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Supportive Care in Cancer

Erschienen in:

07.05.2020 | Original Article

Preferences for life expectancy discussions following diagnosis with a life-threatening illness: a discrete choice experiment

verfasst von: Amy Waller, Laura Wall, Lisa Mackenzie, Scott D. Brown, Martin H. N. Tattersall, Rob Sanson-Fisher

Erschienen in: Supportive Care in Cancer | Ausgabe 1/2021

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Abstract

Purpose

To explore in a sample of adult cancer patients: (1) the relative influence of initiation source, information format and consultation format on preferred approach to life expectancy disclosure using a discrete choice experiment (DCE); and (2) whether patient age, cancer type and perceived prognosis were associated with preferences within the three attributes.

Methods

A DCE survey of adult solid tumour and haematological cancer patients. Participants chose between three hypothetical scenarios about life expectancy disclosure consisting of three attributes: initiation source (i.e. doctor versus patient-initiated discussion), information content (i.e. estimate presented as best-worst-typical length of life case scenario versus median survival time) and consultation format (i.e. two 20-min versus one 40-min consultation). Respondents selected their most preferred scenario within each question.

Results

Three hundred and two patients completed the DCE (78% consent rate). Initiation source was the most influential predictor of patient choice. More preferred a doctor deliver life expectancy information as soon as it is available rather than waiting for the patient to ask (59% vs 41% z = − 7.396, p < 0.01). More patients preferred the two 20-min rather than the one 40-min consultation format (55% vs 45%, z = 4.284, p < 0.01). Information content did not influence choice. Age, cancer type, and patient-perceived prognosis were not associated with preferences.

Conclusion

Healthcare professionals should assess cancer patients’ preferences for engaging in life expectancy discussions as soon as they have this information, and ensure patients have adequate time to consider the information they receive, seek additional information and involve others if they wish.

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Titel: Preferences for life expectancy discussions following diagnosis with a life-threatening illness: a discrete choice experiment
verfasst von: Amy Waller
Laura Wall
Lisa Mackenzie
Scott D. Brown
Martin H. N. Tattersall
Rob Sanson-Fisher
Publikationsdatum: 07.05.2020
Verlag: Springer Berlin Heidelberg
Erschienen in: Supportive Care in Cancer / Ausgabe 1/2021
Print ISSN: 0941-4355
Elektronische ISSN: 1433-7339
DOI: https://doi.org/10.1007/s00520-020-05498-7

Springer Medizin

Preferences for life expectancy discussions following diagnosis with a life-threatening illness: a discrete choice experiment