Background
Methods
Study design and participants
Administered questionnaire
Questionnaire validation
Internal validity
Construct/factorial validity
Scoring of questionnaire
Translation process of FACT-BMT into Arabic version
Translation Methodology
Permission from FACIT.org
Statistical methods
Results
Variable | Total Number (108) | Percentages (%) |
---|---|---|
Median age at HDC ASCT (range) | 108 | Median age 29 years (14–62) |
Age 14–21 | 16 | 15 |
Age > 21–31 | 42 | 39 |
Age > 31–51 | 40 | 37 |
Age > 51–62 | 10 | 9 |
Time from transplant to interviewa | ||
> 3–12 months | 31 | 30.4 |
> 12–24 months | 25 | 24.5 |
> 24–60 moths | 30 | 29.4 |
> 60 months | 16 | 15.7 |
Educational levela | ||
No formal education | 7 | 6.9 |
Elementary school | 12 | 11.8 |
Middle school | 15 | 14.7 |
High school | 34 | 33.3 |
Baccalaureate Degree or over | 33 | 32.4 |
Sex | ||
Female | 40 | 37 |
Male | 68 | 63 |
Diagnosis | ||
Hodgkin lymphoma | 75 | 69.4 |
Non-Hodgkin lymphoma | 33 | 30.6 |
FACT-BMT | Number | Median | Lower quartile | Upper quartile |
---|---|---|---|---|
Physical wellbeing (PWB) | 104 | 24 | 19 | 27 |
Social wellbeing (SWB) | 103 | 24 | 20 | 27 |
Emotional wellbeing (EWB) | 104 | 20 | 17 | 22 |
Functional wellbeing (FWB) | 103 | 23 | 19 | 27 |
Bone Marrow transplant (BMT) | 104 | 89 | 76 | 100 |
FACT-General | 102 | 66 | 57.5 | 75.7 |
FACT-BMT | 102 | 154.5 | 134 | 174.3 |
FACT- Trial outcome Index (TOI) | 103 | 113 | 95 | 127.5 |
PHYSICAL WELL-BEING | Not at all | A little bit | Some-what | Quite a bit | Very much | |
GP1 | I have a lack of energy | 0 | 1 | 2 | 3 | 4 |
GP2 | I have nausea | 0 | 1 | 2 | 3 | 4 |
GP3 | Because of my physical condition, I have trouble meeting the needs of my family | 0 | 1 | 2 | 3 | 4 |
GP4 | I have pain | 0 | 1 | 2 | 3 | 4 |
GP5 | I am bothered by side effects of treatment | 0 | 1 | 2 | 3 | 4 |
GP6 | I feel ill | 0 | 1 | 2 | 3 | 4 |
GP7 | I am forced to spend time in bed | 0 | 1 | 2 | 3 | 4 |
SOCIAL/FAMILY WELL-BEING | Not at all | A little bit | Some-what | Quite a bit | Very much | |
GS1 | I feel close to my friends | 0 | 1 | 2 | 3 | 4 |
GS2 | I get emotional support from my family | 0 | 1 | 2 | 3 | 4 |
GS3 | I get support from my friends | 0 | 1 | 2 | 3 | 4 |
GS4 | My family has accepted my illness | 0 | 1 | 2 | 3 | 4 |
GS5 | I am satisfied with family communication about my illness | 0 | 1 | 2 | 3 | 4 |
GS6 | I feel close to my partner (or the person who is my main support) | 0 | 1 | 2 | 3 | 4 |
Q1 |
Regardless of your current level of sexual activity, please answer the following question. If you prefer not to answer it, please mark this box and go to the next section.
