Skip to main content

Advertisement

Log in

Health Education by Peers with Spinal Cord Injury: a Scoping Review

  • REVIEW ARTICLE
  • Published:
Journal of Developmental and Physical Disabilities Aims and scope Submit manuscript

Abstract

People with spinal cord injury (SCI) have greater health challenges than the general population. Health implications can arise from direct spinal nerve damage, secondary conditions, and the increased likelihood of a sedentary lifestyle. Health education is an important aspect of SCI rehabilitation. Peer education is used in both general health education campaigns and those aimed at people with defined illnesses and disabilities. Peers have a unique understanding of the target population, and are a valued contributor to SCI rehabilitation. This scoping review explored the existing evidence about the various types and content of health education programs involving peers, aimed at adults with SCI. The eight studies identified are described using three themes; timing and focus; role of peer educators; and outcomes. Half of these studies included peer education as one component of a broader program, but despite differing approaches all reported positive participant outcomes. Peer education appears to be a promising approach to assist people with SCI to learn about and manage their health, and positively influence their self-efficacy. Further research that isolates the role of the peer educators in programs would be beneficial to determine the unique benefits of this form of health education.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1

Similar content being viewed by others

References

  • Arksey, H., & O'Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.

    Article  Google Scholar 

  • Balcazar, F. E., Kelly, E. H., Keys, C. B., & Balfanz-Vertiz, K. (2011). Using peer mentoring to support the rehabilitation of individuals with violently acquired spinal cord injuries. Journal of Applied Rehabilitation Counseling, 42(4), 3.

    Google Scholar 

  • Barclay, L., McDonald, R., Lentin, P., & Bourke-Taylor, H. (2016). Facilitators and barriers to social and community participation following spinal cord injury. Australian Occupational Therapy Journal, 63(1), 19–28. https://doi.org/10.1111/1440-1630.12241.

    Article  PubMed  Google Scholar 

  • Best, K. L., Miller, W. C., Huston, G., Routhier, F., & Eng, J. J. (2016). Pilot study of a peer-led wheelchair training program to improve self-efficacy using a manual wheelchair: A randomized controlled trial. Archives of Physical Medicine and Rehabilitation, 97(1), 37–44.

    Article  PubMed  Google Scholar 

  • Block, P., Skeels, S. E., Keys, C. B., & Rimmer, J. H. (2005). Shake-it-up: Health promotion and capacity building for people with spinal cord injuries and related neurological disabilities. Disability & Rehabilitation, 27(4), 185–190.

    Article  Google Scholar 

  • Bühler, A., Thrul, J., Strüber, E., & Orth, B. (2015). Cluster-randomized trial of a German leisure-based alcohol peer education measure. Health Promotion International. https://doi.org/10.1093/heapro/dav007.

  • Burkell, J. A., Wolfe, D. L., Potter, P. J., & Jutai, J. W. (2006). Information needs and information sources of individuals living with spinal cord injury. Health Information & Libraries Journal, 23(4), 257–265.

    Article  Google Scholar 

  • Burns, A. S., & O'Connell, C. (2012). The challenge of spinal cord injury care in the developing world. Journal of Spinal Cord Medicine, 35(1), 3–8. https://doi.org/10.1179/2045772311Y.0000000043.

    Article  PubMed  PubMed Central  Google Scholar 

  • Callaway, L., Barclay, L., McDonald, R., Farnworth, L., & Casey, J. (2015). Secondary health conditions experienced by people with spinal cord injury within community living: Implications for a National Disability Insurance Scheme. Australian Occupational Therapy Journal, 62(4), 246–254.

    Article  PubMed  Google Scholar 

  • Chamberlain, J. D., Meier, S., Mader, L., Von Groote, P. M., & Brinkhof, M. W. (2015). Mortality and longevity after a spinal cord injury: Systematic review and meta-analysis. Neuroepidemiology, 44(3), 182–198.

