Background
PICO | PICOS | SPIDER | |
---|---|---|---|
Multiple Sclerosis and patient/service user |
Population |
Population |
Sample |
Health care services |
Intervention |
Intervention |
Phenomenon of Interest |
Named types of qualitative data collection and analysis |
Comparison |
Comparison |
Design |
Experiences, perceptions |
Outcome |
Outcome |
Evaluation |
Qualitative or qualitative method | not applicable |
Study type |
Research type |
Methods
Inclusion and exclusion criteria
Search strategy
SPIDER tool a
| search terms | ||
---|---|---|---|
CINAHL plus | MEDLINE | EMBASE | |
S | [MH Multiple Sclerosis OR TX multiple sclerosis] AND MH patients OR TX service user* or TX service-user* | [exp multiple sclerosis/OR multiple sclerosis.tw]AND [exp Patients/OR patient*.tw OR service user*.tw OR service-user*.tw OR exp consumer participation/OR consumer.tw] | [exp multiple sclerosis/OR multiple sclerosis.tw] AND [exp patient/patient$.tw OR service user$.tw OR service-user$ OR consumer$.tw] |
P and I | MH (health services needs and demands) OR TX health care OR TX health services OR TX care OR MH patient care OR MH health personnel OR MH health services administration OR MH health services OR MH health facilities OR MH mental health services OR MH therapeutics OR TX specialist care MM “Multiple Sclerosis Psychosocial Factors” OR MM “Multiple sclerosis diagnosis” OR MM “Multiple sclerosis drug therapy” | exp “health care facilities, manpower and services”/OR health care.tw OR health services.tw OR exp Health Services Administration/OR exp Therapeutics/OR exp Diagnosis/OR organisations.tw OR exp Health Occupations/OR consultation.tw OR referral.tw OR exp Health Personnel/OR Health Education/OR hospital*.tw OR consultant*.tw OR neurologist*.tw OR doctor* OR practice nurse*.tw OR specialist nurse* OR psychologist*.tw OR general practitioner*.tw OR exp “psychiatry and psychology (non mesh)”/OR exp/Dentistry/ OR exp investigative techniques/OR exp “health care economics and organisations”/ OR specialist care.tw OR mental health services.tw OR mental health care.tw OR secondary care.tw | exp health care/OR health care.tw OR exp health service/OR exp health care organisation/OR exp health care utilization/ OR exp “care and caring”/OR care.tw OR medical care.tw OR exp health care personnel/OR health service$.tw OR health care professional$.tw OR exp health care quality/OR exp terminal care/OR exp health care management/ OR exp medical procedures/OR exp health care facility/OR hospital$.tw OR welfare/or *human needs/or *social welfare OR exp medical ethics/ OR consultant$.tw OR neurologist$.tw OR doctor$.tw OR practice nurse$.tw OR specialist nurse$.tw OR psychologist$.tw OR general practitioner$.tw OR mental health care.tw OR mental health services.tw or psycholog$ services.tw OR specialist care.tw OR secondary care.tw OR primary care.tw OR primary health care.tw |
D | TX qualitative interview OR MH focus groups OR MH content analysis OR MH constant comparative method OR MH thematic analysis OR MH grounded theory OR MH ethnographic research OR MH phenomenological research OR MH semantic analysis OR TX interview* | exp interviews as Topic/OR exp Nursing Methodology Research/OR content analysis.tw OR constant comparative.tw OR grounded theory.tw OR ethography.tw OR interpretative phenomenological analysis.tw | exp interview/OR exp grounded theory/OR exp ethnography/OR interpretative phenomenological analysis.tw OR exp phenomenology/OR focus group$.tw OR exp content analysis/ OR exp thematic analysis/ OR exp constant comparative/ |
