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Erschienen in: Quality of Life Research 1/2012

01.02.2012

Mothers of infants with congenital heart defects: well-being from pregnancy through the child’s first six months

verfasst von: Maria T. Grønning Dale, Øivind Solberg, Henrik Holmstrøm, Markus A. Landolt, Leif T. Eskedal, Margarete E. Vollrath

Erschienen in: Quality of Life Research | Ausgabe 1/2012

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Abstract

Purpose

This study compared the well-being among mothers of children with congenital heart defects (CHD) with mothers of children without CHD (controls), at pregnancy and at 6 months postpartum.

Methods

We linked prospective data from the Norwegian Mother and Child Cohort Study (MoBa), conducted by the Norwegian Institute of Public Health, with a nationwide medical CHD registry. In the MoBa cohort of 61,456 mothers, we identified 212 mothers of infants with mild (n = 92), moderate (n = 50), or severe CHD (n = 70). Subjective well-being was operationalized by means of maternal life satisfaction, joy, and anger at the 30th week of gestation and at 6 months postpartum.

Results

Subjective well-being in mothers of children with CHD remained unchanged and similar to that of controls on satisfaction with life (P = 0.120) and feelings of joy (P = 0.065). However, at child age 6 months, mothers of infants with severe CHD reported slightly elevated feelings of anger compared with controls (P = 0.006).