    Article  PubMed  Google Scholar 

  • Chubon, R. A. (1995). Manual for the life satisfaction survey (1995 revision). Columbia: University of South Carolina, School of Medicine, Department of Neuropsychiatry and Behaviour Science, Rehabilitation Counseling Program.

    Google Scholar 

  • Consortium for Spinal Cord Medicine. (2008). Early acute management in adults with spinal cord injury: A clinical practice guideline for health-care professionals. The Journal of Spinal Cord Medicine, 31(4), 403–479. https://doi.org/10.1043/1079-0268-31.4.408.

    Article  Google Scholar 

  • Faulkner, G., Gorczynski, P., Arbour, K., Letts, L., Wolfe, D., & Ginis, K. A. M. (2010). Messengers and methods of disseminating health information among individuals with spinal cord injury: A scoping review. In T. C. Berkovsky (Ed.), Handbook of spinal cord injuries (pp. 349–374). New York: Nova Science Pubishers.

    Google Scholar 

  • Frawley, P., & Bigby, C. (2014). “I'm in their shoes”: Experiences of peer educators in sexuality and relationship education. Journal of Intellectual and Developmental Disability, 39(2), 167–176. https://doi.org/10.3109/13668250.2014.890701.

    Article  Google Scholar 

  • Gargaro, J., Warren, C., & Boschen, K. (2013). Perceived barriers and facilitators to community reintegration after spinal cord injury: A critical review of the literature. Critical Reviews in Physical and Rehabilitation Medicine, 25(1–2), 101–141. https://doi.org/10.1615/CritRevPhysRehabilMed.2013007021.

    Article  Google Scholar 

  • Haas, B. M., Price, L., & Freeman, J. A. (2013). Qualitative evaluation of a community peer support service for people with spinal cord injury. Spinal Cord, 51(4), 295–299. https://doi.org/10.1038/sc.2012.143.

    Article  PubMed  Google Scholar 

  • Herth, K. (1991). Development and refinement of an instrument to measure hope. Scholarly Inquiry for Nursing Practice, 5(1), 39–51.

    PubMed  Google Scholar 

  • Howitt Browning, J. (2010). Peer training as a cost-effective tool for SCI management in low-income countries. New Delhi: Paper presented at the International Spinal Cord Society Conference.

    Google Scholar 

  • Jalovcic, D., & Pentland, W. (2009). Accessing peers' and health care experts' wisdom: A telephone peer support program for women with SCI living in rural and remote areas. Topics in Spinal Cord Injury Rehabilitation, 15(1), 59–74.

    Article  Google Scholar 

  • Jensen, M., Molton, I., Groah, S., Campbell, M., Charlifue, S., Chiodo, A., et al. (2012). Secondary health conditions in individuals aging with SCI: Terminology, concepts and analytic approaches. Spinal Cord, 50(5), 373–378.

    Article  PubMed  Google Scholar 

  • Jerusalem, M., Schwarzer, R., & Schwarzer, R. (1992). Self-efficacy as a resource factor in stress appraisal processes. In R. Schwarzer (Ed.), Self-efficacy: Thought control of action (pp. 195–213). New York: Routledge.

    Google Scholar 

  • Kachingwe, A., & Cornick, C. (2011). Most significant change/focus group discussions. Peer group training of trainers participants. Monitoring tool : AWUNA-MAF01. Retrieved from https://www.motivation.org.uk. Accessed 26 March 2015.

  • Klein, L. A., Ritchie, J. E., Nathan, S., & Wutzke, S. (2014). An explanatory model of peer education within a complex medicines information exchange setting. Social Science & Medicine, 111, 101–109. https://doi.org/10.1016/j.socscimed.2014.04.009.

    Article  Google Scholar 

  • Latimer-Cheung, A. E., Arbour-Nicitopoulos, K. P., Brawley, L. R., Gray, C., Wilson, A. J., Prapavessis, H., et al. (2013). Developing physical activity interventions for adults with spinal cord injury. Part 2: Motivational counseling and peer-mediated interventions for people intending to be active. Rehabilitation Psychology, 58(3), 307–315. https://doi.org/10.1037/a0032816.