E | TX perception* OR MH patient satisfaction OR TX satisf* OR TX value* OR TX perceive* OR TX perspective* OR TX view* OR TX experience OR MH (health services needs and demand) OR TX opinion* OR MH consumer satisfaction OR TX belie* OR MM “Patient Attitudes” OR MM “Attitude to illness” | perceive*.tw OR perception*.tw OR exp Consumer Participation/OR *personal satisfaction/OR exp Consumer Satisfaction/OR satis*.tw OR exp Hospital-Patient Relations/OR exp Professional- Patient Relations/OR value*.tw OR perspective*.tw OR view*.tw OR experience*.tw OR need*.tw OR exp “Health Services Needs and Demand”/OR issue*.tw OR exp Attitude/OR belie*.tw OR opinion*.tw OR feel*.tw OR know*.tw OR understand*.tw | Perception$.tw OR exp satisfaction/OR satis$.tw OR value$.tw OR perceive$.tw OR exp psychological aspect/OR perspective$.tw OR view$.tw OR exp personal experience/OR experience$.tw OR exp health care need/OR need$.tw OR exp human needs/OR issue$.tw OR exp medical ethics/OR opinion$.tw OR exp attitude/OR exp health belief/OR attitude$.tw OR belie$.tw OR feel$.tw OR know$.tw OR understand$.tw |
R | AB qualitative OR MH qualitative studies | exp Qualitative Research/ OR qualitative.tw | qualitative.tw OR qualitative analysis.tw OR exp qualitative research/ |
PICO tool a
| Search terms | ||
---|---|---|---|
CINAHL plus | MEDLINE | EMBASE | |
P | [MH Multiple Sclerosis OR TX multiple sclerosis] AND MH patients OR TX service user* or TX service-user* | [exp multiple sclerosis/OR multiple sclerosis.tw]AND [exp Patients/OR patient*.tw OR service user*.tw OR service-user*.tw OR exp consumer participation/ OR consumer.tw] | [exp multiple sclerosis/OR multiple sclerosis.tw] AND [exp patient/patient$.tw OR service user$.tw OR service-user$ OR consumer$.tw] |
I | MH (health services needs and demands) OR TX health care OR TX health services OR TX care OR MH patient care OR MH health personnel OR MH health services administration OR MH health services OR MH health facilities OR MH mental health services OR MH therapeutics OR TX specialist care MM “Multiple Sclerosis Psychosocial Factors”OR MM “Multiple sclerosis diagnosis” OR MM “Multiple sclerosis drug therapy” | exp “health care facilities, manpower and services”/OR health care.tw OR health services.tw OR exp Health Services Administration/OR exp Therapeutics/OR exp Diagnosis/OR organisations.tw OR exp Health Occupations/OR consultation.tw OR referral.tw OR exp Health Personnel/OR Health Education/OR hospital*.tw OR consultant*.tw OR neurologist*.tw OR doctor* OR practice nurse*.tw OR specialist nurse* OR psychologist*.tw OR general practitioner*.tw OR exp “psychiatry and psychology (non mesh)”/OR exp/Dentistry/OR exp investigative techniques/OR exp “health care economics and organisations”/ OR specialist care.tw OR mental health services.tw OR mental health care.tw OR secondary care.tw | exp health care/OR health care.tw OR exp health service/OR exp health care organisation/OR exp health care utilization/ OR exp “care and caring”/OR care.tw OR medical care.tw OR exp health care personnel/OR health service$.tw OR health care professional$.tw OR exp health care quality/OR exp terminal care/ OR exp health care management/ OR exp medical procedures/OR exp health care facility/OR hospital$.tw OR welfare/or *human needs/or *social welfare OR exp medical ethics/OR consultant$.tw OR neurologist$.tw OR doctor$.tw OR practice nurse$.tw OR specialist nurse$.tw OR psychologist$.tw OR general practitioner$.tw OR mental health care.tw OR mental health services.tw or psycholog$ services.tw OR specialist care.tw OR secondary care.tw OR primary care.tw OR primary health care.tw |
C | n/a | n/a | n/a |
O | TX perception* OR MH patient satisfaction OR TX satisf* OR TX value* OR TX perceive* OR TX perspective* OR TX view* OR TX experience OR MH (health services needs and demand) OR TX opinion* OR MH consumer satisfaction OR TX belie* OR MM “Patient Attitudes” OR MM “Attitude to illness” | perceive*.tw OR perception*.tw OR exp Consumer Participation/ OR *personal satisfaction/OR exp Consumer Satisfaction/ OR satis*.tw OR exp Hospital-Patient Relations/OR exp Professional- Patient Relations/ OR value*.tw OR perspective*.tw OR view*.tw OR experience*.tw OR need*.tw OR exp “Health Services Needs and Demand”/OR issue*.tw OR exp Attitude/OR belie*.tw OR opinion*.tw OR feel*.tw OR know*.tw OR understand*.tw | Perception$.tw OR exp satisfaction/OR satis$.tw OR value$.tw OR perceive$.tw OR exp psychological aspect/OR perspective$.tw OR view$.tw OR exp personal experience/OR experience$.tw OR exp health care need/OR need$.tw OR exp human needs/OR issue$.tw OR exp medical ethics/OR opinion$.tw OR exp attitude/OR exp health belief/OR attitude$.tw OR belie$.tw OR feel$.tw OR know$.tw OR understand$.tw |
