Background
In 2012, NHS Direct was replaced with the new non-emergency `111’ telephone-based healthcare service. It was first introduced in 2010, followed by a national rollout in 2013. The aim was to provide a more integrated non-emergency service to provide a gateway for all non-urgent healthcare needs [
1]. Although the introduction of `111’ has marked the end of NHS Direct [
2], it has highlighted the increased role that telephone-based healthcare has within the NHS structure. Therefore, to understand patterns of NHS Direct uptake have provided an opportunity to learn valuable lessons about access and uptake of telephone healthcare based services. This knowledge can be applied to the `111’ telephone-based healthcare service, as well as services internationally, as countries worldwide adopt similar models of remote healthcare delivery [
3]-[
6].
NHS Direct provided 24 hour/7 day a week nurse led telephone-based healthcare advice and information to the public in England and Wales [
7],[
8] (see Additional file
1). This service, introduced in 1998, marked a strategic shift towards the self-care movement [
9] which encouraged the population to take an increased responsibility for their own health [
8],[
10],[
11]. Evidence suggests that self-care is linked to improved health outcomes, improved quality of life, increased empowerment and patient satisfaction [
11]-[
13] and has been viewed as beneficial in reducing hospital admissions [
14]. Consequently, self-care is now being viewed as an inextricable part of the individual care pathway, from maintaining a healthy lifestyle to caring for minor, acute and long-term health conditions [
15].
NHS Direct has been at the leading edge of remote healthcare systems, directing healthcare into the 21st Century through the application of new technology solutions in primary care [
16]. By 2011, NHS Direct received 8 million calls per year with reported high levels of satisfaction [
17]. Whilst evidence suggests that there is an increasing shift towards self-care [
11], with over 90% of people cited as being interested in taking more ownership of their health [
18], the pattern is not uniform across all sections of society. For example, self-care uptake (and NHS Direct usage) has previously been reported to be substantially lower in those who are older (85+) [
19], among the less affluent and deprived [
20],[
21] and minority ethnic groups [
22].
Uptake of telephone-based healthcare services has been explained by the technical performance and functional reliability of technology [
23], concerns of personal privacy and security [
22],[
24], money, perceived confidence to engage with health technology [
20],[
25],[
26] and severity of health symptom(s) [
25]. Perceived confidence to engage with health technology and severity of symptoms suggests that if an individual has low confidence to use health technology and has high perceived severity of illness, they are more likely to prefer face-to-face contact with a healthcare professional [
26] and less likely to see the benefits in self-care [
27]. Factors enabling self-care include awareness of the services, and service recommendation and signposting by healthcare professionals [
18].
There is a dearth of evidence exploring explanations for usage and non-usage of NHS Direct. As the provision of healthcare moves away from face-to-face contact between patient and practitioner there is a pressing need to understand the reasons for usage and non-usage of telephone-based healthcare services to ensure that all sections of society are able to maximise opportunities for self-care. To examine the usage of NHS Direct this research makes a small, but valuable contribution, to help understand the barriers and facilitators to usage of telephone-based healthcare services.
Results
Five themes emerged throughout the analysis of the transcripts which related to awareness of the service, costs to the individual, ease of use, time/speed, and acceptability of non-face-to-face healthcare. Similarities and differences between `users’ and `non-users’ are identified for these themes where relevant (Table
2).
