Abstract
Because it focuses primarily on the sick body (disease), medicine ignores many of the concerns and needs of sick people. By listening to the stories of patients in the clinic, on the Internet, and in published book form, health care providers could gain a better understanding of the impact of disease on the person (illness), what it means to patients over and above their physical symptoms and what they might require over and above surgery or chemotherapy. Only by familiarizing themselves with the entire emotional landscape of illness, which includes fear, anger, shame, guilt, and above all loneliness, can the healthy—medicine as well as society in general—hope to heal in a comprehensive manner.
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Notes
The names of the patients, who have generously confided their stories to me, and now to you, have been changed.
An excellent account of embodied consciousness can be found in Johnson, The Body in The Mind (Chicago, University of Chicago, 1987).
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Biro, D. An Anatomy of Illness. J Med Humanit 33, 41–54 (2012). https://doi.org/10.1007/s10912-011-9161-5
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DOI: https://doi.org/10.1007/s10912-011-9161-5