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Quality of Life Research

Erschienen in:

13.09.2021 | Review

A scoping review on studies about the quality of life of informal caregivers of stroke survivors

verfasst von: Ana Moura, Filipa Teixeira, Mariana Amorim, Ana Henriques, Conceição Nogueira, Elisabete Alves

Erschienen in: Quality of Life Research | Ausgabe 4/2022

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Abstract

Purpose

To assess the available evidence regarding the quality of life (QoL) of informal caregivers of stroke survivors, by identifying the instruments used to assess QoL, and its associated characteristics.

Methods

A scoping review was performed, following PRISMA-ScR guidelines. The electronic databases PubMed, ISI Web of Science, PsycINFO, and SciELO were searched for empirical, peer-reviewed, original, and full-length studies on the characteristics influencing the QoL of informal caregivers of stroke survivors. Eligibility and data extraction were conducted by two independent researchers. The main quantitative findings were synthesized, and qualitative data were explored by thematic content analysis.

Results

The included studies, 56 quantitative, 1 qualitative, and 1 mixed methods, were published between 1999 and 2020. A high heterogeneity was found regarding the assessment of QoL, and the characteristics influencing it. Only one study used an instrument specifically designed to assess the stroke caregivers’ QoL. The QoL of informal caregivers was inversely associated with physical and mental health of stroke survivors and caregivers, while stroke characteristics with a better prognosis, caregivers’ positive relationships, and a more supportive and participative social context were positively associated to QoL.

Conclusion

There is a need for standardizing the assessment of the QoL of informal caregivers of stroke survivors, as well as for investing in cross-country/cultural studies with robust mixed methods designs to allow a deeper understanding of the experiences of caregivers. Further research, policies, and practices should consider the diversity and complexity of the characteristics influencing QoL, to empower informal caregivers and improve their QoL.

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Titel: A scoping review on studies about the quality of life of informal caregivers of stroke survivors
verfasst von: Ana Moura
Filipa Teixeira
Mariana Amorim
Ana Henriques
Conceição Nogueira
Elisabete Alves
Publikationsdatum: 13.09.2021
Verlag: Springer International Publishing
Erschienen in: Quality of Life Research / Ausgabe 4/2022
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-021-02988-x

Springer Medizin

Abstract

Purpose

Methods

Results

Conclusion

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