Table 2
Overview of similarities and differences of barriers/facilitators across the sample groups towards using NHS Direct
Awareness of service
| • Good awareness and understanding of service | • Lack of awareness | • Lack of awareness |
• Most participants had used a wide range of services NHS Direct had e.g. online self-assessment tool | • Most participants had not heard of NHS Direct or services they provide | • Most participants had not heard of NHS Direct or services they provide |
• Some misunderstandings of what NHS Direct is | • Some misunderstandings of what NHS Direct is |
Cost to the individual
| • Most participants were not aware of the cost from a mobile phone | • Viewed as very expensive | • Expense was not viewed as a barrier |
• All participants had a landline phone | • Many of the participants did not have a landline phone | • All participants had a landline phone |
Ease of use
| • All participants found the service easy to use | • Some participants felt that this would be an easy to use service | • Difficulties in hearing over the phone |
• Viewed easier than using conventional out-of hours services | • Concern of complicated phone service with lots of options | • Dislike of answering lots of questions over phone |
• Being passed from person to person | • Difficulty of understanding foreign accents |
• Language barriers e.g. non English speaking | • Technical issues e.g. afraid of being cut off |
• Memory would make it difficult to use |
Time/Speed
| • Seen as instant advice and reassurance | • Concerned about waiting a long time for a call back | • Concerned about waiting a long time for a call back |
• Was viewed as a key advantage to using the service | • Was viewed as wasting time | • Was viewed as wasting time |
• Sometimes there was a long time to wait for a call back from a nurse |
Acceptability of non-face-to-face healthcare
| • Positive attitudes towards not having face-to-face contact | • Preference for face-to-face healthcare | • Preference for face-to-face healthcare |
• Provided reassurance | • Would feel that they are unable to express themselves | • Would feel that they are unable to express themselves |
• Viewed service as personable and professional | • Would not provide reassurance | • Would not provide reassurance |
• Was not viewed as personable | • Was not viewed as personable |
Awareness of service
Overall, NHS Direct users had a good awareness and understanding of the service. They were aware of all individual services on offer including the core triage provision, health information and medicine advice services. Many participants were also aware of the internet based services, including the health encyclopedia and the Self-Assessment Tool software, which many had used to receive a call back relating to symptoms either for themselves or their children. There was a variety of ways in which the participants had heard about NHS Direct. Many `users’ were directed to NHS Direct through their GP answer phone machine when they had phoned their surgery out of hours.
`When I first called it I had called my doctor and the doctors surgery didn’t have an out of hours so they actually give you the NHS Direct number so that’s how I knew the number’ (NHS Direct `user’, FG1)
However others were made aware of NHS Direct through their midwives when they had children.
`I think it was from the midwife when I had just given birth, she came to the house to do a check and she gave me the number then’ (NHS Direct `user’, FG1)
One participant saw the service advertised through yellow pages (a telephone directory), and also recalled seeing through local level advertising. In fact, a number of participants recalled a small credit card leaflet which had the telephone number on which participants could keep in their wallet.
`I think I knew through getting information through the post’.it was a white card with blue writing’ (NHS Direct `user’, FG2)
Conversely, in Manchester and Mendip there was a distinct lack of awareness was evident across all `non-user’ focus groups. Many of the participants had never heard about NHS Direct or the services that they provide. There were also uncertainties and misunderstandings of what services NHS Direct offered. For example, a number of participants thought that NHS Direct was a walk in clinic or provided an out of hours GP service.
`I’ve heard about it it’s supposed to make life easier or that’s all I have heard it supposed to do with phone calls or Internet and that’s about it’ (NHS Direct `non-user’, FG7)
`I think some people myself included are getting confused with people ringing NHS Direct with people who ring their out of hours duty officer’ (NHS Direct `non-user’, FG6)
Costs to the individual
NHS Direct operated from a `0845’ number, which is a cost of a local rate from a landline. However, the cost is substantially higher from a mobile phone when not covered by an inclusive minutes plan [
48]. It is important to note that the researcher did not explain the cost to identify awareness of this, so anything relating to cost was brought up by the participants.
Amongst the NHS Direct `users’ only one participant mentioned the cost of the phone call, whereby she spoke of her friend who was a single parent and could not access the service because of the expense incurred on the use of her mobile phone. Many of the `users’, use landlines to phone NHS Direct and were not aware of the cost implications to use a mobile phone. However, when they realised this all participants said that this would not affect future usage.
`She’s a single parent and she’s only got her mobile phone and she said the only issue she has because it’s an 0845 number and on her mobile it costs a lot’.because she only has her mobile its three, four, five pounds’ (NHS Direct `user’, FG1)
However, `non-users’ in the focus groups in Manchester were much more aware of the cost incurred when using NHS Direct, whereby this service was viewed as very expensive. Many of the participants did not have landline phones so had to rely on using mobile phones to access the service.
`The cost is a big issue especially if you don’t have a landline and if you have to do on a mobile phone if you are on pay-as-you-go then contract it’s dearer’ (NHS Direct `non-user’, FG7)
`It is a paid number it puts people off that it isn’t a free number we only get credit once a fortnight when we get paid on our phones it’s true we can’t phone up no one here has landline phones’ (NHS Direct `non-user’ FG8)
`The area that we live a lot of people who do have mobile phones that are pay-as-you-go, and it’s an extortionate amount that it costs on the phone. By the time you have got through your credit could go halfway through or even run out’ (NHS Direct `non-user’, FG7)
Participants felt that if something was seriously wrong they would just phone `999’ (emergency phone line in the UK) as this was a free number. The `non-users’ felt that if NHS Direct was free to access they would be more likely to use the service. Although, there were discussions of concern that surrounded how the money to cover the cost of the call would be subsidised and if this would subsequently lead to further cuts to local NHS health services.
