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27.10.2022 | Original Research

Barriers for Participation in the Danish Colorectal Cancer Screening Program: a Qualitative Study

verfasst von: Sofie Phillipsen, Louise Kongsmark Weltz, Jannie Dressler, Marie Konge Nielsen, Morten Rasmussen, Lars Nannestad Jorgensen, Anna Thit Johnsen

Erschienen in: Journal of Gastrointestinal Cancer | Ausgabe 3/2023

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Abstract

Purpose

The participation rate in the Danish National Screening Program for Colorectal Cancer is around 60%. Since early detection of cancer through the colorectal cancer screening program (CRCS) reduces mortality rates, it is important to understand why people do not participate. The aim of this study was therefore to examine in depth why some people do not participate in the Danish CRCS program.

Methods

Individual semi-structured interviews were conducted with 18 people who had not participated in the national CRCS program. Data was analyzed using an inductive hermeneutic approach.

Results

The analysis uncovered three main themes describing barriers to screening: (a) the accountability for ensuring personal health covered the following sub-themes: (i) when invitation is out of sight it is out of mind, (ii) aversion against own stool sample collection, and (iii) the perceived risk of getting colorectal cancer (CRC); (b) attitudes towards the healthcare system and its organization covered the following sub-themes: (i) positivity towards CRCS, (ii) trust in the healthcare system, (iii) lack of internal communication in the healthcare system, and (iv) wish for involvement of the general practitioner (GP); (c) knowledge about disease and screening covered the following sub-themes: (i) knowledge about CRC and CRCS, (ii) wish for information via new channels, and (iii) CRC is rarely something you talk about.

Conclusion

Among the informants included in this study, lack of participation in the CRCS program was not due to an active opt-out, as most informants had intentions of participating. The informants thought it would motivate them to participate if their GP would remind them of the screening program.

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Titel: Barriers for Participation in the Danish Colorectal Cancer Screening Program: a Qualitative Study
verfasst von: Sofie Phillipsen
Louise Kongsmark Weltz
Jannie Dressler
Marie Konge Nielsen
Morten Rasmussen
Lars Nannestad Jorgensen
Anna Thit Johnsen
Publikationsdatum: 27.10.2022
Verlag: Springer US
Erschienen in: Journal of Gastrointestinal Cancer / Ausgabe 3/2023
Print ISSN: 1941-6628
Elektronische ISSN: 1941-6636
DOI: https://doi.org/10.1007/s12029-022-00876-2

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Barriers for Participation in the Danish Colorectal Cancer Screening Program: a Qualitative Study