PICO tool a
| Search terms | ||
---|---|---|---|
CINAHL plus | MEDLINE | EMBASE | |
P | [MH Multiple Sclerosis OR TX multiple sclerosis] AND MH patients OR TX service user* or TX service-user* | [exp multiple sclerosis/OR multiple sclerosis.tw]AND [exp Patients/OR patient*.tw OR service user*.tw OR service-user*.tw OR exp consumer participation/ OR consumer.tw] | [exp multiple sclerosis/OR multiple sclerosis.tw] AND [exp patient/patient$.tw OR service user$.tw OR service-user$ OR consumer$.tw] |
I | MH (health services needs and demands) OR TX health care OR TX health services OR TX care OR MH patient care OR MH health personnel OR MH health services administration OR MH health services OR MH health facilities OR MH mental health services OR MH therapeutics OR TX specialist care MM “Multiple Sclerosis Psychosocial Factors” OR MM “Multiple sclerosis diagnosis” OR MM “Multiple sclerosis drug therapy” | exp “health care facilities, manpower and services”/OR health care.tw OR health services.tw OR exp Health Services Administration/OR exp Therapeutics/OR exp Diagnosis/OR organisations.tw OR exp Health Occupations/OR consultation.tw OR referral.tw OR exp Health Personnel/OR Health Education/OR hospital*.tw OR consultant*.tw OR neurologist*.tw OR doctor* OR practice nurse*.tw OR specialist nurse* OR psychologist*.tw OR general practitioner*.tw OR exp “psychiatry and psychology (non mesh)”/OR exp/Dentistry/OR exp investigative techniques/ OR exp “health care economics and organisations”/OR specialist care.tw OR mental health services.tw OR mental health care.tw OR secondary care.tw | exp health care/OR health care.tw OR exp health service/OR exp health care organisation/ OR exp health care utilization/OR exp “care and caring”/OR care.tw OR medical care.tw OR exp health care personnel/OR health service$.tw OR health care professional$.tw OR exp health care quality/OR exp terminal care/OR exp health care management/OR exp medical procedures/OR exp health care facility/OR hospital$.tw OR welfare/or *human needs/or *social welfare OR exp medical ethics/OR consultant$.tw OR neurologist$.tw OR doctor$.tw OR practice nurse$.tw OR specialist nurse$.tw OR psychologist$.tw OR general practitioner$.tw OR mental health care.tw OR mental health services.tw or psycholog$ services.tw OR specialist care.tw OR secondary care.tw OR primary care.tw OR primary health care.tw |
C | n/a | n/a | n/a |
O | TX perception* OR MH patient satisfaction OR TX satisf* OR TX value* OR TX perceive* OR TX perspective* OR TX view* OR TX experience OR MH (health services needs and demand) OR TX opinion* OR MH consumer satisfaction OR TX belie* OR MM “Patient Attitudes” OR MM “Attitude to illness” | perceive*.tw OR perception*.tw OR exp Consumer Participation/OR *personal satisfaction/OR exp Consumer Satisfaction/ OR satis*.tw OR exp Hospital-Patient Relations/OR exp Professional- Patient Relations/OR value*.tw OR perspective*.tw OR view*.tw OR experience*.tw OR need*.tw OR exp “Health Services Needs and Demand”/OR issue*.tw OR exp Attitude/OR belie*.tw OR opinion*.tw OR feel*.tw OR know*.tw OR understand*.tw | Perception$.tw OR exp satisfaction/OR satis$.tw OR value$.tw OR perceive$.tw OR exp psychological aspect/OR perspective$.tw OR view$.tw OR exp personal experience/OR experience$.tw OR exp health care need/OR need$.tw OR exp human needs/OR issue$.tw OR exp medical ethics/ OR opinion$.tw OR exp attitude/OR exp health belief/OR attitude$.tw OR belie$.tw OR feel$.tw OR know$.tw OR understand$.tw |
