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Erschienen in: Zeitschrift für Pneumologie 3/2022

04.04.2022 | Husten | CME

Von respiratorischer Technologie abhängige Kinder

verfasst von: Dr. Andreas van Egmond-Fröhlich, Regina Rath-Wacenovsky, Florian Stehling

Erschienen in: Zeitschrift für Pneumologie | Ausgabe 3/2022

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Zusammenfassung

Die Anwendung technischer Hilfen in der Therapie der respiratorischen und Husteninsuffizienz veränderte sich im Laufe der letzten Jahre. Die technischen Geräte zur Sauerstofftherapie, High-Flow-Therapie, nichtinvasiven und invasiven Beatmung und mechanischen Hustenunterstützung wurden handlicher, benutzerfreundlicher und vielseitiger und damit auch für die Langzeitnutzung im häuslichen Umfeld geeignet. Diese verbesserten Methoden führten zum vermehrten Einsatz und zur Erweiterung des Indikationsspektrums. Gleichzeitig wurde die Nutzung proaktiver, beugt also Komplikationen vor, und hält zunehmend zur Steigerung der Lebensqualität auch in der palliativen Versorgung Einzug. Die Verbesserung des Managements von diesen Technologien abhängiger Kinder verstärkt die Notwendigkeit einer Transition in die Erwachsenmedizin. Dieser Artikel gibt einen Überblick über die Anwendungsbereiche technischer Hilfsmittel in der pädiatrischen Pneumologie und die Anforderungen an die Betreuung.
Literatur
1.
Zurück zum Zitat Gulla KM, Sahoo T, Sachdev A (2020) Technology-dependent children. Int J Pediatr Adolesc Med 7(2):64–69PubMedCrossRef Gulla KM, Sahoo T, Sachdev A (2020) Technology-dependent children. Int J Pediatr Adolesc Med 7(2):64–69PubMedCrossRef
2.
Zurück zum Zitat Fauroux B et al (2001) Chronic stridor caused by laryngomalacia in children: work of breathing and effects of noninvasive ventilatory assistance. Am J Respir Crit Care Med 164(10):1874–1878PubMedCrossRef Fauroux B et al (2001) Chronic stridor caused by laryngomalacia in children: work of breathing and effects of noninvasive ventilatory assistance. Am J Respir Crit Care Med 164(10):1874–1878PubMedCrossRef
3.
Zurück zum Zitat Amaddeo A et al (2021) Continuous positive airway pressure improves work of breathing in pediatric chronic heart failure. Sleep Med 83:99–105PubMedCrossRef Amaddeo A et al (2021) Continuous positive airway pressure improves work of breathing in pediatric chronic heart failure. Sleep Med 83:99–105PubMedCrossRef
4.
Zurück zum Zitat Simonds AK (2016) Home mechanical ventilation: an overview. Ann Am Thorac Soc 13(11):2035–2044PubMedCrossRef Simonds AK (2016) Home mechanical ventilation: an overview. Ann Am Thorac Soc 13(11):2035–2044PubMedCrossRef
5.
Zurück zum Zitat Racca F et al (2011) Long-term home ventilation of children in Italy: a national survey. Pediatr Pulmonol 46(6):566–572PubMedCrossRef Racca F et al (2011) Long-term home ventilation of children in Italy: a national survey. Pediatr Pulmonol 46(6):566–572PubMedCrossRef
6.
Zurück zum Zitat Amin R et al (2014) Pediatric long-term home mechanical ventilation: twenty years of follow-up from one Canadian center. Pediatr Pulmonol 49(8):816–824PubMedCrossRef Amin R et al (2014) Pediatric long-term home mechanical ventilation: twenty years of follow-up from one Canadian center. Pediatr Pulmonol 49(8):816–824PubMedCrossRef
8.
Zurück zum Zitat Porcaro F et al (2021) How the management of children with congenital central hypoventilation syndrome has changed over time: two decades of experience from an Italian center. Front Pediatr 9:648927PubMedPubMedCentralCrossRef Porcaro F et al (2021) How the management of children with congenital central hypoventilation syndrome has changed over time: two decades of experience from an Italian center. Front Pediatr 9:648927PubMedPubMedCentralCrossRef
9.
