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Erschienen in:

01.05.2008

Health-related quality of life following blind rehabilitation

verfasst von: Thomas Kuyk, Lei Liu, Jeffry L. Elliott, Hartley E. Grubbs, Cynthia Owsley, Gerald McGwin Jr., Russell L. Griffin, Patti S. Fuhr

Erschienen in: Quality of Life Research | Ausgabe 4/2008

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Abstract

Purpose

The purpose of this study was to investigate the effect of residential blind rehabilitation on patients’ vision-targeted health-related quality of life (HRQOL) and general physical and mental function.

Method

The National Eye Institute 25-item Visual Function Questionnaire (NEI VFQ) plus appendix questions, the 12-item Short-Form Health Survey (SF-12), Hope Scale and Coopersmith self-esteem inventory were administered to 206 legally blind veterans prior to their entering a residential (in-patient) blind rehabilitation program and again to 185 and 176 of the original cohort at 2 and 6 months after completion of the rehabilitation program, respectively. Data on visual acuity, visual field extent, contrast sensitivity and scanning ability were also collected. The duration of the in-patient rehabilitation programs ranged from 11 to 109 days. Questionnaire scores were compared pre-rehabilitation and post-rehabilitation.

Results

Following rehabilitation there was a significant improvement in nine of 11 NEI VFQ subscales and in a composite score at both the 2- and 6-month post-rehabilitation intervals. Mental health (SF-12) and self esteem also improved significantly although physical health ratings declined over the course of the study (approximately 10 months).

Conclusions

Residential blind rehabilitation appears to improve patients’ self-reported vision-targeted HRQOL, self-esteem and mental health aspects of generic HRQOL.

Patrick, D. L., & Erickson, P. (1993). Assessing health related quality of life for clinical decision making. In S. R. Walker & R. M. Rosser (Eds.), Quality of life assessment: Key issues in the 1990’s (pp. 11–63). Norwell, MA: Kluwer Academic Publishers.

Fletcher, A., Gore, S., Jones, D., et al. (1992). Quality of life measures in health care, II: Design, analysis, and interpretation. British Medical Journal, 305, 1145–1148.PubMedCrossRef

Fowler, F. L., & Cleary, P. D. (1994). Methodological issues in measuring patient-reported outcomes: The agenda of the work group on outcomes assessment. Medical Care, 32, JS65–JS76.PubMed

Ellwein, L. B., Fletcher, A., Negrel, A. D., & Thulasiraj, R. D. (1994). Quality of life assessment in blindness prevention interventions. International Ophthalmology, 18, 263–268.PubMedCrossRef

Raasch, T. W., Leat, S. J., Kleinstein, R. N., Bullimore, M. A., & Cutter, G. R. (1997). Evaluating the value of low vision services. Journal of the American Optometric Association, 68, 287–295.PubMed

Elliott, D. B., Pesudovs, K., & Mallinson, T. (2007). Vision-related quality of life. Optometry and Vision Science, 84, 656–658.PubMedCrossRef

Mangione, C. M., Berry, S., Spritzer, K., Janz, N. K., Klein, R., Owsley, C., & Lee, P. (1998). Identifying the content area for the 51-item National Eye Institute Visual Function Questionnaire: Results from focus groups with visually impaired persons. Archives of Ophthalmology, 116, 227–233.PubMed

Scott, I. U., Schein, O. D., West, S., et al. (1994). Functional status and quality of life measurement among ophthalmic patients. Archives of Ophthalmology, 112, 329–325.PubMed

Haymes, S. A., Johnston, A. W., & Heyes, A. D. (2002) Relationship between vision impairment and ability to perform activities of daily living. Ophthalmic and Physiological Optics, 22, 79–91.PubMedCrossRef

10.

Knudston, M. D., Klein, B. E. K., Klein, R., Cruiickshanks, K. J., & Lee, K. E. (2005) Age-related eye disease, quality of life, and functional ability. Archives of Ophthalmology, 123, 807–814.CrossRef

11.