    Article  PubMed  Google Scholar 

  • Ljungberg, I., Kroll, T., Libin, A., & Gordon, S. (2011). Using peer mentoring for people with spinal cord injury to enhance self-efficacy beliefs and prevent medical complications. Journal of Clinical Nursing, 20(3/4), 351–358. https://doi.org/10.1111/j.1365-2702.2010.03432.x.

    Article  PubMed  Google Scholar 

  • Lucke, K. T., Lucke, J. F., & Martinez, H. (2004). Evaluation of a professional and peer telephone intervention with spinal cord injured individuals following rehabilitation in South Texas. Journal of Multicultural Nursing & Health (JMCNH), 10(2), 68–74.

    Google Scholar 

  • Martin Ginis, K. A., & Latimer, A. E. (2007). The leisure time physical activity questionnaire for people with spinal cord injury. Retrieved from http://sciactioncanada.ca/.

  • McHorney, C. A., & Ware Jr., J. E. (1995). Construction and validation of an alternate form general mental health scale for the medical outcomes study short-form 36-item health survey. Medical Care, 33(1), 15–28.

    Article  PubMed  Google Scholar 

  • McKinstry, C., Brown, T., & Gustafsson, L. (2014). Scoping reviews in occupational therapy: The what, why, and how to. Australian Occupational Therapy Journal, 61(2), 58–66.

    Article  PubMed  Google Scholar 

  • Miller, J. F., & Powers, M. J. (1988). Development of an instrument to measure hope. Nursing Research, 37(1), 6–10.

    Article  PubMed  Google Scholar 

  • Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & Group, P. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLoS Medicine, 6(7), e1000097.

    Article  PubMed  PubMed Central  Google Scholar 

  • Munce, S. E. P., Webster, F., Fehlings, M. G., Straus, S. E., Jang, E., & Jaglal, S. B. (2014). Perceived facilitators and barriers to self-management in individuals with traumatic spinal cord injury: A qualitative descriptive study. BMC Neurology, 14(1). https://doi.org/10.1186/1471-2377-14-48.

  • Njoki, E., Frantz, J., & Mpofu, R. (2007). Health-promotion needs of youth with a spinal cord injury in South Africa. Disability and Rehabilitation, 29(6), 465–472.

    Article  PubMed  Google Scholar 

  • Peel, N. M., & Warburton, J. (2009). Using senior volunteers as peer educators: What is the evidence of effectiveness in falls prevention? Australasian Journal on Ageing, 28(1), 7–11. https://doi.org/10.1111/j.1741-6612.2008.00320.x.

    Article  PubMed  Google Scholar 

  • Planken, M. J., & Boer, H. (2010). Effects of a 10-minutes peer education protocol to reduce binge drinking among adolescents during holidays. Journal of Alcohol and Drug Education, 54(2), 35.

    Google Scholar 

  • Poureslami, I., Nimmon, L., Rootman, I., & Fitzgerald, M. J. (2016). Health literacy and chronic disease management: Drawing from expert knowledge to set an agenda. Health Promotion International., 32(4), 643–754. https://doi.org/10.1093/heapro/daw003.

    Google Scholar 

  • Price, P., Stephenson, S., Krantz, L., & Ward, K. (2011). Beyond my front door: The occupational and social participation of adults with spinal cord injury. OTJR Occupation, Participation and Health, 31(2), 81–88. https://doi.org/10.3928/15394492-20100521-01.

    Article  Google Scholar 

  • Shen, H., Edwards, H., Courtney, M., McDowell, J., & Wu, M. (2012). Peer-led diabetes self-management programme for community-dwelling older people in China: Study protocol for a quasi-experimental design. Journal of Advanced Nursing, 68(12), 2766–2777. https://doi.org/10.1111/j.1365-2648.2012.06059.x.

