Abstract
Health related quality of life should be considered a therapeutic objective in the conduct of clinical trials, epidemiological studies and economic evaluations. The development of a new scale or instrument is a long and difficult process, requiring both qualitative and quantitative perspectives. The methodology necessary for the elaboration of a new instrument or the evaluation of the quality of an existing one is often assumed or ignored. Therefore, when indices are required to measure subjective dimensions of well-being in populations, the use of existing standardized measures, already cross-culturally validated, is usually recommended. This chapter will discuss precise psychometric elements to be considered in the decision to develop or to use an existing scale. The principles discussed here, serve as general guidelines for those planning to assess health related quality of life in research and practice settings.
This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Preview
Unable to display preview. Download preview PDF.
References
Bergner, M. (1993). The development, testing of the use of the Sickness Impact Profile. In: Walker, S.R. and Rosser, R.M. (eds.), Quality of Life Assessment: Key Issues in the 1990’s. Lancaster: MTP.
Brazier, J.E., Jones, N. and Kind, P. (1993). Testing the validity of the EuroQoL and comparing it with the SF-36 health survey questionnaire. Quality of Life Research 2, 169–180.
Campbell, D.R. and Fiske, D.W. (1959). Convergent and discriminant validation by the multitrait-multimethod matrix. Psychological Bulletin 56, 81–105.
Cohen, J. (1977). Statistical Power Analysis for the Behavioral Sciences. New York: Academy Press.
Guyatt, G.H., Walter, S. and Norman, G. (1987). Measuring change over time: assessing the usefulness of evaluative instruments. Journal of Chronical Disease 40, 171–178.
Guyatt, G., Feeny, D. and Patrick, D. (1991). Issues in quality of life measurement in clinical trials. Controlled Clinical Trials 12, 81S–90S.
Hunt, S.M., McEwen, J. and McKenna, S.P. (1986). Measuring Health Status. London: Croom Helm.
Kazis, L.E., Anderson, J.J. and Meenan, R.F. (1989). Effect sizes for interpreting change in health status. Medical Care 27 (supplement), S178–S189.
Nunnally, J.C., ed. (1978). Psychometric Theory, 2nd Edition. New York: McGraw-Hill.
Patrick, D.L. and Erickson, P. (1993). Health Status and Health Policy: Quality of Life in Health Care Evaluation and Resource Allocation. Oxford: Oxford University Press.
Scientific Advisory Committee (1995). Instrument Review Criteria. Medical Outcomes Trust Bulletin 3. Boston: Medical Outcomes Trust.
Torrance, G.W., Furlong, W., Feeny, D., Boyle, M. (1995). Multiattribute preference functions. Health Utilities Index. Pharmacoeconomics 7, 503–520.
Ware, J.E. and Sherbourne, C.D. (1992). The MOS 36-item Short-Form Health Survey (SF-36). I. Conceptual framework and item selection. Medical Care 30, 473–483.
Ware, J.E., Snow, K.K., Kosinski, M. and Gandek, B. (1993). SF-36 Health Survey. Manual & Interpretation Guide. Boston: The Health Institute.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2002 Springer Science+Business Media Dordrecht
About this chapter
Cite this chapter
Chwalow, A.J., Adesina, A.B. (2002). Conception, Development and Validation of Instruments for Quality of Life Assessment: An Overview. In: Mesbah, M., Cole, B.F., Lee, ML.T. (eds) Statistical Methods for Quality of Life Studies. Springer, Boston, MA. https://doi.org/10.1007/978-1-4757-3625-0_6
Download citation
DOI: https://doi.org/10.1007/978-1-4757-3625-0_6
Publisher Name: Springer, Boston, MA
Print ISBN: 978-1-4419-5207-3
Online ISBN: 978-1-4757-3625-0
eBook Packages: Springer Book Archive