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Erschienen in: Journal of Bioethical Inquiry 1/2022

01.04.2022 | Symposium: Legacy of Miles Little

Response—The Road Less Travelled: Why did Miles Little Turn to Qualitative Research and Where Did This Lead?

verfasst von: Christopher F.C. Jordens

Erschienen in: Journal of Bioethical Inquiry | Ausgabe 1/2022

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Abstract

Miles Little is an Australian surgeon, poet, and philosopher whose published work spans diverse topics in surgery, medicine, philosophy, and bioethics. In 1974 he co-authored a survey that included an analysis of interviews conducted with amputees. This was his first foray into qualitative research. Twenty years later he established a research centre at the University of Sydney that initiated a programme of qualitative research in cancer medicine. For twenty years after that, the centre acted as a hub for research that applied qualitative methods from the social sciences to study the experiences of people who endure illness and onerous treatments and to reveal their evaluations of what medicine does to and for them. This essay explains why Little turned to qualitative research instead of pursuing two other research paradigms that were better established in the 1990s, namely, evidence-based medicine and quality-of-life research. It also notes a development in qualitative research methods that Little’s legacy helps to explain, one which can augment the symbolic power of socially marginalized individuals and groups. With reference to a current controversy in surgery, I argue that Little’s survey of amputees models a laudable response to criticism, and in this respect, it is still relevant today.
Fußnoten
1
Notably, it is the experience of the interviewer/social worker that forms the basis of this reflexivity.
 
2
I was closely involved in this programme of research from its inception, as indicated by my co-authorship of several publications cited in this essay.
 
3
For example, Penelope Hawe was introducing qualitative research methods in health promotion, and Simon Chapman was applying semiotics to research into cigarette advertising in public health.
 
4
This is typically precipitated by an extreme experience. If someone has an extremely painful experience, for example, the responses they give before and after the experience on a conventional pain scale of 1 (no pain) to 10 (the worst pain imaginable) are likely to be incommensurable.
 
