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Erschienen in: Rheumatology International 3/2014

01.03.2014 | Review Article

Attitudes of people with osteoarthritis towards their conservative management: a systematic review and meta-ethnography

verfasst von: Toby O. Smith, Rachel Purdy, Sarah Lister, Charlotte Salter, Robert Fleetcroft, Philip G Conaghan

Erschienen in: Rheumatology International | Ausgabe 3/2014

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Abstract

This paper determines the perceptions of people diagnosed with osteoarthritis towards their conservative management strategies. A systematic review of the published (AMED, CINAHL, EMBASE, PsychINFO, SportsDisc, MEDLINE, Cochrane Clinical Trials Registry, PubMed) and unpublished/trial registry databases (WHO International Clinical Trials Registry Platform, Current Controlled Trials, the United States National Institute of Health Trials Registry, NIHR Clinical Research Portfolio Database) searched from their inception to July 2013. Eligible studies included those which presented the attitudes or perceptions of people with osteoarthritis towards non-operative management strategies. Study quality was appraised using the CASP and the Gough’s weight of evidence appraisal tools. Data were analysed through a meta-ethnography approach. Thirty-three studies including 1,314 people with osteoarthritis were sampled; the majority diagnosed with knee osteoarthritis. The overarching themes indicated people with osteoarthritis delay their diagnosis, opting for self-management and informal information gathering. This informal rather than health professional-led guidance is sought and maintained as an important resource throughout the care of this population and is valued. Diagnosis is sought at a ‘critical point’. Healthcare interventions largely provided are poorly perceived. The period of subsequent self-management is an expectation before the inevitable requirement for joint replacement. There remains uncertainty regarding when this is required, but the expected failure of conservative treatment to manage pain and symptoms is common. In conclusion, patients should be enthused towards the principles of self-management and clinicians should not trivialise osteoarthritis. This may provide a more valuable perception of non-operative management to promote its adoption and adherence in managing osteoarthritis.
Literatur
1.
Zurück zum Zitat Lawrence RC, Felson DT, Helmick CG, Arnold LM, Choi H, Deyo RA, Gabriel S, Hirsch R, Hochberg MC, Hunder GG, Jordan JM, Katz JN, Kremers HM, Wolfe F, National Arthritis Data Workgroup (2008) Estimates of the prevalence of arthritis and other rheumatic conditions in the United States. Part II. Arthritis Rheum 58:26–35PubMedCentralPubMedCrossRef Lawrence RC, Felson DT, Helmick CG, Arnold LM, Choi H, Deyo RA, Gabriel S, Hirsch R, Hochberg MC, Hunder GG, Jordan JM, Katz JN, Kremers HM, Wolfe F, National Arthritis Data Workgroup (2008) Estimates of the prevalence of arthritis and other rheumatic conditions in the United States. Part II. Arthritis Rheum 58:26–35PubMedCentralPubMedCrossRef
3.
Zurück zum Zitat Nüesch E, Dieppe P, Reichenbach S, Williams S, Iff S, Jüni P (2011) All cause and disease specific mortality in patients with knee or hip osteoarthritis: population based cohort study. BMJ 342:d1165PubMedCentralPubMedCrossRef Nüesch E, Dieppe P, Reichenbach S, Williams S, Iff S, Jüni P (2011) All cause and disease specific mortality in patients with knee or hip osteoarthritis: population based cohort study. BMJ 342:d1165PubMedCentralPubMedCrossRef
4.
Zurück zum Zitat Zhang W, Moskowitz RW, Nuki G, Abramson S, Altman RD, Arden N, Bierma-Zeinstra S, Brandt KD, Croft P, Doherty M, Dougados M, Hochberg M, Hunter DJ, Kwoh K, Lohmander LS, Tugwell P (2008) OARSI recommendations for the management of hip and knee osteoarthritis, Part II: OARSI evidence-based, expert consensus guidelines. Osteoarthritis Cartilage 16:137–162PubMedCrossRef Zhang W, Moskowitz RW, Nuki G, Abramson S, Altman RD, Arden N, Bierma-Zeinstra S, Brandt KD, Croft P, Doherty M, Dougados M, Hochberg M, Hunter DJ, Kwoh K, Lohmander LS, Tugwell P (2008) OARSI recommendations for the management of hip and knee osteoarthritis, Part II: OARSI evidence-based, expert consensus guidelines. Osteoarthritis Cartilage 16:137–162PubMedCrossRef
5.
