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Erschienen in: Quality of Life Research 12/2017

05.08.2017

Health-related quality of life in Spanish informal caregivers: gender differences and support received

verfasst von: María del Río Lozano, María del Mar García-Calvente, Jesús Calle-Romero, Mónica Machón-Sobrado, Isabel Larrañaga-Padilla

Erschienen in: Quality of Life Research | Ausgabe 12/2017

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Abstract

Purpose

We analyzed gender differences in health-related quality of life (HRQoL) and associated factors between informal male and female caregivers in Spain. It is important because of growing rates of dependent people and dwindling public resources.

Methods

We conducted a cross-sectional study of 610 informal caregivers (265 male and 345 female) using an ad hoc structured questionnaire. We performed a descriptive analysis and used multivariate logistic regression to analyze the risk of poor HRQoL, measured with the EQ-5D-5L, according to caregiver sex, sociodemographic characteristics of caregivers and dependents, caregiving circumstances, and support received.

Results

Male caregivers were older than women were, and cared more often for their partners. More women used family caregiving allowance (FCA), respite care services, and counseling services, while more men used paid help, home help, and other forms of instrumental help. Women had worse HRQoL than men, particularly in the pain/discomfort dimension. In addition to older age and poor previous health, caring for a partner (OR = 2.379), for a person with major dependence (OR = 1.917), low social class (OR = 1.634), and low social support (OR = 2.311) were factors associated with poor HRQoL. Receiving FCA was associated with better HRQoL (OR = 0.319). Controlling for all these variables, women had 131% more odds than men to have poor HRQoL.