Literatur
Zurück zum Zitat Allison, P.J., D. Locker, and J.S. Feine. 1997. Quality of life: A dynamic construct. Social Science and Medicine 45(2): 221–230.CrossRefPubMed Allison, P.J., D. Locker, and J.S. Feine. 1997. Quality of life: A dynamic construct. Social Science and Medicine 45(2): 221–230.CrossRefPubMed
Zurück zum Zitat Anderson, L., and C. Jordens. 2004. Where do we stand? Journal of Bioethical Inquiry 1(1): 3. Anderson, L., and C. Jordens. 2004. Where do we stand? Journal of Bioethical Inquiry 1(1): 3.
Zurück zum Zitat Campbell, F.K. 2009. Contours of ableism: The production of disability and abledness. Basingstoke: Palgrave Macmillan.CrossRef Campbell, F.K. 2009. Contours of ableism: The production of disability and abledness. Basingstoke: Palgrave Macmillan.CrossRef
Zurück zum Zitat Chase, C. 1999. Rethinking treatment for ambiguous genitalia. Pediatric Nursing 25(4): 451–454.PubMed Chase, C. 1999. Rethinking treatment for ambiguous genitalia. Pediatric Nursing 25(4): 451–454.PubMed
Zurück zum Zitat Clarke, A.E., J.K. Shim, L. Mamo, Fosket J.R., and J.R. Fishman. 2003. Biomedicalization: Technoscientific transformations of health, illness, and U.S. biomedicine. American Sociological Review 68(2): 161–194.CrossRef Clarke, A.E., J.K. Shim, L. Mamo, Fosket J.R., and J.R. Fishman. 2003. Biomedicalization: Technoscientific transformations of health, illness, and U.S. biomedicine. American Sociological Review 68(2): 161–194.CrossRef
Zurück zum Zitat Cochrane, A.L. 1972. Effectiveness and efficiency: Random reflections on health services. London: The Nuffield Provincial Hospitals Trust. Cochrane, A.L. 1972. Effectiveness and efficiency: Random reflections on health services. London: The Nuffield Provincial Hospitals Trust.
Zurück zum Zitat Fox, N., and K. Ward. 2006. Health identities: From expert patient to resisting consumer. Health: An Interdisciplinary Journal 10(4): 461–479.CrossRef Fox, N., and K. Ward. 2006. Health identities: From expert patient to resisting consumer. Health: An Interdisciplinary Journal 10(4): 461–479.CrossRef
Zurück zum Zitat Frank, A. 1995. The wounded storyteller: Body, illness and ethics. Chicago: The University of Chicago Press.CrossRef Frank, A. 1995. The wounded storyteller: Body, illness and ethics. Chicago: The University of Chicago Press.CrossRef
Zurück zum Zitat Haraway, D.J. 1997. Modest_Witness@Second_Millennium.Femaleman©_Meets_Oncomouse™ : Feminism and technoscience. New York & London: Routledge. Haraway, D.J. 1997. Modest_Witness@Second_Millennium.Femaleman©_Meets_Oncomouse™ : Feminism and technoscience. New York & London: Routledge.
Zurück zum Zitat Harpur, P. 2012. Embracing the new disability rights paradigm: The importance of the Convention on the Rights of Persons with Disabilities. Disability & Society 27(1): 1–14.CrossRef Harpur, P. 2012. Embracing the new disability rights paradigm: The importance of the Convention on the Rights of Persons with Disabilities. Disability & Society 27(1): 1–14.CrossRef
Zurück zum Zitat Ives, J.C.S., M. Dunn, and A. Cribb, eds. 2017. Empirical bioethics: Theoretical and practical perspectives. Cambridge: Cambridge University Press. Ives, J.C.S., M. Dunn, and A. Cribb, eds. 2017. Empirical bioethics: Theoretical and practical perspectives. Cambridge: Cambridge University Press.
Zurück zum Zitat Jordens, C. 2019. After dominance: The elastic politics of medicine. In Medical professionals: Conflicts and quandaries in medical practice, edited by K. Montgomery and W. Lipworth, 107–124. New York and Oxford: Routledge. Jordens, C. 2019. After dominance: The elastic politics of medicine. In Medical professionals: Conflicts and quandaries in medical practice, edited by K. Montgomery and W. Lipworth, 107–124. New York and Oxford: Routledge.
Zurück zum Zitat ———. 2002. Reading spoken stories for values: A discursive study of cancer survivors and their professional carers. PhD dissertation, The University of Sydney. ———. 2002. Reading spoken stories for values: A discursive study of cancer survivors and their professional carers. PhD dissertation, The University of Sydney.
Zurück zum Zitat Karkazis, K. 2008. Fixing sex: Intersex, medical authority and lived experience. Durham and London: Duke University Press.CrossRef Karkazis, K. 2008. Fixing sex: Intersex, medical authority and lived experience. Durham and London: Duke University Press.CrossRef
Zurück zum Zitat Lewis, P. 2012. Growing up with cancer: A qualitative study of the impact of cancer on the experience of growing up. PhD dissertation, The Univeristy of Sydney. Lewis, P. 2012. Growing up with cancer: A qualitative study of the impact of cancer on the experience of growing up. PhD dissertation, The Univeristy of Sydney.
