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Erschienen in: Quality of Life Research 10/2017

13.06.2017

Comparison of good days and sick days of school-age children with cancer reflected through their drawings

verfasst von: Lauri A. Linder, Heather Bratton, Anna Nguyen, Kori Parker, Susanna Phinney

Erschienen in: Quality of Life Research | Ausgabe 10/2017

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Abstract

Purpose

Childhood cancer disrupts children’s daily life experiences. Eliciting children’s perspectives regarding their life experiences during cancer treatment can be challenging. The purpose of this study was to characterize elementary school-age children’s “good days” and “sick days” through their drawings.

Methods

This study used draw-and-tell interviews, a developmentally sensitive arts-based technique that supports children’s recall and communication of information, facilitating a deeper understanding of children’s personal interpretation and meaning of a given phenomenon of interest. Children were asked to draw pictures representing both a “good day” and a “sick day.” Following completion of each drawing, research team members used a semi-structured interview guide to elicit children’s explanations of their pictures. Content analysis techniques were used to descriptively characterize children’s drawings followed by thematic analysis to identify commonalities.

Results

Participants were 27 children 6.33–12.83 years of age (mean 9.16 years; SD = 1.9) receiving treatment for cancer. “Good day” and “sick day” pictures were similar with regards to the presence of the child, the inclusion of other individuals, and the type of art medium used. Children’s pictures characterized “good days” as being happy, outside in sunny weather, and engaged in activities. In contrast, “sick days” were characterized as feeling sad, lying down or reclining, and experiencing illness-related symptoms.