Zurück zum Zitat Jordan KM, Arden NK, Doherty M, Bannwarth B, Bijlsma JW, Dieppe P, Gunther K, Hauselmann H, Herrero-Beaumont G, Kaklamanis P, Lohmander S, Leeb B, Lequesne M, Mazieres B, Martin-Mola E, Pavelka K, Pendleton A, Punzi L, Serni U, Swoboda B, Verbruggen G, Zimmerman-Gorska I, Dougados M, Standing Committee for International Clinical Studies Including Therapeutic Trials ESCISIT (2003) EULAR Recommendations 2003: an evidence based approach to the management of knee osteoarthritis: Report of a Task Force of the Standing Committee for International Clinical Studies Including Therapeutic Trials (ESCISIT). Ann Rheum Dis 62:1145–1155PubMedCrossRef Jordan KM, Arden NK, Doherty M, Bannwarth B, Bijlsma JW, Dieppe P, Gunther K, Hauselmann H, Herrero-Beaumont G, Kaklamanis P, Lohmander S, Leeb B, Lequesne M, Mazieres B, Martin-Mola E, Pavelka K, Pendleton A, Punzi L, Serni U, Swoboda B, Verbruggen G, Zimmerman-Gorska I, Dougados M, Standing Committee for International Clinical Studies Including Therapeutic Trials ESCISIT (2003) EULAR Recommendations 2003: an evidence based approach to the management of knee osteoarthritis: Report of a Task Force of the Standing Committee for International Clinical Studies Including Therapeutic Trials (ESCISIT). Ann Rheum Dis 62:1145–1155PubMedCrossRef
6.
Zurück zum Zitat Conaghan PG, Dickson J, Grant RL, On behalf of the Guideline Development Group (2008) Care and management of osteoarthritis in adults: summary of NICE guidance. BMJ 336:502–503PubMedCrossRef Conaghan PG, Dickson J, Grant RL, On behalf of the Guideline Development Group (2008) Care and management of osteoarthritis in adults: summary of NICE guidance. BMJ 336:502–503PubMedCrossRef
8.
Zurück zum Zitat Noblit GW, Hare RD (1988) Meta-ethnography: synthesizing qualitative studies. Newbury Park, California Noblit GW, Hare RD (1988) Meta-ethnography: synthesizing qualitative studies. Newbury Park, California
9.
Zurück zum Zitat Atkins S, Lewin S, Smith H, Engel M, Fretheim A, Volmink J (2008) Conducting a meta-ethnography of qualitative literature: lessons learnt. BMC Med Res Methodol 8:21PubMedCentralPubMedCrossRef Atkins S, Lewin S, Smith H, Engel M, Fretheim A, Volmink J (2008) Conducting a meta-ethnography of qualitative literature: lessons learnt. BMC Med Res Methodol 8:21PubMedCentralPubMedCrossRef
10.
Zurück zum Zitat Wilcox S, Der Ananian C, Abbott J, Vrazel J, Ramsey C, Sharpe PA, Brady T (2006) Perceived exercise barriers, enablers, and benefits among exercising and nonexercising adults with arthritis: results from a qualitative study. Arthritis Rheum 55:616–627PubMedCrossRef Wilcox S, Der Ananian C, Abbott J, Vrazel J, Ramsey C, Sharpe PA, Brady T (2006) Perceived exercise barriers, enablers, and benefits among exercising and nonexercising adults with arthritis: results from a qualitative study. Arthritis Rheum 55:616–627PubMedCrossRef
11.
Zurück zum Zitat Milder TY, Williams KM, Ritchie JE, Lipworth WL, Day RO (2011) Use of NSAIDs for osteoarthritis amongst older-aged primary care patients: engagement with information and perceptions of risk. Age Ageing 40:254–259PubMedCrossRef Milder TY, Williams KM, Ritchie JE, Lipworth WL, Day RO (2011) Use of NSAIDs for osteoarthritis amongst older-aged primary care patients: engagement with information and perceptions of risk. Age Ageing 40:254–259PubMedCrossRef
12.
