Corretion to: Orphanet J Rare Dis (2019) 14:98
https://doi.org/10.1186/s13023-019-1068-7
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The original version of this article [1] unfortunately included an error to an author’s name. Author Maja Di Rocco was erroneously presented as Maja DiRocco.
The correct author name has been included in the author list of this Correction article and is already updated in the original article.
For additional clarity, the Correction article also provides below an updated Table 2.
Table 2
Demographics and Baseline Disease by Age Category
<8 Yrs (N=17) | 8 to <15 Yrs (N=36) | 15 to <25 Yrs (N=34) | ≥25 to ≤65 Yrs (N=27) | Total (N=114) | |
|---|---|---|---|---|---|
Males, n (%) | 9 (52.9) | 24 (66.7) | 16 (47.1) | 13 (48.1) | 62 (54.4) |
Age (years) | |||||
Mean ±SD | 5.9 ±1.1 | 11.4 ±2.1 | 18.9 ±3.1 | 31.7 ±6.7 | 17.6 ±9.7 |
Median (min, max) | 6.0 (4, 7) | 11.0 (8, 14) | 18.5 (15, 24) | 30.0 (25, 56) | 15.0 (4, 56) |
Age at 1st flare-up | |||||
Mean ±SD | 2.9 ±2.1 | 4.4 ±3.6 | 5.6 ±4.8 | 7.1 ±5.0 | 5.2 ±4.4 |
Median (min, max) | 2.0 (1, 6) | 4.0 (0, 13) | 3.5 (0, 17) | 5.0 (0, 20) | 4.0 (0, 20) |
Years since last flare-up | |||||
Mean ±SD | 0.7 ±0.9 | 1.5 ±2.8 | 1.5 ±1.9 | 2.3 ±3.5 | 1.6 ±2.6 |
Median (min, max) | 0.3 (0, 3) | 0.5 (0, 14) | 0.7 (0, 7) | 0.9 (0, 15) | 0.5 (0, 15) |
Number of flare-ups in the past 12 months (in those with flare-ups) | |||||
n | 13 | 25 | 21 | 17 | 76 |
Mean ±SD | 2.9 ±2.6 | 6.8 ±11.2 | 2.2 ±1.8 | 1.9 ±1.6 | 3.8 ±6.9 |
Median (min, max) | 2.0 (1, 10) | 2.0 (1, 40) | 1.0 (1, 8) | 1.0 (1, 7) | 2.0 (1, 40) |
CAJIS total score1 | |||||
Mean ±SD | 5.6 ±3.9 | 9.2 ±4.6 | 13.9 ±6.7 | 16.5 ±7.3 | 11.8 ±7.0 |
Median (min, max) | 6.0 (1, 15) | 8.5 (1, 20) | 13.5 (1, 26) | 18.0 (1, 30) | 10.5 (1, 30) |
FOP-PFQ % worst total score2 | |||||
Mean ±SD | 34.8 ±26.1 | 44.4 ±20.2 | 43.1 ±31.0 | 58.4 ±35.8 | 46.3 ±27.1 |
Median (min, max) | 41.8 (1, 84.6) | 45.2 (1.9, 82.7) | 38.4 (0, 100) | 54.5 (0, 100) | 45.5 (0, 100) |
PROMIS Global Physical Health (adult) or PROMIS Global Health (pediatric, parent proxy) (T-score)3 | |||||
Mean ±SD | 47.6 ±9.4 | 41.8 ±8.7 | 44.1 ±9.0 | 42.5 ±7.9 | NA |
Median (min, max) | 48.3 (33, 24) | 41.7 (24, 57) | 44.9 (24, 68) | 42.3 (27, 54) | |
PROMIS Global Mental Health (adult) (T-score)3 | |||||
Mean ±SD | NA | NA | 53.6 ±9.9 | 51.4 ±8.5 | 52.6 ±9.3 |
Median (min, max) | 53.3 (28, 68) | 53.3 (39, 68) | 53.3 (28, 68) | ||
Total body HO volume, excluding head (mm3) | |||||
Mean ±SD | 61951 ±75221 | 159303 ±161779 | 380751 ±363142 | 651913 ±674454 | 324631 ±440977 |
Median (min, max) | 21692 (0, 224019) | 130509 (0, 828262) | 258543 (0, 1504849) | 481524 (48844, 2833946) | 173536 (0, 2833946) |
Number of regions with HO4 | |||||
Mean ±SD | 3.1 ±2.6 | 5.1 ±2.7 | 7.4 ±3.4 | 8.8 ±3.7 | 6.4 ±3.7 |
Median (min, max) | 4.0 (0, 7) | 5.0 (0, 14) | 8.0 (0, 13) | 8.5 (3, 14) | 6.0 (0, 14) |
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