Conclusions

Joy and life satisfaction remained intact among mothers of children with CHD. Yet, elevated feelings of anger in mothers of children with the most severe CHD suggest that they may experience more frustration.
Literatur
1.
Zurück zum Zitat Hobbs, D. F. (1968). Transition to parenthood: A replication and an Extension. Jounal of marriage and familily, 30, 413–417.CrossRef Hobbs, D. F. (1968). Transition to parenthood: A replication and an Extension. Jounal of marriage and familily, 30, 413–417.CrossRef
2.
Zurück zum Zitat Clemente, C., & Others. (2001). Are infant behavioural feeding difficulties associated with congenital heart disease? Child: Care, Health and Development, 27, 47–59.CrossRef Clemente, C., & Others. (2001). Are infant behavioural feeding difficulties associated with congenital heart disease? Child: Care, Health and Development, 27, 47–59.CrossRef
3.
Zurück zum Zitat Saenz, R. B., Beebe, D. K., & Triplett, L. C. (1999). Caring for infants with congenital heart disease and their families. American Family Physician, 59, 1857–1868.PubMed Saenz, R. B., Beebe, D. K., & Triplett, L. C. (1999). Caring for infants with congenital heart disease and their families. American Family Physician, 59, 1857–1868.PubMed
4.
Zurück zum Zitat Allen, S. W., & Others. (2003). Evidence-based referral results in significantly reduced mortality after congenital heart surgery. Pediatrics, 112, 24–28.PubMedCrossRef Allen, S. W., & Others. (2003). Evidence-based referral results in significantly reduced mortality after congenital heart surgery. Pediatrics, 112, 24–28.PubMedCrossRef
5.
Zurück zum Zitat Boneva, R. S., & Others. (2001). Mortality associated with congenital heart defects in the United States: trends and racial disparities, 1979–1997. Circulation, 103, 2376–2381.PubMed Boneva, R. S., & Others. (2001). Mortality associated with congenital heart defects in the United States: trends and racial disparities, 1979–1997. Circulation, 103, 2376–2381.PubMed
6.
Zurück zum Zitat Stark, J., & Others. (2000). Mortality rates after surgery for congenital heart defects in children and surgeons’ performance. Lancet, 355, 1004–1007.PubMedCrossRef Stark, J., & Others. (2000). Mortality rates after surgery for congenital heart defects in children and surgeons’ performance. Lancet, 355, 1004–1007.PubMedCrossRef
7.
Zurück zum Zitat Gantt, L. (2002). As normal a life as possible: Mothers and their daughters with congenital heart disease. Health Care For Women International, 23, 481–491.PubMedCrossRef Gantt, L. (2002). As normal a life as possible: Mothers and their daughters with congenital heart disease. Health Care For Women International, 23, 481–491.PubMedCrossRef
8.
Zurück zum Zitat Knafl, K. (2000). Childhood chronic illness: A comparison of mothers’ and fathers’ experiences. Journal of Family Nursing, 6, 287–302.CrossRef Knafl, K. (2000). Childhood chronic illness: A comparison of mothers’ and fathers’ experiences. Journal of Family Nursing, 6, 287–302.CrossRef
9.
Zurück zum Zitat Solberg, O., & Others (2010). Long-term symptoms of depression and anxiety in mothers of infants with congenital heart defects. Journal of Pediatric Psychology, 36, 179–187. Solberg, O., & Others (2010). Long-term symptoms of depression and anxiety in mothers of infants with congenital heart defects. Journal of Pediatric Psychology, 36, 179–187.
10.
Zurück zum Zitat Diener, E., & Diener, C. (1996). Most people are happy. Psychological Science, 7, 181–185.CrossRef Diener, E., & Diener, C. (1996). Most people are happy. Psychological Science, 7, 181–185.CrossRef
11.
Zurück zum Zitat Folkman, S., & Moskowitz, J. T. (2000). Positive affect and the other side of coping. American Psychologist, 55, 647–654.PubMedCrossRef Folkman, S., & Moskowitz, J. T. (2000). Positive affect and the other side of coping. American Psychologist, 55, 647–654.PubMedCrossRef
12.
Zurück zum Zitat Suh, E., Diener, E., & Fujita, F. (1996). Events and subjective well-being: only recent events matter. Journal of Personality and Social Psychology, 70, 1091–1102.PubMedCrossRef Suh, E., Diener, E., & Fujita, F. (1996). Events and subjective well-being: only recent events matter. Journal of Personality and Social Psychology, 70, 1091–1102.PubMedCrossRef
13.
Zurück zum Zitat Røysamb, E. (2006). Personality and well-being. In M. E. Vollrath (Ed.), Handbook of personality and health (pp. 115–134). New York: Wiley.CrossRef Røysamb, E. (2006). Personality and well-being. In M. E. Vollrath (Ed.), Handbook of personality and health (pp. 115–134). New York: Wiley.CrossRef
14.
Zurück zum Zitat Diener, E. (2009). Subjective well-being. In E. Diener (Ed.), The Science of Well-Being (37th ed., pp. 11–58). Netherlands: Springer.CrossRef Diener, E. (2009). Subjective well-being. In E. Diener (Ed.), The Science of Well-Being (37th ed., pp. 11–58). Netherlands: Springer.CrossRef
15.
