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09.11.2017 | Original Article | Ausgabe 4/2018

Supportive Care in Cancer 4/2018

Prevalence and correlates of health information-seeking among Hispanic and non-Hispanic childhood cancer survivors

Zeitschrift:
Supportive Care in Cancer > Ausgabe 4/2018
Autoren:
Kimberly A. Miller, Cynthia N. Ramirez, Katherine Y. Wojcik, Anamara Ritt-Olson, Lourdes Baezconde-Garbanati, Stefanie M. Thomas, David R. Freyer, Ann S. Hamilton, Joel E. Milam

Abstract

Purpose

Childhood cancer survivors (CCS) report high unmet information needs. This study examined the prevalence of cancer-related information-seeking among CCS and investigated associations between information-seeking behavior and positive health outcomes such as follow-up care.

Methods

Participants (n = 193) were young adult CCS diagnosed with cancer in Los Angeles County, 54% of Hispanic ethnicity, with a mean age of 19.87, in remission, and at least 2 years from completion of treatment. CCS were asked where they accessed health information related to their cancer with response options categorized into four information domains: hospital resources, social media, other survivors, and family members. Multivariable logistic regression was used to assess variables associated with each information domain, including sociodemographics, post-traumatic growth (i.e., reporting positive changes since cancer diagnosis), health care engagement, level of education, and health insurance status.

Results

Hospital resources were the most commonly accessed information domain (65.3%), and CCS of Hispanic ethnicity (vs. non-Hispanic) were more likely to access this source. Seeking information from other cancer survivors was positively associated with follow-up care and post-traumatic growth. Hispanic CCS were marginally less likely to seek information from other survivors and family than non-Hispanics.

Conclusions

While CCS obtain information from a variety of sources, hospital resources are an important site for access, particularly for individuals of Hispanic ethnicity. Information sharing between survivors may promote positive health care engagement; however, Hispanic CCS may be less likely to utilize this resource and may face barriers in information sharing with other cancer survivors.

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