Abstract
This chapter introduces the ethical dimensions, formal and informal, related to the Longitudinal Study of Indigenous Children (LSIC). The formal guidelines are those detailed by the National Health and Medical Research Council and those from the Australian Institute of Aboriginal and Torres Strait Islander Studies Research Ethics Guidelines. The chapter discusses the particular ethical approach, issues, problems confronted and resolutions deployed in the design and implementation of the LSIC study, the project’s initial ethics procedures and the conundrums faced in bringing the study to ethical clearance. These include the multi-site, multi-state location of the research, the need to wait for researcher and participant relationships to develop before surveying, the training and maintaining of the Indigenous staff to work at the research field sites, and the specific issues around maintaining confidentiality of data gathered in discrete locations.
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References
AIATSIS. 2012. Guidelines for Ethical Research in Australian Indigenous Studies. http://aiatsis.gov.au/sites/default/files/docs/research-and-guides/ethics/gerais.pdf. Accessed May 9, 2016.
DSS. 2013. Footprints in Time: The Longitudinal Study of Indigenous Children Data Protocols. September. Canberra. Department of Social Services.
———. 2015a. Footprints in Time: The Longitudinal Study of Indigenous Children—Data User Guide. Release 6.0. March. Canberra: Department of Social Services.
———. 2015b. The Longitudinal Study of Indigenous Children. Data Protocols. Version September 2013 FACT SHEET 6. Canberra: Department of Social Services.
———. 2015c. Footprints in Time: The Longitudinal Study of Indigenous Wave 5 Summary Report. Canberra: Department of Social Services.
Dunbar, T., and M. Scrimgeour. 2005. Ethical Assessment of Indigenous Health Research in Australia: A Review of the Literature. Onemda VicHealth Koori Health Unit. Discussion Paper No. 14. Melbourne. University of Melbourne.
Henry, J., T. Dunbar, and A. Arnott et al. 2003. Links Monograph Series 1. Indigenous Research Reform Agenda. Positioning the Cooperative Research Centre for Aboriginal and Tropical Health. http://hdl.handle.net/10536/DRO/DU:30010109. Accessed May 9, 2016.
Kaiser, K. 2009. Protecting Respondent Confidentiality in Qualitative Research. Qualitative Health Research. 19(11): 1632–1641.
Martin, K. and Booran Mirraboopa 2003. Ways of Knowing, Being and Doing: A Theoretical Framework and Methods for Indigenous and Indigenist Re-Search. Journal of Australian Studies 27(76). 203–214. doi:10.1080/14443050309387838. Accessed May 9, 2016.
Morrow, V., J. Boddy, and R. Lamb. 2014. The Ethics of Secondary Data Analysis: Learning from the Experience of Sharing Qualitative Data from Young People and Their Families in an International Study of Childhood Poverty. NOVELLA working paper. London. University of London.
NHMRC. 2003a. The NHMRC Road Map: A Strategic Framework for Improving Aboriginal and Torres Strait Islander Health Through Research. Canberra. Commonwealth of Australia.
———. 2003b. National Statement on Ethical Conduct in Human Research . Canberra. Commonwealth of Australia.
———. 2003c. Values and Ethics: Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research. Canberra. Commonwealth of Australia.
———. 2006. Keeping Research on Track: A Guide for Aboriginal and Torres Strait Islander Peoples about Health Research Ethics. Canberra. Commonwealth of Australia.
Penman, R. 2006. Aboriginal and Torres Strait Islander Views on Research in Their Communities. Occasional Paper 16. Department of Families, Community Services and Indigenous Affairs. Canberra. Commonwealth of Australia.
Richards, H., and L. Schwartz. 2002. Ethics of Qualitative Research: Are There Special Issues for Health Services Research? Family Practice. 19(2): 135–139.
Skanfors, L. 2009. Ethics in Child Research: Children’s Agency and Researchers’ ‘Ethical Radar’. Childhoods Today 3(1): 1–22.
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Dunbar, T., Scrimgeour, M. (2017). LSIC: Procedural Ethics Through an Indigenous Ethical Lens. In: Walter, M., Martin, K., Bodkin-Andrews, G. (eds) Indigenous Children Growing Up Strong. Palgrave Macmillan, London. https://doi.org/10.1057/978-1-137-53435-4_4
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DOI: https://doi.org/10.1057/978-1-137-53435-4_4
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