Zurück zum Zitat Noyes J (2006) Health and quality of life of ventilator-dependent children. J Adv Nurs 56(4):392–403PubMedCrossRef Noyes J (2006) Health and quality of life of ventilator-dependent children. J Adv Nurs 56(4):392–403PubMedCrossRef
10.
Zurück zum Zitat Lloyd-Owen SJ et al (2005) Patterns of home mechanical ventilation use in Europe: results from the Eurovent survey. Eur Respir J 25(6):1025–1031PubMedCrossRef Lloyd-Owen SJ et al (2005) Patterns of home mechanical ventilation use in Europe: results from the Eurovent survey. Eur Respir J 25(6):1025–1031PubMedCrossRef
11.
Zurück zum Zitat Moran F, Bradley JM, Piper AJ (2017) Non-invasive ventilation for cystic fibrosis. Cochrane Database Syst Rev 2(2):Cd2769PubMed Moran F, Bradley JM, Piper AJ (2017) Non-invasive ventilation for cystic fibrosis. Cochrane Database Syst Rev 2(2):Cd2769PubMed
12.
Zurück zum Zitat Proesmans M (2016) Respiratory illness in children with disability: a serious problem? Breathe (Sheff) 12(4):e97–e103CrossRef Proesmans M (2016) Respiratory illness in children with disability: a serious problem? Breathe (Sheff) 12(4):e97–e103CrossRef
13.
Zurück zum Zitat Hayes D et al (2019) Home oxygen therapy for children. An official American thoracic society clinical practice guideline. Am J Respir Crit Care Med 199(3):e5–e23PubMedPubMedCentralCrossRef Hayes D et al (2019) Home oxygen therapy for children. An official American thoracic society clinical practice guideline. Am J Respir Crit Care Med 199(3):e5–e23PubMedPubMedCentralCrossRef
15.
Zurück zum Zitat Stehling F et al (2015) Mechanical insufflation/exsufflation improves vital capacity in neuromuscular disorders. Chron Respir Dis 12(1):31–35PubMedCrossRef Stehling F et al (2015) Mechanical insufflation/exsufflation improves vital capacity in neuromuscular disorders. Chron Respir Dis 12(1):31–35PubMedCrossRef
16.
Zurück zum Zitat Katz SL et al (2016) Long-term effects of lung volume recruitment on maximal inspiratory capacity and vital capacity in Duchenne muscular dystrophy. Ann Am Thorac Soc 13(2):217–222PubMed Katz SL et al (2016) Long-term effects of lung volume recruitment on maximal inspiratory capacity and vital capacity in Duchenne muscular dystrophy. Ann Am Thorac Soc 13(2):217–222PubMed
17.
19.
Zurück zum Zitat Bianchi C, Baiardi P (2008) Cough peak flows: standard values for children and adolescents. Am J Phys Med Rehabil 87(6):461–467PubMedCrossRef Bianchi C, Baiardi P (2008) Cough peak flows: standard values for children and adolescents. Am J Phys Med Rehabil 87(6):461–467PubMedCrossRef
20.
Zurück zum Zitat van Egmond-Fröhlich A et al (2019) Respiratorische Behandlung von Kindern und Jugendlichen mit neuromuskulären Erkrankungen. Traumhaft und grenzenlos – aktuelle Kinderschlafmedizin. Kleanthes Verlag, Dresden van Egmond-Fröhlich A et al (2019) Respiratorische Behandlung von Kindern und Jugendlichen mit neuromuskulären Erkrankungen. Traumhaft und grenzenlos – aktuelle Kinderschlafmedizin. Kleanthes Verlag, Dresden
21.
Zurück zum Zitat Moran FC et al (2013) Effect of home mechanical in-exsufflation on hospitalisation and life-style in neuromuscular disease: a pilot study. J Paediatr Child Health 49(3):233–237PubMedCrossRef Moran FC et al (2013) Effect of home mechanical in-exsufflation on hospitalisation and life-style in neuromuscular disease: a pilot study. J Paediatr Child Health 49(3):233–237PubMedCrossRef
22.
