For all authors, none was declared.
DW wrote the manuscript together with MM and compiled the references and constructed pictures and tables together with AS. CE designed the structure of the register and revised the manuscript. AS planned and participated in the creation of the register, gathered and constructed pictures and tables and revised the manuscript. MM designed the structure of the register, planned the study and wrote the manuscript, together with David Wennergren. All authors have given final approval of the version to be published.
Although fractures consume large social and financial resources, little is known about their actual numbers, treatment methods or outcomes. The scarcity of data calls for a high-quality, population-based register. No previous registers have prospectively collected data and patient-reported outcome measures (PROMs) on fractures of all types. The Swedish Fracture Register was recently created to fill this gap in knowledge. Its purpose is to provide information on fractures of all types, whether treated by surgery or otherwise. The aim of this article is to describe how the register was developed and its current use.
The Swedish Fracture Register was developed during a 4-year period, 2007–2010. Data collection started in 2011. The register currently collects data on all extremity, pelvic and spine fractures in adults who have been diagnosed or treated at the affiliated departments. Data entry is fully web based, including date, cause of injury, classification and treatment. It is performed by the attending physician. Patients fill out PROMs – EQ-5D-3L and the Short Musculoskeletal Function Assessment (SMFA) – relating to health status and level of functioning before the fracture and one year later. Surgeon-reported outcome measures are registered as reoperation rates. The Swedish Fracture Register is now functioning effectively and is used in clinical routine. From January 2011 to September 2015, more than 103,000 fractures have been entered at 26 Swedish orthopedic departments.
The Swedish Fracture Register is already a well-functioning, population-based fracture register that covers fractures of all types, regardless of treatment, and collects both surgeon- and patient-reported outcome measures. In the future the Swedish Fracture Register will be able to present both results of fracture treatment and valuable epidemiological data.
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- The Swedish fracture register: 103,000 fractures registered
- BioMed Central
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