Conclusions

Male and female caregivers in Spain differ in received support and how their HRQoL is affected. These differences are important to design interventions to promote more equitable sharing of care responsibilities and better caregiver health.
Literatur
1.
Zurück zum Zitat Organisation for Economic Co-operation and Development. (2011). Help wanted? providing and paying for long-term care. Paris: OECD. Organisation for Economic Co-operation and Development. (2011). Help wanted? providing and paying for long-term care. Paris: OECD.
2.
Zurück zum Zitat Moreno, S., Recio, C., Borràs, V., & Torns, T. (2016). Significados e imaginarios de los cuidados de larga duración en España. Una aproximación cualitativa desde el discurso de las cuidadoras (Meaning and imagery of long-term care in Spain. A qualitative approach from the caregivers’ discourse). Papeles del CEIC, 2016/1(145), CEIC (Centro de Estudios sobre la Identidad Colectiva), Universidad del País Vasco. doi: 10.1387/pceic.15195. Moreno, S., Recio, C., Borràs, V., & Torns, T. (2016). Significados e imaginarios de los cuidados de larga duración en España. Una aproximación cualitativa desde el discurso de las cuidadoras (Meaning and imagery of long-term care in Spain. A qualitative approach from the caregivers’ discourse). Papeles del CEIC, 2016/1(145), CEIC (Centro de Estudios sobre la Identidad Colectiva), Universidad del País Vasco. doi: 10.​1387/​pceic.​15195.
3.
Zurück zum Zitat Del Río-Lozano, M., García-Calvente, M. M., Marcos-Marcos, J., Entrena-Durán, F., & Maroto-García, G. (2013). Gender identity in informal care: Impact on health in Spanish Caregivers. Qualitative Health Research, 23(11), 1506–1520. doi:10.1177/1049732313507144.CrossRefPubMed Del Río-Lozano, M., García-Calvente, M. M., Marcos-Marcos, J., Entrena-Durán, F., & Maroto-García, G. (2013). Gender identity in informal care: Impact on health in Spanish Caregivers. Qualitative Health Research, 23(11), 1506–1520. doi:10.​1177/​1049732313507144​.CrossRefPubMed
4.
Zurück zum Zitat Masedo-Gutiérrez, A. I., & Swenson, N. (2015). Past, present and future of caregiving. AASCIT Journal of Health, 2(1), 1–6. Masedo-Gutiérrez, A. I., & Swenson, N. (2015). Past, present and future of caregiving. AASCIT Journal of Health, 2(1), 1–6.
5.
Zurück zum Zitat Masanet, E., & La Parra, D. (2011). Relación entre el número de horas de cuidado informal y el estado de salud mental de las personas cuidadoras (Relationship between the number of informal care hours and the mental health status of caregivers). Revista Española de Salud Pública, 85, 257–266. doi:10.1590/S1135-57272011000300004.CrossRefPubMed Masanet, E., & La Parra, D. (2011). Relación entre el número de horas de cuidado informal y el estado de salud mental de las personas cuidadoras (Relationship between the number of informal care hours and the mental health status of caregivers). Revista Española de Salud Pública, 85, 257–266. doi:10.​1590/​S1135-5727201100030000​4.CrossRefPubMed
6.
Zurück zum Zitat Thomas, G. P. A., Saunders, C. L., Roland, M. O., & Paddison, C. A. M. (2015). Informal carers’ health-related quality of life and patient experience in primary care: Evidence from 195.364 carers in England responding to a national survey. BMC Family Practice, 16(1), 62. doi:10.1186/s12875-015-0277-y.CrossRefPubMedPubMedCentral Thomas, G. P. A., Saunders, C. L., Roland, M. O., & Paddison, C. A. M. (2015). Informal carers’ health-related quality of life and patient experience in primary care: Evidence from 195.364 carers in England responding to a national survey. BMC Family Practice, 16(1), 62. doi:10.​1186/​s12875-015-0277-y.CrossRefPubMedPubMedCentral
7.
Zurück zum Zitat Perrin, P. B., Panyavin, I., Morlett, A., et al. (2015). A disproportionate burden of care: Gender differences in mental health, health-related quality of life, and social support in mexican multiple sclerosis caregivers. Behavioural Neurology. doi:10.1155/2015/283958. Perrin, P. B., Panyavin, I., Morlett, A., et al. (2015). A disproportionate burden of care: Gender differences in mental health, health-related quality of life, and social support in mexican multiple sclerosis caregivers. Behavioural Neurology. doi:10.​1155/​2015/​283958.