`If you are really poorly and you have a mobile phone and you have no credit on there then you can’t ring NHS Direct but you can ring 999 and get an ambulance to you for free’ (NHS Direct `non-user’, FG7)
In contrast, the majority of the Mendip participants did not mention the cost of the telephone call throughout any of the focus group session. However, many did not use mobile phones and they all had access to a landline phone. At the end of the focus group the researcher explained that the calls are charged at a national rate and the cost may be substantially higher when using a mobile phone, but no participants advised that this would impact on their decision to use this service.
`Well not if it’s an emergency you would just pay it’ (NHS Direct `non-user’, FG6)
Ease of use
All of the participants who had used NHS Direct found the service easy to use with many participants highlighting that it was easier to use than using conventional out of hour’s services e.g. GP co-operatives, Accident and Emergency, pharmacies. The main benefit disclosed was that you would not have to leave the house.
`You don’t have to go through the process of packing and putting everyone in your car. You don’t have to leave all the children with such and such the ability to have to deal with the problem without having to up sticks also if you are on your own. If you feel rubbish you wouldn’t get in the car and drive’ (NHS Direct `user’, FG2)
However, for participants in the Manchester sample there was a mixed response. Whilst there were a few participants who felt that they would find NHS Direct easy to use, the majority felt that to use the telephone would involve many deterring issues. For example, there was a perception through prior experiences of use of telephone services that there were too many options which would make it more complicated to use.
`It’s supposed to make life easier but I spoke to a friend of mine who has used it because she’s a mum and she had to press that many options that she found it easier to get the doctors to come out than use NHS Direct (NHS Direct `non-user’, FG7)
Another perceived barrier which would impact on the ease of use, was the belief of being passed from person to person, which was felt as frustrating and would increase anxiety, especially when the call relates to an individual’s health. There were a number of issues about speaking to somebody on the telephone as opposed to face-to-face. For example, one non-user was dyslexic and stated that he finds it easier to speak to his GP face-to-face due to the difficulties to express himself.
`I’m dyslexic so it is better to see a doctor if I am ill so we can understand each other’ (NHS Direct `non-user’, FG9)
Another issue related to language barriers. For example, not speaking English fluently was felt to impact negatively upon ease of use and confidence of using the service. The researcher did explain that NHS Direct did operate a translation service `language line’. However, none of the participants were aware that this service existed.
`Some people might not be able to call NHS Direct because some people can’t speak English or their English isn’t very good especially if someone is living on their own and their English isn’t good or there’s been very little English obviously they won’t feel confident’ (NHS Direct `non-user’, FG9)
Particularly for the Mendip sample, there were a range of barriers that would impact on ease of use. The biggest concern related to hearing, where many of the participants relied on using their hearing aids that made it difficult to communicate over the telephone. They felt that this would prove difficult when they have to explain symptoms when they could not hear what was being asked of them.
`Relies on the person giving the call giving accurate description of their symptoms so they’re trying to explain how they feel and your elderly you can’t hear very well and you’re stressed and you’re on your own it’s not an ideal situation’ (NHS Direct `non-user’, FG5)
Hearing was also a concern in relation to whom they would speak to. Participants from Mendip highlighted that they found foreign accents difficult to understand on the phone and often had to ask them to repeat themselves which they felt would prove difficult.
`I know there have been instances where you have been confronted by an Asian voice which is incredibly difficult to understand what she was saying which can be a massive language barrier’ (NHS Direct `non-user’, FG4)
Participants from Mendip also discussed technical issues. For example, one participant from Creech, stated that there are a lot of technical issues related to the use of the telephone such as being cut off.
`In my opinion there is a lot of technical issues with the phone for example the line went dead so what do you do in that situation’ (NHS Direct `non-user’, FG5)
Other physiological barriers related to memory, which was also suggested to impact on the ease of use.
