Background
Methods
Categories of data
Data items | |
Category 1
| |
Population-based cancer registry, with or with linkage to administrative inpatient data | Demographics |
Site of cancer | |
Morphology | |
Summary staging information at time of diagnosis (local, regional, distant spread) | |
Type and date of inpatient surgery | |
Co-morbidities (pre-existing and complications) | |
Category 2
| |
Core clinical registry | Type and date of initial treatments |
Intent of treatment (curative versus palliative) | |
Clinical (TNM) stage at diagnosis | |
Performance status | |
Specific prognostic factors (e.g., hormone receptor status for breast cancer) | |
Assessment by multidisciplinary team | |
Participation in clinical trial | |
Category 3
| |
Extended clinical registry or medical record review | Long-term follow up |
Management of disease progression | |
Management of complications of cancer therapies (e.g., anti-emetics, heparin) | |
Details of surgical techniques (e.g., omental covering of anastomosis, on-table colonic lavage) | |
Category 4
| |
Patient interview | Information sharing between clinicians and patients, for example |
Audio-taping of consultation | • Method of breaking bad news |
• Inquiries about how spouse and children were coping | |
• Resolution of family conflicts | |
• Information provided to help woman choose between breast-conserving surgery and mastectomy |
Processes-of-care
Assessment
Results
Type of data required for measurement
Data category | Type of guideline | n (%) | |||||
---|---|---|---|---|---|---|---|
Early breast | Advanced breast | Colorectal | Lung | Melanoma | Total | ||
Category 1
| Level of hospital | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) | 1 (1.2%) | 0 (0.0%) | 1 (0.4%) |
Population-based registry, routine-inpatient data | Surgery; guideline not reliant on clinical stage | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) | 4 (4.8%) | 3 (7.3%) | 7 (2.9%) |
Sub-total
|
0 (0.0%)
|
0 (0.0%)
|
0 (0.0%)
|
5 (6.0%)
|
3 (7.3%)
|
8 (3.3%)
| |
Category 2
| Initial diagnostic or staging procedures | 0 (0.0%) | 0 (0.0%) | 2 (4.3%) | 14 (16.9% | 3 (7.3%) | 19 (7.8%) |
Core clinical registry | Initial treatment in relation to clinical stage-at-diagnosis or performance status or specific prognostic features of the cancer | 15 (60.0%) | 10 (21.3%) | 23 48.9%)) | 23 (27.7%)) | 25 (61.0%) | 96 (39.5%) |
Participation in clinical trial | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) | 2 (1.2%) | 0 (0.0%) | 2 (0.8%) | |
Assessment by multi-disciplinary team; | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) | 2 (1.2%) | 0 (0.0%) | 2 (0.8%) | |
Sub-total
|
15 (60.0%)
|
10 (21.2%)
|
25 (53.2%)
|
41 (49.4%)
|
28 (68.3%)
|
119 (49.0%)
| |
Category 3
| Details of surgery; | 0 (0.0%) | 0 (0.0%) | 10 (21.3%) | 0 (0.0%) | 0 (0.0%) | 10 (4.1%) |
Extended clinical registry medical record review, | Treatments for complications of cancer treatment | 0 (0.0%) | 3 (6.4%) | 2 (4.3%) | 1 (1.2%) | 0 (0.0%) | 6 (2.5%) |
Long-term follow-up; | 1 (4.0%) | 3 (6.4%) | 3 (6.4%) | 2 (2.4%) | 4 (9.8%) | 13 (5.3%) | |
Management of disease progression including pain relief and palliation | 2 (8.0%) | 22 (46.8%) | 6 (12.8%) | 29 (34.9%) | 0 (0.0%) | 59 (24.3%) | |
Sub-total
|
3 (12.0%)
|
28 (59.6%)
|
21 (44.9%)
|
32 (38.6%)
|
4 (9.8%)
|
88 (36.1%)
| |
Category 4
| Communication and information sharing between clinician and patient | 7 (28.0%) | 9 (19.1%) | 1 (2.1%) | 5 (6.0%) | 6 (14.6%) | 28 (11.5%) |
Patient interview, audio-taping of consultation | |||||||
Grand total
|
25 (100%)
|
47 (100%)
|
47 (100%)
|
83 (100%)
|
41 (100%)
|
243 (100%)
|