8.
Zurück zum Zitat González-de Paz, L., Real, J., Borrás-Santos, A., Martínez-Sánchez, J. M., Rodrigo-Baños, V., & Navarro-Rubio, M. D. (2016). Associations between informal care, disease, and risk factors: A Spanish country-wide population-based study. Journal of Public Health Policy, 37, 173–189. doi:10.1057/jphp.2016.3.CrossRefPubMed González-de Paz, L., Real, J., Borrás-Santos, A., Martínez-Sánchez, J. M., Rodrigo-Baños, V., & Navarro-Rubio, M. D. (2016). Associations between informal care, disease, and risk factors: A Spanish country-wide population-based study. Journal of Public Health Policy, 37, 173–189. doi:10.​1057/​jphp.​2016.​3.CrossRefPubMed
9.
Zurück zum Zitat Yee, J. L., & Shultz, R. (2000). Gender differences in Psychiatric Morbidity among family caregivers: A review and analysis. The Gerontologist, 40(2), 147–164.CrossRefPubMed Yee, J. L., & Shultz, R. (2000). Gender differences in Psychiatric Morbidity among family caregivers: A review and analysis. The Gerontologist, 40(2), 147–164.CrossRefPubMed
10.
Zurück zum Zitat Williams, A. M., Wang, L., & Kitchen, P. (2016). Impacts of care-giving and sources of support: A comparison of end-of-life and non-end-of-life caregivers in Canada. Health Social Care Community Journal, 24(2), 214–224. doi:10.1111/hsc.12205.CrossRef Williams, A. M., Wang, L., & Kitchen, P. (2016). Impacts of care-giving and sources of support: A comparison of end-of-life and non-end-of-life caregivers in Canada. Health Social Care Community Journal, 24(2), 214–224. doi:10.​1111/​hsc.​12205.CrossRef
11.
Zurück zum Zitat Ley 39/2006, de 14 de diciembre, de Promoción de la Autonomía Personal y Atención a las personas en situación de dependencia (Promotion of Personal Autonomy and Care for Dependent People Act). BOE num.299 (2006). Ley 39/2006, de 14 de diciembre, de Promoción de la Autonomía Personal y Atención a las personas en situación de dependencia (Promotion of Personal Autonomy and Care for Dependent People Act). BOE num.299 (2006).
12.
Zurück zum Zitat Durán, M. A. (2012). El trabajo no remunerado en la economía global (Unpaid work in the global economy). Bilbao: Fundación BBVA. Durán, M. A. (2012). El trabajo no remunerado en la economía global (Unpaid work in the global economy). Bilbao: Fundación BBVA.
13.
Zurück zum Zitat European Commission. Directorate-General for Economic and Financial Affairs. (2012). Ageing Report: Economic and budgetary projections for the EU-27 Member States (2010–2060). European Economy, Report No.: 2. European Commission. Directorate-General for Economic and Financial Affairs. (2012). Ageing Report: Economic and budgetary projections for the EU-27 Member States (2010–2060). European Economy, Report No.: 2.
14.
Zurück zum Zitat Serrano, I., & Sánchez-Domínguez, M. (2015). The 4 th Conference on Politics and Gender The Spanish welfare state and the financial crisis: a step backward for gender equality? Sweden: Uppsala University. Serrano, I., & Sánchez-Domínguez, M. (2015). The 4 th Conference on Politics and Gender The Spanish welfare state and the financial crisis: a step backward for gender equality? Sweden: Uppsala University.
15.
Zurück zum Zitat León, M. (2014). The transformation of care in European societies. UK: Palgrave Macmillan.CrossRef León, M. (2014). The transformation of care in European societies. UK: Palgrave Macmillan.CrossRef
16.
Zurück zum Zitat Geerts, J., Willemé, P., & Mot, E. (2012). Long-term care use and supply in Europe: projection for Germany, The Netherlands, Spain and Poland. ENEPRI Research 2012, Report No.: 116. Geerts, J., Willemé, P., & Mot, E. (2012). Long-term care use and supply in Europe: projection for Germany, The Netherlands, Spain and Poland. ENEPRI Research 2012, Report No.: 116.
17.
