Background
Methods
Ethical approval
Item generation
Research seminar
Delphi survey
Pilot testing
Validity and reliability
Results
Characteristics of the participants
characteristics | N(%) or (Mean ± SD) |
---|---|
Age Mean, years(SD) | 54.78 ± 10.03 |
Gender | |
Male | 155(59.4%) |
Female | 106(40.6%) |
Civil status | |
Married | 236(90.4%) |
Single | 7(2.7%) |
Divorced | 2(0.8%) |
Widowed | 9(3.4%) |
misses | 7(2.7%) |
Employment situation | |
Unemployed | 80(30.7%) |
Working | 84(32.2%) |
Retired | 52(19.9%) |
others | 45(17.2%) |
Level of education | |
Without studies | 26(10.0%) |
Primary education | 69(26.4%) |
Secondary education | 135(51.7%) |
University education | 31(11.9%) |
Disease | |
Rectum cancer | 96(36.8%) |
Colon cancer | 70(26.8%) |
Gastric cancer | 47(18.0%) |
Breast cancer | 20(7.7%) |
Others | 28(10.7%) |
Course of disease, months(SD) | 54.84 ± 10.19 |
Medication | |
Capecitabine Capsule | 133(51.0%) |
Xelode Capsule | 66(25.3%) |
Tegafur Gimeracil Oteracil Potassium Capsule | 55(21.1%) |
Others | 7(2.7%) |
Validity of the scale
Domains | Contents | Factor 1 | Factor 2 | Factor 3 | Factor 4 | Factor 5 |
---|---|---|---|---|---|---|
Daily life management | 1 pay attention to the diet, choose digestible food high in vitamins (fresh vegetables and fruit) and quality protein (such as fish, meat eggs and milk) | 0.648 | ||||
2 frequent small meals, avoid irritating foods (such as spicy, cold food) | 0.693 | |||||
3 drink more water; the daily amount of drinking water is more than 2000 ml | 0.765 | |||||
4 pay attention to your body weight change every week | 0.700 | |||||
5 keep a regular sleep schedule, and guarantee 6–8 h of sleep every day | 0.903 | |||||
6 exercise properly based on your own physical condition, such as walking, square dance and Tai Chi | 0.783 | |||||
7 your smoking situation during taking oral chemotherapy | 0.855 | |||||
8 your drinking situation during taking oral chemotherapy | 0.815 | |||||
Symptom management | 9 understand the common adverse reactions of oral chemotherapy drugs | 0.768 | ||||
10 readily identify the adverse symptoms of oral chemotherapy drugs. | 0.810 | |||||
11 assess the severity of adverse symptoms caused by oral chemotherapy | 0.699 | |||||
12 when a mild adverse reaction occurs, simple measures can be taken. | 0.743 | |||||
13 when serious adverse reaction occurs, you can contact doctor timely. | 0.606 | |||||
14 follow the doctor’s advice and return to the hospital for regular review. | 0.582 | |||||
Medication management | 15 understand the relevant knowledge of oral chemotherapy drug (including drugs and course) | 0.842 | ||||
16 actively consult on the knowledge and requirements of medication at the time of treatment | 0.896 | |||||
17 accept doctors’ medication plan | 0.814 | |||||
18 other daily information (such as other patients and advertisements) that will affect your choice of medication plan | 0.558 | |||||
19 store medication according to drug storage conditions, such as light, moisture and temperature requirements | 0.687 | |||||
20 check the completeness of the drug prior to ingestion (such as the completeness of outer packaging and tablet defects) | 0.544 | |||||
21 adjust the dosage according to the doctor’s instructions | 0.701 | |||||
22 take medicine on time according to the doctor’s advice | 0.890 | |||||
23 does not touch the chemotherapy drugs when taking the medicine | 0.860 | |||||
24 the excrement can be cleaned up in time, and the toilet is continuously flushed twice during the treatment | 0.693 | |||||
25 understand the treatment of the remaining oral chemotherapy | 0.612 | |||||
Emotional cognitive management | 26 able to communicate with friends or colleagues | 0.770 | ||||
27 feel that my friends or colleagues treat me differently | 0.892 | |||||
28 unconsciously vent my emotions to my family or friends during the treatment | 0.764 | |||||
29 does not want to talk to anyone when feeling depressed | 0.805 | |||||
30 can relieve stress through talking, watching TV, surfing the Internet, taking a deep breath and meditating | 0.779 | |||||
31 learn that negative emotions affect your body | 0.833 | |||||
32 able to recognize their own emotional changes | 0.577 | |||||
Social support | 33 be cared for and supported by family, friends or medical personnel | 0.530 | ||||
34 actively participate in social activities within their capacity. | 0.616 | |||||
35 actively exchange medication information with family members or caregivers | 0.691 | |||||
36 actively communicate disease treatment information with medical personnel. | 0.688 |
Item | Experts Ratings | Number of 3 or 4 items | I-CVI | |||||
---|---|---|---|---|---|---|---|---|
A | B | C | D | E | F | |||
1 | 3 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
2 | 3 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
3 | 3 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
4 | 3 | 3 | 4 | 3 | 4 | 4 | 6 | 1 |
5 | 3 | 3 | 4 | 3 | 4 | 4 | 6 | 1 |
6 | 3 | 3 | 4 | 4 | 4 | 4 | 6 | 1 |
7 | 3 | 3 | 3 | 2 | 3 | 3 | 5 | 0.83 |
8 | 2 | 3 | 3 | 3 | 3 | 3 | 5 | 0.83 |
9 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
10 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
11 | 4 | 4 | 3 | 4 | 4 | 4 | 6 | 1 |
12 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
13 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
14 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
15 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
16 | 4 | 3 | 3 | 4 | 4 | 4 | 6 | 1 |
17 | 4 | 4 | 3 | 4 | 4 | 4 | 6 | 1 |
18 | 4 | 4 | 4 | 3 | 4 | 4 | 6 | 1 |
19 | 4 | 3 | 4 | 3 | 4 | 4 | 6 | 1 |
20 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
21 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
22 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
23 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
24 | 4 | 3 | 4 | 4 | 4 | 4 | 6 | 1 |
25 | 4 | 4 | 4 | 4 | 4 | 4 | 6 | 1 |
26 | 3 | 2 | 3 | 3 | 3 | 3 | 5 | 0.83 |
27 | 3 | 3 | 2 | 3 | 3 | 3 | 5 | 0.83 |
28 | 3 | 4 | 4 | 4 | 3 | 3 | 6 | 1 |
29 | 3 | 3 | 4 | 4 | 4 | 4 | 6 | 1 |
30 | 3 | 3 | 4 | 4 | 4 | 4 | 6 | 1 |
31 | 3 | 3 | 4 | 4 | 4 | 4 | 6 | 1 |
32 | 3 | 3 | 4 | 3 | 4 | 4 | 6 | 1 |
33 | 3 | 3 | 4 | 3 | 4 | 4 | 6 | 1 |
34 | 3 | 3 | 4 | 3 | 3 | 3 | 6 | 1 |
35 | 4 | 4 | 3 | 3 | 4 | 2 | 5 | 0.83 |
36 | 3 | 4 | 3 | 3 | 2 | 3 | 5 | 0.83 |
Reliability of the scale
Domains | The Cronbach’s Alpha | The split-half coefficient |
---|---|---|
Daily life management | 0.920 | 0.858 |
Symptom management | 0.869 | 0.865 |
Medication management | 0.927 | 0.901 |
Emotional cognitive management | 0.904 | 0.919 |
Social support | 0.664 | 0.584 |