Zurück zum Zitat Milder TY, Lipworth WL, Williams KM, Ritchie JE, Day RO (2011) “It looks after me”: how older patients make decisions about analgesics for osteoarthritis. Arthritis Care Res 63:1280–1286CrossRef Milder TY, Lipworth WL, Williams KM, Ritchie JE, Day RO (2011) “It looks after me”: how older patients make decisions about analgesics for osteoarthritis. Arthritis Care Res 63:1280–1286CrossRef
13.
Zurück zum Zitat Hendry M, Williams NH, Markland D, Wilkinson C, Maddison P (2006) Why should we exercise when our knees hurt? A qualitative study of primary care patients with osteoarthritis of the knee. Fam Pract 23:558–567PubMedCrossRef Hendry M, Williams NH, Markland D, Wilkinson C, Maddison P (2006) Why should we exercise when our knees hurt? A qualitative study of primary care patients with osteoarthritis of the knee. Fam Pract 23:558–567PubMedCrossRef
14.
Zurück zum Zitat Sanders C, Donovan J, Dieppe P (2002) The significance and consequences of having painful and disabled joints in older age: co-existing accounts of normal and disrupted biographies. Sociol Health Illn 24:227–253CrossRef Sanders C, Donovan J, Dieppe P (2002) The significance and consequences of having painful and disabled joints in older age: co-existing accounts of normal and disrupted biographies. Sociol Health Illn 24:227–253CrossRef
15.
Zurück zum Zitat Petursdottir U, Arnadottir SA, Halldorsdottir S (2010) Facilitators and barriers to exercising among people with osteoarthritis: a phenomenological study. Phys Ther 90:1014–1025PubMedCrossRef Petursdottir U, Arnadottir SA, Halldorsdottir S (2010) Facilitators and barriers to exercising among people with osteoarthritis: a phenomenological study. Phys Ther 90:1014–1025PubMedCrossRef
16.
Zurück zum Zitat Sale JE, Gignac M, Hawker G (2006) How “bad” does the pain have to be? A qualitative study examining adherence to pain medication in older adults with osteoarthritis. Arthritis Rheum 55:272–278PubMedCrossRef Sale JE, Gignac M, Hawker G (2006) How “bad” does the pain have to be? A qualitative study examining adherence to pain medication in older adults with osteoarthritis. Arthritis Rheum 55:272–278PubMedCrossRef
17.
Zurück zum Zitat Tallon D, Chard J, Dieppe P (2000) Exploring the priorities of patients with osteoarthritis of the knee. Arthritis Care Res 13:312–319PubMedCrossRef Tallon D, Chard J, Dieppe P (2000) Exploring the priorities of patients with osteoarthritis of the knee. Arthritis Care Res 13:312–319PubMedCrossRef
18.
Zurück zum Zitat Bower KN, Frail D, Twohig PL, Putnam W (2006) What influences seniors’ choice of medications for osteoarthritis? Qualitative inquiry. Can Fam Physician 52:342–343PubMed Bower KN, Frail D, Twohig PL, Putnam W (2006) What influences seniors’ choice of medications for osteoarthritis? Qualitative inquiry. Can Fam Physician 52:342–343PubMed
19.
Zurück zum Zitat Kao MH, Tsai YF (2012) Living experiences of middle-aged adults with early knee osteoarthritis in prediagnostic phase. Disabil Rehabil 34:1827–1834PubMedCrossRef Kao MH, Tsai YF (2012) Living experiences of middle-aged adults with early knee osteoarthritis in prediagnostic phase. Disabil Rehabil 34:1827–1834PubMedCrossRef
20.
