Zusammenfassung
Forschung dient primär dazu, Wissen zu generieren und zu verbreiten, um so mithilfe einer engen Theorie- Praxis-Vernetzung die Patientenversorgung zu optimieren und kritisch zu reflektieren. Die Palliativversorgung, speziell die pädiatrische Palliativversorgung, ist eine noch sehr junge Forschungsdisziplin.
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Literatur
Altman DG, Schulz KF, Moher D, Egger M, Davidoff F, Elbourne D, Gotzsche PC, Lang T (2001) The revised CONSORT Statement for reporting randomized controlled trials: explanation and elaboration. Ann Int Med134:663–694
Aoun SM, Kristjanson LJ (2005) Challenging the framework for evidence in palliative care research. Pall Med 19(6): 461–465
Aspinal F, Addington-Hall J, Hughes R, Higginson IJ (2003) Using satisfaction to measure the quality of palliative care: a review of the literature. J Adv Nurs 42(4):324–339
Bortz J, Döring N (2006) Richtlinien für die inferenzstatistische Auswertung von Grundlagenforschung und Evaluationsforschung. In: Bortz J, Döring N (Hrsg) Forschungsmethoden und Evaluation für Human- und Sozialwissenschaftler. Heidelberg: Springer, Heidelberg New York Tokio; S 599–660
Cohen SR, Boston P, Mount BM, Porterfield P (2001) Changes in quality of life following admission to palliative care units. Pall Med 15(5):363–371
Dupuis LL, Nathan PC (2010) Optimizing Emetic Control in Children Receiving Antineoplastic Therapy: Beyond the Guidelines. Pediatric Drugs 12(1):51–61
Eiser C, Morse R (2001) A review of measures of quality of life for children with chronic illness. Arch Dis Child 84:205–211
European Medicines Agency (1998) ICH Topic E 9 Statistical Principles for Clinical Trials
Feudtner C, Kang TI, Hexem KR, Friedrichsdorf SJ, Osenga K, Siden H, Friebert SE, Hays RM, Dussel V, Wolfe J (2011) Pediatric Palliative Care Patients: a prospective multicenter cohort study. Pediatrics 127(6):1094–1101
Flick U, von Kardoff E, Steinke I (2000) Qualitative Forschung. Ein Handbuch. Rowohlt, Hamburg
Friedrichsdorf SJ, Finney D, Bergin M, Stevens M, Collins JJ (2007) Breakthrough Pain in Children with Cancer. J Pain Symp Manage 32(2):209–216
Grün B, Haefeli WE (2009) Die richtige Rekrutierung von Studienteilnehmern. Bundesgesundheitsblatt-Gesundheitsforschung-Gesundheitsschutz 52(4):402–409
Guyatt G, Sackett D, Adachi J, Roberts R, Chong J, Rosenbloom D, Keller J (1988) A clinician’s guide for conducting randomized trials in individual patients. CMAJ: Canadian Medical Association Journal 139(6):497
Hinds PS, Burghen EA, Pritchard M (2007) Conducting end-oflife studies in pediatric oncology. West J Nurs Res 29(4): 448–465
Kaasa S, Loge JH (2003) Quality of life in palliative care: principles and practice. Palliative Medicine 17(1):11–20
Klug SJ, Bender R, Blettner M, Lange S (2007) Studientypen in der medizinischen Forschung. Dtsch Med Wochenschr (132):e45-e47
Lo C, Burman D, Rodin G, Zimmermann C (2009) Measuring patient satisfaction in oncology palliative care: psychometric properties of the FAMCARE-patient scale. Qual Life Res 18(6):747–752
McGrath PJ, Walco GA, Turk DC, Dworkin RH, Brown MT, Davidson K, Eccleston C, Finley AG, Goldschneider K, Haverkos L, Hertz S, Ljungman G, Palermo T, Rappaport BA, Rhodes T, Schechter N, Scott J, Sethna NF, Svensson OK, Stinson J, von Baeyer CL, Walker L, Weisman S, White RE, Zajicek A, Zeltzer L (2008) Core outcome domains and measures for pediatric acute and chronic/recurrent pain clinical trials: PedIMMPACT recommendations. J Pain 9(9):771–783
Polit DF, Beck CT, Hungler BP (2004) Lehrbuch Pflegeforschung. Huber, Bern, Göttingen, Toronto, Seattle
Röhrig B, du Perl JB, Blettner M (2009) Studiendesign in der medizinischen Forschung. Dt Ärztebl 106(11):184–189
Ross C, Cornbleet M (2003) Atitudes of patients and staff to research in a specialist palliative care unit. Pall Med 17(6):491–497
The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (1979) The Belmont Report – Ethical Principles and Guidelines for the protection of human subjects of research. http://ohsr.od.nih.gov/guidelines/belmont.html. Abgerufen 07.04. 2012
Zernikow B, Nauck F (2008) Kinderpalliativmedizin: Kindern ein gutes Sterben ermöglichen. Dt Ärztebl 105(25):1376–1380
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von Lützau, P., Wager, J., Ruhe, AK., Otto, M., Hechler, T., Zernikow, B. (2013). Forschung in der pädiatrischen Palliativversorgung. In: Zernikow, B. (eds) Palliativversorgung von Kindern, Jugendlichen und jungen Erwachsenen. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-29610-9_12
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