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Supporting Parents of a Child with Autism Spectrum Disorder: The French Awakening

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Abstract

After being wrongfully blamed for their child’s disturbances, French parents of a child with autism spectrum disorder (ASD) are now perceived as essential partners of care professionals. This shift in perspective has encouraged the development of parent training programs in the field of autism. In this paper, we present three programs currently implemented in France for parents of a child with ASD. We investigated their social validity, from the parents’ perspective. All three programs showed good social validity: attendance rate was good and parents were satisfied. In France, like elsewhere, more parents should be given the opportunity to participate in such programs to help them deal with the specific challenges of raising a child with ASD.

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Acknowledgments

Authors would like to thank the parents who took part in the three programs as well as all their clinical partners. More particularly, authors are grateful to: For Beyond ASD: the Centre Universitaire de Pédopsychiatrie du CHRU de Tours, in particular Pr. Frédérique Bonnet-Brilhault, Dr. Joëlle Malvy and Julie Allard Ech Chouikh, and the Centre de Ressources pour l’Autisme de Haute Normandie, in particular Dr. Antoine Rosier and Romain Taton. For ETAP: the Centre Ressources Autisme Aquitaine, in particular Pr. Manuel Bouvard and the Child psychiatry department of Robert Debré Hospital (Paris), in particular Pr. Richard Delorme and Marion Poumeyreau, as well as Katia M’bailara and Solenne Pingault for sharing their expertise in Therapeutic Education and ASD. For ABC: The Centre Hospitalier Spécialisé de Rouffach, in particular Dr. Benoît Dutray and Laure Wolgensinger, for sharing their expertise in Therapeutic Education and ASD and for the implementation of pilot groups.

Funding

Research for Beyond ASD received financial support from the Caisse Nationale de Solidarité pour l’Autonomie (CNSA) through the 2014 call for projects of the Institut de Recherche en Santé Publique (IRESP). Research for ETAP received financial support from the French ministry of higher education and research and from the Orange Foundation (Grant No. 2013 028). Research for ABC received financial support from the Centre Hospitalier Spécialisé de Rouffach (France) and from the Ecole Supérieure du Professorat et de l’Education of the Université de Strasbourg.

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Authors and Affiliations

  1. Laboratoire de Psychopathologie et Processus de Santé (EA 4057), Institut de Psychologie, Université Paris Descartes, Sorbonne Paris Cité, 71, Avenue Édouard Vaillant, 92100, Boulogne-Billancourt, France

    Carol Sankey, Cyrielle Derguy & Émilie Cappe

  2. Laboratoire Interuniversitaire des Sciences de l’Education et de la Communication (EA 2310), Université de Strasbourg, Strasbourg, France

    Céline Clément & Jennifer Ilg

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  1. Carol Sankey
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  2. Cyrielle Derguy
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  5. Émilie Cappe
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Contributions

CS coordinated and drafted the manuscript; CD conceived and coordinated the study regarding the ETAP program and helped draft the manuscript; CC and JI conceived and coordinated the study regarding the ABC program and helped draft the manuscript; ÉC had the idea of the manuscript, conceived and coordinated the study regarding the Beyond ASD program, and supervised and helped draft the manuscript. All authors read and approved the final manuscript.

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Correspondence to Émilie Cappe.

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For all three programs, participants were given the necessary information and gave their informed consent to take part in the study. In addition, all procedures performed were in accordance with the ethical standards of the respective institutional and/or national research committees and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

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Sankey, C., Derguy, C., Clément, C. et al. Supporting Parents of a Child with Autism Spectrum Disorder: The French Awakening. J Autism Dev Disord 49, 1142–1153 (2019). https://doi.org/10.1007/s10803-018-3800-x

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