Background
Methods
Study design and setting
Patient and public involvement
Participants and recruitment
Data collection
Data analyses
Results
Study sample
Characteristics | N (total = 20) | |
---|---|---|
Gender | ||
Female | 17 | |
Male | 3 | |
Age range (year) | ||
32–49 | 8 | |
50–65 | 11 | |
> 65 | 1 | |
Relationship status | ||
Single/divorced/widowed | 7 | |
In relationship/married | 11 | |
Unknown | 2 | |
Educational status (highest degree obtained) | ||
Primary school or less | 2 | |
Secondary school | 2 | |
Intermediate vocational school | 10 | |
University (of applied sciences) | 6 | |
Employment status | ||
Unemployed/homemaker | 2 | |
Paid work | 16 | |
Retired | 2 | |
Rheumatic symptomsa | ||
Arthralgia | ||
Upper extremities | 4 | |
Lower extremities | 2 | |
Both upper and lower extremities | 10 | |
Arthritis (joint swelling and/or stiffness) | ||
Upper extremities | 1 | |
Lower extremities | 6 | |
Both upper and lower extremities | 2 | |
Joint cramps or locking | ||
Upper extremities | 2 | |
Lower extremities | 0 | |
Both upper and lower extremities | 1 | |
Myalgia | 1 | |
Non-rheumatic symptomsa | ||
Fatigue | 4 | |
Emotional distressb | 3 | |
Comorbiditiesa | ||
Cardiovascular disease | 3 | |
Hypertension | 7 | |
Diabetes mellitus | 3 | |
Othersc | 4 |
Perceptions and experiences regarding health-care seeking
Health-care seeking at Disease onset
“I am very honest, when I go to the doctor [GP], what will the doctor tell me, what will the doctor tell me? That is what I am thinking, because in the beginning he [doctor] was saying that you just need to live with it [persistent symptoms]…and for me, when a doctor tells me that, what will I continue going to the doctor for?” (Pt. 19; Female 32–49 years old, arthralgia and joint weakness in UE and LE).
“What did the doctor give you [talking in third person] during that time [at acute disease onset]? Paracetamol? So, now I will buy the paracetamol myself instead of going to the doctor and being ridiculous.” (Pt. 9; Female 32–49 years old, arthralgia and joint weakness in UE, and fatigue).
GPs perceptions and awareness of persistent symptoms
“It [chikungunya] affects your joints, my GP told me no [that chikungunya does not affect the joints]…but I have told my GP that since I had that thing [chikungunya infection], I remained with the pains in my joints. […]. Now [at this point in time], you know…I do not go to the GP for that [persistent symptoms], because the last time I went to my GP, I talked to him regarding that, I explained it [persistent symptoms] and asked him if they [persistent symptoms] are the effects of chikungunya, he told me he does not think so. So, I drew the line [discontinued health-care seeking].” (Pt. 7; Female 50–65 years old, arthralgia in UE and LE).
“It [chikungunya] left me a little handicapped. I have cramps in my hand and feet, since I got it [chikungunya]…I still have them [cramps]. I went to the doctor [GP] and he told me…eat bananas, I asked the doctor…Bananas? What can bananas help me with? He told me to…eat bananas, bananas will stop the cramps. I told the doctor…I need to go to a specialist to see why [cramps persistency], maybe I have a clogged vein in my hand.” (Pt. 4; Male 50–65 years old, joint cramps in UE and LE).
Challenges for medical referrals and support
“I think here in Curaçao its very bad…you need to beg to be able to go to a physiotherapist, you need to beg to get a referral to go to a laboratory.” (Pt 1; Female 50–65 years old, arthralgia in LE).
“When I go to the doctor [GP] he gives me medication [analgesics] and I want to test [referral to secondary care] to see why I have pain, so why go [to GP]?” (Pt. 17; Female 50–65 years old, arthralgia in UE and LE, joint locking in UE and LE, joint cramps in UE, joint swelling in LE, fatigue, and emotional distress).
No validation of symptoms and challenges accessing therapy
“My ankles remained swollen [after CHIKV infection] and my knee is painful, I recently got a radiography [test] to see if there is no problem with the circulation [vascular system], but everything was okay [nothing to be seen in radiographical image], so there is nothing more that I can do.” (Pt. 3; Female 50–65 years old, arthralgia and joint swelling in LE).
“At first I went to therapy, I went to therapy often. Yes physiotherapy, I went often, but I stopped going, because I began noticing that when I went, I would get more pain than before I went to therapy. […]. Often I had to drink painkillers [to reduce the increased pain], so I said no, I do not want to increase the pain for it to decrease afterwards.” (Pt. 7; Female 50–65 years old, arthralgia in UE and LE).
