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Originalia

Pflegende Familienangehörige von Demenzpatienten

Ihre Belastungen und ihre BedürfnisseCaring for a Family Member with Dementia: The Caregiver's Burdens and Needs of Support

Published Online:September 01, 2006https://doi.org/10.1024//1011-6877.12.2.85

Abstract

Zusammenfassung: Zweiundsiebzig Angehörige (AG) von Demenzpatienten wurden über ihre Belastung und ihre Bedürfnisse befragt. Angst, Depression sowie subjektive Belastung traten häufiger in späteren Demenzstadien auf und waren ausgeprägter, je beeinträchtigter das Alltagsverhalten (Nurses' Observation Scale for Geriatric Patients «NOGER», Spiegel et al., 1991) des Patienten und je schlechter die eigene subjektive Gesundheit beurteilt wurde. Im multivariaten Regressionsmodell konnten 66 % der subjektiven Belastung durch die Angst der AG, die Hilfe durch die Familie/Freunde sowie durch die NOSGER-Dimensionen «Selbstpflege» und «störendes Verhalten» erklärt werden (F 4,71) = 32.2, p < .0001). Die Bedürfnisse betrafen v. a. den Wunsch nach Information über und den Umgang mit der Krankheit sowie Betreuungsmöglichkeiten. Entlastende Unterstützungsangebote würden den AG ermöglichen, ihre Patienten länger zuhause zu betreuen.


Summary: Seventy two family members caring for their demented patients were interviewed on their burden and needs. Carer's anxiety and depression as well as subjective burden were more frequent in the later stages of dementia and the more intensive the more impaired the patients' everyday behaviour (Nurses' Observation Scale for Geriatric Patients «NOSGER», Spiegel et al., 1991) and the less satisfying the carers' subjective health status was. The regressions analysis revealed that 66 % of subjective burden can be significantly accounted for by carers' anxiety, family support and the NOSGER-dimensions «selfcare» and «disturbing behaviour» (F 4,71) = 32.2, p < .0001). Carers asked not only for information on the illness and on how to deal with it but particularly on adequate care for their patients. Appropriate support would help the carers and thus, home care may be prolonged and patients' institutionalization delayed.

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