service d’Immunologie et d’Allergologie; Hülya Özsahin, Klara Posfay Barbe, Geneva, HUG - University Children’s Hospital, Pediatric Hemato-Oncology Uni; Johannes Rischewski, Nadia Lanz, Luzern, Kinderspital: Pädiatrische Onkologie u. Hämatologie; Madeleine Bossard, Gaby Fahrni, Pirmin Schmid, Walter Alfred Wuillemin, Thomas Braschler, Luzerner Kantonsspital, Hämatologische Abteilung; Tayfun Güngör, Reinhard Seger, Janine Reichenbach, Barbara Drexel, Miriam Hoernes, Karin Marschall, Zürich, Children’s hospital; Thomas Hauser, Zürich, IZZ Immunologie-Zentrum; Adriano Fontana, Ulrike Sahrbacher, Florence Vallelian, Zürich, Universitätsspital, Klinik für Immunologie, Switzerland; Fügen Ersoy, Özden Sanal Tezcan, Ankara, Hacettepe University; Esin Figen Dogu, Aydan Ikinciogullari, Ankara, University School of Medicine; Olcay Yegin, Antalya, Akdeniz University, Faculty of Medicine Hospital, Department of Pediatric Immunology; Güzide Aksu, Necil Kütükcüler, Bornova-Izmir, Ege University; Ömür Ardeniz, Bornova-Izmir, Ege University, Medical Faculty; Sara Sebnem Kilic, Mehmet Oker, Bursa-Görükle, University Medical Faculty; Isil B Barlan, Istanbul Marmara University, Pediatric Allergy/Immunology; Ismail Reisli Konya, Necmettin Erbakan University, Turkey; J. David Edgar, Belfast; Aarnoud Huissoon, Birmingham Heartlands; Hilary J. Joyce, Dinakantha Kumararatne, Cambridge, Addenbrooke’s Hospital; Andrew Exley, Jane Elliott, Karen Henderson, Helen Gronlund, Helen Baxendale, Cambridge, Papworth NHS Foundation Trust; Mohamed Abuzakouk, Hull Royal Infirmary; Philip Wood, Leeds; Hilary Longhurst, Nichole McIntosh, John Dempster, Michael D. Tarzi, Siamak Arami, Matthew Buckland, London, Barts and the London NHS Trust; Graham Davies, Adrian Thrasher, Paru Naik, Claire Core, Zoe Allwood, Alison Jones, London, Institute of Child Health/Great Ormond Street Hospital; David Aaron Guzman, Sarita Workman, Ronnie Chee, Siobhan Burns, Suranjith Seneviratne, London, Royal Free Hospital, Immunology & Clin. Pathology; Peter Arkwright, Matthew Helbert, Catherine Bangs, Barbara Boardman, Manchester, Manchester Royal Infirmary; Andrew J. Cant, Andrew R. Gennery, Mary Slatter, Elizabeth Rogerson, Patricia Tierney, Newcastle General Hospital; Helen Chapel, Siraj Misbah, Mary Lucas, Janet Burton, Oxford, U.K.; the Members of the ESID Registry Steering Committee: Matthew Buckland, UCL Centre for Immunodeficiency, Royal Free London NHS Foundation Trust, London, UK; Markus Seidel, Research Unit Pediatric Hematology and Immunology, Division of Pediatric Hematology-Oncology, Department of Pediatrics and Adolescent Medicine, Medical University Graz, Graz, Austria; Joris van Montfrans, Paediatric Immunology, Laboratory of Translational Immunology LTI, University Medical Center Utrecht, Utrecht, The Netherlands; for their review and consent for the publication of the study; the Plasma Protein Therapeutics Association for the financial support of the ESID registry and endorsement of this study; the Members of the PPTA Taskforce: Albert Farrugia, Shanthy Krishnarajah, Joan Mendivil, Mercedes Prior, Tim Rübesam, Michael Runken.
The ESID registry working party
The European Society for Immunodeficiencies (ESID) Registry is based on contributions by the following national registries: CEREDIH (France), REDIP (Spain), PID-NET (Germany), UKPIN (UK), IPINET (Italy), AGPI (Austria), the Netherlands, and Czech Republic. Additional contributions are received from the following countries: Turkey, Poland, Ireland, Iran, Lithuania, Portugal, Belgium, Switzerland, Slovakia, Slovenia, Croatia, Serbia, Greece, Belarus, Russia, Hungary, Romania, Ukraine, Estonia, Egypt, Israel.