Zurück zum Zitat Berant, E., Mikulincer, M., & Shaver, P. R. (2008). Mothers’ attachment style, their mental health, and their children’s emotional vulnerabilities: a 7-year study of children with congenital heart disease. Journal of Personality, 76, 31–65.PubMedCrossRef Berant, E., Mikulincer, M., & Shaver, P. R. (2008). Mothers’ attachment style, their mental health, and their children’s emotional vulnerabilities: a 7-year study of children with congenital heart disease. Journal of Personality, 76, 31–65.PubMedCrossRef
16.
Zurück zum Zitat Arafa, M., & Others. (2008). Quality of life among parents of children with heart disease. Health and Quality of Life Outcomes, 6, 91.PubMedCrossRef Arafa, M., & Others. (2008). Quality of life among parents of children with heart disease. Health and Quality of Life Outcomes, 6, 91.PubMedCrossRef
17.
Zurück zum Zitat Landolt, M. A., Valsangiacomo, E., Latal, B. (2011). Predictors of parental quality of life after child open-heart surgery: A 6-months prospective study. Journal of Pediatric, 158, 37–43. Landolt, M. A., Valsangiacomo, E., Latal, B. (2011). Predictors of parental quality of life after child open-heart surgery: A 6-months prospective study. Journal of Pediatric, 158, 37–43.
18.
Zurück zum Zitat Lawoko, S., & Soares, J. J. F. (2003). Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Quality of Life Research, 12, 655–666.PubMedCrossRef Lawoko, S., & Soares, J. J. F. (2003). Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Quality of Life Research, 12, 655–666.PubMedCrossRef
19.
Zurück zum Zitat Grech, V., & Elliott, M. J. (1998). Evolution of surgical trends in congenital heart disease: a population based study. International Journal of Cardiology, 66, 285–292.PubMedCrossRef Grech, V., & Elliott, M. J. (1998). Evolution of surgical trends in congenital heart disease: a population based study. International Journal of Cardiology, 66, 285–292.PubMedCrossRef
20.
Zurück zum Zitat Magnus, P., & Others. (2006). Cohort profile: The Norwegian mother and child Cohort study (MoBa). International Journal of Epidemiology, 35, 1146–1150.PubMedCrossRef Magnus, P., & Others. (2006). Cohort profile: The Norwegian mother and child Cohort study (MoBa). International Journal of Epidemiology, 35, 1146–1150.PubMedCrossRef
21.
Zurück zum Zitat Irgens, L. M. (2000). The medical birth registry of Norway. Epidemiological research and surveillance throughout 30 years. Acta Obstetricia et Gynecologica Scandinavica, 79, 435–439.PubMedCrossRef Irgens, L. M. (2000). The medical birth registry of Norway. Epidemiological research and surveillance throughout 30 years. Acta Obstetricia et Gynecologica Scandinavica, 79, 435–439.PubMedCrossRef
22.
Zurück zum Zitat Eskedal, L., & Others. (2005). Survival after surgery for congenital heart defects: does reduced early mortality predict improved long-term survival? Acta Paediatrica, 94, 438–443.PubMedCrossRef Eskedal, L., & Others. (2005). Survival after surgery for congenital heart defects: does reduced early mortality predict improved long-term survival? Acta Paediatrica, 94, 438–443.PubMedCrossRef
23.
Zurück zum Zitat Diener, E., & Others. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71–75.PubMedCrossRef Diener, E., & Others. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71–75.PubMedCrossRef
24.
Zurück zum Zitat Izard, C. E., & Others. (1993). Stability of emotion experiences and their relations to traits of personality. Journal of Personality and Social Psychology, 64, 847–860.PubMedCrossRef Izard, C. E., & Others. (1993). Stability of emotion experiences and their relations to traits of personality. Journal of Personality and Social Psychology, 64, 847–860.PubMedCrossRef
25.
Zurück zum Zitat Schafer, J. L., & Graham, J. W. (2002). Missing data: Our view of the state of the art. Psychological Methods, 7, 147–177.PubMedCrossRef Schafer, J. L., & Graham, J. W. (2002). Missing data: Our view of the state of the art. Psychological Methods, 7, 147–177.PubMedCrossRef
26.
Zurück zum Zitat Dempster, A. P., Laird, N. M., & Rubin, D. B. (1977). Maximum likelihood from incomplete data via the EM algorithm. Journal of the Royal Statistical Society Series B (Methodological), 39, 1–38. Dempster, A. P., Laird, N. M., & Rubin, D. B. (1977). Maximum likelihood from incomplete data via the EM algorithm. Journal of the Royal Statistical Society Series B (Methodological), 39, 1–38.
27.
Zurück zum Zitat Tabachnick, B. G. (2007). Using multivariate statistics. Boston: Pearson/Allyn and Bacon. Tabachnick, B. G. (2007). Using multivariate statistics. Boston: Pearson/Allyn and Bacon.
29.
Zurück zum Zitat Hoffman, J. I. E., & Kaplan, S. (2002). The incidence of congenital heart disease. Journal of the American College of Cardiology, 39, 1890–1900.PubMedCrossRef Hoffman, J. I. E., & Kaplan, S. (2002). The incidence of congenital heart disease. Journal of the American College of Cardiology, 39, 1890–1900.PubMedCrossRef
30.
Zurück zum Zitat Bonanno, G. A., & Mancini, A. D. (2008). The human capacity to thrive in the face of potential trauma. Pediatrics, 121, 369–375.PubMedCrossRef Bonanno, G. A., & Mancini, A. D. (2008). The human capacity to thrive in the face of potential trauma. Pediatrics, 121, 369–375.PubMedCrossRef
