Skip to main content
Erschienen in: Quality of Life Research 2/2008

01.03.2008

Health-related quality of life (HRQoL) domains most valued by urban IsiXhosa-speaking people

verfasst von: Jennifer Jelsma, Siviwe Mkoka, Seyi Ladele Amosun

Erschienen in: Quality of Life Research | Ausgabe 2/2008

Einloggen, um Zugang zu erhalten

Abstract

Purpose

The aim of the study was to investigate and identify aspects of health-related quality of life (HRQoL) that are most valued by IsiXhosa-speaking people resident in underresourced areas of Cape Town, South Africa.

Methodology

Fifty-seven domains of HRQoL were identified as important through group discussions with IsiXhosa-speaking people. Participants randomly selected from the community (n = 601) and from individuals seeking medical attention at a local clinic (n = 102) graded the domains on a visual analogue scale (VAS) ranging from 0 for “not at all important” to 10 for “ very important”. The domains were then mapped to the categories of the International Classification of Functioning, Disability and Health.

Results

The domains regarded as being most important were Food availability [9.5, standard deviation (SD) = 1.52), Owning a brick house (9.4, SD = 1.57), Access to medical services (9.4, SD = 1.55) and Family safety (9.4, SD = 1.7). Having no bodily pain ranked 40th. Environmental Factors were valued significantly more than the other two categories, and those related to Body Functions were valued higher than domains in the category of Activity and Participation.

