Abstract
BBMRI-ERIC, the Biobanking and BioMolecular Resources Research Infrastructure-European Research Infrastructure Consortium, is a new form of umbrella organization for biobanking in Europe. For rare and common diseases alike, it aims at providing fair access to quality-controlled human biological samples and associated biomedical and biomolecular data. Such access enables basic mechanisms underlying diseases to be studied, which is indispensable for the development of new biomarkers and drugs. In the context of the European Research Area (ERA), biobanks, which were identified as a particular European strength, contribute to Europe’s cohesion policy through capacity-building in the BBMRI-ERIC member countries.
Zusammenfassung
BBMRI-ERIC (Forschungsinfrastruktur für Biobanken und Biomolekulare Ressourcen – das Europäische Forschungsinfrastrukturkonsortium) ermöglicht neue Formen des Managements von Biobanken in Europa. Sowohl für seltene als auch für häufige Erkrankungen bildet BBMRI-ERIC eine Schnittstelle für einen gerecht geregelten Zugang zu qualitätskontrollierten humanbiologischen Proben und deren assoziierten biomedizinischen und biomolekularen Daten. Dies ermöglicht die Untersuchung der allgemeinen Mechanismen, die vielen Krankheiten zugrunde liegen und ist unersetzlich für die Entwicklung neuer Biomarker und Medikamente. Im Kontext des Europäischen Forschungsraumes (ERA) sind Biobanken bereits mehrfach als besondere europäische Stärke hervorgehoben worden. Sie sind fester Bestandteil der Europäischen Kohäsionspolitik – insbesondere im Zusammenhang mit der Kapazitätsbildung in den BBMRI-ERIC-Mitgliedsstaaten.
Similar content being viewed by others
References
Lochmüller H, Aymé S, Pampinella F, Melegh B, Kuhn KA, Antonarakis SE, Meitinger T (2009) The role of biobanking in rare diseases: European consensus expert group report. Biopreserv Biobank 7(3):155–156. doi:10.1089/bio.2010.7302
Time Magazine (2009) 10 Ideas changing the world right now. 8. Biobanks (12 March 2009). http://content.time.com/time/specials/packages/article/0,28804,1884779_1884782_1884766,00.html. Accessed 13 Oct 2015
Biological Resource Centres. Underpinning the future of life sciences and biotechnology. http://www.oecd.org/sti/biotech/2487422.pdf. Accessed 13 Oct 2015
ESF, Population Survey and Biobanking, http://www.esf.org/hosting-experts/scientific-review-groups/biomedical-sciences-med/activities/science-policy/population-surveys-and-biobanking.html. Accessed 13 Oct 2015
https://ec.europa.eu/research/infrastructures/index_en.cfm?pg=esfri. Accessed 13 Oct 2015
Yuille M et al (2008) Biobanking for Europe. Brief Bioinform 9(1):14–24
Salminen-Mankonen H et al. (2009) BBMRI—The Pan-European research infrastructure for Biobanking and Biomolecular Resources: managing resources for the future of biomedical research, in: EMBnet.news
The final report from the BBMRI preparatory phase (GA212111), see http://bbmri-eric.eu/documents/10181/83482/report977566.pdf. Accessed 13 Oct 2015
BBMRI-ERIC Statutes (22 November 2013), see the Official Journal of the European Union at http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ:L:2013:320:0063:0080:DE:PDF. A revised, updated version is available at www.bbmri-eric.eu. Accessed 13 Oct 2015
Reichel J et al (2014) ERIC: a new governance tool for Biobanking. Eur J Hum Genet 22(9):1055–1057
https://www.elixir-europe.org/news/corbel-cluster-project-selected-funding. Accessed 13 Oct 2015
http://bbmri-eric.eu/bbmri-eric-directory. Accessed 13 Oct 2015
http://bbmri-eric.eu/bbmri-eric-directory-1.0. Accessed 13 Oct 2015
http://directory-molgenis.bbmri-eric.eu/. Accessed 13 Oct 2015
Swertz MA, Morris A et al (2004) Molecular Genetics Information System (MOLGENIS): alternatives in developing local experimental genomics databases. Bioinformatics 20(13):2075–2083
Swertz MA, Morris A et al (2010) The MOLGENIS toolkit: rapid prototyping of biosoftware at the push of a button. BMC Bioinformatics 11(Suppl 12):S12
OECD (2007) OECD Best practice guidelines for biological resource centres. http://www.oecd.org/sti/biotech/oecdbestpracticeguidelinesforbiologicalresourcecentres.htm. Accessed 13 Oct 2015
WHO/IARC (2007) Common minimum technical standards and protocols for biological resource centres dedicated to cancer research. http://www.iarc.fr/en/publications/pdfs-online/wrk/wrk2/index.php. Accessed 13 Oct 2015
http://www.iso.org/iso/home.html. Accessed 13 Oct 2015
http://standards.cen.eu/index.html. Accessed 13 Oct 2015
http://www.bbmri-eric.eu/documents/10181/173902/2015_Newsletter%232_web_low_reso.pdf/4cfeba87-2a75-4f24-a298-eba8562c1beb. Accessed 13 Oct 2015
Nature magazine: data overprotection. Draft European rules governing privacy threaten to hamper medical research. (23 June 2015) http://www.nature.com/news/data-overprotection-1.17825. Accessed 13 Oct 2015
Public Population Project in Genomics and Society, http://www.p3g.org/. Accessed 13 Oct 2015
International Society for Biological and Environmental Repositories, http://www.isber.org/. Accessed 13 Oct 2015
European, Middle Eastern & European Society for Biopreservation & Biobanking, http://www.esbb.org/. Accessed 13 Oct 2015
RD-CONNECT: an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research, FP7 project, http://rd-connect.eu/. Accessed 13 Oct 2015
EuroBioBank is a unique network of biobanks that stores and distributes quality DNA, cell and tissue samples for scientists conducting research on rare diseases, including neuromuscular disorders, http://www.eurobiobank.org/. Accessed 13 Oct 2015
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Conflict of interest
All authors of this contribution are part of the BBMRI-ERIC Headquarters in Graz, Austria and declare that there is no conflict of interest.
Rights and permissions
About this article
Cite this article
Mayrhofer, M., Holub, P., Wutte, A. et al. BBMRI-ERIC: the novel gateway to biobanks. Bundesgesundheitsbl. 59, 379–384 (2016). https://doi.org/10.1007/s00103-015-2301-8
Published:
Issue Date:
DOI: https://doi.org/10.1007/s00103-015-2301-8