Zurück zum Zitat EuroQol Group. (1990). EuroQol—a new facility for the measurement of health-related quality of life. Health Policy, 16(3), 199–208.CrossRef EuroQol Group. (1990). EuroQol—a new facility for the measurement of health-related quality of life. Health Policy, 16(3), 199–208.CrossRef
18.
Zurück zum Zitat Wanden-Berghe, C., Nolasco, A., Planas, M., et al. (2008). Health-related quality of life according to the main caregiver in patients with home nutritional support. Medicina Clínica, 131(8), 281–284.PubMed Wanden-Berghe, C., Nolasco, A., Planas, M., et al. (2008). Health-related quality of life according to the main caregiver in patients with home nutritional support. Medicina Clínica, 131(8), 281–284.PubMed
20.
Zurück zum Zitat Cabasés, J.M., Sánchez, E., Ollo, A., & Errea, M. (2014). Encuesta Nacional de Salud. España 2011/2012. Calidad de vida relacionada con la salud en adultos: EQ-5D-5L (National Health Survey. Spain 2011/2012. Health related Quality of life in adults: EQ-5D-5L). Serie informes monográficos, nº 3. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualdad. Cabasés, J.M., Sánchez, E., Ollo, A., & Errea, M. (2014). Encuesta Nacional de Salud. España 2011/2012. Calidad de vida relacionada con la salud en adultos: EQ-5D-5L (National Health Survey. Spain 2011/2012. Health related Quality of life in adults: EQ-5D-5L). Serie informes monográficos, nº 3. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualdad.
21.
Zurück zum Zitat Badia, X., Lara, N., & Roset, M. (2004). Quality of life, time commitment and burden perceived by the principal informal caregiver of Alzheimer’s patients. Atención Primaria, 34(4), 170–177.CrossRef Badia, X., Lara, N., & Roset, M. (2004). Quality of life, time commitment and burden perceived by the principal informal caregiver of Alzheimer’s patients. Atención Primaria, 34(4), 170–177.CrossRef
22.
Zurück zum Zitat Mosquera, I., Vergara, I., Larrañaga, I., Machón, M., del Río-Lozano, M., & Calderón, C. (2016). Measuring the impact of informal elderly caregiving: A systematic review of tools. Quality of Life Research, 25, 1059–1092. doi:10.1007/s11136-015-1159-4.CrossRefPubMed Mosquera, I., Vergara, I., Larrañaga, I., Machón, M., del Río-Lozano, M., & Calderón, C. (2016). Measuring the impact of informal elderly caregiving: A systematic review of tools. Quality of Life Research, 25, 1059–1092. doi:10.​1007/​s11136-015-1159-4.CrossRefPubMed
23.
Zurück zum Zitat Instituto Nacional de Estadística. (1994). Clasificación Nacional de Ocupaciones 1994 (CNO-94) (National Classification of Occupations 1994 (CNO-94)). Madrid: INE. Instituto Nacional de Estadística. (1994). Clasificación Nacional de Ocupaciones 1994 (CNO-94) (National Classification of Occupations 1994 (CNO-94)). Madrid: INE.
24.
Zurück zum Zitat López-Bastida, J., Oliva-Moreno, J., Worbes, M., Perestelo, L., Serrano-Aguilar, P., & Montón-Álvarez, F. (2012). Social and economic costs and health-related quality of life in stroke survivors in the Canary Islands. Spain. BMC Health Services Research, 12, 315. doi:10.1186/1472-6963-12-315.CrossRefPubMed López-Bastida, J., Oliva-Moreno, J., Worbes, M., Perestelo, L., Serrano-Aguilar, P., & Montón-Álvarez, F. (2012). Social and economic costs and health-related quality of life in stroke survivors in the Canary Islands. Spain. BMC Health Services Research, 12, 315. doi:10.​1186/​1472-6963-12-315.CrossRefPubMed
25.
Zurück zum Zitat Gálvez, L. (2016). La Economía y el trabajo de cuidados (Economy and care work). In L. Gálvez (Ed.), Economía de los cuidados (Care economics). Deculturas ediciones. Gálvez, L. (2016). La Economía y el trabajo de cuidados (Economy and care work). In L. Gálvez (Ed.), Economía de los cuidados (Care economics). Deculturas ediciones.
26.
Zurück zum Zitat Tobío, C. (2012). Cuidado e identidad de género. De las madres que trabajan a los hombres que cuidan (Care and gender identity. From working mothers to caring men). Revista Internacional de Sociología, 70(2), 399–422.CrossRef Tobío, C. (2012). Cuidado e identidad de género. De las madres que trabajan a los hombres que cuidan (Care and gender identity. From working mothers to caring men). Revista Internacional de Sociología, 70(2), 399–422.CrossRef
