Background
Methods
Setting and participants
Survey measures
PCC
Satisfaction with care
Background characteristics
Analysis
- the standardised root mean square residual (SRMR), a scale-invariant global fit index ranging from 0 to 1 (SRMR < 0.08 indicates good fit);
- the root mean square error of approximation (RMSEA), which according to Steiger [25] should be close to 0.07; and
- the comparative fit index (CFI), which compares the independent (i.e. observed variables are unrelated) and estimated models and should exceed 0.95.
Results
Informal caregiver characteristics
Characteristic | Mean (standard deviation) range or percentage |
---|---|
Age (years) | 61.51 (11.13) 23–90 |
Gender (female) | 56.8% |
Education | |
Low | 10.0% |
Medium | 64.0% |
High | 26.0% |
Marital status (single) | 23.4% |
Time spent caring (≥8 h/week) | 30.3% |
Years caring (≥10) | 82.5% |
Person-centred care score | 3.76 (0.67) 1–5 |
Satisfaction with care score | 3.46 (0.44) 1–4 |
PCC item characteristics
Item | Valid n | Missing | Mean | SD | λ | |
---|---|---|---|---|---|---|
Patients’ preferences | ||||||
1. | Healthcare professionals treat clients with dignity and respect | 285 | 4 (1%) | 4.56 | 0.69 | 0.820 |
2. | Healthcare is focused on improving the quality of life of clients | 286 | 4 (1%) | 4.30 | 0.77 | 0.882 |
3. | Healthcare professionals take clients’ preferences into account | 286 | 4 (1%) | 4.08 | 0.83 | 0.885 |
Physical comfort | ||||||
6. | Healthcare professionals pay attention to pain management | 271 | 18 (6%) | 3.93 | 1.07 | 0.733 |
7. | Healthcare professionals take clients’ preferences for support with their daily living needs into account | 280 | 9 (3%) | 4.05 | 1.00 | 0.740 |
9. | Clients have privacy | 281 | 8 (3%) | 3.78 | 1.04 | 0.575 |
Coordination of care | ||||||
10. | Healthcare professionals are well informed; clients need to tell their story only once | 264 | 25 (9%) | 3.50 | 1.10 | 0.797 |
11. | Care is well coordinated among professionals | 282 | 7 (2%) | 3.76 | 0.93 | 0.785 |
14. | Healthcare professionals work as a team in care delivery to clients | 282 | 7 (2%) | 4.20 | 0.90 | 0.661 |
Emotional support | ||||||
15. | Healthcare professionals pay attention to clients’ anxiety about their situations | 270 | 19 (7%) | 4.02 | 1.02 | 0.903 |
16. | Healthcare professionals involve relatives in the emotional support of clients | 274 | 15 (5%) | 4.01 | 1.06 | 0.836 |
17. | Healthcare professionals pay attention to clients’ anxiety over the impact of their illness on their loved ones (if applicable) | 246 | 43 (15%) | 3.68 | 1.21 | 0.851 |
Access to care | ||||||
18. | The building is accessible to all clients | 279 | 10 (3%) | 4.43 | 0.98 | 0.537 |
19. | Clear directions are provided to and inside the building | 266 | 23 (8%) | 4.28 | 1.00 | 0.595 |
20. | It is easy to schedule an appointment | 284 | 5 (2%) | 4.30 | 0.92 | 0.825 |
Continuity and transition | ||||||
23. | When a client is transferred to another ward, relevant patient information is transferred as well | 264 | 25 (9%) | 4.06 | 1.17 | 0.759 |
24. | Clients who are transferred are well informed about where they are going, what care they will receive, and who will be their contact person | 262 | 27 (9%) | 3.89 | 0.67 | 0.918 |
25. | Clients get skilled advice about care and support at home after discharge | 222 | 67 (23%) | 3.87 | 1.27 | 0.976 |
Information and education | ||||||
27. | Clients can access their care records | 227 | 62 (21%) | 2.47 | 1.66 | 0.701 |
28. | Clients are in charge of their own care | 237 | 52 (18%) | 2.59 | 1.42 | 0.953 |
29. | Healthcare professionals support clients to be in charge of their care | 253 | 36 (12%) | 3.19 | 1.33 | 0.923 |
Family and friends | ||||||
33. | Healthcare professionals involve relatives in decisions regarding patients’ care | 281 | 8 (3%) | 4.38 | 0.93 | 0.786 |
34. | Healthcare professionals pay attention to loved ones in their role as carers for clients | 279 | 10 (3%) | 4.01 | 1.00 | 0.870 |
35. | Healthcare professionals pay attention to the needs of clients’ family and friends | 280 | 9 (3%) | 3.79 | 1.09 | 0.857 |
Fit and factor loading
Internal consistency and inter-correlations
Cronbach’s α | Scale mean (SD) | 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | |
---|---|---|---|---|---|---|---|---|---|---|
1. Patients’ preferences | 0.82 | 4.31 (0.66) | ||||||||
2. Physical comfort | 0.65 | 3.92 (0.80) | 0.69*** | |||||||
3. Coordination of care | 0.73 | 3.83 (0.79) | 0.70*** | 0.71*** | ||||||
4. Emotional support | 0.86 | 3.91 (0.96) | 0.67*** | 0.66*** | 0.66*** | |||||
5. Access to care | 0.61 | 4.34 (0.72) | 0.48*** | 0.45*** | 0.47*** | 0.46*** | ||||
6. Continuity and transition | 0.86 | 3.95 (0.89) | 0.60*** | 0.60*** | 0.66*** | 0.60*** | 0.56*** | |||
7. Information and education | 0.85 | 2.75 (1.30) | 0.34*** | 0.39*** | 0.45*** | 0.34*** | 0.29*** | 0.47*** | ||
8. Family and friends | 0.82 | 4.06 (0.86) | 0.56*** | 0.55*** | 0.59*** | 0.66*** | 0.43*** | 0.54*** | 0.31*** | |
9. Overall PCC | 0.96a | 3.88 (0.67) | 0.81*** | 0.82*** | 0.84*** | 0.82*** | 0.67*** | 0.83*** | 0.64*** | 0.75*** |
Construct validity
Satisfaction with care | |
---|---|
Patients’ preferences | 0.52*** |
Physical comfort | 0.51*** |
Coordination of care | 0.56*** |
Emotional support | 0.47*** |
Access to care | 0.38*** |
Continuity and transition | 0.44*** |
Information and education | 0.35*** |
Family and friends | 0.58*** |
Overall person-centred care | 0.62*** |
Comparison of professionals’ and informal caregivers’ PCC scores
PCC dimension | Mean score, professionals | Mean score, informal caregivers | p-value |
---|---|---|---|
Patients’ preferences | 4.05 (0.58) | 4.32 (0.66) | < 0.001 |
Physical comfort | 3.57 (0.73) | 3.92 (0.80) | < 0.001 |
Coordination of care | 3.64 (0.67) | 3.83 (0.79) | < 0.001 |
Emotional support | 3.64 (0.83) | 3.91 (0.96) | < 0.001 |
Access to care | 3.50 (0.81) | 4.34 (0.72) | < 0.001 |
Continuity and transition | 3.44 (0.84) | 3.95 (0.89) | < 0.001 |
Information and education | 3.08 (0.98) | 2.75 (1.30) | < 0.001 |
Family and friends | 3.89 (0.80) | 4.06 (0.86) | < 0.001 |
Overall PCC | 3.60 (0.55) | 3.88 (0.68) | < 0.001 |