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Erschienen in: Supportive Care in Cancer 1/2010

01.01.2010 | Short Communication

To foster healing among adolescents and young adults with cancer: What helps? What hurts?

verfasst von: Brad Zebrack, Mark A. Chesler, Stuart Kaplan

Erschienen in: Supportive Care in Cancer | Ausgabe 1/2010

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Abstract

Purpose

The physical and emotional well-being of adolescents and young adults with cancer (AYA) rests on the ability of all concerned to promote helpful forms of care and reduce hurtful forms. The purpose of this study was to identify aspects of behavior that may promote or inhibit healthy psychosocial adjustment for this age-defined population.

Method

Seventeen young adult cancer survivors participated in focus groups to discuss what people said or did that they found helpful or hurtful. Inductive and deductive techniques of coding and analysis of these qualitative data were performed.

Results

Survivors reported being the recipients of positive and negative communications and behaviors of an informational, practical, interpersonal, and/or emotional character. Most common were comments and actions in the interpersonal realm. More helpful than hurtful comments were reported, except in the informational category, where the “bad news” about cancer and the style of information-sharing created hurt.

Conclusion

How people communicate information, tasks, and feelings to AYA patients and survivors affects how they experience their illness and think about themselves and their current and future situations. All parties—doctors, other medical providers, family members, and friends—need to attend to the manner as well as content of their communications and interactions with AYAs and to the social and emotional context within which communication and interaction occurs. Specific recommendations for the care of AYA cancer patients are offered, emphasizing the importance of attending to the cognitive capabilities and unique developmental challenges associated with adolescence and young adulthood.
Literatur
2.
Zurück zum Zitat Shama W, Lucchetta S (2007) Psychosocial issues of the adolescent cancer patient and the development of the teenage outreach program (TOP). J Psychosoc Oncol 25(3):99–112CrossRefPubMed Shama W, Lucchetta S (2007) Psychosocial issues of the adolescent cancer patient and the development of the teenage outreach program (TOP). J Psychosoc Oncol 25(3):99–112CrossRefPubMed
3.
Zurück zum Zitat Albritton K, Bleyer WA (2003) The management of cancer in the older adolescent. Eur J Cancer 39:2584–2599CrossRefPubMed Albritton K, Bleyer WA (2003) The management of cancer in the older adolescent. Eur J Cancer 39:2584–2599CrossRefPubMed
4.
Zurück zum Zitat Zebrack BJ, Chesler MA, Penn A (2007) Psychosocial support. In: Bleyer AW, Barr RD (eds) Cancer in adolescents and young adults. Springer, Berlin, pp 375–385CrossRef Zebrack BJ, Chesler MA, Penn A (2007) Psychosocial support. In: Bleyer AW, Barr RD (eds) Cancer in adolescents and young adults. Springer, Berlin, pp 375–385CrossRef
6.
Zurück zum Zitat Eiser C, Kuperberg A (2007) Psychological support. In: Bleyer AW, Barr RD (eds) Cancer in adolescents and young adults. Springer, Berlin, pp 365–373CrossRef Eiser C, Kuperberg A (2007) Psychological support. In: Bleyer AW, Barr RD (eds) Cancer in adolescents and young adults. Springer, Berlin, pp 365–373CrossRef
7.
Zurück zum Zitat Zebrack B, Kirby L (2007) Leukemia survivors' perspectives on personal care needs and preferences for peer support programs. Am J Hematol/Oncol 6(4, Supplement 5):10–13 Zebrack B, Kirby L (2007) Leukemia survivors' perspectives on personal care needs and preferences for peer support programs. Am J Hematol/Oncol 6(4, Supplement 5):10–13
8.
Zurück zum Zitat Eiser C, Kuperberg A (2007) Psychological support for adolescents and young adults. In: Bleyer A, Barr RD (eds) Cancer in adolescents and young adults. Springer, Berlin, pp 375–386 Eiser C, Kuperberg A (2007) Psychological support for adolescents and young adults. In: Bleyer A, Barr RD (eds) Cancer in adolescents and young adults. Springer, Berlin, pp 375–386
9.
Zurück zum Zitat Roberts CS, Turney ME, Knowles AM (1998) Psychosocial issues of adolescents with cancer. Soc Work Health Care 27(4):3–18CrossRefPubMed Roberts CS, Turney ME, Knowles AM (1998) Psychosocial issues of adolescents with cancer. Soc Work Health Care 27(4):3–18CrossRefPubMed
10.
Zurück zum Zitat Zebrack B et al (2006) Advocacy skills training for young adult cancer survivors: the young adult survivors conference (YASC) at Camp Mak-a-Dream. Support Care Cancer 14:779–782CrossRefPubMed Zebrack B et al (2006) Advocacy skills training for young adult cancer survivors: the young adult survivors conference (YASC) at Camp Mak-a-Dream. Support Care Cancer 14:779–782CrossRefPubMed
11.
Zurück zum Zitat Chesler M, Barbarin O (1987) Childhood Cancer and the Family. Brunner/Mazel, New York Chesler M, Barbarin O (1987) Childhood Cancer and the Family. Brunner/Mazel, New York
12.
Zurück zum Zitat Miles MB, Huberman AM (1994) Qualitative data analysis: a sourcebook of new methods, 2nd edn. Sage, Thousand Oaks Miles MB, Huberman AM (1994) Qualitative data analysis: a sourcebook of new methods, 2nd edn. Sage, Thousand Oaks
13.
Zurück zum Zitat Chesler M, Parry C (2005) Thematic evidence of psychosocial thriving in survivors of childhood cancer. Qual Health Res 15(8):1055–1073CrossRefPubMed Chesler M, Parry C (2005) Thematic evidence of psychosocial thriving in survivors of childhood cancer. Qual Health Res 15(8):1055–1073CrossRefPubMed
Metadaten
Titel
To foster healing among adolescents and young adults with cancer: What helps? What hurts?
verfasst von
Brad Zebrack
Mark A. Chesler
Stuart Kaplan
Publikationsdatum
01.01.2010
Verlag
Springer-Verlag
Erschienen in
Supportive Care in Cancer / Ausgabe 1/2010
Print ISSN: 0941-4355
Elektronische ISSN: 1433-7339
DOI
https://doi.org/10.1007/s00520-009-0719-y

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