Zurück zum Zitat Beggs S et al (2014) High-flow nasal cannula therapy for infants with bronchiolitis. Cochrane Database Syst Rev 1:CD9609 Beggs S et al (2014) High-flow nasal cannula therapy for infants with bronchiolitis. Cochrane Database Syst Rev 1:CD9609
24.
Zurück zum Zitat Mayfield S et al (2014) High-flow nasal cannula therapy for respiratory support in children. Cochrane Database Syst Rev 3:CD9850 Mayfield S et al (2014) High-flow nasal cannula therapy for respiratory support in children. Cochrane Database Syst Rev 3:CD9850
25.
Zurück zum Zitat Sand L et al (2022) Observational cohort study of changing trends in non-invasive ventilation in very preterm infants and associations with clinical outcomes. Arch Dis Child Fetal Neonatal Ed 107(2):150–155PubMedCrossRef Sand L et al (2022) Observational cohort study of changing trends in non-invasive ventilation in very preterm infants and associations with clinical outcomes. Arch Dis Child Fetal Neonatal Ed 107(2):150–155PubMedCrossRef
26.
27.
Zurück zum Zitat Amaddeo A et al (2019) High-flow nasal cannula for children not compliant with continuous positive airway pressure. Sleep Med 63:24–28PubMedCrossRef Amaddeo A et al (2019) High-flow nasal cannula for children not compliant with continuous positive airway pressure. Sleep Med 63:24–28PubMedCrossRef
28.
Zurück zum Zitat Steindor M et al (2021) Home noninvasive ventilation in pediatric subjects with neuromuscular diseases: one size fits all. Respir Care 66(3):410–415PubMedCrossRef Steindor M et al (2021) Home noninvasive ventilation in pediatric subjects with neuromuscular diseases: one size fits all. Respir Care 66(3):410–415PubMedCrossRef
29.
Zurück zum Zitat Eagle M et al (2002) Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscul Disord 12(10):926–929PubMedCrossRef Eagle M et al (2002) Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscul Disord 12(10):926–929PubMedCrossRef
30.
Zurück zum Zitat Gomez-Merino E, Bach JR (2002) Duchenne muscular dystrophy: prolongation of life by noninvasive ventilation and mechanically assisted coughing. Am J Phys Med Rehabil 81(6):411–415PubMedCrossRef Gomez-Merino E, Bach JR (2002) Duchenne muscular dystrophy: prolongation of life by noninvasive ventilation and mechanically assisted coughing. Am J Phys Med Rehabil 81(6):411–415PubMedCrossRef
31.
Zurück zum Zitat Annunziata A et al (2021) Daytime alternatives for non-invasive mechanical ventilation in neuromuscular disorders. Acta Myol 40(1):51–60PubMedPubMedCentral Annunziata A et al (2021) Daytime alternatives for non-invasive mechanical ventilation in neuromuscular disorders. Acta Myol 40(1):51–60PubMedPubMedCentral
32.
Zurück zum Zitat Khirani S et al (2014) Evaluation of ventilators for mouthpiece ventilation in neuromuscular disease. Respir Care 59(9):1329–1337PubMedCrossRef Khirani S et al (2014) Evaluation of ventilators for mouthpiece ventilation in neuromuscular disease. Respir Care 59(9):1329–1337PubMedCrossRef
33.
Zurück zum Zitat Chatwin M et al (2015) Long term non-invasive ventilation in children: impact on survival and transition to adult care. PLoS ONE 10(5):e125839PubMedPubMedCentralCrossRef Chatwin M et al (2015) Long term non-invasive ventilation in children: impact on survival and transition to adult care. PLoS ONE 10(5):e125839PubMedPubMedCentralCrossRef
34.