27.
Zurück zum Zitat Mello, J. A., Macq, J., Van Durme, T., Cès, S., Spruytte, N., Van Audenhove, C., et al. (2016). The determinants of informal caregivers’ burden in the care of frail older persons: A dynamic and role-related perspective. Aging & Mental Health, 7, 1–6. doi:10.1080/13607863.2016.1168360. Mello, J. A., Macq, J., Van Durme, T., Cès, S., Spruytte, N., Van Audenhove, C., et al. (2016). The determinants of informal caregivers’ burden in the care of frail older persons: A dynamic and role-related perspective. Aging & Mental Health, 7, 1–6. doi:10.​1080/​13607863.​2016.​1168360.
28.
Zurück zum Zitat Pinquart, M., & Sörensen, S. (2006). Gender differences in caregiver stressors, social resources, and heath: An update meta-analysis. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 62(2), 126–137.CrossRef Pinquart, M., & Sörensen, S. (2006). Gender differences in caregiver stressors, social resources, and heath: An update meta-analysis. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 62(2), 126–137.CrossRef
29.
Zurück zum Zitat García-Calvente, M. M., del Río-Lozano, M., & Marcos-Marcos, J. (2011). Desigualdades de género en el deterioro de la salud como resultado del cuidado informal en España (Gender inequalities in the deterioration of health as a result of informal care in Spain). Gaceta Sanitaria, 25(2), 100–107. doi:10.1016/j.gaceta.2011.09.006.CrossRefPubMed García-Calvente, M. M., del Río-Lozano, M., & Marcos-Marcos, J. (2011). Desigualdades de género en el deterioro de la salud como resultado del cuidado informal en España (Gender inequalities in the deterioration of health as a result of informal care in Spain). Gaceta Sanitaria, 25(2), 100–107. doi:10.​1016/​j.​gaceta.​2011.​09.​006.CrossRefPubMed
30.
Zurück zum Zitat Fine, M. (2015). Cultures of Care. In J. Twigg & W. Martin (Eds.), Routledge handbook of cultural gerontology. Abingdon UK: Routledge. Fine, M. (2015). Cultures of Care. In J. Twigg & W. Martin (Eds.), Routledge handbook of cultural gerontology. Abingdon UK: Routledge.
31.
Zurück zum Zitat Letablier, M. T. (2007). El trabajo de cuidados y su conceptualización en Europa (Care work and its conceptualization in Europe). In C. Prieto (Ed.), Trabajo, género y tiempo social (Work, gender and social time). Madrid: Hacer-UCM. Letablier, M. T. (2007). El trabajo de cuidados y su conceptualización en Europa (Care work and its conceptualization in Europe). In C. Prieto (Ed.), Trabajo, género y tiempo social (Work, gender and social time). Madrid: Hacer-UCM.
32.
Zurück zum Zitat Tamiya, N., Yamaoka, K., & Yano, E. (2002). Use of home health services covered by new public long-term care insurance in Japan: Impact of the presence and kinship of family caregivers. International Journal for Quality in Health Care, 14(4), 295–303.CrossRefPubMed Tamiya, N., Yamaoka, K., & Yano, E. (2002). Use of home health services covered by new public long-term care insurance in Japan: Impact of the presence and kinship of family caregivers. International Journal for Quality in Health Care, 14(4), 295–303.CrossRefPubMed
33.
Zurück zum Zitat Schmidt, A. E. (2017). Analysing the importance of older people’s resources for the use of home care in a cash-for-care scheme: Evidence from Vienna. Health Social Care Community Journal, 25(2), 514–526. doi:10.1111/hsc.12334.CrossRef Schmidt, A. E. (2017). Analysing the importance of older people’s resources for the use of home care in a cash-for-care scheme: Evidence from Vienna. Health Social Care Community Journal, 25(2), 514–526. doi:10.​1111/​hsc.​12334.CrossRef
34.