Zurück zum Zitat Sanders C, Donovan JL, Dieppe PA (2004) Unmet need for joint replacement: a qualitative investigation of barriers to treatment among individuals with severe pain and disability of the hip and knee. Rheumatology 43:353–357PubMedCrossRef Sanders C, Donovan JL, Dieppe PA (2004) Unmet need for joint replacement: a qualitative investigation of barriers to treatment among individuals with severe pain and disability of the hip and knee. Rheumatology 43:353–357PubMedCrossRef
21.
Zurück zum Zitat Keysor JJ, Sparling JW, Riegger-Krugh C (1998) The experience of knee arthritis in athletic young and middle-aged adults: an heuristic study. Arthritis Care Res 11:261–270PubMedCrossRef Keysor JJ, Sparling JW, Riegger-Krugh C (1998) The experience of knee arthritis in athletic young and middle-aged adults: an heuristic study. Arthritis Care Res 11:261–270PubMedCrossRef
22.
Zurück zum Zitat Maly MR, Krupa T (2007) Personal experience of living with knee osteoarthritis among older adults. Disabil Rehabil 29:1423–1433PubMedCrossRef Maly MR, Krupa T (2007) Personal experience of living with knee osteoarthritis among older adults. Disabil Rehabil 29:1423–1433PubMedCrossRef
23.
Zurück zum Zitat Maly MR, Cott CA (2009) Being careful: a grounded theory of emergent chronic knee problems. Arthritis Rheum 61:937–943PubMedCrossRef Maly MR, Cott CA (2009) Being careful: a grounded theory of emergent chronic knee problems. Arthritis Rheum 61:937–943PubMedCrossRef
24.
Zurück zum Zitat Gignac MA, Davis AM, Hawker G, Wright JG, Mahomed N, Fortin PR, Badley EM (2006) “What do you expect? You’re just getting older”: a comparison of perceived osteoarthritis-related and aging-related health experiences in middle- and older-age adults. Arthritis Rheum 55:905–912PubMedCrossRef Gignac MA, Davis AM, Hawker G, Wright JG, Mahomed N, Fortin PR, Badley EM (2006) “What do you expect? You’re just getting older”: a comparison of perceived osteoarthritis-related and aging-related health experiences in middle- and older-age adults. Arthritis Rheum 55:905–912PubMedCrossRef
25.
Zurück zum Zitat Chan KKW, Chan LWY (2012) A qualitative study on patients with knee osteoarthritis to evaluate the influence of different pain patterns on patients’ quality of life and to find out patients’ interpretation and coping strategies for the disease. Rheumatol Rep e3:9–15 Chan KKW, Chan LWY (2012) A qualitative study on patients with knee osteoarthritis to evaluate the influence of different pain patterns on patients’ quality of life and to find out patients’ interpretation and coping strategies for the disease. Rheumatol Rep e3:9–15
26.
27.
Zurück zum Zitat Turner AP, Barlow JH, Buszewicz M, Atkinson A, Rait G (2007) Beliefs about the causes of osteoarthritis among primary care patients. Arthritis Rheum 57:267–271PubMedCrossRef Turner AP, Barlow JH, Buszewicz M, Atkinson A, Rait G (2007) Beliefs about the causes of osteoarthritis among primary care patients. Arthritis Rheum 57:267–271PubMedCrossRef
28.
Zurück zum Zitat Campbell R, Evans M, Tucker M, Quilty B, Dieppe P, Donovan JL (2001) Why don’t patients do their exercises? Understanding non-compliance with physiotherapy in patients with osteoarthritis of the knee. J Epidemiol Community Health 55:132–138PubMedCrossRef Campbell R, Evans M, Tucker M, Quilty B, Dieppe P, Donovan JL (2001) Why don’t patients do their exercises? Understanding non-compliance with physiotherapy in patients with osteoarthritis of the knee. J Epidemiol Community Health 55:132–138PubMedCrossRef
29.
Zurück zum Zitat Hall M, Migay AM, Persad T, Smith J, Yoshida K, Kennedy D, Pagura S (2008) Individuals’ experience of living with osteoarthritis of the knee and perceptions of total knee arthroplasty. Physiother Theory Pract 24:167–181PubMedCrossRef Hall M, Migay AM, Persad T, Smith J, Yoshida K, Kennedy D, Pagura S (2008) Individuals’ experience of living with osteoarthritis of the knee and perceptions of total knee arthroplasty. Physiother Theory Pract 24:167–181PubMedCrossRef
30.
