Background
Methods
Search strategy and study selection
Data extraction
Data synthesis
Assessment of completeness of reporting
Results
Baseline characteristics
Characteristics | No. (%) N = 180 |
---|---|
Indigenous peoples | – |
Aboriginal and Torres Strait Islanders (Australia) | 73 (40) |
Metis and First Nations (Canada) | 35 (19) |
Native Hawaiian (Hawaiian Islands, United States of America) | 1 (1) |
Māori (Aotearoa) | 21 (12) |
Taiwanese Indigenous Peoples (Taiwan) | 1 (1) |
First Nations Peoples (United States of America) | 49 (27) |
Indigenous research participation | – |
Methodology | 7 (4) |
Consultation/Advisory/Ethics | 49 (27) |
Funding | 8 (4) |
None of the above stated | 116 (64) |
Source of funding | – |
Government | 93 (52) |
Non-Government Organisation | 15 (8) |
Industry | 6 (3) |
Indigenous | 8 (4) |
Not stated | 58 (32) |
Research setting | – |
Database/registry | 60 (33) |
Hospital/outpatient | 22 (12) |
Primary care | 25 (14) |
Community | 34 (19) |
Dialysis unit | 23 (13) |
Genetic samples/laboratory samples | 16 (9) |
Year of publication | – |
1990–1995 | 1 (1) |
1996–2000 | 2 (1) |
2001–2005 | 7 (4) |
2006–2010 | 66 (37) |
2011–2015 | 70 (39) |
2016–2017 | 22 (12) |
2018–2019 | 12 (7) |
Completeness of reporting
Item | Checklist Item | No. of studies reporting number (%) | References |
---|---|---|---|
Research Governance (Indigenous governance and Research Institutions) | |||
1 | Describe partnership agreements between the research institution and Indigenous-governing organization. | 2 (1) | |
2 | Describe any accountability/review mechanism within the partnership agreement that addresses harm minimization. | 0 | – |
3 | Specify how the research partnership agreement includes the protection of Indigenous intellectual property and knowledge arising from the research, including financial and intellectual benefits generated. | 0 | – |
Research Prioritization | – | – | |
4 | Explain how the research aims emerged from priorities identified by either Indigenous stakeholders, empirical evidence. | 0 | – |
Research Relationships (Indigenous stakeholders/participants and Research team) | – | – | |
5 | Specify measures that adhere to and honour Indigenous ethical guidelines. | 8 (4) | |
6 | Report how Indigenous stakeholders were involved in the research processes (i.e., research design, funding, | 42 (23) | |
7 | Describe the expertise in Indigenous health and research of the research team. | 2 (1) | |
Research Methodologies | – | – | |
8 | Describe the methodological approach of the research, including a rationale of methods. | 6 (3) | |
9 | Describe how the research methodology incorporated consideration of the physical, social, economic, and cultural environment of the participants and prospective participants. | 34 (18) (22) | |
Research Participation | – | – | |
10 | Specify how individual and collective consent was sought to conduct future analysis on collected samples and data, other than what was the approved initially (e.g., third parties accessing samples (genetic, tissue, blood) for additional analyses). | 0 | – |
11 | Provide details on how the resource demands (current and future) | 0 | – |
12 | Specify how biological tissue and other samples, including data, were stored/disposed of. | 0 | – |
Research Capacity | – | – | |
13 | Explain how the research supported the development and maintenance of Indigenous research capacity | 11 (6) | |
14 | Discuss how the research team undertook professional development opportunities | 0 | – |
Research Analysis and Interpretation | – | – | |
15 | Specify how the research analysis and reporting supported critical inquiry and a strength-based approach. | 0 | – |
Research Dissemination | – | – | |
16 | Describe how the research findings were disseminated to relevant Indigenous governing bodies and peoples. | 0 | |
17 | Discuss the process for knowledge translation and implementation to support Indigenous advancement | 0 |