Zurück zum Zitat Little, J.M. 2003. “Better than numbers … ” A gentle critique of evidence-based medicine. ANZ Journal of Surgery 73(4): 177–182.CrossRefPubMed Little, J.M. 2003. “Better than numbers … ” A gentle critique of evidence-based medicine. ANZ Journal of Surgery 73(4): 177–182.CrossRefPubMed
Zurück zum Zitat ———. 2021. Panegyric. Celebration of service of prof miles little and a/Prof Chris Jordens. The University of Sydney, May 13. ———. 2021. Panegyric. Celebration of service of prof miles little and a/Prof Chris Jordens. The University of Sydney, May 13.
Zurück zum Zitat Little, J.M., D. Petritsi-Jones, and C. Kerr. 1974. Vascular amputees: A study in disappointment. Lancet 1(7861): 793–795.CrossRefPubMed Little, J.M., D. Petritsi-Jones, and C. Kerr. 1974. Vascular amputees: A study in disappointment. Lancet 1(7861): 793–795.CrossRefPubMed
Zurück zum Zitat Little, M., C.F. Jordens, K. Paul, K. Montgomery, and B. Philipson. 1998. Liminality: A major category of the experience of cancer illness. Social Science & Medicine 47(10): 1485–1494.CrossRef Little, M., C.F. Jordens, K. Paul, K. Montgomery, and B. Philipson. 1998. Liminality: A major category of the experience of cancer illness. Social Science & Medicine 47(10): 1485–1494.CrossRef
Zurück zum Zitat Little, M., C. F. Jordens, K. Paul, et al. 2002a. Discourse in different voices: Reconciling N = 1 and N = many. Social Science & Medicine 55(7): 1079–1087.CrossRef Little, M., C. F. Jordens, K. Paul, et al. 2002a. Discourse in different voices: Reconciling N = 1 and N = many. Social Science & Medicine 55(7): 1079–1087.CrossRef
Zurück zum Zitat Little, M., C. Jordens, K. Paul, and E.-J. Sayers. 2001. Surviving survival: Life after cancer. Sydney: CHOICE Books. Little, M., C. Jordens, K. Paul, and E.-J. Sayers. 2001. Surviving survival: Life after cancer. Sydney: CHOICE Books.
Zurück zum Zitat Little, M., C.F.C. Jordens, and E.J. Sayers. 2003. Discourse communities and the discourse of experience. Health: An Interdisciplinary Journal 7(1): 73–86.CrossRef Little, M., C.F.C. Jordens, and E.J. Sayers. 2003. Discourse communities and the discourse of experience. Health: An Interdisciplinary Journal 7(1): 73–86.CrossRef
Zurück zum Zitat Little, M., K. Paul, C. F. Jordens, and E. J. Sayers. 2002b. Survivorship and discourses of identity. Psycho-Oncology 11(2): 170–178.CrossRefPubMed Little, M., K. Paul, C. F. Jordens, and E. J. Sayers. 2002b. Survivorship and discourses of identity. Psycho-Oncology 11(2): 170–178.CrossRefPubMed
Zurück zum Zitat Lyotard, J.-F. c. 1984. The postmodern condition: A report on knowledge. Manchester: Manchester University Press. Lyotard, J.-F. c. 1984. The postmodern condition: A report on knowledge. Manchester: Manchester University Press.
Zurück zum Zitat Sims, M. 2020. Bullshit towers: Neoliberalism and managerialism in universities in Australia. Oxford: Peter Lang.CrossRef Sims, M. 2020. Bullshit towers: Neoliberalism and managerialism in universities in Australia. Oxford: Peter Lang.CrossRef
Zurück zum Zitat Smith, J. 2004. From optimism to hubris. BMJ 329(28 October). Smith, J. 2004. From optimism to hubris. BMJ 329(28 October).
Zurück zum Zitat Stephens, M. 2012. Living on: A qualitative study of the experience of living with multiple myeloma. PhD dissertation, The University of Sydney. Stephens, M. 2012. Living on: A qualitative study of the experience of living with multiple myeloma. PhD dissertation, The University of Sydney.
Zurück zum Zitat Sullivan, M.D. 1993. Placebo controls and epistemic control in orthodox medicine. Journal of Medicine and Philosophy 18(2): 213–231.CrossRef Sullivan, M.D. 1993. Placebo controls and epistemic control in orthodox medicine. Journal of Medicine and Philosophy 18(2): 213–231.CrossRef
Zurück zum Zitat Tversky, A., and D. Kahnemann. 1974. Judgment under uncertainty: Heuristics and biases. Science 185(4157): 1124–1131.CrossRefPubMed Tversky, A., and D. Kahnemann. 1974. Judgment under uncertainty: Heuristics and biases. Science 185(4157): 1124–1131.CrossRefPubMed
Zurück zum Zitat United Nations. 2006. United Nations Convention on the Rights of Persons with Disabilities. New York: United Nations. United Nations. 2006. United Nations Convention on the Rights of Persons with Disabilities. New York: United Nations.
Metadaten
Titel
Response—The Road Less Travelled: Why did Miles Little Turn to Qualitative Research and Where Did This Lead?
verfasst von
Christopher F.C. Jordens
Publikationsdatum
01.04.2022
Verlag
Springer Nature Singapore
Erschienen in
Journal of Bioethical Inquiry / Ausgabe 1/2022
Print ISSN: 1176-7529
Elektronische ISSN: 1872-4353
DOI
https://doi.org/10.1007/s11673-021-10142-y

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