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01.12.2012 | Short report | Ausgabe 1/2012 Open Access

Health and Quality of Life Outcomes 1/2012

Validity and reliability of the Korean version of the pediatric quality of life ESRD module

Zeitschrift:
Health and Quality of Life Outcomes > Ausgabe 1/2012
Autoren:
Ki-Soo Park, Min Hyun Cho, Il Soo Ha, Hee Gyung Kang, Hae Il Cheong, Young Seo Park, Yoon Jung Lee, Joo Hoon Lee, Hee Yeon Cho
Wichtige Hinweise

Competing interests

The authors declare that they have no competing interests.

Authors’ contributions

KS, MH were the main investigator, participated in the collection of data, design of the study, analysis and drafted the manuscript. IS, HG, HI, YS, YJ, KH and HY have collected data and made interpretation of data, have been revising it critically for intellectual content. All authors read and approved the final manuscript collected the data.

Abstract

Background

Health-related quality of life is a very important issue in children with end-stage renal disease and their family. Moreover, this can be a lifelong problem. In this study, we performed a cross-sectional investigation of the health-related quality of life in Korean children, undergoing renal replacement therapies, such as dialysis and renal transplantation.

Findings

We validated the Korean version of the PedsQL 3.0 End-Stage Renal Disease Module by comparing with the PedsQL 4.0 Generic Core Scales. A total of 92 pediatric patients with end-stage renal disease, aged 2–18 year old, were enrolled in four teaching hospitals in Korea. The module was acceptable for both parent proxy-report and child self-report. The response rate was acceptable, since no reminders were delivered. A large proportion of the responders answered >90% of the items, which suggests a good face validity. The PedsQL 4.0 Generic Core Scales and the PedsQL 3.0 End-Stage Renal Disease Module showed minimal missing values in the current study, which supported feasibility. The validation analyses revealed acceptable floor and ceiling effects and an acceptable construct validity.

Conclusions

The PedsQL 3.0 End-stage Renal Disease Module may be useful as an end-stage renal disease -specific instrument in the evaluation of the health-related quality of life in Korean children; however, a larger, longitudinal prospective study is needed.
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