Zurück zum Zitat García-Calvente, M. M., del Río-Lozano, M., Castaño-López, E., Mateo-Rodríguez, I., Maroto-Navarro, G., & Hidalgo-Ruzzante, N. (2010). Análisis de género de las percepciones y actitudes de los y las profesionales de atención primaria ante el cuidado informal (Gender analysis of perceptions and attitudes of primary care professionals in informal care). Gaceta Sanitaria, 24(4), 293–302. doi:10.1016/j.gaceta.2010.02.011.CrossRef García-Calvente, M. M., del Río-Lozano, M., Castaño-López, E., Mateo-Rodríguez, I., Maroto-Navarro, G., & Hidalgo-Ruzzante, N. (2010). Análisis de género de las percepciones y actitudes de los y las profesionales de atención primaria ante el cuidado informal (Gender analysis of perceptions and attitudes of primary care professionals in informal care). Gaceta Sanitaria, 24(4), 293–302. doi:10.​1016/​j.​gaceta.​2010.​02.​011.CrossRef
35.
Zurück zum Zitat Larrañaga, I., Valderrama, M. J., Martín, U., Begiristain, J. M., Bacigalupe, A., & Arregi, B. (2009). Mujeres y hombres ante el cuidado informal: diferencias en los significados y las estrategias (Women and men on informal care: differences in meanings and strategies). Revista Facultad Nacional de Salud Pública, 27(1), 50–55. Larrañaga, I., Valderrama, M. J., Martín, U., Begiristain, J. M., Bacigalupe, A., & Arregi, B. (2009). Mujeres y hombres ante el cuidado informal: diferencias en los significados y las estrategias (Women and men on informal care: differences in meanings and strategies). Revista Facultad Nacional de Salud Pública, 27(1), 50–55.
36.
Zurück zum Zitat Suzuki, K., Tamakoshi, K., & Sakakibara, H. (2016). Caregiving activities closely associated with the development of low-back pain among female family caregivers. Journal of Clinical Nursing, 25(15–16), 2156–2167. doi:10.1111/jocn.13167.CrossRefPubMed Suzuki, K., Tamakoshi, K., & Sakakibara, H. (2016). Caregiving activities closely associated with the development of low-back pain among female family caregivers. Journal of Clinical Nursing, 25(15–16), 2156–2167. doi:10.​1111/​jocn.​13167.CrossRefPubMed
37.
Zurück zum Zitat Mellner, C., Krantz, G., & Lundberg, U. (2006). Symptom reporting and self-rated health among women in mid-life: The role of work characteristics and family responsibilities. International Journal of Behavioral Medicine, 13, 1–7. doi:10.1207/s15327558ijbm1301_1.CrossRefPubMed Mellner, C., Krantz, G., & Lundberg, U. (2006). Symptom reporting and self-rated health among women in mid-life: The role of work characteristics and family responsibilities. International Journal of Behavioral Medicine, 13, 1–7. doi:10.​1207/​s15327558ijbm130​1_​1.CrossRefPubMed
38.
Zurück zum Zitat Del Pino-Casado, R., Pastor-Bravo, M. M., Palomino-Moral, P. A., & Frías-Osuna, A. (2017). Gender differences in primary home caregivers of older relatives in a Mediterranean environment: A cross-sectional study. Archives of Gerontology and Geriatrics, 69, 128–133. doi:10.1016/j.archger.2016.11.012.CrossRef Del Pino-Casado, R., Pastor-Bravo, M. M., Palomino-Moral, P. A., & Frías-Osuna, A. (2017). Gender differences in primary home caregivers of older relatives in a Mediterranean environment: A cross-sectional study. Archives of Gerontology and Geriatrics, 69, 128–133. doi:10.​1016/​j.​archger.​2016.​11.​012.CrossRef
40.
Zurück zum Zitat Del Río-Lozano, M., García-Calvente, M.M., Ocaña, R., et al. (2016). Evolución de la calidad de vida relacionada con la salud de las personas cuidadoras: Estudio CUIDAR-SE (Evolution of the health related quality of life in caregivers: CUIDAR-SE Research). Gaceta Sanitaria, 30 (Espec Congr), 106. Del Río-Lozano, M., García-Calvente, M.M., Ocaña, R., et al. (2016). Evolución de la calidad de vida relacionada con la salud de las personas cuidadoras: Estudio CUIDAR-SE (Evolution of the health related quality of life in caregivers: CUIDAR-SE Research). Gaceta Sanitaria, 30 (Espec Congr), 106.
Metadaten
Titel
Health-related quality of life in Spanish informal caregivers: gender differences and support received
verfasst von
María del Río Lozano
María del Mar García-Calvente
Jesús Calle-Romero
Mónica Machón-Sobrado
Isabel Larrañaga-Padilla
Publikationsdatum
05.08.2017
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 12/2017
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1678-2

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