Zurück zum Zitat Alami S, Boutron I, Desjeux D, Hirschhorn M, Meric G, Rannou F, Poiraudeau S (2011) Patients’ and practitioners’ views of knee osteoarthritis and its management: a qualitative interview study. PLoS ONE 6:e19634PubMedCentralPubMedCrossRef Alami S, Boutron I, Desjeux D, Hirschhorn M, Meric G, Rannou F, Poiraudeau S (2011) Patients’ and practitioners’ views of knee osteoarthritis and its management: a qualitative interview study. PLoS ONE 6:e19634PubMedCentralPubMedCrossRef
31.
Zurück zum Zitat Thorstensson CA, Roos EM, Petersson IF, Arvidsson B (2006) How do middle-aged patients conceive exercise as a form of treatment for knee osteoarthritis? Disabil Rehabil 28:51–59PubMedCrossRef Thorstensson CA, Roos EM, Petersson IF, Arvidsson B (2006) How do middle-aged patients conceive exercise as a form of treatment for knee osteoarthritis? Disabil Rehabil 28:51–59PubMedCrossRef
32.
Zurück zum Zitat Victor CR, Ross F, Axford J (2004) Capturing lay perspectives in a randomized control trial of a health promotion intervention for people with osteoarthritis of the knee. J Eval Clin Pract 10:63–70PubMedCrossRef Victor CR, Ross F, Axford J (2004) Capturing lay perspectives in a randomized control trial of a health promotion intervention for people with osteoarthritis of the knee. J Eval Clin Pract 10:63–70PubMedCrossRef
33.
Zurück zum Zitat Hampson SE, Glasgow RE, Zeiss AM (1994) Personal models of osteoarthritis and their relation to self-management activities and quality of life. J Behav Med 17:143–158PubMedCrossRef Hampson SE, Glasgow RE, Zeiss AM (1994) Personal models of osteoarthritis and their relation to self-management activities and quality of life. J Behav Med 17:143–158PubMedCrossRef
34.
Zurück zum Zitat Rosemann T, Wensing M, Joest K, Backenstrass M, Mahler C, Szecsenyi J (2006) Problems and needs for improving primary care of osteoarthritis patients: the views of patients, general practitioners and practice nurses. BMC Musculoskelet Disord 7:48PubMedCentralPubMedCrossRef Rosemann T, Wensing M, Joest K, Backenstrass M, Mahler C, Szecsenyi J (2006) Problems and needs for improving primary care of osteoarthritis patients: the views of patients, general practitioners and practice nurses. BMC Musculoskelet Disord 7:48PubMedCentralPubMedCrossRef
35.
Zurück zum Zitat Gooberman-Hill R, French M, Dieppe P, Hawker G (2009) Expressing pain and fatigue: a new method of analysis to explore differences in osteoarthritis experience. Arthritis Rheum 61:353–360PubMedCrossRef Gooberman-Hill R, French M, Dieppe P, Hawker G (2009) Expressing pain and fatigue: a new method of analysis to explore differences in osteoarthritis experience. Arthritis Rheum 61:353–360PubMedCrossRef
36.
37.
Zurück zum Zitat Gustafsson BA, Ponzer S, Heikkilä K, Ekman SL (2007) The lived body and the perioperative period in replacement surgery: older people’s experiences. J Adv Nurs 60:20–28PubMedCrossRef Gustafsson BA, Ponzer S, Heikkilä K, Ekman SL (2007) The lived body and the perioperative period in replacement surgery: older people’s experiences. J Adv Nurs 60:20–28PubMedCrossRef
38.
Zurück zum Zitat Parsons GE, Godfrey H, Jester RF (2009) Living with severe osteoarthritis while awaiting hip and knee joint replacement surgery. Musculoskeletal Care 7:121–135PubMedCrossRef Parsons GE, Godfrey H, Jester RF (2009) Living with severe osteoarthritis while awaiting hip and knee joint replacement surgery. Musculoskeletal Care 7:121–135PubMedCrossRef
39.
