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Erschienen in: Quality of Life Research 10/2008

01.12.2008

Prospects and challenges in using patient-reported outcomes in clinical practice

verfasst von: Constance H. Fung, Ron D. Hays

Erschienen in: Quality of Life Research | Ausgabe 10/2008

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Abstract

Background

Patient-reported measures include preferences and reports about care received, health behaviors, and outcomes of care (patient satisfaction and health-related quality of life). These measures are a core aspect of health care, but there is much to be learned about how to use them to improve clinical practice.

Method

We specify linkages among different patient-reported measures and focus upon the prospects and challenges for use of patient-reported outcomes in clinical practice.

Results

Patient-reported measures are important throughout the continuum of patient care. At the initial visit, patient-reported outcomes provide information about what is important to the patient, the patient’s current behaviors, and the patient’s baseline health-related quality of life. At subsequent visits, patient-reported outcomes help evaluate disease progression or regression as well as treatment effects.

Conclusions

Patient-reported measures can help clinicians target interventions that will improve patient outcomes of care. However, there are a number of challenges in using patient-reported outcomes in clinical practice.
Literatur
6.
Zurück zum Zitat Mauksch, L. B., Dugdale, D. C., Dodson, S., & Epstein, R. (2008). Relationship, communication, and efficiency in the medical encounter: Creating a clinical model from a literature review. Archives of Internal Medicine, 168(13), 1387–1395. doi:10.1001/archinte.168.13.1387.PubMedCrossRef Mauksch, L. B., Dugdale, D. C., Dodson, S., & Epstein, R. (2008). Relationship, communication, and efficiency in the medical encounter: Creating a clinical model from a literature review. Archives of Internal Medicine, 168(13), 1387–1395. doi:10.​1001/​archinte.​168.​13.​1387.PubMedCrossRef
8.
Zurück zum Zitat Calkins, D. R., Rubenstein, L. V., Cleary, P. D., Davies, A. R., Jette, A. M., Fink, A., et al. (1991). Failure of physicians to recognize functional disability in ambulatory patients. Annals of Internal Medicine, 114(6), 451–454.PubMed Calkins, D. R., Rubenstein, L. V., Cleary, P. D., Davies, A. R., Jette, A. M., Fink, A., et al. (1991). Failure of physicians to recognize functional disability in ambulatory patients. Annals of Internal Medicine, 114(6), 451–454.PubMed
10.
Zurück zum Zitat Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., et al. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22(4), 714–724. doi:10.1200/JCO.2004.06.078.PubMedCrossRef Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., et al. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22(4), 714–724. doi:10.​1200/​JCO.​2004.​06.​078.PubMedCrossRef
12.
Zurück zum Zitat Jaen, C. R., Stange, K. C., & Nutting, P. A. (1994). Competing demands of primary care: A model for the delivery of clinical preventive services. The Journal of Family Practice, 38(2), 166–171.PubMed Jaen, C. R., Stange, K. C., & Nutting, P. A. (1994). Competing demands of primary care: A model for the delivery of clinical preventive services. The Journal of Family Practice, 38(2), 166–171.PubMed
13.
Zurück zum Zitat Nutting, P. A., Baier, M., Werner, J. J., Cutter, G., Conry, C., & Stewart, L. (2001). Competing demands in the office visit: What influences mammography recommendations? The Journal of the American Board of Family Practice, 14(5), 352.PubMed Nutting, P. A., Baier, M., Werner, J. J., Cutter, G., Conry, C., & Stewart, L. (2001). Competing demands in the office visit: What influences mammography recommendations? The Journal of the American Board of Family Practice, 14(5), 352.PubMed
14.
Zurück zum Zitat Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D., & Aaronson, N. K. (2002). Health-related quality-of-life assessments and patient–physician communication: A randomized controlled trial. Journal of the American Medical Association, 288(23), 3027. doi:10.1001/jama.288.23.3027.PubMedCrossRef Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D., & Aaronson, N. K. (2002). Health-related quality-of-life assessments and patient–physician communication: A randomized controlled trial. Journal of the American Medical Association, 288(23), 3027. doi:10.​1001/​jama.​288.​23.​3027.PubMedCrossRef
15.
Zurück zum Zitat Wasson, J., Hays, R., Rubenstein, L., Nelson, E., Leaning, J., Johnson, D., et al. (1992). The short-term effect of patient health status assessment in a health maintenance organization. Quality of Life Research, 1(2), 99–106. doi:10.1007/BF00439717.PubMedCrossRef Wasson, J., Hays, R., Rubenstein, L., Nelson, E., Leaning, J., Johnson, D., et al. (1992). The short-term effect of patient health status assessment in a health maintenance organization. Quality of Life Research, 1(2), 99–106. doi:10.​1007/​BF00439717.PubMedCrossRef
16.
Zurück zum Zitat Wasson, J. H., Stukel, T. A., Weiss, J. E., Hays, R. D., Jette, A. M., & Nelson, E. C. (1999). A randomized trial of the use of patient self-assessment data to improve community practices. Effective Clinical Practice, 2(1), 1–10.PubMed Wasson, J. H., Stukel, T. A., Weiss, J. E., Hays, R. D., Jette, A. M., & Nelson, E. C. (1999). A randomized trial of the use of patient self-assessment data to improve community practices. Effective Clinical Practice, 2(1), 1–10.PubMed