Zurück zum Zitat Bach JR et al (2010) Extubation of patients with neuromuscular weakness: a new management paradigm. Chest 137(5):1033–1039PubMedCrossRef Bach JR et al (2010) Extubation of patients with neuromuscular weakness: a new management paradigm. Chest 137(5):1033–1039PubMedCrossRef
35.
Zurück zum Zitat Garuti G et al (2014) Swallowing disorders in tracheostomised patients: a multidisciplinary/multiprofessional approach in decannulation protocols. Multidiscip Respir Med 9(1):36PubMedPubMedCentralCrossRef Garuti G et al (2014) Swallowing disorders in tracheostomised patients: a multidisciplinary/multiprofessional approach in decannulation protocols. Multidiscip Respir Med 9(1):36PubMedPubMedCentralCrossRef
36.
37.
Zurück zum Zitat Pavone M et al (2020) Characteristics and outcomes in children on long-term mechanical ventilation: the experience of a pediatric tertiary center in Rome. Ital J Pediatr 46(1):12PubMedPubMedCentralCrossRef Pavone M et al (2020) Characteristics and outcomes in children on long-term mechanical ventilation: the experience of a pediatric tertiary center in Rome. Ital J Pediatr 46(1):12PubMedPubMedCentralCrossRef
38.
Zurück zum Zitat Foy CM, Koncicki ML, Edwards JD (2020) Liberation and mortality outcomes in pediatric long-term ventilation: a qualitative systematic review. Pediatr Pulmonol 55(11):2853–2862PubMedPubMedCentralCrossRef Foy CM, Koncicki ML, Edwards JD (2020) Liberation and mortality outcomes in pediatric long-term ventilation: a qualitative systematic review. Pediatr Pulmonol 55(11):2853–2862PubMedPubMedCentralCrossRef
39.
Zurück zum Zitat Upadhyay K, Vallarino DA, Talati AJ (2020) Outcomes of neonates with tracheostomy secondary to bronchopulmonary dysplasia. BMC Pediatr 20(1):414PubMedPubMedCentralCrossRef Upadhyay K, Vallarino DA, Talati AJ (2020) Outcomes of neonates with tracheostomy secondary to bronchopulmonary dysplasia. BMC Pediatr 20(1):414PubMedPubMedCentralCrossRef
40.
Zurück zum Zitat Karkoutli AA, Brumund MR, Evans AK (2020) Bronchopulmonary dysplasia requiring tracheostomy: a review of management and outcomes. Int J Pediatr Otorhinolaryngol 139:110449PubMedCrossRef Karkoutli AA, Brumund MR, Evans AK (2020) Bronchopulmonary dysplasia requiring tracheostomy: a review of management and outcomes. Int J Pediatr Otorhinolaryngol 139:110449PubMedCrossRef
41.
Zurück zum Zitat Sterni LM et al (2016) An official American thoracic society clinical practice guideline: pediatric chronic home invasive ventilation. Am J Respir Crit Care Med 193(8):e16–35PubMedPubMedCentralCrossRef Sterni LM et al (2016) An official American thoracic society clinical practice guideline: pediatric chronic home invasive ventilation. Am J Respir Crit Care Med 193(8):e16–35PubMedPubMedCentralCrossRef
42.
Zurück zum Zitat Lofaso F et al (2014) Long-term mechanical ventilation equipment for neuromuscular patients: meeting the expectations of patients and prescribers. Respir Care 59(1):97–106PubMedCrossRef Lofaso F et al (2014) Long-term mechanical ventilation equipment for neuromuscular patients: meeting the expectations of patients and prescribers. Respir Care 59(1):97–106PubMedCrossRef
43.
Zurück zum Zitat Schenk P et al (2016) Nichtinvasive und invasive außerklinische Beatmung beim chronisch respiratorischen Versagen. Wien Klin Wochenschr 128(1):1–36CrossRef Schenk P et al (2016) Nichtinvasive und invasive außerklinische Beatmung beim chronisch respiratorischen Versagen. Wien Klin Wochenschr 128(1):1–36CrossRef
44.