Zurück zum Zitat Mann C, Gooberman-Hill R (2011) Health care provision for osteoarthritis: concordance between what patients would like and what health professionals think they should have. Arthritis Care Res 63:963–972CrossRef Mann C, Gooberman-Hill R (2011) Health care provision for osteoarthritis: concordance between what patients would like and what health professionals think they should have. Arthritis Care Res 63:963–972CrossRef
40.
Zurück zum Zitat McHugh GA, Silman AJ, Luker KA (2007) Quality of care for people with osteoarthritis: a qualitative study. J Clin Nurs 16:168–176PubMedCrossRef McHugh GA, Silman AJ, Luker KA (2007) Quality of care for people with osteoarthritis: a qualitative study. J Clin Nurs 16:168–176PubMedCrossRef
41.
Zurück zum Zitat Veenhof C, van Hasselt TJ, Koke AJ, Dekker J, Bijlsma JW, van den Ende CH (2006) Active involvement and long-term goals influence long-term adherence to behavioural graded activity in patients with osteoarthritis: a qualitative study. Aust J Physiother 52:273–278PubMedCrossRef Veenhof C, van Hasselt TJ, Koke AJ, Dekker J, Bijlsma JW, van den Ende CH (2006) Active involvement and long-term goals influence long-term adherence to behavioural graded activity in patients with osteoarthritis: a qualitative study. Aust J Physiother 52:273–278PubMedCrossRef
42.
Zurück zum Zitat Woolhead G, Gooberman-Hill R, Dieppe P, Hawker G (2010) Night pain in hip and knee osteoarthritis: a focus group study. Arthritis Care Res 62:944–949CrossRef Woolhead G, Gooberman-Hill R, Dieppe P, Hawker G (2010) Night pain in hip and knee osteoarthritis: a focus group study. Arthritis Care Res 62:944–949CrossRef
43.
Zurück zum Zitat Okma-Keulen P, Hopman-Rock M (2001) The onset of generalized osteoarthritis in older women: a qualitative approach. Arthritis Rheum 45:183–190PubMedCrossRef Okma-Keulen P, Hopman-Rock M (2001) The onset of generalized osteoarthritis in older women: a qualitative approach. Arthritis Rheum 45:183–190PubMedCrossRef
44.
Zurück zum Zitat Iversen MD, Fossel AH, Daltroy LH (1999) Rheumatologist-patient communication about exercise and physical therapy in the management of rheumatoid arthritis. Arthritis Care Res 12:180–192PubMedCrossRef Iversen MD, Fossel AH, Daltroy LH (1999) Rheumatologist-patient communication about exercise and physical therapy in the management of rheumatoid arthritis. Arthritis Care Res 12:180–192PubMedCrossRef
45.
Zurück zum Zitat Jette AM, Rooks D, Lachman M, Lin TH, Levenson C, Heislein D, Giorgetti MM, Harris BA (1998) Home-based resistance training: predictors of participation and adherence. Gerontologist 38:412–421PubMedCrossRef Jette AM, Rooks D, Lachman M, Lin TH, Levenson C, Heislein D, Giorgetti MM, Harris BA (1998) Home-based resistance training: predictors of participation and adherence. Gerontologist 38:412–421PubMedCrossRef
46.
Zurück zum Zitat Resnick B, Spellbring AM (2000) Understanding what motivates older adults to exercise. J Gerontol Nurs 26:34–42PubMed Resnick B, Spellbring AM (2000) Understanding what motivates older adults to exercise. J Gerontol Nurs 26:34–42PubMed
Metadaten
Titel
Attitudes of people with osteoarthritis towards their conservative management: a systematic review and meta-ethnography
verfasst von
Toby O. Smith
Rachel Purdy
Sarah Lister
Charlotte Salter
Robert Fleetcroft
Philip G Conaghan
Publikationsdatum
01.03.2014
Verlag
Springer Berlin Heidelberg
Erschienen in
Rheumatology International / Ausgabe 3/2014
Print ISSN: 0172-8172
Elektronische ISSN: 1437-160X
DOI
https://doi.org/10.1007/s00296-013-2905-y

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