`People with memory problems wouldn’t be able to think or remember what to do, where to get the number etc.’ (NHS Direct `non-user’, FG6)
Time/speed
For NHS Direct `users’, speed to obtain healthcare advice was the key advantage of the service, whereby the majority of participants viewed this service to provide `instant advice and reassurance’, and valued being able to speak to a trained nurse or healthcare professional quickly.
`They give you immediate feedback on what you need to do when you are in that situation’ (NHS Direct `user’, FG2)
However, some NHS Direct `users’ did not agree with this perspective, and had some negative experiences that related to the amount of time it took to be called back by a nurse, and the time of day that they were called back e.g. being called during the middle of the night. For some participants, to wait a long time was perceived as reassurance, as it reflected that they were considered to be a low priority in terms of concern for their health condition.
`Apart from sometimes NHS Direct have taken 8 hours to phone me back I could have had an appointment in that time’ (NHS Direct `user’, FG2)
NHS Direct `non-users’ from Manchester and Mendip felt that waiting was a core barrier to use the service, whereby there was a distinct preference for instant face-to-face healthcare. Many of the participants shared concerns about the wait to be called back and did not like the thought of to wait on the telephone for long periods. There was a perception that NHS Direct was seen as a side step of out-of-hours care so was seen as `wasting time’.
`I know a young carer she’s 24 looking after her mum with dementia who has seizures and every time she has got through (to NHS Direct) she has said it has been quicker to find a doctor and the doctors come out quicker than that because when her mum is bad she can’t be spending 10 min on the phone’ (NHS Direct `non-user’, FG8)
However in contrast, two `non-users’, from Longsight, Manchester, felt that NHS Direct could save time to provide instant reassurance instead of going straight to an Accident and Emergency Department in a hospital.
`Accident and emergency is reduced (and you) save time’ (NHS Direct `non-user’, FG9)
`NHS Direct is more instant if a person does have a problem’ (NHS Direct `non-user’, FG9)
Communication and non-face-to-face healthcare
NHS Direct `users’ felt the service gave them reassurance and enabled them to make the decision whether to escalate their health concerns or not. They also felt it gave them the reassurance that they had sought advice from a trained healthcare professional. None of the NHS Direct `users’ were concerned that it was not a face-to-face service. In fact, many `users’ highlighted that they preferred the lack of face-to-face contact, and viewed the service as both personable and professional which provided them with the level of reassurance they needed.
`I think the relief that it gives you in order to have someone to speak to and that you have actually looked into it. It’s now like you can now get on and follow the guidance but knowing that it is the trained nurse that phones you back is just useful’ (NHS Direct `user’ FG1)
Conversely, `non-users’ from both Manchester and Mendip outlined an overarching preference for face-to-face healthcare. `Non-users’ felt that face-to-face healthcare offered more reassurance than speaking to somebody on the telephone. They also felt that if it was face-to-face they would be able to express themselves better and would feel more at ease to ask questions.
`If you felt that you needed reassurance you just take your children or yourself to hospital at least that way they can see you face-to-face or get the paramedic out then they would make that decision if you need to go to hospital’..to be honest face-to-face is really important because this is what reassures you and this has to be the best option’ (NHS Direct `non-user’, FG7)
`You can’t talk about that you have got a high pressure you can’t do that over the phone-often physical symptoms are important aren’t they so I think it’s very necessary to see a doctor face-to-face’ (NHS Direct `non-user’, FG4)
There were strong positive attitudes towards face-to-face communication. It was felt important by `non-users’ that an individual could express themselves through body language. It was also more personable when speaking to someone face-to-face. Participants agreed that personal face-to-face interaction with a healthcare professional is an integral aspect when seeking healthcare advice, which presented a barrier to using telephone-based health services such as NHS Direct.
`Seeing someone in person is friendlier like if you went to see someone and you talk to them you can see them and see them smiling at you and treated sympathetically but on the phone it’s different you don’t see’.I just think it is more personal rather than the telephone’ (NHS Direct `non-user’, FG9)
Discussion
This study has explored the barriers and facilitators to use NHS Direct, a hitherto under researched area. This research has uncovered explanations for usage and non-usage of NHS Direct. The core themes which emerged from the focus group discussions were related to awareness, costs to the individual, time/speed of the service and the acceptability of non-face-to-face communication. This research highlights that participants’ views on self-care varies by age, ethnicity and socio-demographic factors [
16].