| |||||
GS7 | I am satisfied with my sex life | 0 | 1 | 2 | 3 | 4 |
EMOTIONAL WELL-BEING | Not at all | A little bit | Some-what | Quite a bit | Very much | |
GE1 | I feel sad | 0 | 1 | 2 | 3 | 4 |
GE2 | I am satisfied with how I am coping with my illness | 0 | 1 | 2 | 3 | 4 |
GE3 | I am losing hope in the fight against my illness | 0 | 1 | 2 | 3 | 4 |
GE4 | I feel nervous | 0 | 1 | 2 | 3 | 4 |
GE5 | I worry about dying | 0 | 1 | 2 | 3 | 4 |
GE6 | I worry that my condition will get worse | 0 | 1 | 2 | 3 | 4 |
FUNCTIONAL WELL-BEING | Not at all | A little bit | Some-what | Quite a bit | Very much | |
GF1 | I am able to work (include work at home) | 0 | 1 | 2 | 3 | 4 |
GF2 | My work (include work at home) is fulfilling | 0 | 1 | 2 | 3 | 4 |
GF3 | I am able to enjoy life | 0 | 1 | 2 | 3 | 4 |
GF4 | I have accepted my illness | 0 | 1 | 2 | 3 | 4 |
GF5 | I am sleeping well | 0 | 1 | 2 | 3 | 4 |
GF6 | I am enjoying the things I usually do for fun | 0 | 1 | 2 | 3 | 4 |
GF7 | I am content with the quality of my life right now | 0 | 1 | 2 | 3 | 4 |
ADDITIONAL CONCERNS | Not at all | A little bit | Some-what | Quite a bit | Very much | |
BMT1 | I am concerned about keeping my job (include work at home) | 0 | 1 | 2 | 3 | 4 |
BMT2 | I feel distant from other people | 0 | 1 | 2 | 3 | 4 |
BMT3 | I worry that the transplant will not work | 0 | 1 | 2 | 3 | 4 |
BMT4 | The effects of treatment are worse than I had imagined | 0 | 1 | 2 | 3 | 4 |
C6 | I have a good appetite | 0 | 1 | 2 | 3 | 4 |
C7 | I like the appearance of my body | 0 | 1 | 2 | 3 | 4 |
BMT5 | I am able to get around by myself | 0 | 1 | 2 | 3 | 4 |
BMT6 | I get tired easily | 0 | 1 | 2 | 3 | 4 |
BL4 | I am interested in sex | 0 | 1 | 2 | 3 | 4 |
BMT7 | I have concerns about my ability to have children | 0 | 1 | 2 | 3 | 4 |
BMT8 | I have confidence in my nurse(s) | 0 | 1 | 2 | 3 | 4 |
BMT9 | I regret having the bone marrow transplant | 0 | 1 | 2 | 3 | 4 |
BMT10 | I can remember things | 0 | 1 | 2 | 3 | 4 |
Br1 | I am able to concentrate | 0 | 1 | 2 | 3 | 4 |
BMT11 | I have frequent colds/infections | 0 | 1 | 2 | 3 | 4 |
BMT12 | My eyesight is blurry | 0 | 1 | 2 | 3 | 4 |
BMT13 | I am bothered by a change in the way food tastes | 0 | 1 | 2 | 3 | 4 |
BMT14 | I have tremors | 0 | 1 | 2 | 3 | 4 |
B1 | I have been short of breath | 0 | 1 | 2 | 3 | 4 |
BMT15 | I am bothered by skin problems (e.g., rash, itching) | 0 | 1 | 2 | 3 | 4 |
BMT16 | I have trouble with my bowels | 0 | 1 | 2 | 3 | 4 |
BMT17 | My illness is a personal hardship for my close family members | 0 | 1 | 2 | 3 | 4 |
BMT18 | The cost of my treatment is a burden on me or my family | 0 | 1 | 2 | 3 | 4 |
Factorial validity (construct validity)
Internal consistency
FACT-BMT Subscales/ totals | Number | Cronbach’s alpha |
---|---|---|
Physical wellbeing (PWB) | 104 | 0.84 |
Social wellbeing (SWB) | 103 | 0.78 |
Emotional wellbeing (EWB) | 104 | 0.67 |
Functional wellbeing (FWB) | 103 | 0.88 |
Bone Marrow transplant (BMT) | 104 | 0.81 |
FACT-General | 102 | 0.89 |
FACT-BMT | 104 | 0.90 |
FACT- Trial outcome Index (TOI) | 103 | 0.91 |
Quality of life assessment
FACT-BMT Subscales | Not at all | A little bit | Some-what | Quite a bit | Very much |
---|---|---|---|---|---|
Physical wellbeing (PWB) | 59.5 | 15.5 | 13 | 8 | 4 |
Social wellbeing (SWB) | 3.6 | 4.3 | 10.3 | 25.6 | 56.1 |
Emotional wellbeing (EWB) | 53.9 | 9.5 | 13.2 | 12.5 | 10.9 |
Functional wellbeing (FWB) | 2.7 | 3.1 | 16 | 30.8 | 47.5 |
FACT-BMT | 42.5 | 11.8 | 13.5 | 14.8 | 17.4 |