31.
Zurück zum Zitat Lykken, D., & Tellegen, A. (1996). Happiness is a stochastic phenomenon. Psychological Science, 7, 186–189.CrossRef Lykken, D., & Tellegen, A. (1996). Happiness is a stochastic phenomenon. Psychological Science, 7, 186–189.CrossRef
32.
Zurück zum Zitat Antonovsky, A. (1987). Unraveling the mystery of health: How people manage stress and stay well. London: Jossey-Bass Publishers. Antonovsky, A. (1987). Unraveling the mystery of health: How people manage stress and stay well. London: Jossey-Bass Publishers.
33.
Zurück zum Zitat Vollrath, M. E. (2001). Personality and stress. Scandinavian Journal of Psychology, 42, 335–347.PubMedCrossRef Vollrath, M. E. (2001). Personality and stress. Scandinavian Journal of Psychology, 42, 335–347.PubMedCrossRef
34.
Zurück zum Zitat Lucas, R. E. (2007). Adaptation and the set-point model of subjective well-being: Does happiness change after major life events? Current Directions in Psychological Science, 16, 75–79.CrossRef Lucas, R. E. (2007). Adaptation and the set-point model of subjective well-being: Does happiness change after major life events? Current Directions in Psychological Science, 16, 75–79.CrossRef
35.
Zurück zum Zitat DeNeve, K. M., & Cooper, H. (1998). The happy personality: a meta-analysis of 137 personality traits and subjective well-being. Psychological Bulletin, 124, 197–229.PubMedCrossRef DeNeve, K. M., & Cooper, H. (1998). The happy personality: a meta-analysis of 137 personality traits and subjective well-being. Psychological Bulletin, 124, 197–229.PubMedCrossRef
36.
Zurück zum Zitat Cohn, J. K. (1996). An empirical study of parents’ reaction to the diagnosis of congenital heart disease in infants. Social Work in Health Care, 23, 67–79.PubMedCrossRef Cohn, J. K. (1996). An empirical study of parents’ reaction to the diagnosis of congenital heart disease in infants. Social Work in Health Care, 23, 67–79.PubMedCrossRef
37.
Zurück zum Zitat Garson, A., & Others. (1978). Parental reactions to children with congenital heart disease. Child Psychiatry and Human Development, 9, 86–94.PubMedCrossRef Garson, A., & Others. (1978). Parental reactions to children with congenital heart disease. Child Psychiatry and Human Development, 9, 86–94.PubMedCrossRef
38.
Zurück zum Zitat Nilsen, R. M., & Others. (2009). Self-selection and bias in a large prospective pregnancy cohort in Norway. Paediatric and Perinatal Epidemiology, 23, 597–608.PubMedCrossRef Nilsen, R. M., & Others. (2009). Self-selection and bias in a large prospective pregnancy cohort in Norway. Paediatric and Perinatal Epidemiology, 23, 597–608.PubMedCrossRef
39.
Zurück zum Zitat Meberg, A. (2008). Critical heart defects-the diagnostic challenge. Acta Paediatrica, 97, 1480–1483.PubMedCrossRef Meberg, A. (2008). Critical heart defects-the diagnostic challenge. Acta Paediatrica, 97, 1480–1483.PubMedCrossRef
40.
Zurück zum Zitat Tegnander, E., & Others. (2006). Prenatal detection of heart defects in a non-selected population of 30 149 fetuses-detection rates and outcome. Ultrasound in Obstetrics and Gynecology, 27, 252–265.PubMedCrossRef Tegnander, E., & Others. (2006). Prenatal detection of heart defects in a non-selected population of 30 149 fetuses-detection rates and outcome. Ultrasound in Obstetrics and Gynecology, 27, 252–265.PubMedCrossRef
41.
Zurück zum Zitat Allan, L. D. (1984). Cardiac ultrasound of the fetus. Archives of Disease in Childhood, 59, 603–604.PubMedCrossRef Allan, L. D. (1984). Cardiac ultrasound of the fetus. Archives of Disease in Childhood, 59, 603–604.PubMedCrossRef
42.
Zurück zum Zitat Leithner, K., & Others. (2004). Affective state of women following a prenatal diagnosis: predictors of a negative psychological outcome. Ultrasound in Obstetrics and Gynecology, 23, 240–246.PubMedCrossRef Leithner, K., & Others. (2004). Affective state of women following a prenatal diagnosis: predictors of a negative psychological outcome. Ultrasound in Obstetrics and Gynecology, 23, 240–246.PubMedCrossRef
43.
Zurück zum Zitat Brosig, C. L., & Others. (2007). Psychological distress in parents of children with severe congenital heart disease: the impact of prenatal versus postnatal diagnosis. Journal of Perinatology, 27, 687–692.PubMedCrossRef Brosig, C. L., & Others. (2007). Psychological distress in parents of children with severe congenital heart disease: the impact of prenatal versus postnatal diagnosis. Journal of Perinatology, 27, 687–692.PubMedCrossRef
Metadaten
Titel
Mothers of infants with congenital heart defects: well-being from pregnancy through the child’s first six months
verfasst von
Maria T. Grønning Dale
Øivind Solberg
Henrik Holmstrøm
Markus A. Landolt
Leif T. Eskedal
Margarete E. Vollrath
Publikationsdatum
01.02.2012
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 1/2012
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-9920-9

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