Carabellese, C., Appollonio, T., Rozzini, R., et al. (1993). Sensory impairment and quality of life in a community elderly population. Journal of the American Geriatric Society, 41, 401–407.

12.

Scilley, K., DeCarlo, D. K., Wells, J., & Owsley, C. (2004) Vision specific health-related quality of life in age-related maculopathy patients presenting for low vision services. Ophthalmic Epidemiology, 11, 131–146.PubMedCrossRef

13.

Gutierrez, P., Wilson, M. R., Johnson, C., et al. (1997) Influence of glaucomatous visual field loss on health-related quality of life. Archives of Ophthalmology, 115, 777–784.PubMed

14.

Deramo, V. A., Cox, T. A., Syed, A. B., Lee, P. P., & Fekrat, S. (2003). Vision-related quality of life in people with central retinal vein occlusion using the 25-item National Eye Institute Visual Function Questionnaire. Archives of Ophthalmology, 121, 1297–1302.PubMedCrossRef

15.

Applegate, W. B., Miller, S. T., Elam, J. T., et al. (1987). Impact of cataract surgery with lens implantation on vision and physical function in elderly patients. Journal of the American Medical Association, 257, 1064–1066.PubMedCrossRef

16.

Brenner, M. H., Curbow, B., Javitt, J. C., Legro, M. W., & Sommer, A. (1993). Vision change and quality of life in the elderly: Response to cataract surgery and treatment of other chronic ocular conditions. Archives of Ophthalmology, 111, 680–685.

17.

Mangione, C. M., Phillips, R. S., Lawrence, M. G., et al. (1994). Improved visual function and attenuation of declines in health-related quality of life after cataract extraction. Archives of Ophthalmology, 112, 1419–1425.PubMed

18.

Hyman, L. G., Komaroff, E., Heijl, A., Bengtsson, B., & Leske, M. C. (2005). Treatment and vision-related quality of life in the early manifest glaucoma trial. American Academy of Ophthalmology, 112, 1505–1513.CrossRef

19.

Coleman, A. L., Yu, F., Keeler, E., & Mangione, C. M. (2006). Treatment of uncorrected refractive errors improves vision specific quality of life. Journal of the American Geriatrics Society, 54, 883–890.PubMedCrossRef

20.

Ghazi-Nouri, S. M. S., Tranos, P. G., Rubin, G. S., Adams, Z. C., & Charteris, D. G. (2006). Visual function and quality of life following vitrectomy and epiretinal membrane peel surgery. British Journal of Ophthalmology, 90, 559–562.PubMedCrossRef

21.

Long, R. C., & Crews, J. E. (1993). Final report: Development of a Functional Independence Measure for Blind Adult (FIMBA). Project C669-RC. Washington DC: Department of Veterans Affairs Rehabilitation Research and Development Service.

22.

Del’Aune, W., Welsh, R., & Williams, M. A. (2000). National outcomes assessment of the rehabilitation of adults with visual impairment. Journal of Visual Impairment and Blindness, 94, 281–291.

23.

Head, D. N., Babcock, J. L., Goodrich, G. L., & Boyless, J .A. (2000). A geriatric assessment of functional status in vision rehabilitation. Journal of Visual Impairment and Blindness, 94, 357–371.

24.

Elliott, J. L., & Kuyk, T. K. (1994). Self-reported functional and psychosocial outcomes of blind rehabilitation. Journal of Visual Impairment and Blindness, 88, 206–212.

25.

Appollonio, I., Carabellese, C., Frattola, L., & Trabucchi, M. (1996). Effects of sensory aids on the quality of life and mortality of elderly people: A multivariate analysis. Age and Ageing, 25, 89–96.PubMedCrossRef

26.

Stelmack, J., Stelmack, T. R., & Massof, R. W. (2002). Measuring low-vision rehabilitation outcomes with the NEI VFQ-25. Investigative Ophthalmology and Visual Science, 43, 2859–2868.PubMed

27.

Pankow, L., Luchin, D., Studebacke, J., & Chettleburgh, D. (2004). Evaluation of a vision rehabilitation program with older adults with visual impairment. Topics in Geriatric Rehabilitation, 20, 223–232.