NHS Direct `users’ held a good awareness of all services that NHS Direct provide. However, there was a distinct lack of awareness among the `non-users’. Whilst many individuals from both Mendip and Manchester had heard of NHS Direct through media and out-of-hours signposting, there was a clear misunderstanding, with many who believed that it was a walk in service that operates out-of-hours. This supports research that has suggested awareness of this service is low [
43],[
49] which indicates that the impact of previous advertising campaigns has been largely unsuccessful in reaching all sections of the population. It is clear that awareness is a core mechanism which impacts on health service uptake [
50] and, therefore, these findings reinforce the importance to provide clear information through tailored promotional campaigns to ensure all sections of the population are informed.
NHS Direct `users’ suggested that they did not view the cost to use NHS Direct was a barrier, with many not aware of the cost implications to use the service. Conversely, `non-users’ from Manchester felt the service was extremely costly, especially as many relied on pay as you go mobile phones. This view was not reported by `non-users’ from Mendip, which suggests that the cost of the service appears to be an access barrier for those in deprived communities who are unable to afford to use the service. As such, it appears that NHS Direct and other telephone-based services should be aware of the impact that cost may have on uptake by individuals from more deprived communities. Nonetheless, as the new non-emergency `111’ NHS phone line is rolled out nationally as a free service it will become even more important to communicate to the public that service has no cost, so this should not be a barrier to access.
A particular advantage of NHS Direct for `users’ was that the service was accessible and easy to use. However, the predominantly older Mendip sample felt that there would be issues that relate to hearing and memory that would impact on discussing healthcare information via the telephone. Older peoples’ access to modern technology has been extensively debated with research that suggests that, not only physiological changes associated with ageing such as decrements of sight, hearing, dexterity, motor functioning, co-orientation and cognitive processing can impact on newer models of healthcare [
51]-[
53], but also a wide range of psycho-social factors. For example, uptake has been strongly dependent on income, education, experiences, and attitudes [
54], with confidence that relates to ease of use, shown to influence significantly older people’s adoption and use of new technology [
54]-[
56]. There is an assumption that there should be a `universal’ take-up of technology [
57],[
58]. Whilst this assumption is challenged [
59], access to technology driven healthcare can be increased through two main ways: (1) ensure that the service is easy to use, and (2) through the provision of tailored information to enhance awareness of such services within the UK’s diverse population.
A key advantage for `users’ was that NHS Direct was a quick way to access advice and health information. However, `non-users’ discussed the preference for `instant’ face-to-face reassurance with NHS Direct viewed as a diversion. On the other hand, `non-users’ suggested a clear preference for more traditional face-to-face health services both in and out-of-hours. This appears to support previous literature that has identified that older people [
30],[
60], ethnic minority groups [
32],[
61] alongside those from socially deprived communities [
62], prefer and have more confidence with face-to-face healthcare communication. This could also relate to the fact that ethnic minority groups [
63], older people and those who are from more deprived backgrounds prefer doctor-centred healthcare [
64],[
65] and prefer to take a passive role in their health.
Whilst this research provided a wide overview of the facilitators and barriers of a telephone-based healthcare service there were some limitations that are noteworthy. Firstly, the NHS Direct `users’ focus groups only focused on one high `user’ group i.e. females with young children. This was also reflected by an imbalance between the numbers of participants in the `user’ versus `non-user’ focus groups (17 v 54). This imbalance is an outcome of the breadth of issues uncovered in the `non-user’ focus groups alongside the inclusion of `user’ focus groups which captured a diversity of opinion through a wide range of geographical and socio-cultural factors. Nonetheless, focus groups from other `user’ groups, such as younger adults aged 20-34, may have provided further insight into the barriers and facilitators of such health services.
Secondly, whilst there was an attempt to capture ethnic diversity, this was only evident in one focus group. As such, future research should aim to examine the barriers and facilitators of such services accounting for a wider variation of ethnicity. In particular, studies should focus on other `non-users’ (e.g. Eastern European, Chinese and Black African [
24]) to determine the range of cultural factors that impact on the engagement of telephone-based healthcare. Finally, some of the focus groups were existing groups, in particular the Mendip sample. There were clear challenges to recruit older participants, and whilst this may have created some bias, it showed to be a useful way to reach a `hard to reach’ community sample.
Competing interests
This research was jointly funded by the University of Bedfordshire and NHS Direct.