18.
Zurück zum Zitat Kaplan, S. H., Kravitz, R. L., & Greenfield, S. (2000). A critique of current uses of health status for the assessment of treatment effectiveness and quality of care. Medical Care, 38(9, Suppl), II184–II191.PubMed Kaplan, S. H., Kravitz, R. L., & Greenfield, S. (2000). A critique of current uses of health status for the assessment of treatment effectiveness and quality of care. Medical Care, 38(9, Suppl), II184–II191.PubMed
19.
Zurück zum Zitat Cabana, M. D., Rand, C. S., Powe, N. R., Wu, A. W., Wilson, M. H., Abboud, P. A., et al. (1999). Why don’t physicians follow clinical practice guidelines? A framework for improvement. Journal of the American Medical Association, 282(15), 1458–1465. doi:10.1001/jama.282.15.1458.PubMedCrossRef Cabana, M. D., Rand, C. S., Powe, N. R., Wu, A. W., Wilson, M. H., Abboud, P. A., et al. (1999). Why don’t physicians follow clinical practice guidelines? A framework for improvement. Journal of the American Medical Association, 282(15), 1458–1465. doi:10.​1001/​jama.​282.​15.​1458.PubMedCrossRef
20.
Zurück zum Zitat Fihn, S. D., McDonell, M. B., Diehr, P., Anderson, S. M., Bradley, K. A., Au, D. H., et al. (2004). Effects of sustained audit/feedback on self-reported health status of primary care patients. The American Journal of Medicine, 116(4), 241–248. doi:10.1016/j.amjmed.2003.10.026.PubMedCrossRef Fihn, S. D., McDonell, M. B., Diehr, P., Anderson, S. M., Bradley, K. A., Au, D. H., et al. (2004). Effects of sustained audit/feedback on self-reported health status of primary care patients. The American Journal of Medicine, 116(4), 241–248. doi:10.​1016/​j.​amjmed.​2003.​10.​026.PubMedCrossRef
21.
Zurück zum Zitat Calkins, D. R., Rubenstein, L. V., Cleary, P. D., Davies, A. R., Jette, A. M., Fink, A., et al. (1994). Functional disability screening of ambulatory patients: A randomized controlled trial in a hospital-based group practice. Journal of General Internal Medicine, 9(10), 590–592. doi:10.1007/BF02599291.PubMedCrossRef Calkins, D. R., Rubenstein, L. V., Cleary, P. D., Davies, A. R., Jette, A. M., Fink, A., et al. (1994). Functional disability screening of ambulatory patients: A randomized controlled trial in a hospital-based group practice. Journal of General Internal Medicine, 9(10), 590–592. doi:10.​1007/​BF02599291.PubMedCrossRef
22.
Zurück zum Zitat Rubenstein, L. V., McCoy, J. M., Cope, D. W., Barrett, P. A., Hirsch, S. H., Messer, K. S., et al. (1995). Improving patient quality of life with feedback to physicians about functional status. Journal of General Internal Medicine, 10(11), 607. doi:10.1007/BF02602744.PubMedCrossRef Rubenstein, L. V., McCoy, J. M., Cope, D. W., Barrett, P. A., Hirsch, S. H., Messer, K. S., et al. (1995). Improving patient quality of life with feedback to physicians about functional status. Journal of General Internal Medicine, 10(11), 607. doi:10.​1007/​BF02602744.PubMedCrossRef
24.
Zurück zum Zitat de Wit, M., Delemarre-van de Waal, H. A., Pouwer, F., Gemke, R. J., & Snoek, F. J. (2007). Monitoring health related quality of life in adolescents with diabetes: A review of measures. Archives of Disease in Childhood, 92(5), 434–439. doi:10.1136/adc.2006.102236.PubMedCrossRef de Wit, M., Delemarre-van de Waal, H. A., Pouwer, F., Gemke, R. J., & Snoek, F. J. (2007). Monitoring health related quality of life in adolescents with diabetes: A review of measures. Archives of Disease in Childhood, 92(5), 434–439. doi:10.​1136/​adc.​2006.​102236.PubMedCrossRef
26.
Zurück zum Zitat Garratt, A., Schmidt, L., Mackintosh, A., & Fitzpatrick, R. (2002). Quality of life measurement: Bibliographic study of patient assessed health outcome measures. BMJ (Clinical Research Ed.), 324(7351), 1417. doi:10.1136/bmj.324.7351.1417.CrossRef Garratt, A., Schmidt, L., Mackintosh, A., & Fitzpatrick, R. (2002). Quality of life measurement: Bibliographic study of patient assessed health outcome measures. BMJ (Clinical Research Ed.), 324(7351), 1417. doi:10.​1136/​bmj.​324.​7351.​1417.CrossRef
27.
Zurück zum Zitat Haywood, K. L., Garratt, A. M., & Fitzpatrick, R. (2005). Quality of life in older people: A structured review of generic self-assessed health instruments. Quality of Life Research, 14(7), 1651–1668. doi:10.1007/s11136-005-1743-0.PubMedCrossRef Haywood, K. L., Garratt, A. M., & Fitzpatrick, R. (2005). Quality of life in older people: A structured review of generic self-assessed health instruments. Quality of Life Research, 14(7), 1651–1668. doi:10.​1007/​s11136-005-1743-0.PubMedCrossRef
34.
Zurück zum Zitat Hemingway, H., Stafford, M., Stansfeld, S., Shipley, M., & Marmot, M. (1997). Is the SF-36 a valid measure of change in population health? Results from the Whitehall II Study. BMJ (Clinical Research Ed.), 315(7118), 1273–1279. Hemingway, H., Stafford, M., Stansfeld, S., Shipley, M., & Marmot, M. (1997). Is the SF-36 a valid measure of change in population health? Results from the Whitehall II Study. BMJ (Clinical Research Ed.), 315(7118), 1273–1279.
Metadaten
Titel
Prospects and challenges in using patient-reported outcomes in clinical practice
verfasst von
Constance H. Fung
Ron D. Hays
Publikationsdatum
01.12.2008
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 10/2008
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-008-9379-5

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