28.

Hinds, A., Sinclair, A., Park, J., Suttie, A., Paterson, H., & Macdonald, M. (2003). Impact of an interdisciplinary low vision service on the quality of life of low vision patients. British Journal of Ophthalmology, 87, 1391–1396.PubMedCrossRef

29.

La Grow, S. J. (2004). The effectiveness of comprehensive low vision services for older persons with visual impairment in New Zealand. Journal of Visual Impairment and Blindness, 98, 679–692.

30.

Stelmack, J. A., Moran, D., Dean, D., & Massof, R. W. (2007). Short- and long-term effects of an intensive inpatient vision rehabilitation program. Archives of Physical Medicine and Rehabilitation, 88, 691–695.PubMedCrossRef

31.

The National Eye Institute (2000) The National Eye Institute 25-Item Visual Function Questionnaire (VFQ-25), version 2000. Available at: http://www.rand.org/health/surveys_tools/vfq/vfq25_manual.pdf.

32.

Ware, J. E., Jr., Snow, K., Kosinski, M., & Gadnek, B. (1993). SF-36 Health Survey Manual and Interpretation Guide. Boston, MA: Nimrod Press.

33.

Coopersmith, S. (1967). The antecedents of self-esteem. San Francisco: Freeman.

34.

Jackson, W. T., Taylor, R. E., Palmatier, A. D., Elliott, T. R., & Elliott, J. L. (1998). Negotiating the reality of visual impairment: Hope, coping, and functional ability. Journal of Clinical Psychology in Medical Settings, 2, 173–185.CrossRef

35.

Kuyk, T. K., Elliott, J. L., & Fuhr, P. S. (1998). Visual correlates of obstacle avoidance in adults with low vision. Optometry and Vision Science, 75, 174–182.PubMedCrossRef

36.

Pfeiffer, E. (1975). A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. Journal of the American Geriatrics Society, 23, 433–441.PubMed

37.

Radloff, L .S., & Teri, L. (1986). Use of the Center for Epidemiologial Studies-Depression Scale with older adults. In T. L. Brink (Ed.), Clinical gerontology: A guide to assessment and intervention (pp. 119–135). New York: Haworth Press.

38.

Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.CrossRef

39.

Owsley, C. (1996). Quality of life, vision impairment: Driving. In D. R. Anderson & S. M. Drance (Eds.), Encounters in glaucoma research 3: How to ascertain progression and outcome (pp. 37–44). New York: Kluger Publications.

40.

Mangione, C. M., Lee, P. P., Pitts, J., Guitierrez, P., Berry, S., & Hays, R. D. (1998). Psychometric properties of the National Eye Institute Visual Function Questionnaire. Archives of Ophthalmology, 116, 1496–1504.PubMed

41.

Kymes, S. M., & Lee, B. S. (2007). Preference-based quality of life measures in people with visual impairment. Optometry and Vision Science, 84, 809–816.PubMedCrossRef

42.

Coleman, A. L., Ye, F., Keeler, E., & Mangione, C. M. (2006). Treatment of uncorrected refractive error improves vision specific quality of life. Journal of the American Geriatrics Society, 54, 883–890.PubMedCrossRef

Titel: Health-related quality of life following blind rehabilitation
verfasst von: Thomas Kuyk
Lei Liu
Jeffry L. Elliott
Hartley E. Grubbs
Cynthia Owsley
Gerald McGwin Jr.
Russell L. Griffin
Patti S. Fuhr
Publikationsdatum: 01.05.2008
Verlag: Springer Netherlands
Erschienen in: Quality of Life Research / Ausgabe 4/2008
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-008-9336-3

Live-Webinar "Chronische Unterbauch- und Viszeralschmerzen in der Praxis managen"

Springer Medizin

Health-related quality of life following blind rehabilitation

Abstract

Purpose

Method

Results

Conclusions

Live-Webinar "Chronische Unterbauch- und Viszeralschmerzen in der Praxis managen"

Springer Medizin

Abstract

Purpose

Method

Results

Conclusions

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