Background
Methods
Study design
Participants
The patient questionnaire
Literature research
Focus group
The physician questionnaire
Data collection and analysis
Results
Participants
Characteristic | Total |
---|---|
Median age (IQR) – yr. | 63 (58–70) |
Gender - % | |
Male | 64 |
Female | 36 |
Residence - % | |
Rural | 45 |
City | 55 |
Access to internet - % | |
Yes | 95 |
No | 5 |
Employment in health care - % | |
Yes | 17 |
No | 83 |
Type of questionnaire - % | |
Paper | 48 |
Digital | 52 |
Control preferences scale, preferred role - % | |
Autonomous | 16 |
Collaborative | 59 |
Passive | 26 |
Education - % | |
Low | 36 |
Middle | 28 |
High | 37 |
Characteristic | Total |
---|---|
Median age (IQR) - yr. | 35 (32–54) |
Median work experience (IQR) - yr. | 4 (2–16) |
Gender - % | |
Male | 31 |
Female | 69 |
Title - % | |
Haematologist | 62 |
Resident haematology | 38 |
Patient questionnaire
Item | Disagree | Neutral | Agree |
---|---|---|---|
I would like to see the following about myself in the electronic patient portal | |||
1. Laboratory results | 5 | 13 | 81 |
2. Imaging results | 6 | 16 | 78 |
3. Medical patient file | 4 | 10 | 86 |
4. Reporting to other physicians | 5 | 13 | 82 |
5. Appointments in the hospital | 3 | 5 | 91 |
6. Personal data | 5 | 9 | 87 |
7. Current medication list | 4 | 5 | 91 |
8. Medication history | 5 | 14 | 81 |
I would like to have the following other functionalities in the patient portal | |||
9. Make appointments | 4 | 19 | 77 |
10. Reminder for appointments | 4 | 11 | 85 |
11. Request medication recipe | 3 | 10 | 87 |
12. Change personal data | 3 | 6 | 91 |
13. Make personal notes | 15 | 32 | 53 |
14. Fill out questionnaires | 6 | 25 | 69 |
15. Medication information | 3 | 11 | 86 |
16. Disease information | 4 | 16 | 80 |
17. Glossary of medical jargon | 5 | 14 | 82 |
18. Patient organization information | 6 | 28 | 66 |
I would like to see the information above (item 1–8) about myself in the portal at the following moment | |||
19. Directly when available | 10 | 19 | 71 |
20. After my physician discussed them with me | 7 | 12 | 82 |
I would like to have the following communication options | |||
21. With fellow patients | 23 | 51 | 26 |
22. With allied health professionals | 20 | 41 | 39 |
23. With my own physician | 4 | 9 | 88 |
The following is important to me about patient portal safety | |||
24. Decide by myself about who gets access | 7 | 8 | 85 |
25. Secure access | 4 | 5 | 91 |
I would like to give the following persons full access to my patient portal, besides myself | |||
26. Partner | 4 | 8 | 88 |
27. Volunteer caregiver | 35 | 35 | 30 |
28. General practitioner | 2 | 3 | 95 |
29. Other physicians in hospital | 4 | 10 | 86 |
I would like to give the following persons partial access to my patient portal, besides myself | |||
30. Other physicians in hospital | 3 | 8 | 89 |
31. Other health care professionals | 19 | 26 | 56 |
32. Nurses | 12 | 21 | 67 |
33. Apothecary | 12 | 20 | 69 |
The following is important to me about the patient portal access | |||
34. Use it for clinic appointment preparation | 4 | 16 | 81 |
35. See what my physician writes about me | 4 | 13 | 83 |
36. Control my health care situation | 3 | 14 | 83 |
37. Use it as a reference after a clinic appointment | 4 | 9 | 88 |
38. I think it’s my right to see my results and file | 3 | 14 | 84 |
39. Usage of plain language instead of physicians’ jargon | 5 | 14 | 81 |
40. Information only opens after deliberately opening, not spontaneously | 12 | 13 | 75 |
I have the following concerns about the patient portal | |||
41. Worry when I see results before the clinic appointment with my physician | 33 | 16 | 51 |
42. Receive information I don’t understand without my physician’s help | 25 | 15 | 60 |
43. The clinic appointment is focused more on portal details, instead of a personal conversation with my physician | 26 | 25 | 50 |
44. My physician expects me to study my portal information before attending an appointment | 26 | 18 | 56 |
Physician questionnaire
Item | Disagree | Neutral | Agree |
---|---|---|---|
The following is important to me about patients accessing the portal | |||
1. Patients study the portal information before attending an appointment | 31 | 62 | 8 |
2. Patients can see what we write about them | 15 | 54 | 31 |
3. Patients can have all results available to them | 15 | 15 | 69 |
4. Patients can use the portal as reference after an appointment | 15 | 0 | 85 |
5. It more actively involves patients with their treatment | 0 | 23 | 77 |
6. I think patients have the right to see their data | 0 | 15 | 85 |
7. Portal information is written in plain language without medical jargon | 39 | 39 | 23 |
8. Patients can only open information deliberately | 0 | 15 | 85 |
9. The information to patients only is available when results are definite | 0 | 0 | 100 |
10. The patient can not see information before an appointment with a physician | 0 | 0 | 100 |
11. The patient is able to contact the hospital more easy | 15 | 31 | 54 |
12. The patient is able to contact other patients | 31 | 39 | 31 |
I worry about the following, when patients will use the patient portal | |||
13. Patients get worried about accessing information before a physician appointment | 0 | 8 | 92 |
14. Patients obtain information they don’t understand without the physicians’ support | 0 | 0 | 100 |
15. The clinic appointment is focused more on portal details, instead of a personal conversation with the patient | 8 | 15 | 77 |
16. The patient might feel obligated to study the patient portal before an appointment | 46 | 39 | 15 |
17. The doctor-patient relationship might change | 8 | 46 | 46 |
18. My workload might increase | 15 | 31 | 54 |
19. I would get technical questions about the portal by patients | 8 | 46 | 46 |
20. I might not respond soon enough to digital conversations and therefore the patient relationship changes | 8 | 39 | 54 |
21. My schedule might have to change to account for patient portal activities | 0 | 39 | 62 |