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Erschienen in: Pediatric Nephrology 4/2020

06.03.2019 | Review

Transitioning adolescents to adult nephrology care: a systematic review of the experiences of adolescents, parents, and health professionals

verfasst von: Kimberley Crawford, Cath Wilson, Jac Kee Low, Elizabeth Manias, Allison Williams

Erschienen in: Pediatric Nephrology | Ausgabe 4/2020

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Abstract

A challenging phase for adolescents with chronic kidney disease (CKD) is the transition from a pediatric to an adult health service. Failure to adequately prepare adolescents for transfer to adult care can lead to a decline in attendance to the adult clinic and an increase in the rate of non-adherence to medical treatment. The aim of this systematic review was to analyze studies exploring the experiences of adolescents, parents, and health professionals regarding the transition process of adolescents with CKD. Six databases were searched from inception to October 2018 for primary research articles. Eleven articles met the inclusion criteria, with only one exploring the parents’ experiences. The results indicated that up to 50% of adolescents did not feel prepared to transfer to adult care at the time of transfer, and the timing was not ideal for some adolescents. Health professionals acknowledged that adolescents and parents felt emotional attachment to the pediatric unit, which led to anxiety about transferring. Once in adult care, adolescents felt out of place among the older patients, overwhelmed by the environment and the lack of attention from health professionals. Initiatives that could support transfer include allowing adolescents to attend pediatric consultation independently and meeting with adult health professionals prior to transfer. This review found that the transition process must be more responsive to adolescents by tailoring the timing of transfer according to their ability to assume self-care responsibility. In addition, there is a need to focus on the parents and their role in the transition process.
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Metadaten
Titel
Transitioning adolescents to adult nephrology care: a systematic review of the experiences of adolescents, parents, and health professionals
verfasst von
Kimberley Crawford
Cath Wilson
Jac Kee Low
Elizabeth Manias
Allison Williams
Publikationsdatum
06.03.2019
Verlag
Springer Berlin Heidelberg
Erschienen in
Pediatric Nephrology / Ausgabe 4/2020
Print ISSN: 0931-041X
Elektronische ISSN: 1432-198X
DOI
https://doi.org/10.1007/s00467-019-04223-9

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