Zurück zum Zitat Edwards JD et al (2017) Decisions around long-term ventilation for children. Perspectives of directors of pediatric home ventilation programs. Ann Am Thorac Soc 14(10):1539–1547PubMedPubMedCentralCrossRef Edwards JD et al (2017) Decisions around long-term ventilation for children. Perspectives of directors of pediatric home ventilation programs. Ann Am Thorac Soc 14(10):1539–1547PubMedPubMedCentralCrossRef
46.
Zurück zum Zitat Yaneza MM et al (2015) Changing indications for paediatric tracheostomy and the role of a multidisciplinary tracheostomy clinic—ERRATUM. J Laryngol Otol 129(12):1256PubMedCrossRef Yaneza MM et al (2015) Changing indications for paediatric tracheostomy and the role of a multidisciplinary tracheostomy clinic—ERRATUM. J Laryngol Otol 129(12):1256PubMedCrossRef
47.
Zurück zum Zitat Rusalen F et al (2017) Regional paediatric palliative care network model improves the quality of life of children on long-term ventilation at home. Acta Paediatr 106(5):841PubMedCrossRef Rusalen F et al (2017) Regional paediatric palliative care network model improves the quality of life of children on long-term ventilation at home. Acta Paediatr 106(5):841PubMedCrossRef
48.
Zurück zum Zitat Simonds AK (2005) Ethical aspects of home long term ventilation in children with neuromuscular disease. Paediatr Respir Rev 6(3):209–214PubMedCrossRef Simonds AK (2005) Ethical aspects of home long term ventilation in children with neuromuscular disease. Paediatr Respir Rev 6(3):209–214PubMedCrossRef
49.
50.
Zurück zum Zitat Falkson S et al (2017) The perspective of families with a ventilator-dependent child at home. A literature review. J Pediatr Nurs 36:213–224PubMedCrossRef Falkson S et al (2017) The perspective of families with a ventilator-dependent child at home. A literature review. J Pediatr Nurs 36:213–224PubMedCrossRef
51.
Zurück zum Zitat Polkey MI et al (1999) Ethical and clinical issues in the use of home non-invasive mechanical ventilation for the palliation of breathlessness in motor neurone disease. Thorax 54(4):367–371PubMedPubMedCentralCrossRef Polkey MI et al (1999) Ethical and clinical issues in the use of home non-invasive mechanical ventilation for the palliation of breathlessness in motor neurone disease. Thorax 54(4):367–371PubMedPubMedCentralCrossRef
52.
Zurück zum Zitat Ray S et al (2018) Towards developing an ethical framework for decision making in long-term ventilation in children. Arch Dis Child 103(11):1080–1084PubMed Ray S et al (2018) Towards developing an ethical framework for decision making in long-term ventilation in children. Arch Dis Child 103(11):1080–1084PubMed
53.
54.
Zurück zum Zitat Brenner M et al (2020) Key constituents for integration of care for children assisted with long-term home ventilation: a European study. BMC Pediatr 20(1):71PubMedPubMedCentralCrossRef Brenner M et al (2020) Key constituents for integration of care for children assisted with long-term home ventilation: a European study. BMC Pediatr 20(1):71PubMedPubMedCentralCrossRef
55.
Zurück zum Zitat Shah NM, Murphy PB, Kaltsakas G (2020) The adult multidisciplinary respiratory neuromuscular clinic. Breathe (Sheff) 16(3):200121CrossRef Shah NM, Murphy PB, Kaltsakas G (2020) The adult multidisciplinary respiratory neuromuscular clinic. Breathe (Sheff) 16(3):200121CrossRef
Metadaten
Titel
Von respiratorischer Technologie abhängige Kinder
verfasst von
Dr. Andreas van Egmond-Fröhlich
Regina Rath-Wacenovsky
Florian Stehling
Publikationsdatum
04.04.2022
Verlag
Springer Medizin
Schlagwörter
Husten
Husten
Husten
Erschienen in
Zeitschrift für Pneumologie / Ausgabe 3/2022
Print ISSN: 2731-7404
Elektronische ISSN: 2731-7412
DOI
https://doi.org/10.1007/s10405-022-00440-6

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