    Article  PubMed  Google Scholar 

  • Statewide Rehabilitation Clinical Network. (2016). Model of rehabilitation for spinal cord injury in South Australia. Retrieved from http://www.cpsu.asn.au/upload/2016-Info-Updates/UPDATED-SA-Spinal-Cord-Injury-Service-SubAcute-Model-of-Care-30-Nov-2016.pdf. Accessed 5 June 2015.

  • Sweet, S. N., Noreau, L., Leblond, J., & Martin Ginis, K. A. (2016). Peer support need fulfillment among adults with spinal cord injury: Relationships with participation, life satisfaction and individual characteristics. Disability and Rehabilitation, 38(6), 558–565. https://doi.org/10.3109/09638288.2015.1049376.

    Article  PubMed  Google Scholar 

  • Tolli, M. (2012). Effectiveness of peer education interventions for HIV prevention, adolescent pregnancy prevention and sexual health promotion for young people: A systematic review of European studies. Health Education Research, 27(5), 904–913.

    Article  PubMed  Google Scholar 

  • van Leeuwen, C. M. C., Post, M. W. M., van Asbeck, F. W. A., Bongers-Janssen, H. M. H., van der Woude, L. H. V., de Groot, S., & Lindeman, E. (2012). Life satisfaction in people with spinal cord injury during the first five years after discharge from inpatient rehabilitation. Disability and Rehabilitation, 34(1), 76–83. https://doi.org/10.3109/09638288.2011.587089.

    Article  PubMed  Google Scholar 

  • Veith, E. M., Sherman, J. E., & Pellino, T. A. (2006). Qualitative analysis of the peer-mentoring relationship among individuals with spinal cord injury. Rehabilitation Psychology, 51(4), 289–298.

    Article  Google Scholar 

  • Watson, D., Clark, L. A., & Tellegen, A. (1988). Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal of Personality and Social Psychology, 54(6), 1063.

    Article  PubMed  Google Scholar 

  • Webel, A. R., Okonsky, J., Trompeta, J., & Holzemer, W. L. (2010). A systematic review of the effectiveness of peer-based interventions on health-related behaviors in adults. American Journal of Public Health, 100(2), 247–253.

    Article  PubMed  PubMed Central  Google Scholar 

  • Whalley Hammell, K. (2007). Experience of rehabilitation following spinal cord injury: A meta-synthesis of qualitative findings. Spinal Cord, 45(4), 260–274. https://doi.org/10.1038/sj.sc.3102034.

    Article  PubMed  Google Scholar 

  • Wiggins, N. (2012). Popular education for health promotion and community empowerment: A review of the literature. Health Promotion International, 27(3), 356–371. https://doi.org/10.1093/heapro/dar046.

    Article  PubMed  Google Scholar 

  • Williams, J. M., Dwyer, M., Verna, M., Zimmermann, M. H., Gandhi, K. K., Galazyn, M., et al. (2010). Evaluation of the CHOICES program of peer-to-peer tobacco education and advocacy. Community Mental Health Journal, 47(3), 243–251. https://doi.org/10.1007/s10597-010-9310-8.

    Article  PubMed  Google Scholar 

Download references

Acknowledgements

The authors wish to thank Motivation Australia for their insights into peer education. This work was supported by La Trobe Asia; and La Trobe University Institute for Human Security and Social Change.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Lisa Chaffey.

Ethics declarations

Ethical Approval

This article does not contain any studies with human participants or animals performed by any of the authors.

Conflict of Interest

Lisa Chaffey declares that she has no conflict of interest. Christine Bigby declares that she has no conflict of interest.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Chaffey, L., Bigby, C. Health Education by Peers with Spinal Cord Injury: a Scoping Review. J Dev Phys Disabil 30, 141–154 (2018). https://doi.org/10.1007/s10882-017-9569-6

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10882-017-9569-6

Keywords

Navigation