Conclusions

Children’s drawings illustrate their capacity to provide rich personal data related to their “good days” and “sick days.” Incorporating arts-based strategies in the clinical setting may provide a child-centric strategy to understand the child’s perspective and direct interventions.
Literatur
2.
Zurück zum Zitat Vance, Y. H., & Eiser, C. (2002). The school experience of the child with cancer. Child: Care, Health and Development, 28(1), 5–19. Vance, Y. H., & Eiser, C. (2002). The school experience of the child with cancer. Child: Care, Health and Development, 28(1), 5–19.
4.
Zurück zum Zitat Baggott, C., Dodd, M., Kennedy, C., Matthay, K. K., & Miaskowski, C. (2010). Changes in children’s reports of symptom occurrence and severity during a course of myelosuppressive chemotherapy. Journal of Pediatric Oncology Nursing, 27(6), 307–315. doi:10.1177/1043454210377619.CrossRefPubMed Baggott, C., Dodd, M., Kennedy, C., Matthay, K. K., & Miaskowski, C. (2010). Changes in children’s reports of symptom occurrence and severity during a course of myelosuppressive chemotherapy. Journal of Pediatric Oncology Nursing, 27(6), 307–315. doi:10.​1177/​1043454210377619​.CrossRefPubMed
5.
Zurück zum Zitat Yeh, C. H., Wang, C. H., Chiang, Y. C., Lin, L., & Chien, L. C. (2009). Assessment of symptoms reported by 10- to 18-year-old cancer patients in Taiwan. Journal of Pain and Symptom Management, 38, 738–746.CrossRefPubMed Yeh, C. H., Wang, C. H., Chiang, Y. C., Lin, L., & Chien, L. C. (2009). Assessment of symptoms reported by 10- to 18-year-old cancer patients in Taiwan. Journal of Pain and Symptom Management, 38, 738–746.CrossRefPubMed
6.
Zurück zum Zitat Walker, A. J., Gedaly-Duff, V., Miaskowski, C., & Nail, L. (2010). Differences in symptom occurrence, frequency, intensity, and distress in adolescents prior to and one week after the administration of chemotherapy. Journal of Pediatric Oncology Nursing, 27, 259–265.CrossRefPubMed Walker, A. J., Gedaly-Duff, V., Miaskowski, C., & Nail, L. (2010). Differences in symptom occurrence, frequency, intensity, and distress in adolescents prior to and one week after the administration of chemotherapy. Journal of Pediatric Oncology Nursing, 27, 259–265.CrossRefPubMed
7.
Zurück zum Zitat Miller, E., Jacob, E., & Hockenberry, M. J. (2011). Nausea, pain, fatigue, and multiple symptoms in hospitalized children with cancer. Oncology Nursing Forum, 38, E382–E393.CrossRefPubMed Miller, E., Jacob, E., & Hockenberry, M. J. (2011). Nausea, pain, fatigue, and multiple symptoms in hospitalized children with cancer. Oncology Nursing Forum, 38, E382–E393.CrossRefPubMed
9.
Zurück zum Zitat Woodgate, R. L., Degner, L. F., & Yanofsky, R. (2003). A different perspective to approaching cancer symptoms in children. Journal of Pain and Symptom Management, 26, 800–817.CrossRefPubMed Woodgate, R. L., Degner, L. F., & Yanofsky, R. (2003). A different perspective to approaching cancer symptoms in children. Journal of Pain and Symptom Management, 26, 800–817.CrossRefPubMed
11.
Zurück zum Zitat Hicks, J., Bartholomew, J., Ward-Smith, P., & Hutto, C. J. (2003). Quality of life among childhood leukemia patients. Journal of Pediatric Oncology Nursing, 20, 192–200.CrossRefPubMed Hicks, J., Bartholomew, J., Ward-Smith, P., & Hutto, C. J. (2003). Quality of life among childhood leukemia patients. Journal of Pediatric Oncology Nursing, 20, 192–200.CrossRefPubMed
12.
Zurück zum Zitat Hinds, P. S., Gattuso, J. S., Fletcher, A., Baker, E., Coleman, B., Jackson, T., … Pui, C. H. (2004). Quality of life as conveyed by pediatric patients with cancer. Quality of Life Research, 13, 761–762. doi: 10.1023/B:QURE.0000021697.43165.87. Hinds, P. S., Gattuso, J. S., Fletcher, A., Baker, E., Coleman, B., Jackson, T., … Pui, C. H. (2004). Quality of life as conveyed by pediatric patients with cancer. Quality of Life Research, 13, 761–762. doi: 10.​1023/​B:​QURE.​0000021697.​43165.​87.
13.
Zurück zum Zitat Momani, T. G., Mandrell, B. N., Gattuso, J. S., West, N. K., Taylor, S. L., & Hinds, P. S. (2015). Children’s perspective on health-related quality of life during active treatment for acute lymphoblastic leukemia: an advanced content analysis approach. Cancer Nursing, 38, 49–58. doi:10.1097/NCC.0000000000000174.CrossRefPubMedPubMedCentral Momani, T. G., Mandrell, B. N., Gattuso, J. S., West, N. K., Taylor, S. L., & Hinds, P. S. (2015). Children’s perspective on health-related quality of life during active treatment for acute lymphoblastic leukemia: an advanced content analysis approach. Cancer Nursing, 38, 49–58. doi:10.​1097/​NCC.​0000000000000174​.CrossRefPubMedPubMedCentral
16.
Zurück zum Zitat Gross, J., Hayne, H., & Drury, T. (2008). Drawing facilitates children’s reports of factual and narrative information: Implications for educational contexts. Applied Cognitive Psychology, 23, 953–971. doi:10.1002/acp.1518.CrossRef Gross, J., Hayne, H., & Drury, T. (2008). Drawing facilitates children’s reports of factual and narrative information: Implications for educational contexts. Applied Cognitive Psychology, 23, 953–971. doi:10.​1002/​acp.​1518.CrossRef
17.
Zurück zum Zitat Butler, S., Gross, J., & Hayne, H. (1995). The effect of drawing on memory performance in young children. Developmental Psychology, 31, 597–608.CrossRef Butler, S., Gross, J., & Hayne, H. (1995). The effect of drawing on memory performance in young children. Developmental Psychology, 31, 597–608.CrossRef
21.
Zurück zum Zitat Stefanatou, A., & Bowler, D. (1997). Depiction of pain in the self-drawings of children with sickle cell disease. Child: Care Health, and Development, 23, 135–155. Stefanatou, A., & Bowler, D. (1997). Depiction of pain in the self-drawings of children with sickle cell disease. Child: Care Health, and Development, 23, 135–155.
22.
Zurück zum Zitat Gabriels, R. L., Wamboldt, M. S., McCormick, D. R., Adams, T. L., & McTaggart, S. R. (2000). Children’s illness drawings and asthma symptom awareness. Journal of Asthma, 37, 565–574.CrossRefPubMed Gabriels, R. L., Wamboldt, M. S., McCormick, D. R., Adams, T. L., & McTaggart, S. R. (2000). Children’s illness drawings and asthma symptom awareness. Journal of Asthma, 37, 565–574.CrossRefPubMed
23.
Zurück zum Zitat Druin, A. (1999). Cooperative inquiry: Developing new technologies for children with children. In Proceedings of the SIGCHI conference on Human factors in computing systems: The CHI is the limit (pp. 592–599). Association for Computing Machinery. Retrieved from http://hcil2.cs.umd.edu/trs/99-14/99-14.html. Druin, A. (1999). Cooperative inquiry: Developing new technologies for children with children. In Proceedings of the SIGCHI conference on Human factors in computing systems: The CHI is the limit (pp. 592–599). Association for Computing Machinery. Retrieved from http://​hcil2.​cs.​umd.​edu/​trs/​99-14/​99-14.​html.
25.
Zurück zum Zitat Krippendorff, K. H. (2004). Content analysis: An introduction to its methodology (2nd ed.). Thousand Oaks, CA: Sage Publications. Krippendorff, K. H. (2004). Content analysis: An introduction to its methodology (2nd ed.). Thousand Oaks, CA: Sage Publications.
Metadaten
Titel
Comparison of good days and sick days of school-age children with cancer reflected through their drawings
verfasst von
Lauri A. Linder
Heather Bratton
Anna Nguyen
Kori Parker
Susanna Phinney
Publikationsdatum
13.06.2017
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 10/2017
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1621-6

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