“You know, I resent the physiotherapists here in Curaçao. They will put you on a machine and walk away, for me that isn’t physiotherapy. […]. Physiotherapy is really the contact [manual contact]. […]. I prefer to pay a massage and let them [private sector physiotherapist] do a body massage two times a month, sometimes only shoulders, depending on the wallet [finances]…but I do not go to the therapy, so the medical one [provided by health system].” (Pt. 17; Female 50–65 years old, arthralgia in UE and LE, joint locking in UE and LE, joint cramps in UE, joint swelling in LE, fatigue, and emotional distress).
Health system restrictions
“The good thing of therapy is to get the massage to spread the pains. […]. The doctor [GP] would tell me, this is only what the SVB [Social Insurance Bank] gave you 4 days [times], 5 days [times]. I think that the whole year SVB is GETTING [emphasizing on getting] my money and I do not make use of it, you understand? I am serious, I want them [policy makers] to improve that.” (Pt. 13; Female 50–65 years old, arthralgia and joint stiffness in UE and LE).
“I also think that the therapist [physiotherapist] also thought that he was not allowed to go and asks for more [physiotherapy sessions]…Because those are the rules of the SVB [Social Insurance Bank], so till an amount [sessions] you can receive therapy.” (Pt 10; Female > 65 years old, arthralgia in UE and LE, and joint stiffness and swelling in LE).
Social stigmatization of psychological help
“I think that maybe some people do need it [psychological help], but I do not need it.” (Pt 19; Female 32–49 years old, arthralgia and joint weakness in UE and LE, and emotional distress.
“Why do they [HCPs] not establish an association like the stomach [gastrointestinal] association, but for chikungunya? …because until now there is none, you can establish one and people who have psychological problems can start talking [in a group] and you can even include a psychologist to give talks etc. A place where they [individuals with emotional distress induced by persistent rheumatic symptoms] can come and share their experience to help each other, one helps the other, one supports the other, you know… and in that way you break the barriers.” (Pt. 7; Female 50–65 years old, arthralgia in UE and LE).
Self-management strategies of persistent symptoms
Self-medication of symptoms
“Paracetamol lasts only for a short period. […]. After 2 or 3 hours, you need to repeat the same dosage again. I drink a pill from Santo Domingo [Dominican Republic], which is Diclofenac with vitamins [Dicloflex-Forte]. […]. I will drink [take] it in the morning and till night I will stay good [without pain].” (Pt. 15; Female 32–49 years old, arthralgia and weakness in UE and LE).
“Yes it’s [Diclofenac] very strong, but I do not drink it alone, I have another pill that I drink [take] before I drink [take] the Diclofenac…for the stomach, to protect the stomach.” (Pt. 18; Male 50–65 years old, myalgia in UE).
“I do not take painkillers immediately. I will observe how it [pain] is going, if I notice that it’s not going really really [unbearable] I will take painkillers…maybe I will stay one day with the pain and the next day I will say…no this pain has become too much…I will then take a medication [painkiller], because the pain hampers me.” (Pt. 17; Female 50–65 years old, arthralgia in UE and LE, joint locking in UE and LE, joint cramps in UE, joint swelling in LE, fatigue, and emotional distress).
“Like at night I will smear the Diclofenac gel, in the morning I will wake up with less pain. I can stand up and go to the bathroom.” (Pt. 6; Female > 65 years old, arthralgia and joint stiffness in LE).
“I buy things [topical analgesics] to smear on my leg. […]. None of them work, they alleviate it [pain] just a little, they [topical analgesics] do not stop it [pain].” (Pt. 20; Female 50–65 years old, arthralgia and joint cramps in UE, joint stiffness in LE, and emotional distress).
Self-management true non-pharmacological treatments
“I have ice packages and at night I will put one here [on the knee], and then one here [on the ankle] and one here [on the shoulder]. […]. I will have less pain for around two days.” (Pt 10; Female > 65 years old, arthralgia in UE and LE, and joint stiffness and swelling in LE).
“You know what I do? I try to go to every natural doctor to find a solution…If you tell me madam go to doctor XYZ, that doctor will help you and it costs 500 Antillean Guilders [$ 278] so to speak, I will save [for the treatment], because I think that now I have found a cure for it [persistent symptoms].[…]. If they [social network] tell me…there is another natural doctor let’s go, I will start my car and go. If they [social network] tell me…let’s go there, I will go…No, let’s go there, I will go. I went to [name natural product store], I have gone everywhere people say that can help.” (Pt. 19; Female 32–49 years old, arthralgia and joint weakness in UE and LE).