Erschienen in:
21.08.2017 | Editorial
Future of Haemophilia Research in India
verfasst von:
Kanjaksha Ghosh, Rinku Shukla
Erschienen in:
Indian Journal of Hematology and Blood Transfusion
|
Ausgabe 4/2017
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Excerpt
Haemophilia represents a high-cost, low-volume disease [
1]. Hence, in developing countries where 90% of haemophilia patients of the world live, it puts the government of the day in a conundrum, i.e. the limited resources of that country earmarked for health need to be distributed amongst management and prevention of various diseases which optimally helps the population of the country. Hence, there is a need for developing research protocols suitable for that country in an evidence-based manner. Haemophilia research in India is one of the examples of need-based research, often driven by patient organizations like the Haemophilia Federation of India [
2]. In the last 30 years, a large number of research papers in haemophilia have contributed materially to our diagnostics, management and training of manpower in the country [
3]. …