S | AB qualitative OR MH qualitative studies | Exp Qualitative Research/OR qualitative.mp AB qualitative OR MH qualitative studies | Qualitative.tw OR qualitative analysis.tw OR exp qualitative research/ |
Results
PICO search | PICO S search | SPIDER | ||||
---|---|---|---|---|---|---|
Articles found in initial search | Articles included | Articles found in initial search | Articles included | Articles found in initial search | Articles included | |
Database
| ||||||
CINAHL plus | 1350 | After abstract and title =78 | 146 | After abstract and title =56 | 146 | After abstract and title =56 |
After full review =14 | After full review =12 | After full review =12 | ||||
EMBASE | 14250 | After abstract and title =35 | 189 | After abstract and title =15 | 55 | After abstract and title =9 |
After full review =14 | After full review =7 | After full review =3 | ||||
MEDLINE | 8158 | After abstract and title =34 | 113 | After abstract and title =16 | 38 | After abstract and title =14 |
After full review =12 | After full review =6 | After full review =5 |
Number of articles generated
Proportion of relevant articles
Articles identified | Database (search tool used) | |||||||||
---|---|---|---|---|---|---|---|---|---|---|
MEDLINE (PICO) | MEDLINE (PICOS) | MEDLINE (SPIDER) | EMBASE (PICO) | EMBASE (PICOS) | EMBASE (SPIDER) | CINAHL PLUS (PICO) | CINAHL PLUS (PICOS) | CINAHL PLUS (SPIDER) | ||
Lohne et al. [16]. | The lonely battle for dignity | X | X | X | X | X | X | X | X | |
Mackereth et al. [17]. | What do people talk about during reflexology | X | X | |||||||
Isaksson, and Ahlström [18]. | Managing chronic sorrow | X | X | X | X | X | X | X | X | |
Edwards, Barlow & Turner [19]. | Experiences of diagnosis and treatment among people with MS | X | X | X | X | X | X | X | X | X |
Barker-Collo, Cartwright & Read [20]. | Into the unknown: The experiences of individuals | X | X | X | X | X | ||||
Isaksson, & Ahlström [21]. | From symptoms to diagnosis | X | X | X | X | X | X | X | X | |
Miller & Jezewski [22]. | Relapsing MS patients experiences with galtiramer acetate | X | X | X | X | X | X | X | X | X |
Johnson [23]. | On receiving the diagnosis of ms | X | X | |||||||
Miller & Jezewski [24]. | A phenomenologic assessment of relapsing MS patients’ experiences during treatment with Interferon Beta-1(*) | X | X | X | X | X | X | X | ||
Miller [25]. | The lived experience of relapsing ms | X | X | X | X | X | ||||
Aars & Bruusgaard [26]. | Chronic disease and sexuality: An interview study | X | X | |||||||
Rintell et al. [27]. | Patients’ perspectives on quality of mental health care | X | X | X | ||||||
Laidlaw & Henwood [28]. | Patients with multiple sclerosis: Their experiences and perceptions of MRI | X | X | X | ||||||
Koopman & Schweitzer [29]. | The journey to multiple sclerosis | X | X | X | ||||||
Hansen, Krogh, Bangsgaard & Aabling [30]. | Facing the diagnosis | X | ||||||||
Loveland [31]. | The experiences of African Americans and Euro-Americans with multiple sclerosis | X | X | X | ||||||
Moriya & Suzuki [32]. | A qualitative study relating to the experiences of people with MS | X | X | X | ||||||
Classen & Lou [33]. | Exploring rehabilitation and wellness needs of people with MS living in South Florida | X | X | X |
PICO tool
PICOS tool
SPIDER tool
Sensitivity and specificity
Search tool and database | Sensitivity (% relevant texts identified out of all relevant hits) | Specificity (% relevant texts identified out of all hits) |
---|---|---|
CINAHL PICO | 14/18 = 77.78 | 14/1350 = 1.04 |
CINAHL PICO S | 12/18 = 66.67 | 12/146 = 8.22 |
CINAHL SPIDER | 12/18 = 66.67 | 12/146 = 8.22 |
MEDLINE PICO | 12/18 66.67 | 12/8158 = 0.15 |
MEDLINE PICO S | 6/18 = 33.33 | 6/113 = 5.32 |
MEDLINE SPIDER | 5/18 = 27.78 | 5/14 = 35.71 |
EMBASE PICO | 13/18 = 72.22 | 14/14250 = 0.1 |
EMBASE PICO S | 7/18 = 38.88 | 7/189 = 3.7 |
EMBASE SPIDER | 3/18 = 16.67 | 3/55 = 5.45 |