Discussion and conclusion

Despite being asked specifically to answer the questions in relation to their health status, the participants apparently did not differentiate between general quality of life (QoL) and specific HRQoL. It appears that members of an underresourced community regard socioeconomic and service delivery aspects of their lives as integral to their perceived state of health. It may be that it is not possible to separate out factors relating to general QoL from those specifically related to HRQoL in an underresourced population, and such populations might not be suitable for inclusion in certain clinical trials where an improvement in HRQoL is the required outcome. Alternatively, if an HRQoL instrument is to be used to monitor the impact of medical interventions, the inclusion of Environmental Factors should be considered.
Anhänge
Nur mit Berechtigung zugänglich
Literatur
1.
Zurück zum Zitat Mkoka, S., Jelsma, J., & Vaughan, J. (2003). The pitfalls of translation. South African Medical Journal, 93, 265–266.PubMed Mkoka, S., Jelsma, J., & Vaughan, J. (2003). The pitfalls of translation. South African Medical Journal, 93, 265–266.PubMed
2.
Zurück zum Zitat Jelsma, J., Amosun, D., Mkoka, S., & Nieuwveld, J. (2004). The reliability and validity of the Xhosa version of the EQ-5D. Disability and Rehabilitation, 26, 103–108.PubMedCrossRef Jelsma, J., Amosun, D., Mkoka, S., & Nieuwveld, J. (2004). The reliability and validity of the Xhosa version of the EQ-5D. Disability and Rehabilitation, 26, 103–108.PubMedCrossRef
3.
Zurück zum Zitat Jelsma, J., De Weerdt, W., De Cock, P., Mielke, J., & Mhundwa, K. (2002). The validity of the Shona Version of the EQ-5D quality of life measure. South African Journal of Physiotherapy, 58, 8–12. Jelsma, J., De Weerdt, W., De Cock, P., Mielke, J., & Mhundwa, K. (2002). The validity of the Shona Version of the EQ-5D quality of life measure. South African Journal of Physiotherapy, 58, 8–12.
4.
Zurück zum Zitat O’Keefe, E. A., & Wood, R. (1996). The impact of human immunodeficiency virus infection on quality of life in a multiracial South African population. Quality of Life Research, 5, 275–280.PubMedCrossRef O’Keefe, E. A., & Wood, R. (1996). The impact of human immunodeficiency virus infection on quality of life in a multiracial South African population. Quality of Life Research, 5, 275–280.PubMedCrossRef
5.
Zurück zum Zitat World Health Organization. (2001). International Classification of Functioning, Disability and Health—short version. Geneva: World Health Organization. World Health Organization. (2001). International Classification of Functioning, Disability and Health—short version. Geneva: World Health Organization.
6.
Zurück zum Zitat Rosenbaum, P., & Stewart, D. (2004). The World Health Organization international classification of functioning, disability, and health: A model to guide clinical thinking, practice and research in the field of cerebral palsy. Seminars in Pediatric Neurology, 11, 5–10.PubMedCrossRef Rosenbaum, P., & Stewart, D. (2004). The World Health Organization international classification of functioning, disability, and health: A model to guide clinical thinking, practice and research in the field of cerebral palsy. Seminars in Pediatric Neurology, 11, 5–10.PubMedCrossRef
10.
Zurück zum Zitat Jelsma, J., MacLean, E., Hughes, J., Tinise, X., & Darder, M. (2004). An investigation into the health related quality of life of individuals living with HIV who are receiving Highly Active Anti-retroviral Therapy (HAART). AIDS Care, 17, 579–588. Jelsma, J., MacLean, E., Hughes, J., Tinise, X., & Darder, M. (2004). An investigation into the health related quality of life of individuals living with HIV who are receiving Highly Active Anti-retroviral Therapy (HAART). AIDS Care, 17, 579–588.
11.
Zurück zum Zitat Jelsma, J., Maart, S., Eide, A., Ka’toni, M., & Loeb, M. (2007). The determinants of health-related quality of life in urban and rural IsiXhosa-speaking people with disabilities. International Journal of Rehabilitation Research, 30, 119–126.PubMedCrossRef Jelsma, J., Maart, S., Eide, A., Ka’toni, M., & Loeb, M. (2007). The determinants of health-related quality of life in urban and rural IsiXhosa-speaking people with disabilities. International Journal of Rehabilitation Research, 30, 119–126.PubMedCrossRef
12.
Zurück zum Zitat Lamers, L., McDonnell, J., Stalmeier, P., Krabbe, P., & Busschbach, J. (2006). The Dutch tariffs: Results and arguments for a cost-effective design for national EQ-5D valuation studies. Health Economics, 15, 1121–1131.PubMedCrossRef Lamers, L., McDonnell, J., Stalmeier, P., Krabbe, P., & Busschbach, J. (2006). The Dutch tariffs: Results and arguments for a cost-effective design for national EQ-5D valuation studies. Health Economics, 15, 1121–1131.PubMedCrossRef
13.
Zurück zum Zitat Wilson, K. L., & Lizzio, A. (1997). The development, validation and application of the course experience questionnaire. Studies in Higher Education, 22, 33–53.CrossRef Wilson, K. L., & Lizzio, A. (1997). The development, validation and application of the course experience questionnaire. Studies in Higher Education, 22, 33–53.CrossRef
14.
Zurück zum Zitat Feeny, D. H., & Torrance, G. W. (1989). Incorporating utility-based quality-of-life assessment measures in clinical trials. Two examples. Medical Care, 27, S190–S204.PubMedCrossRef Feeny, D. H., & Torrance, G. W. (1989). Incorporating utility-based quality-of-life assessment measures in clinical trials. Two examples. Medical Care, 27, S190–S204.PubMedCrossRef
15.
Zurück zum Zitat Brooks, R., & EuroQol Group. (1996). EuroQol: The current state of play. Health Policy, 37, 53–72.PubMedCrossRef Brooks, R., & EuroQol Group. (1996). EuroQol: The current state of play. Health Policy, 37, 53–72.PubMedCrossRef
16.
Zurück zum Zitat World Health Organization. (2001). International Classification of Functioning, Disability and Health—browser version. Geneva: World Health Organization. World Health Organization. (2001). International Classification of Functioning, Disability and Health—browser version. Geneva: World Health Organization.
17.
18.
Zurück zum Zitat Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Hillsdale, NJ: Lawrence Earlbaum. Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Hillsdale, NJ: Lawrence Earlbaum.
19.
Zurück zum Zitat Atijosan, O., Kuper, H., Rischewski, D., Simms, V., & Lavy, C. (2007). Musculoskeletal impairment survey in Rwanda: Design of survey tool, survey methodology, and results of the pilot study (a cross-sectional survey). BMC Musculoskeletal Disorders, 8, 30.PubMedCrossRef Atijosan, O., Kuper, H., Rischewski, D., Simms, V., & Lavy, C. (2007). Musculoskeletal impairment survey in Rwanda: Design of survey tool, survey methodology, and results of the pilot study (a cross-sectional survey). BMC Musculoskeletal Disorders, 8, 30.PubMedCrossRef
20.
Zurück zum Zitat Jelsma, J., Mielke, J., Powell, G., Fox, B., Weerdt, W. D., & Cock, P. D. (2002). Disability in an urban black community in Zimbabwe. Disability and Rehabilitation, 24, 851–859.PubMedCrossRef Jelsma, J., Mielke, J., Powell, G., Fox, B., Weerdt, W. D., & Cock, P. D. (2002). Disability in an urban black community in Zimbabwe. Disability and Rehabilitation, 24, 851–859.PubMedCrossRef
21.
Zurück zum Zitat Statistics South Africa. (2005). Data census 2001: Primary tables Western Cape: Census 1996 and 2001 compared. In Statistics South Africa, 2005, Government of South Africa, Pretoria. Statistics South Africa. (2005). Data census 2001: Primary tables Western Cape: Census 1996 and 2001 compared. In Statistics South Africa, 2005, Government of South Africa, Pretoria.
22.
Zurück zum Zitat Furlong, W. J., Feeny, D. H., Torrance, G. W., & Barr, R. D. (2001). Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies. Annals of Medicine, 33, 375–384.PubMed Furlong, W. J., Feeny, D. H., Torrance, G. W., & Barr, R. D. (2001). Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies. Annals of Medicine, 33, 375–384.PubMed
23.
Zurück zum Zitat Essink-Bot, M., Krabbe, P., Bonsel, G., & Aaronson, N. (1997). An empirical comparison of four generic health status measures. Medical Care, 35, 522–537.PubMedCrossRef Essink-Bot, M., Krabbe, P., Bonsel, G., & Aaronson, N. (1997). An empirical comparison of four generic health status measures. Medical Care, 35, 522–537.PubMedCrossRef
24.
Zurück zum Zitat Jelsma, J., Chivaura, V., De Cock, P., & De Weerdt, W. (2000). A bridge between cultures: A report on the process of translating the EQ-5D instrument into Shona. South African Journal of Physiotherapy, 56, 3–9. Jelsma, J., Chivaura, V., De Cock, P., & De Weerdt, W. (2000). A bridge between cultures: A report on the process of translating the EQ-5D instrument into Shona. South African Journal of Physiotherapy, 56, 3–9.
25.
Zurück zum Zitat Paul, D. (1999). Biological and biopsychosocial models of health and disease in dentistry. Journal of Canadian Dental Association, 65, 496–497. Paul, D. (1999). Biological and biopsychosocial models of health and disease in dentistry. Journal of Canadian Dental Association, 65, 496–497.
Metadaten
Titel
Health-related quality of life (HRQoL) domains most valued by urban IsiXhosa-speaking people
verfasst von
Jennifer Jelsma
Siviwe Mkoka
Seyi Ladele Amosun
Publikationsdatum
01.03.2008
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 2/2008
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-007-9304-3

Weitere Artikel der Ausgabe 2/2008

Quality of Life Research 2/2008 Zur Ausgabe